Kei te wiriwiri hoki koe, kāore e taea te whakahaere? Tērā pea he Cerebellar Degeneration tēnei!

Kei te ahua koe kei te ngaro te mana whakahaere i tō tinana i ētahi wā? Kei te ahua koe kei te nekeneke haere koe ina tū koe, ina hikoi rānei, kei te ahua rānei koe kei te pōturi ō kupu ina kōrero koe? Ehara i te mea he mea noa iho ēnei mea. Tērā pea nā te raruraru i roto i tētahi wāhanga iti o tō tātou roro. Koinei te mea ka kōrerohia e tātou i tēnei rā.

He aha te Cerebellar Degeneration? Kia mārama tātou!

Āe, tuatahi, me titiro tātou ki te āhua o tēnei roro iti . He wāhanga iti kei raro iho i tō roro, e kiia nei ko te roro iti . He iti, engari he maha ngā mahi tino nui e mahia ana e ia. Whakaarohia, ka whakahaere i tō taurite , ka āwhina i a koe ki te tū me te hikoi me te kore e nekeneke, ka pupuri i tō kōrero kia mārama, ā, ka āwhina i ō peka kia mahi tika.

He aha te pirau ? Ki te kī māmā noa, ko te pirau ko te kino, te mate haere rānei o ngā pūtau io i roto i te roro iti. Nō reira, ko te pirau o te roro iti he āhuatanga e pakaru ai ngā pūtau io i roto i te roro iti, ā, kāore e taea te mahi tika.

He aha tēnei e tupu nei? He aha ngā take mō tēnei?

He maha ngā take mō tēnei āhuatanga. Me titiro tātou ki ngā mea matua.

1. Te nui rawa o te inu waipiro me te korenga o ngā kai

Koinei te take matua e kitea pinepinetia ana. Ina nui rawa te waipiro e inumia ana e tātou, kāore e ranea te huaora B1 e kiia nei ko te thiamine i roto i te tinana. Tērā pea nā te mea kāore e ranea ana te huaora B1 mai i te kai, kāore rānei e taea e te tinana te mimiti. He mea nui te thiamine mō te mahi a ngā pūtau roro. Ina heke, ka tīmata te pakaru o ngā pūtau roro.

2. Ngā Mate Pūngāwerewere o te Neurogenerative

Tērā ētahi mate e mate haere ai ngā pūtau io i roto i te taurakira me ngā wāhanga rerekē o te roro, inā koa te cerebellum.

• He mate nui tēnei momo te ataxia . Ko tōna āhua he ngaronga o te mana whakahaere me te taunga o te tinana.
• Ko te Atrophy Pūnaha Maha tētahi atu mate.
• Tērā pea ko tētahi atu take he mate onge e kiia nei ko te mate Creutzfeldt-Jakob .
• I ētahi wā ka pāngia tēnei e te mate sclerosis maha (MS) .

Ka taea te tuku iho i ētahi o ēnei mate pūnaha io, arā, ka tukuna iho i ngā mātua ki ngā tamariki mā roto i ngā ira. Ka taea hoki e ētahi te whanake i roto i te oranga.

3. Ngā āhuatanga e puta ana hei urupare ki te mate pukupuku (Paraneoplastic Syndromes)

He kōrero uaua tēnei. Ina pāngia ētahi tāngata e ngā pūtau matepukupuku, ka ngana tā rātou pūnaha ārai mate ki te whawhai ki te matepukupuku. Heoi, i ētahi wā ka tīmata te pūnaha ārai mate ki te whakaeke i ngā pūtau hauora o te roro. Ina pakaru te cerebellum, ka kiia ko ngā Paraneoplastic Syndromes . He tino noa tēnei āhuatanga i roto i te hunga whai matepukupuku pērā i te matepukupuku ū, te matepukupuku ovarian, te matepukupuku uterine, te Lymphoma Hodgkin pakeke, me te matepukupuku pūkahukahu pūtau iti.

Ko wai te mea e tino pāngia ana e tēnei āhuatanga?

Ahakoa kāore e taea te kī ko wai ka pāngia e tēnei mate, he nui ake te mōrearea o ētahi tāngata.

• Hei tauira, ko te mate paraneoplastic i whakahuatia ake nei he nui ake te kitea i waenga i ngā wāhine neke atu i te 50 tau te pakeke.
• Engari i te nuinga o te wā, ka nui ake te tūponotanga ka raru ngā tāne ki te taurite me te taunga o ngā nekehanga i a rātou e pakeke haere ana.
• Ko te ngoikore o te roro e hua mai ana i te waipiro, i te kore kai rānei, ka kitea i te hunga pakeke waenga, inā koa i roto i te hunga kua roa e whakamahi ana i te waipiro.
• Ka pā anō hoki tēnei āhuatanga ki ngā tamariki he mate tuku iho tō rātou.

"Kāore i te tino noa tēnei momo ngoikore o te roro. I raro iho i te 1% o te hunga whai matepukupuku ka pāngia e ngā mate paraneoplastic. Heoi, he nui ake te noa o te ngoikore o te roro i puta mai i te waipiro."

He aha ngā tohu e tika ana kia aro atu tātou?

Tērā pea he rerekē ngā tohu o tēnei mate i ia tangata, engari he maha ngā tohu e kitea whānuitia ana:

• Te ngaronga o te taurite (ngā raruraru taurite) , te pōuriuri, te hurihuri rānei (te pōturi, te pōuriuri rānei). Tērā pea ka rite koe ki te takahurihuri i runga i te papa.
• Te ngoikore o te uaua (Hypotonia) . Tērā pea ka ahua kore ora, ka ngoikore rānei ngā peka.
• Ngā raruraru kanohi: Te kite i ngā mea e rua i te wā kotahi (tirohanga takirua), ngā nekehanga kanohi tere, kore e taea te whakahaere (nystagmus).
• Te kore e taea te whakarite tika i ngā nekehanga o ngā peka (Ataxia) . Hei tauira, ina toro atu koe ki te kapu, ka wiri tō ringa, kāore rānei e taea e koe te toro tika ki te kapu.
• Ngā raruraru ki ngā pūkenga nekeneke o te tinana . Ngā āhuatanga pēnei i te uaua ki te pupuri i tō mahunga kia tika, te kore e taea te whakamahi tika i ō ringaringa, i ō waewae rānei.
• Te wiri, te rūrū rānei o ngā peka me ngā waewae i te wā e ngana ana ki te mahi i tētahi mahi .
• Te hikoi pōturi, te hikoi kore taunga rānei me te whānui o te hikoi, e nekeneke ana mai i tētahi taha ki tētahi taha, me te hikoi me ngā waewae e rua e wherahia whānuitia ana .

Haunga ēnei tohu, tera pea ka pāngia te hunga whai mate paraneoplastic e ētahi atu tohu, inā koa:

• Te ngoikore o te mahara, te kaha ki te whakaaro, me te kaha ki te whakaaro `(Dementia)`.
• He puhoi, he pōturi te kōrero (Dysarthria) .

Waihoki, ko ētahi tāngata e pāngia ana e te pararutiki roro ka pāngia pea e ētahi atu āhuatanga pēnei i:

• Mate Aro-kore/Mate Mahi-Nui (ADHD)
• Mate Autōmia
Te mate hinengaro-ā-hinengaro `(Te mate hinengaro)`

Me pēhea te kite a ngā tākuta i tēnei?

Mena kei a koe ēnei tohu, ina kite koe i te tākuta, ka pātai tuatahi rātou ki a koe mō ō tohu. He aha ō tohu, he aha te kaha o aua tohu, he aha te pānga ki ō mahi o ia rā, me te mea kua pāngia tētahi o tō whānau e tēnei mate.

Kātahi ka tūtohu te tākuta i ētahi whakamātautau hei whakaū i te mate:

• Matawai MRI (Ataahua Āhua-Mate) matawai CT (Tomography Rorohiko) rānei: Ka tangohia e ēnei he pikitia tino mārama o te roro me ōna kiko. Mena he ngoikore te roro, ka taea e ēnei matawai te whakaatu i te mimiti me te mimiti o te cerebellum. Ka taea hoki e rātou te kite i ētahi atu raruraru, pērā i te pukupuku roro, ngā tohu rānei o te whiu.
• Te Tātari Tuaiwi / Te Wero Tuaiwi: Ko te wai e karapoti ana i tō tātou roro me te taura tuaiwi e kiia ana ko te Wai Cerebrospinal (CSF) . Ka tangohia he tauira iti o tēnei wai ka whakamatautauria. I ētahi wā, ka taea te whakamahi i ngā mea kei roto i tēnei wai hei tātaritanga i tētahi mate pūnaha ārai mate, pērā i te mate paraneoplastic.
• Ngā Whakamātautau Toto: I ētahi wā ka tirohia te taumata o ngā paturopi i roto i te toto. Ka taea te piki ake o ēnei paturopi i roto i te hunga mate pukupuku me ngā mate paraneoplastic.
• Whakamātautau Ira: Mena ki te whakaaro te tākuta he mate tuku iho tēnei, ka whakahaerehia pea e ia he whakamātautau ira.

He rongoā katoa tēnei mō tēnei? He aha ngā maimoatanga?

Ki te pono, kāore anō kia kitea he rongoā mō te pararutiki roro i tēnei wā . Heoi, ko te maimoatanga kei runga i te pūtake. He rongoā anō hoki hei āwhina i te whakahaere i ētahi o ngā tohu (pēnei i te wiri, te uaua ki te hikoi, me te whanoke).

• Te maimoatanga o ngā āhuatanga paraneoplastic:
• Maimoatanga matepukupuku: Chemotherapy , Radiotherapy .
• Ngā rongoā ārai mate .
• Te rongoā ārai mate .
• Ka taea te whakamahi tahi i te pokanga hei tango i te pukupuku matepukupuku, me te chemotherapy me te radiation therapy.

• Te maimoatanga mō ngā āhuatanga i puta mai i te waipiro:
• Kati rawa te inu waipiro. Koinei te mea tino nui.
• Ngā huringa kai: Me tāpiri e koe ētahi atu kai kei roto ko te thiamine me ētahi atu huaora B (hei tauira, ngā witi katoa, ngā mīti kikokore, ngā ika) ki tō kai.
• Te tango i ngā tāpiringa thiamine .

Ahakoa te pūtake o te pararutiki roro, tera pea e hiahiatia ngā maimoatanga pēnei i te whakaora tinana, te whakaora mahi, te whakaora kōrero rānei . Ka taea e ēnei te āwhina:

• Whakawhanakehia ngā pūkenga nekeneke kia taea ai e koe te mahi i ngā mahi o ia rā me te kore e mahi takitahi.
• Whakakahangia ngā uaua me te whakapai ake i te taunga o ngā hononga .
• Whakapai ake i ngā uauatanga ki te horomi, ki ngā uauatanga ki te kōrero, me ngā pūkenga reo .

Ka taea te ārai i tēnei?

Ka taea te ārai i te mate wareware i puta mai i te waipiro mā te kore e inu waipiro . Heoi, kāore anō kia kitea he tikanga kua whakamātauhia hei ārai i ētahi atu momo mate wareware.

He aha te mea ka tupu i muri mai? Ka pēhea te whanaketanga o te āhuatanga?

Ko te matapae mō tēnei mate ka whakawhirinaki ki te take matua.

• Mā te rongoā i te mate pukupuku, te whakamutu waipiro, te whakarerekē rānei i tō kai ka taea te whakaroa, te aukati rānei i tēnei hekenga.
• Heoi, i roto i ētahi atu āhuatanga neurodegenerative, ka rerekē pea te tere o te whanaketanga o te mate i roto i te wā .

I te whanaketanga o te mate, ka ngaro pea te taunga o te tinana o te tangata, ā, ka tino hauā. Me whakamahi pea rātou i te tūru wīra , i tētahi atu taputapu āwhina rānei hei hikoi. Ka āwhina anō hoki tēnei ki te ārai i te hinganga. Ki te kore e taea e rātou te mahi i ngā mahi o ia rā, ka ngaro pea tō rātou kaha ki te noho motuhake . Ka takoto noa pea ētahi ki te moenga.

Ki te pāngia ngā tamariki e tēnei āhuatanga, ka pāngia pea rātou e te whakaroa whanaketanga .

Āhea koe me tino kite i te tākuta?

Ki te kite koe i ētahi panoni, i ētahi uauatanga rānei ki tō taurite, ki tō kōrero, ki tō tirohanga, ki ngā mahi o ia rā rānei, me toro atu ki te tākuta tonu . E whakaaro ana ētahi he panoni noa ēnei i a rātou e pakeke haere ana. Heoi anō, he tohu pea ēnei mō tētahi raruraru nui ake. Nō reira, ki te mea he āwangawanga āu, he pai ake kia tirohia koe.

He aha ngā pātai me pātai atu koe ki te tākuta?

Mena kei a koe, kei tētahi rānei o tō whānau he mate roro, he mea pai kia pātai atu koe ki tō tākuta i ēnei pātai:

• He aha ngā huringa āhua noho ka taea e au te mahi kia ora pai ai ahau me tēnei mate?
• Kei hea ahau e whiwhi āwhina ai? (hei tauira, ngā rōpū tautoko)
• Me tīmata rānei ahau i te whakaora tinana, te whakaora mahi, te whakaora kōrero rānei?
• He aha te pūtake o tēnei mate?
• Ka horapa atu anō rānei tēnei mate? Mēnā koinā, kia pēhea te tere?

Ko te mea nui rawa atu me maumahara tātou!

Ko te Cerebellar Degeneration he āhuatanga e pā ana ki te wāhanga o tō tātou roro e whakahaere ana i te taurite, te nekehanga o ngā uaua, me te kōrero. Ka uaua pea te hikoi, te kōrero, me te mahi i ngā mahi o ia rā. He maha ngā take mō tēnei. Ka taea e te rongoā me te whakaora te āwhina ki te whakahaere i ngā pānga o tēnei āhuatanga. Nō reira, he mea nui kia rapu tohutohu hauora mēnā kei a koe ngā tohu.

Te ngoikore o te roro, te pirau o te roro, ngā mate o te roro, te ngaro o te taurite, ngā uauatanga ki te hikoi, ngā mate pūnaha io, te inu waipiro