He mate hopuhopu kei te taha mua o tōu mahunga? (Te Mate Hopu o te Puku o Mua) - Me kōrero tāua mō tēnei!

Kua rongo koe i te 'Frontal Lobe Seizure' me te 'Frontal Lobe Epilepsy'? Tērā pea kua pāngia koe, tētahi atu rānei e mōhio ana koe e tēnei momo mate haurangi. Ahakoa he ahua uaua tēnei, me kōrero noa iho. Nā te mea he mea nui kia mōhio ki tēnei.

He aha te 'Frontal Lobe Epilepsy'?

Ki te whakarapopoto, ko te mate haurangi o te roro o mua he mate hopuhopu e pā ana ki ngā roro o mua , arā, ngā wāhi kei muri i tō rae. Ko ēnei roro o mua te mea nui rawa atu o ngā wāhanga matua e whā o tō tātou roro. Kotahi kei te taha maui, kotahi kei te taha matau. Ko ēnei ā tātou:

• Whanoke me te tuakiri
• Te whakaaro, te ako me te whakatau kaupapa (Te Mātauranga)
• Ngā nekehanga
• Te kōrero

Whakahaere i ngā mea pēnei i te

Nō reira, i roto i te 'haurangi o mua o te roro', he mahi hiko rerekē kei roto i ngā 'haurangi o mua' o te roro. He rite ki te 'poto hiko'. Ka kiia ngā āhuatanga haurangi e puta mai ana i tēnei ko ngā 'haurangi o mua o te roro'. Nō roto ēnei i te momo 'haurangi arotahi'. Arā, ka tīmata te āhuatanga haurangi i tētahi wāhi motuhake o te roro. Ka taea tēnei te tīmata i te 'haurangi o mua' maui o te roro, i te taha matau rānei.

Nā te mea ka puta pinepine ēnei tohu i te pō , ka taea te whakaaro he mate hinengaro, he raruraru moe rānei. Nō reira, he mea tino nui kia tika te tautuhi i te mate.

He momo 'haurangi o te pito o mua'?

Āe, kotahi te momo motuhake. Ko te ingoa ko te 'autosomal dominant sleep-related hypermotor epilepsy' . I mua, i huaina hoki ko te 'autosomal dominant nocturnal frontal lobe epilepsy'. He momo mate haurangi tēnei e puta ana i te wā e moe ana. He maha ngā whānau ka pā mai tēnei momo, arā, ka taea te tuku iho i roto i ngā whakatipuranga.

He aha ngā tohu ka kitea i roto i tēnei āhuatanga?

Ko te tohu matua o te mate haurangi o te pito o mua o te roro he hopu poto e tīmata ana i tētahi wāhi o te roro. Ka puta pea ēnei tohu pēnei i:

• Ngā whanonga rerekē: Ngā mea pēnei i te hamama ohorere, te kata, te kanga, me ētahi atu. Whakaarohia te mataku o ētahi atu mēnā ka mahi ohorere tētahi e moe ana i tētahi mea pēnei.
• Te tahuritanga o te upoko, o ngā kanohi rānei ki tetahi taha.
• Te whana i ō waewae, te mahi rānei i ngā nekehanga pēnei i te eke pahikara.
• Te wiri, te oho rānei.
• Ngā nekehanga kore whakahaere, auau (hei tauira, te ru tere o ngā ringa me ngā waewae).
• Te wiriwiri, te wiriwiri rānei e auau ana.
• Te ngaronga o te māramatanga, te mōhio rānei ki te taiao (pērā i te titiro ki te rangi).
• Te kore e taea te pupuri i te mimi, te paru rānei.
• Te ngoikore o te uaua.
• Te uaua ki te kōrero.
• Ngā panonitanga o te tuakiri.
• Ngā raruraru moe.

He maha ngā wā ka puta mai ēnei 'ohorere' i roto i ngā rōpū, arā, ka taea te puta neke atu i te rua ngā wā i roto i ngā haora 24. I te nuinga o te wā ka puta i a koe e moe ana , engari ka taea hoki e rātou te puta i a koe e ara ana. He poto noa iho hoki te roa, he iti iho i te meneti te roa.

I ētahi wā, i mua i te tīmatanga o te mate hopuhopu, tera pea ka pā mai he 'aura' , he kare ā-roto rerekē. Kei roto i ēnei ko:

• Ngā panonitanga ohorere o ngā kare ā-roto: pērā i te wehi, te manukanuka, te riri, te pōuri, te harikoa rānei.
• Ngā kare ā-roto rerekē: Pērā i te ngoikore.
• Ngā panonitanga ki te tirohanga a ngā pūoko: ngā panonitanga ki te hongi, te rongo, te tirohanga, te reka, te pā rānei.

I muri i te mate hopu o te pito o mua o te roro, ka pāngia pea koe e te pōhēhē, te ngaro o te mahara, te mamae rānei o te uaua . Ka kiia tēnei ko te āhua postictal .

He aha ngā pūtake o te 'haurangi o te pito o mua'?

Ko te mate haurangi o te pito o mua ka puta mai i te mahi hiko rerekē i roto i tō pito o mua. I te nuinga o te wā, ka tukuna ngā tohu e ngā pūtau io o tō tātou roro, e kiia nei ko ngā neuron , ki a rātou anō. Engari i roto i te mate haurangi o te pito o mua, ka mura haere ēnei neuron i waho o te mana whakahaere.

Ko ngā take noa ka pā ki tēnei ko:

• Te whanaketanga rerekē o te roro i te wā e whānau ana.
• Ngā mate pukupuku o te roro.
• Te whiu.
• Ngā whara nui o te upoko (Whara roro whara).
• Puku roro.
• Ngā rerekētanga ira.

I ētahi wā, kāore pea e kitea e koe he take.

He mea tēnei nō ngā whakatipuranga?

Ae, ka taea te tuku iho i tētahi momo mate haurangi o te pito o mua mai i ngā mātua ki ngā tamariki, engari he onge noa iho. Ko te momo mate haurangi hypermotor e pā ana ki te moe i kōrerohia e tātou i mua ake nei he mate autosomal dominant. Ko te tikanga tēnei, ki te whai tētahi o ngā mātua i tēnei momo ira, tera pea ka riro i te tamaiti.

Ko wai te mea tino mōrearea ki tēnei mate?

Ka pāngia te tangata e te mate haurangi o te pito o mua, ahakoa te pakeke. Heoi anō, tera pea ka nui ake tō mōrearea mō ēnei take:

• Mena he mate haurangi (hītori whānau tūturu) tō tetahi o tō whānau.
• Mena i pāngia koe e te mate roro i tō tamarikitanga.
• Mena kua pāngia koe e te whiu, he whara nui o te mahunga, he pukupuku, he kino rānei ki te pito o mua o te roro.
• Mena he whakaroa te whanaketanga.
• Mena i whānau mai koe me ngā hapa o te roro i te wā i whānau ai koe.

He aha ngā mea e whakaoho ana i te pikinga ake o ngā hopukanga o te pito o mua o te tinana?

Ko ngā 'mea whakaoho' he mea e whakanui ake ai i te tūponotanga o ngā hopukanga haurangi. Ko ngā 'mea whakaoho' noa ko:

• Te ahotea.
• Ngā rama e kanapa ana.
• Te kore moe.
• Te whakamahinga o ngā matū.

Ka rerekē pea ēnei i ia tangata, i ia tangata . Mā te pupuri i tētahi tuhinga o āu mahi me ō kare ā-roto i mua i te tīmatanga o te mate haurangi ka āwhina i a koe ki te tautuhi i ngā mea e pā ana ki a koe.

He kino ngā 'ohorere o te pito o mua'?

Ka taea e ngā mate hopu pinepine o te pito o mua te hua i ēnei e whai ake nei:

• Te pikinga ake o te mōrearea o te whara.
• Te āhua o te mate epilepsy: Ngā mate e neke atu ana i te rima meneti te roa. He āhuatanga ohorere tēnei e morearea ana ki te ora.
• Te matenga ohorere kāore i te mārama i roto i te mate haurangi (SUDEP): He tino onge tēnei, engari ka taea tonu.

He maha ngā wā ka pā kino te mate haurangi ki tō hauora hinengaro me tō oranga ngākau. Nō reira, hei tāpiri atu ki ētahi atu maimoatanga kua tohua e te tākuta, whakaarohia te kōrero ki tētahi kaitohutohu hauora hinengaro .

Ki te mea kei te whakaaro koe ki te whakamomori, me toro atu ki te tākuta tonu, me kōrero rānei ki tētahi e whakawhirinaki ana koe . He wāhi kei Sri Lanka ka taea e koe te tiki āwhina mō tēnei (hei tauira, Sumitrayo 0112682535). Kia maumahara, kāore koe i te mokemoke, kaua hoki e wehi ki te tono āwhina.

Me pēhea te tātaritanga o te 'haurangi o te pito o mua'?

Hei tautuhi i te mate haurangi o te pito o mua o te tinana, ka arotakehia e tō tākuta tō hītori hauora, ā, ka whakahaerehia he whakamātautau tinana. Hei tāpiri, ka tonoa pea ētahi whakamātautau hei whakaū i te tautuhi.

Ngā whakamātautau tātaritanga

Anei ngā whakamātautau hei āwhina i te tautuhi i te 'frontal lobe epilepsy':

• Matawai MRI (Atahanga Āhua-Mate): Ka taea e tēnei te tango pikitia taipitopito o tō roro. Ka āwhina tēnei ki te kite mēnā he pukupuku, he whara, he raruraru rānei e puta ai ō mate haurangi.
• EEG (Electroencephalography): Mā tēnei ka hopukina ngā mahi hiko o tō roro. Ka āwhina tēnei ki te kimi i te wāhi e tīmata ai te mate hopuhopu.
• Ataata EEG: Kei roto i tēnei ko te tuhi i ngā mahi a tō roro me ō nekehanga me ō whanonga. Tērā pea me noho koe i te hōhipera mō te pō. Nā te mea he maha ngā mate hopu o te roro o mua e puta ana i te wā e moe ana, ka taea hoki te mahi i tētahi rangahau moe.
• Te whakamātautau hiko-ā-roto (SEEG):I tēnei mahi, ka whakauruhia e te taote pokanga ngā hikohiko ki roto i tō roro. Ka taea e ēnei taputapu te kite i ngā mahi hopuhopu i roto rawa i te roro kāore e kitea e te EEG. I te nuinga o te wā ka mahia he SEEG mēnā kāore ō hopuhopu e taea te whakahaere e te rongoā, ā, mēnā kei te whakaarohia te pokanga roro.
• Magnetoencephalography (MEG): Ka tuhia e tēnei whakamātautau te ngohe aukume i puta mai i te ngohe hiko o te roro, hei āwhina i te tautuhi i ngā wāhi o te ngohe roro rerekē.

Hei tāpiritanga, ka whakahaerehia pea e te tākuta he whakamātautau neuropsychological hei whakatau mena kei te pāngia te mahi a te roro e ngā haurangi.

He aha ngā maimoatanga mō tēnei?

Ko te whāinga matua o te maimoatanga mō te mate haurangi o te pito o mua o te tinana ko te whakaiti i te maha o ngā mate haurangi o te pito o mua o te tinana. Tērā pea ka tūtohu tō tākuta i ngā maimoatanga pēnei i:

• Ngā rongoā ārai-hōhā
• Te pokanga mate haurangi
• 'Neuromodulation'

Hei tāpiritanga, ka tūtohu pea tō tākuta kia hurihia tō kai me te huri ki tētahi kai nui te ngako, iti te warowaihā (hei tauira, he 'kai ketogenic mō te mate haurangi' ).

Ngā Rongoā Ārai-Hopu mō ngā Hopu o te Lobe o Mua

Ka taea e ngā rongoā ārai mate haurangi te āwhina ki te whakahaere i ngā mate hopuhopu o te roro. Ka whakahaere ēnei rongoā i ngā mahi hiko o te roro, ā, ka whakaiti i te auau o ngā mate hopuhopu. Koinei te nuinga o te wā ko te raina tuatahi o te maimoatanga.

Ka arotakehia e tō tākuta ō tohumate, ā, ka tohua te rongoā tika māu. I mua i te tīmatanga o tētahi rongoā hou, ka whakamāramahia hoki e ia ngā pānga taha pea. Me whakarerekē pea e tō tākuta te horopeta, te momo rongoā rānei kia kitea rā anō e koe te rongoā tika māu.

Te Pokanga mō ngā 'Hōhenga o te Lobe Front' (Pokanga Matepukupuku)

Mena kāore e taea e ngā rongoā te whakahaere i ō mate hopuhopu o te roro o mua, ka whakaarohia pea e tō tākuta te pokanga hei rongoā i te mate haurangi. Ka tūtohu pea tō tākuta i te tango i te roro o mua . Ko te tikanga o tēnei ko te tango i te wāhanga e pāngia ana o te roro o mua e tīmata ai ngā mate hopuhopu. Tērā pea ka tangohia he pukupuku roro, he kino rānei i taua wāhi.

I mua i te pokanga, ka whakamahia e tō taote pokanga ngā momo matawai whakaahua hei hanga mahere taipitopito o tō roro. Tērā pea ka whakauruhia e ia ngā irahiko ki roto i te pokanga mō tētahi momo 'stereo-EEG (SEEG)' motuhake hei hopu mai i roto i te roro. Mā ēnei mōhiohio katoa e āwhina tō tīma pokanga:

• Tāutuhia ngā wāhanga motuhake o te roro e puta ai ngā haurangi.
• Kia tūpato kei kino ngā wāhanga o te 'frontal lobe' e whakahaere ana i ngā mahi nui o te roro.

Neuromodulation mō ngā mate hopu o te pito o mua

I ētahi wā, kāore pea i te haumaru te pokanga hei rongoā i ngā mate hopu o te roro o mua. Mēnā koinei te āhua, ka tūtohu pea tō tākuta i tētahi maimoatanga e kiia nei ko te neuromodulation. Ka whakamahia e tēnei maimoatanga tētahi taputapu kua whakatōkia ki roto i te tinana hei tuku i ngā hiko ki te roro, hei whakamutu i te mate hopu i mua i tōna tīmatanga.

Ko ngā momo taputapu neuromodulation e whakamahia whānuitia ana ko:

• Te Whakaoho i te Io Vagus (VNS): Ka whakatōngia e te taote pokanga he taputapu iti ki raro i te kiri o tō uma. Ka honoa ki tētahi waea. Ka takai te waea ki te io vagus i tō kaki, ka tukuna he pāoro ki taua io. Ka taea e ētahi taputapu VNS te kite i ngā huringa o te tere o te ngakau i te wā e pāorooro ana, ā, ka tukuna atu he pāoro hiko atu ki te io vagus.
• Whakaohooho Roro Urupare (RNS): He taputapu te RNS kua whakatōkia ki roto i tō tumuaki. Ka aroturukihia e te RNS ngā mahi a tō roro, ā, ka tukuna he pāoro hiko ina kitea he mate haurangi.
• Te Whakaoho Roro Hōhonu (DBS): Ka whakauruhia e te taote pokanga he taputapu DBS ki roto i tō uma. Ka honoa ōna waea ki ngā irahiko kua whakauruhia ki roto i tō roro. Ka hōtakahia e te tākuta tēnei taputapu ka tukuna ngā hiko ki tō roro.

He aha te tirohanga mō te mate haurangi o te pito o mua? (Tirohanga)

Ka taea e tō tākuta te hoatu ki a koe ngā kōrero pai rawa atu mō tō tirohanga. He rerekē i ia tangata, i runga i ngā āhuatanga maha, pērā i tō hauora whānui me te auau o te pāngia e ngā mate haurangi.

Ka taea e ngā rongoā te āwhina i te whakahaere i ngā mate hopuhopu mō te wā roa. Engari i ētahi wā, kāore e pai te mahi a ngā rongoā mō te katoa. Ko te pokanga pea tētahi atu kōwhiringa. Ahakoa kāore he rongoā mō te mate haurangi o te pito o mua, he maha ngā tāngata ka pāngia e te hekenga o ngā mate hopuhopu, ka ngaro katoa rānei i muri i te whakakotahitanga o ngā rongoā, o te pokanga rānei.

Mā tō tākuta koe e kōrero ki ngā kōwhiringa maimoatanga hei āwhina i a koe kia noho haumaru.

Āhea koe me toro atu ki te tākuta?

Tirohia te tākuta mēnā ka puta he tohu hou, ka kino haere rānei ō tohu. Me whakarite kei te pai te mahi a tō maimoatanga, ā, me whai i ngā wā i whakaritea e tō tākuta . Kōrero atu ki tō tākuta mēnā ka pāngia koe e ngā pānga taha i muri i te tīmatanga o tētahi rongoā hou.

He aha taku e pātai atu ai ki taku tākuta?

Mena he mate haurangi tōu i te pito o mua o te waha, me pātai atu pea koe ki tō tākuta mō:

• He aha te momo maimoatanga e taunaki ana koe?
• He aha ngā pānga taha o te maimoatanga?
• He haumaru te tango i ngā rongoā ārai mate haurangi mēnā kei te whakaaro ahau ki te whakatū whānau?
• Me pēhea taku noho haumaru i te wā o te 'rū whenua'?
• E tika ana ahau mō te pokanga?

Whakarāpopototanga me ngā mea hei maumahara

He tino hira te mahi a ngā wāhanga nui e rua o tō tātou roro, arā, ngā pito o mua o te roro. Engari ki te kore he hapa e pā ki tēnei wāhanga o te roro, kāore tātou e tino mārama ki tōna uara. Waimarie, kei reira ngā kōwhiringa maimoatanga mō te mate haurangi pito o mua o te roro me ngā mate hopuhopu e puta mai ana i taua mate.

Mā tō tākuta koe e āwhina ki te whiriwhiri i tētahi, i ētahi atu rānei rongoā e tika ana māu. Kaua e manukanuka ki te kore e whai hua ngā rongoā. I ētahi wā, he pai ake pea te pokanga, te neuromodulation rānei mō tō roro. Ahakoa te maimoatanga e whiriwhiria e koe, kei reira tō tīma hauora hei whakautu i ō pātai. Ki te hiahia koe, ka taea hoki e rātou te taunaki i tētahi rōpū tautoko , i tētahi rōpū tohutohu rānei. Kia mahara, ehara i te mea ko koe anake i tēnei haerenga!

` Te mate haurangi, te pūmua o mua, ngā haurangi, ngā mate roro, ngā mate pūnaha io, ngā tohu, te maimoatanga