Kua huri whakarere tetahi o ōu whanaunga? Tērā pea he mate wareware o te roro (frontotemporal dementia - FTD)?

Whakaarohia, tōu pāpā, tōu tāne, tōu hoa rangatira rānei... Kātahi ka tino rerekē tana whanonga. Ko te tangata i mua he tino atawhai, he tangata whakahoahoa, inaianei ka kōrero kino ki ētahi atu, ā, ka whanonga hē i roto i te hapori. Tērā pea ka whakaaro koe he momo raruraru hinengaro tēnei, he rite ki te pouri pea. Engari, he rerekē pea tēnei, he mate e pā ana ki te roro. I tēnei rā kei te kōrero tātou mō tētahi mate e puta ai ēnei huringa, he rerekē i te mate a Alzheimer, engari he maha ngā tāngata kāore e mōhio. Ko te Frontotemporal Dementia, ko te FTD rānei.

He aha te Mate wareware o te taha mua o te wā (Forthodontie Frontotemporal Dementia - FTD)?

Ki te whakarapopoto, ko te FTD he āhuatanga e puta ana ina pāngia ngā pito o mua me te pito o te roro. Koinei ngā wāhanga e whakahaere ana i tō tātou tuakiri, whanonga, me te reo. Nō reira, ina pāngia ēnei wāhanga, ka nui atu ngā tohu i te ngaronga o te mahara. Ka taea te huri i te whanonga o te tangata, te āhua o tā rātou kōrero, te āhua o tā rātou mārama ki ngā kupu, tae atu ki ngā nekehanga o ō rātou tinana .

Ahakoa kāore te FTD i te tino mōhiotia pērā i te mate a Alzheimer, kei waenganui i te 10% me te 20% o te hunga e pāngia ana e te mate wareware he momo FTD. Ka pā nui ki te oranga nā te mea ka tīmata wawe atu i ētahi atu momo mate wareware, i waenganui i te 45 me te 60 tau te pakeke .

Nā ngā tohu tōmua, pērā i te pakeke, te ngākau kino, te mahi kino rānei, he maha ngā wā ka hē te tautuhi he mate hinengaro. Koinei tētahi o ngā take nui e whakaroahia ai te FTD i te tīmatanga. Tērā pea ka kīia e tō tākuta ko te mate a Pick.

He aha ngā momo matua o te FTD?

Ka taea te wehewehe i te FTD ki ētahi wāhanga matua i runga i ngā tohu e puta tuatahi mai ana. Kia mārama ai tēnei, me titiro tātou ki tēnei ripanga.

He aha ngā tohu pea o te FTD?

He rerekē ngā tohu o te FTD i ia tangata, i ia tangata. Ka kino haere i te roanga o te wā. Me titiro tātou ki ēnei tohu i raro i ētahi wāhanga.

Ngā huringa whanonga

• Kāore e tika ana mō te hapori: Ka kōrero i ō whakaaro me te kore whakama. Ka kōrero i ngā mea whara ki ētahi atu, ka tata rawa ki ētahi atu.
• Te ngaronga o te aroha: Te kore e taea te mārama ki ngā kare ā-roto o ētahi atu. Tērā pea ka mahi ia me te mea he tino mātao te ngākau o te tangata.
• Te kore aro, te kore rānei e aro ki ngā mea i pai ai koe ki mua.
• Te tāruarua i ngā mea ōrite anō: Te mahi i ngā mea pēnei i te papaki ringa, te ngau ngutu, me ētahi atu. Te tāruarua i ngā kupu me ngā oro ōrite anō.
• Te wareware i te akuaku whaiaro: te kore parai i ngā niho, te kore kaukau rānei.
• Ngā panonitanga ki ngā tikanga kai: Te kai i te nui o ngā mea reka i te wā kotahi, i ētahi wā ka ngana koe ki te kai i ngā mea kāore e pai mōu.

Ngā rerekētanga o te kōrero me te reo

• He uaua ki te kimi i ngā kupu tika i te wā e kōrero ana.
• Kei te ngaro te tikanga o ngā kupu.
• He tino māmā, he poto hoki ngā rerenga kōrero e kōrero ana.
• I ētahi wā, kāore pea e whai tikanga ngā mea e kōrerotia ana.

Ngā huringa o te nekehanga o te tinana

• Te uaua ki te neke i ngā kanohi.
• Te wiri o te tinana, te wiri o ngā uaua.
• Te pakari o te tinana.
• Te ngaronga o te mana whakahaere o te tinana.
• Te uaua ki te horomi i te kai.
• He pōhēhē te kōrero.
• Ka hinga ahau, ka uaua te hikoi.

He aha ngā take me ngā āhuatanga mōrearea mō te FTD?

I te matenga o ngā pūtau roro (ngā neuron) i roto i te hunga whai FTD, ka mimiti haere ngā wāhanga o te roro. E whakapono ana ngā kaipūtaiao nā te mahi rerekē o ētahi pūmua e hangaia ana e ō tātou tinana tēnei i hua ai. Ina koa, nā te kohikohinga o ngā momo rerekē o ngā pūmua e rua e kiia nei ko te tau me te TDP-43 i roto i te roro i puta ai tēnei kino.

Tata ki te 40% o ngā tūroro FTD he hītori whānau tō rātou mō te mate . Ko te tikanga he ira tuku iho pea. Hei tāpiri, ka taea e ētahi atu āhuatanga te whakanui ake i te mōrearea:

• He whara nui o te upoko: Ka taea e tēnei te whakanui ake i te mōrearea o te whakawhanake i te FTD mā te toru ngā wā.
• Mate tairoi: Ka nui ake i te rua te mōrearea o tēnei.

Me pēhea te tautuhi i te FTD?

He uaua pea te tautuhi tika i te FTD nā te mea he rite tonu ōna tohu ki ētahi atu mate, pērā i te mate a Parkinson, te mate a Alzheimer, te pouri, me te mate schizophrenia .

Ka pātai te tākuta mō tō hītori whānau, ā, ka tono pea ia i ngā whakamātautau toto hei whakakore i ētahi atu mate. He maha ngā wā ka tukuna koe e ia ki tētahi tākuta roro. Ka whakamātautau ia i ngā mea pēnei i tō taurite, ō urupare, tō mahara, me ō pūkenga whakaaro. Tērā pea ka tonoa ētahi whakamātautau pēnei hei whakaū i te FTD:

• Matawai CT: He whakaahua hihi-X taipitopito o te roro.
• Matawai MRI: Ka whakamahia ngā aukume me ngā ngaru reo irirangi hei whakaputa whakaahua tino mārama o te roro.
• Matawai FDG-PET: Ka werohia he matū irahiko ki roto i te uaua hei tirotiro i te kaha o ngā wāhanga rerekē o te roro.
• EEG (electroencephalogram): Te ine i te ngohe hiko o te roro.
• Te tātaritanga tuaiwi: Te tirotiro i te wai e karapoti ana i te roro me te taurakira.
• Whakamātautau hinengaro-ira: Ko ngā whakamātautau e ine ana i ngā pūkenga hinengaro pēnei i te mahara, te pūkenga reo, me te pūkenga whakaaro ka inehia mā roto i ngā pātai, te tuhi pikitia, me te whakaoti panga.

He aha ngā maimoatanga mō te FTD?

Engari, kāore he rongoā, he rongoā rānei mō te FTD. Kāore ngā rongoā e whakamahia ana hei rongoā i te mate a Alzheimer e whai hua mō te FTD. I ētahi wā, ka taea e ēnei rongoā te whakakino ake i ngā tohu.

Heoi anō, kei reira ētahi rongoā me ngā maimoatanga hei āwhina i te whakahaere i ngā tohu:

• Ngā rongoā ārai pouri: Ka whakahaere i ngā raruraru kare ā-roto me ngā whanonga.
• Ngā rongoā ārai hinengaro: Ahakoa ka taea e rātou te āwhina ki te whakahaere i ngā raruraru whanonga kino, ka pā mai he pānga taha kino. Ka whakamahia anake ēnei i raro i te tirotiro tata a te tākuta.
• Whakaora kōrero: Āwhina mō ngā raruraru whakawhitiwhiti kōrero.

Te noho tahi me te manaaki i te FTD

He wero nui tēnei mate mō te tūroro me te whānau. Nō reira, he mea tino nui te rapu āwhina i tētahi tākuta e mōhio ana ki te mate i te wā tonu e kitea ai tōna mate.

Mena he kaitiaki koe mō tētahi e pāngia ana e te FTD...

He tino hoha tēnei haerenga mō te kaitiaki. Anei ētahi mea hei āwhina i a koe:

• Puritia he rātaka: Tuhia ngā huringa o te whanonga a te tūroro me ngā mea e puta ai aua huringa. Mā tēnei ka āwhina i a koe ki te karo i ngā āhuatanga raruraru.
• Whakatūria he mahinga auau: Tērā pea ka kitea e te tūroro he whakamarie mai i ngā mahi pēnei i te whāngai me te kaukau i te wā kotahi.
• Whakamāramahia te āhuatanga ki ētahi atu: Whakamōhiotia te āhua o te tūroro ki ngā manuhiri me ngā whanaunga i mua i te wā.
• Whakaarohia hoki koe: He mea tino nui tēnei. Ka taea anake e koe te tiaki pai i te tūroro mēnā kei te ora tō tinana me tō hinengaro. Kai pai, moe pai, me te whakakori tinana. Rapua he āwhina mai i tētahi atu hei āwhina i a koe (tiaki wā poto).
• Whakamahere mō te heke mai: I roto i te wā, ka hiahiatia he tiaki mō te 24 hāora. Tērā pea ka hiahiatia he tiaki i roto i tētahi whare tiaki kaumātua. He mea nui kia whakamaheretia i mua mō tēnei.

Ko te roanga o te oranga i muri i te tātaritanga o te FTD he tata ki te 7.5 tau. He nui ake te tūponotanga ka mate i ngā raruraru o te mate i te mate tonu. Hei tauira, ko te niumōnia nā te uaua ki te horomi tetahi o ngā tino take o te mate.