Kāore pea he wā ataahua atu i te ao i te wā e tatari ana koe kia noho hei whaea. E moemoeā ana ia whaea ki te moemoeā mō te pēpi e tipu ana i roto i tōna kōpū mō ngā marama tekau, me te tumanako ka pai ngā mea katoa. Heoi, i ētahi wā ka rongo tātou i ngā kōrero ohorere mai i te tākuta. Ina koa i muri i te matawai ultrasound i te wā e hapu ana, ki te kitea he hapa whānau tō te pēpi, he uaua ki te whakapuaki i te mamae me te ohorere e pā ana ki ngā mātua. I tēnei rā ka kōrero tātou mō te 'Spina Bifida', he mate kino, engari nā ngā maimoatanga hou, kei reira te tumanako.
He aha te Spina Bifida?
Ko te spina bifida he hapa whānau e puta ana i ngā wiki tuatahi o te oranga o te pēpi. Whakaarohia tō tātou tuaiwi hei hipoki tiaki e tiaki ana i te taurakira, he pūnaha io nui e whakahaere ana i tō tātou tinana katoa. I roto i te spina bifida, kāore ngā wheua o te tuaiwi e kati tika, ka waiho he whakatuwheratanga, he kōhao rānei i roto i te tuaiwi.
Ka pā kino tēnei whakatuwheratanga ki te taurakira me ngā io e hono ana ki reira. Ka puta pea he raruraru nui i tēnei pakaru ka pā ki te tamaiti puta noa i tōna oranga.
- Pararutiki: Te ngaronga katoa, te ngaronga wāhanga rānei o te mahi a ngā waewae e rua.
- Ngā raruraru ki te whakahaere i te puku me te tōngāmimi: Te kore e taea te whakahaere i te puku me te tōngāmimi ina hiahia koe.
- Ngā ngoikoretanga ako: Tērā pea ka uaua ki ētahi tamariki te ako.
- Te Hydrocephalus : Koinei te raruraru kino tino noa. He whakaemi wai i roto i te roro e pēhi ana i te roro. Ko te maimoatanga mō tēnei he pokanga ki te whakauru i tētahi ngongo motuhake e kiia nei ko te shunt hei tango i te wai nui.
Te Pokanga o te Kēpi - He aha te mea tūturu?
Ko te tikanga, ina whānau mai he pēpi me te spina bifida, ka mahia te pokanga i roto i ngā hāora 48 hei kati i te patunga tuwhera i te tuara. Ahakoa tērā, kua pā kē pea ētahi o ngā kino o te io.
Engari mai i te mutunga o te tekau tau atu i 1990, kua tīmata tētahi rōpū tākuta i ētahi hōhipera i te Hononga o Amerika ki te whakamātau i tētahi mea rerekē, he mea matatau ake. Arā, i mua i te whānautanga o te pēpi, i a ia e noho tonu ana i roto i te kōpū o te whaea, ka mahia e rātou he pokanga hei kati i te patunga i te tuara o te pēpi. Ka kiia tēnei ko te 'pokanga fetal', ko te 'pokanga fetal' rānei.
Ehara i te mea ko te whakakore i te kino o te io kua pā mai i tēnei pokanga. Kāore e taea tēnā. Heoi, ko te whāinga matua ko te aukati, te whakaiti rānei i ngā kino ka pā mai i te mea kei te tuwhera tonu te patunga i te wā e noho ana te pēpi i roto i te kōpū.
Whakaarohia, ka nui ake te kino o ēnei io i te pānga o te wai amniotic e karapoti ana i te pēpi i a ia e noho ana i roto i te kōpū. Nō reira, e whakapono ana ngā tākuta mēnā ka kati wawetia tēnei, ka taea te whakaiti i taua kino.
Ehara tēnei i te 'makutu' - he aha ngā mōrearea me ngā hua ka puta?
Ahakoa he nui ngā tumanakohanga e ara ake ana i tēnei, me mārama tātou ehara tēnei i te 'makutu' e puta ai ngā hua ōrite ki te katoa, me te kore he mōrearea. He pokanga tino uaua, tino mōrearea hoki tēnei, kei roto tonu i te wāhanga rangahau.
He tino mīharo te ahunga whakamua o ētahi tamariki i muri i tēnei pokanga. Hei tauira, ko Nicholas, i pokangahia, kei te hikoi noa ia me te kore āwhina i te rua o ōna tau, ā, kāore i hiahiatia he pokanga i roto i tōna roro. E ai ki tōna whaea, mehemea kāore ia i pokangahia , kua kore rawa tana tama e hikoi pēnei.
Heoi, kāore i te tino harikoa ngā kōrero katoa. I te whitu wiki o te pakeke o tētahi atu tamaiti, a 'Nathan', i whakatakotoria he pokanga i roto i tōna roro, ā, i te rua o ōna tau kāore anō ia kia hikoi. Heoi, kei te taumata pai tōna whanaketanga hinengaro me tōna mātauranga mō tōna tau.
Nā reira, e tika ana? He rerekē ngā hua i waenga i te tangata me te tangata. Koia koe me mōhio ki ngā mōrearea i mua i te pokanga.
| Ngā mōrearea matua o te pokanga i roto i te kōpū | |
|---|---|
| Ngā tūponotanga ki te whaea | Ngā tūponotanga mōrearea ki te pēpi |
| Tērā pea ka kino te kōpū i te pokanga, ā, ka nui rawa te toto e puta. | Te whānautanga wawe. Koinei te mōrearea nui rawa atu. He maha ngā pēpi ka whānau wawe, ka ara ake pea tēnei i ētahi atu raruraru hauora. |
| Te putanga mai o ngā mate pāwera. | He iti noa te tūponotanga ka pā kino ngā raruraru i te wā o te pokanga, i muri rānei i te pokanga ki te ora o te tamaiti. |
| Ngā pānga taha o ngā rongoā e hoatu ana hei whakahaere i te whānautanga o mua. | |
| He mea tino nui: I muri i tēnei pokanga, me whānau ngā pēpi katoa e whānau mai ana mā te pokanga tākihi . | |
Ko te whakatau uaua a ngā mātua
I te mōhio ki ēnei mea katoa, me pēhea te whakatau a ngā mātua i tēnei momo whakatau? Me titiro tātou ki te kōrero mō Kelly, i kōrerohia e tātou i mua ake nei. I tana rongonga mai i te matawai i te 17 wiki kua pāngia tana pēpi e te spina bifida, i whakaaro noa ia ki te whakatahe mō tētahi "hēkona" noa iho, engari i tana rongonga mō tēnei pokanga, ka whakatau ia ki te tango i ngā tūponotanga katoa, ka haere tonu.
E rua wiki i muri i te pokanga, ka tīmata te kitea o ngā mōrearea. Ka tīmata te turuturu o te wai amniotic i roto i tōna kōpū. Nō reira, me noho ia ki te hōhipera kia whānau rā anō te pēpi. Ko tana tāne me tana tamāhine 7-tau te pakeke anake i kitea e ia i te kāinga i ngā wiki mutunga.
Engari i waenganui i tēnei pouri katoa, he kōrero pakari tana. "E harikoa ana ahau i mahia tēnei pokanga. Nā te mea kāore au e hiahia ki te whakaaro, 'Āe, me i mahia e au tēnā i taua wā?'"
E whakaatu ana tēnei he whakatau ngākau nui tēnei, ehara i te whakatau hauora. E mōhio ana rātou kāore tēnei e tino ora ai te tamaiti. Engari, ki te taea e tēnei te whakapai ake i te kounga o te oranga o te tamaiti, te whakaiti i te mamae e pā ana ki a ia, e kore aua mātua e whakaroa ki te tuku i tētahi whai wāhitanga.
Karere Tangohia ki te Kāinga
- He koha whānau kino te Spina Bifida , engari mā te tiaki hauora tika me te whakaora tinana, ka taea te āwhina i te tamaiti kia ora pai ai.
- He tikanga maimoatanga tino matatau te pokanga kōpū , kei roto tonu i te wāhanga rangahau. Ehara i te mea ko te whakaora i te mate te whāinga, engari ko te whakaiti i te kino i puta.
- He tino mōrearea tēnei pokanga mō te whaea me te pēpi. Ina koa, he mōrearea nui te whānautanga wawe.
- He rerekē rawa ngā hua o te pokanga i ia tangata, i ia tangata. Ahakoa he pai te whakapainga o ētahi tamariki, kāore e rite ngā hua mō te katoa.
- Mena kei te pāngia koe, tetahi atu rānei e mōhio ana koe e tēnei āhuatanga, ko te mea pai ko te kōrero roa, tuwhera hoki ki tō tākuta . He mea nui kia mārama koe ki ngā painga, ki ngā huakore, ki ngā mōrearea, me ngā whakaaro motuhake e pā ana ki a koe.
💬 Comments (0)
Kaore ano kia tukuna he korero. Tāpirihia to korero ki konei mo te wa tuatahi.
Tāpirihia to korero