Kua kite koe i ngā ira whero, ira pōkākā, ira rerekē rānei te tae i runga i te kiri o tō pēpi i muri tonu i te whānautanga, i ētahi wiki rānei i muri mai? I ētahi wā, hei whaea, he mea whakamataku te kite i ēnei. I tēnei rā, ka kōrero tātou mō tētahi āhuatanga e puta ai ngā tohu rite, he mea onge, engari he mea nui kia mōhiotia. Ko te ingoa o tēnei ko te Incontinentia Pigmenti, ko te IP rānei te whakarapopototanga.
BMI Calculator
Know your body mass index (BMI) and weight classification
He aha te Incontinentia Pigmenti (IP)?
He māmā noa iho, he mate ira tēnei. Nā te mea he X-linked dominant, ka nui ake te pānga ki ngā kōtiro i ngā tama.
Kei roto te IP i tētahi rōpū mate e kiia nei ko ngā "mate kiriuhi". Whakaarohia, ko te tikanga ka pā tēnei mate ki tō tātou pūnaha io (arā, te roro me ngā io) me te kiri i te wā kotahi. Ehara i te mea koinā anake, engari i ētahi wā ka pā anō hoki ki ngā kanohi, ki ngā niho, me te pūnaha angaiwi.
Ka kitea nuitia tēnei mate i te whānautanga, i ngā wiki tuatahi rānei i muri i te whānautanga, me ngā ira me ngā pupuhi e puta ana i te kiri. Nā te whakarerekētanga o te ira e kiia nei ko NEMO (NF-kappaB essential modulator) tēnei i puta ai, e whakahaere ana i te mahi me te tipu o ō tātou pūtau. Tae noa ki tēnei wā, kāore anō kia kitea he rongoā katoa mō tēnei, engari he pai ngā maimoatanga hei whakahaere i ngā tohu.
He aha ngā panonitanga o te kiri? E whā ngā wāhanga!
E whā ngā wāhanga matua e kitea ai ngā panoni kiri o te IP. Engari kia maumahara, kāore ēnei wāhanga e hiahiatia kia puta i te raupapa. I ētahi wā ka taea te whakawhiti, ā, e rua, e toru rānei ngā wāhanga ka kitea i te wā kotahi.
| Atamira | Āhua me te Whakaahuatanga |
|---|---|
| Wāhanga 1: Ngā Pukupuku | Ko te āhua o tēnei ko te puta mai o ngā pupuhi whero kī tonu i te wai i runga i te tinana. Ko te nuinga o te wā ka kitea ēnei i ngā ringa me ngā waewae. |
| Wāhanga 2: Verrucal | Ka puta ake ngā whara hou, he rite ki te pōpokorua, ki te wāhi i mua i puta ai ngā mirumiru. |
| Wāhanga 3: Te whero o te kiri | Koinei te āhuatanga tino motuhake o tēnei mate. Ka puta te kiri he hina, he kikorangi, he parauri rānei, he rārangi māpere, he rārangi piupiu rānei. Ko te nuinga o ēnei ka puta ki te tinana me ngā peka. |
| Wāhanga 4: Te korenga o te kiri i roto i te kiri | Ka haere te wā, ka memeha haere aua ira pouri, ka waiho iho he koma, he rite ki te kōhatu, he koma ake i te tae o te kiri. |
Medical test equipment that can be used at home
Essential home medical devices including blood pressure monitors, oximeters and digital thermometers.
Check Availability →He ira kiri anake? Kāo, tera pea ētahi atu pānga anō hoki
Kāore tēnei mate e pā ki te kiri anake. Tērā pea ka pāngia ētahi tamariki e ētahi atu raruraru. Heoi, me mārama koe kāore e puta katoa ēnei tohu i roto i ia tamaiti.
Ngā raruraru roro
Tata ki te 20% o ngā tamariki whai IP ka pāngia e ngā raruraru pūnaha io.
- Te whakaroa i te whanaketanga o te nekeneke: Hei tauira, kāore pea e taea e rātou te tahuri i ō rātou kaki, te hurihuri, te hikoi rānei i te tere rite tonu ki ētahi atu pēpi.
- Hauātanga hinengaro: Ngā mea pēnei i te hauātanga ako.
- Ngoikore o te uaua: Te ngoikore o te tinana.
- Ngā mate hopuhopu: Te putanga mai o ngā āhuatanga e rite ana ki te tauhohenga.
Ka puta pea tēnei i ngā āhuatanga pēnei i te mimiti o te kiko roro (te ngoikore o te roro) me te hanganga o ngā kōhao iti i roto i te mea mā o te roro.
Ngā pānga ki ngā kanohi me ngā niho
- Ngā raruraru kanohi: Ka pāngia pea ētahi tamariki e ngā āhuatanga pēnei i te strabismus, te cataract, te ngaronga nui rānei o te tirohanga.
- Ngā raruraru niho: Ka kitea ngā niho ngaro me ngā niho āhua titi.
Ko te mea nui kia kaua e mataku ina kite koe i tētahi tohu pēnei, engari me toro atu ki tētahi tākuta tamariki mō ētahi tohutohu.
Me pēhea te rongoā mō tēnei?
Ka rongoatia te IP i runga i ngā tohumate o te tamaiti. Tērā pea ka rerekē ngā kōwhiringa maimoatanga e tika ana mō ia tangata.
| Raru (Tohumate) | Huarahi Maimoatanga |
|---|---|
| Ngā ira kiri me ngā pupuhi | Ko te rongo pai, kāore ēnei ira kiri e hiahiatia he maimoatanga motuhake. Ka memeha haere i te nuinga o te wā i te pakeketanga o te tamaiti, i te pakeketanga rānei. |
| Ngā raruraru o te pūnaha io (ngoikore o te uaua, te ngoikore o te uaua) | Mō ngā āhuatanga pēnei, me toro atu koe ki tētahi tākuta roro . Kātahi ka taea te whakahaere i ēnei āhuatanga mā te rongoā, mā ētahi atu taputapu hauora rānei, ki te tika. |
| Te ngoikore o te tirohanga | Mō ngā raruraru tirohanga, ka taea e koe te toro atu ki tētahi tākuta kanohi, me te tiki mōhiti, rongoā, ā, i ngā wā tino kino, ka taea te pokanga. |
| Ngā raruraru niho | Mena he raruraru kei te āhua, kei te maha rānei o ngā niho, ka taea e koe te rapu i te maimoatanga e tika ana mai i te tākuta niho. |
Nō reira, me wehi tātou i te heke mai?
He pātai tēnei nā te tini o ngā mātua. Inaa, i te nuinga o te wā, ki te kore he raruraru nui i te wā e pēpi ana, ka taea e ngā tamariki whai IP te ora i te roanga o te oranga noa , me te ora hauora, i te oranga noa . I roto i te wā, ka memeha haere aua ira pango o te kiri, ā, ka ngaro katoa atu rānei.
Heoi, e ai ki te kōrero i mua ake nei, kei reira ētahi tamariki he mate pūnaha io, he mate tinana rānei. Nō reira, ko te mea pai ko te kōrero ki tō tākuta mō te āhua o tāu tamaiti. Kātahi ka mārama koe ki te mahere hauora pai rawa atu mō tāu tamaiti, me te aha hoki hei mahi i muri mai.
Karere Tangohia ki te Kāinga
- Ko te Incontinentia Pigmenti (IP) he mate ira onge e pā nui ana ki ngā kōtiro.
- Ko te tohu matua he raupapa o ngā panoni kiri (ngā mirumiru, ngā wāhi taratara, ngā wāhi mangu me ngā wāhi mā).
- Haunga ngā raruraru kiri, ka pāngia pea ētahi tamariki e ngā raruraru e pā ana ki te pūnaha io, ngā kanohi, me ngā niho.
- Ka memeha haere ngā ira kiri i roto i te wā, me te kore he maimoatanga.
- Ka taea e te nuinga o ngā tamariki te noho ora noa, hauora, me te kore he raruraru nui.
- Mena kei tō tamaiti ēnei tohu, he mea nui kia kaua e mataku, me toro atu ki tētahi tākuta tamariki mō ngā tohutohu tika.
No comments yet. Be the first to share your question or experience below.