Kua kitea kētia koe kei te pāngia koe e te ankylosing spondylitis? Kua roa rānei koe e noho tahi ana me tēnei mate? Heoi anō, e mōhio ana pea koe ki ngā uauatanga, te mamae, me te kore whakamarie o te noho tahi me tēnei mate. Tērā pea ka whakaaro koe ko au anake te tangata o te ao e pāngia ana e tēnei mate. Nā te mea he mate onge, kāore hoki i te tino kitea, he tokoiti noa iho te hunga e tino mārama ana ki tō āhua.
He aha tonu te Ankylosing Spondylitis?
He kupu ngāwari tēnei, he mumura roa tēnei o ngā hononga e pā nui ana ki te tuaiwi. Hei whakamārama, he momo mate rumatiki tēnei. I roto i tā mātou reo, ka kiia e mātou ko te "mamae hononga." I roto i tēnei āhuatanga, ka pupuhi, ka mamae ngā hononga iti o te tuaiwi, ā, i roto i te wā, ka honoa ngātahi, ka whakaiti i te ngāwari o te tuaiwi. Koinei te take ka tīmata ai te rā me te pakari o te tuara i te ata. Kāore tēnei e pā ana ki te tuaiwi anake, engari i ētahi wā ka pā ki ētahi atu hononga pērā i te hope, te pakihiwi, me te turi.
Ko tētahi o ngā wero nui e pā mai ana me tēnei mate ko te mamae tinana me te mokemoke o te ngākau. Ka taea te taumaha rawa te whakaaro "Ko au anake te tangata kua pā ki tēnei".
Ngā wero o te noho tahi me tēnei āhuatanga
Ki te mea atu koe ki tētahi hoa, ki tētahi mema rānei o te whānau, "He mamae tuara tōku," tērā pea ka whakaaro rātou he mea noa iho, he mamae noa iho e puta mai ana i te whakapau kaha. Engari tērā pea ka uaua ki a rātou te mārama ki te mamae tonu , te pakari o te rā katoa , me te ngenge nui e puta mai ana i te ankylosing spondylitis.
- Te wāhi mahi me ngā mahi o ia rā: I ētahi wā, he uaua te ara ake i te moenga. He uaua te mahi noa i runga i te tūru tari, te taraiwa waka, te mahi rānei i ngā mahi o ia rā.
- Ngā whanaungatanga pāpori: Ina mamae tonu koe, ina ngenge hoki, ka ngaro tō hiahia ki te haere tahi me ō hoa, ki te haere rānei ki ngā huihuinga. Ka ārahi pea tēnei ki te wehe mārire atu i te hapori.
- Pānga hinengaro: Ka taea e ēnei katoa te arahi ki te ahotea, te manukanuka, ā, i ētahi wā ka pouri.
Engari ko te mea nui rawa atu ka taea e au te kī atu ki a koe , ehara i te mea ko koe anake . E miriona ngā tāngata huri noa i te ao e pāngia ana e tēnei mate, pērā i a koe, e mārama ana ki ō wheako. Ā, he maha ngā rauemi hei āwhina i a koe, hei hoatu kōrero ki a koe, hei tautoko hoki i a koe.
Kei hea koe e whiwhi tautoko me ngā mōhiohio
Ahakoa he maha o ēnei he whakahaere nō tāwāhi, ka taea e koe te uru atu ki ngā mōhiohio me ngā rōpū tautoko i runga ipurangi, he mea nui hoki ēnei hei āwhina i a koe ki te whakahaere i tō āhua.
| Whakahaere / Rauemi | Ngā mea ka taea e koe te tiki |
|---|---|
| Te Tūāpapa Mate Pukupuku | He whakahaere kore-moni tēnei e tautoko ana i te mōhiotanga me te rangahau mō te mate rumatiki. Kei roto i tā rātou paetukutuku ngā kōrero taipitopito mō te ankylosing spondylitis. |
| Whatunga Ora Āe! mō te Mate Rumati | Koinei te huinga ipurangi a te Arthritis Foundation. He wāhi pai tēnei hei hono atu ki ētahi atu e noho tahi ana me ōu mate, hei whakawhitiwhiti wheako, hei whakawhitiwhiti whakaaro hoki mō ngā maimoatanga. |
| Te Rōpū mō ngā Mate Pūkahukahu o Amerika (SAA) | He nui ngā mōhiotanga e tukuna ana e tēnei whakahaere, inā koa mō te ankylosing spondylitis me ngā mate e pā ana. He nui ngā mea ka taea e koe te ako mō te whakahaere i te mate, te whakakori tinana, me te kai. |
| Te Whare Wānanga ā-Motu mō te Mate Pukupuku me ngā Mate Uaua me te Kiri (NIAMS) | He wāhanga tēnei paetukutuku nō ngā Whare Hauora ā-Motu o Amerika, ā, he wāhanga motuhake kei tēnei paetukutuku e whakarato ana i ngā mōhiohio tika me te pono e pā ana ki te ankylosing spondylitis. |
| Te Rōpū Mate Pūkahukahu o Kanata: Āu Kōrero | He hapori ipurangi tēnei. I konei ka taea e koe te whakapuaki i tō kōrero, me te pānui hoki i ngā wheako o ētahi atu e noho ana me tēnei mate. I ētahi wā, ko te pānui i ngā wheako o tētahi atu he puna kaha nui. |
Me pēhea te whakamahi i ēnei rauemi?
Ahakoa kei te reo Ingarihi ēnei paetukutuku, ka taea e koe te whakamahi i tētahi taputapu pēnei i a Google Translate hei whakamāori i ngā ihirangi ki te reo Sinhala, hei pānui hoki. Ko te mea nui ko te whakauru atu ki ngā hapori/huinga ipurangi e wātea ana i runga i ēnei paetukutuku.
- Pānuihia ngā kōrero a ētahi atu tāngata: Mā te pānui i ngā kōrero mō te āhua o te pa atu o tēnei wero ki te hunga pērā i a koe, ka āwhina i a koe kia kaua e noho mokemoke.
- Pātai atu: He wāhi pai ēnei hei pātai i ngā mea e pā ana ki tō hinengaro, hei tiki tohutohu hoki i ētahi atu.
- Akohia ngā mōhiotanga hou: Mā tēnei ka āwhina i a koe kia noho mōhio ki ngā maimoatanga hou, ngā rangahau, me ngā huarahi hou hei whakahaere i te mate.
He mea tino nui: Ahakoa he puna nui ēnei rauemi mō ngā mōhiohio me ngā tautoko, me kōrero tonu koe ki tō tākuta i mua i te rapu tohutohu hauora, i te whakarerekē rānei i ō rongoā . Kāore ēnei paetukutuku e whakakapi i ngā tohutohu hauora.
Kāore koe e hiahia ki te haere ko koe anake i tēnei haerenga. Mā te mōhiotanga me te tautoko tika, ka taea e koe te whakahaere i tō mate ankylosing spondylitis, te whakaiti i te mamae, me te noho ora.
Karere Tangohia ki te Kāinga
- He mate rumatiki roa te ankylosing spondylitis e pā ana ki te tuaiwi. Haunga te mamae tinana, he wāhanga nui o tēnei mate ko te mokemoke hinengaro.
- Kāore koe i te mokemoke i tēnei wero. He nui te hapori me ngā rauemi huri noa i te ao hei tautoko i a koe.
- Ka kitea e koe ngā kōrero pono me ngā rōpū tautoko ipurangi mā roto i ngā paetukutuku o ngā whakahaere pēnei i te Arthritis Foundation me te Spondylitis Association of America.
- Mā te pānui i ngā wheako o ētahi atu tāngata me te whakapuaki i ōu ake wheako ka kaha ake tō hinengaro.
- Hei whakamōhiotanga anake ēnei rauemi. Me mahi i ō maimoatanga katoa, rongoā, me ngā whakataunga hauora i raro i te aratohu a tō tākuta anake.
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