Me kōrero tāua mō te mate pukupuku pūtau ngako e kiia nei ko te Myxoid Liposarcoma?

He puku iti kei raro i tō kiri e ahua mamae ana? He ngenge rawa rānei koe i ētahi wā, kāore he take, ā, te āhua nei kei te heke haere te taumaha o tō tinana? Tērā pea he tohu ēnei kāore e tino arohia ana e tātou i roto i ō tātou oranga o ia rā. Heoi, he tino onge, ka taea hoki ēnei mea te tohu i tētahi momo mate pukupuku tino onge e kiia nei ko te 'Myxoid Liposarcoma'. Nō reira, i tēnei rā ka kōrerohia e tātou tēnei me te taipitopito ake, me te ngāwari hoki. He ngana tēnei ki te hoatu ki a koe he māramatanga mārama mō tēnei.

He aha te Myxoid Liposarcoma? He kupu ngāwari noa iho...

Tuatahi, me titiro tātou he aha tēnei 'Liposarcoma'. Ko te Liposarcoma he momo matepukupuku e tīmata ana i roto i ngā pūtau ngako o roto i tō tātou tinana. He tino onge ēnei. Nō reira, ko te 'Myxoid Liposarcoma' he momo o taua momo matepukupuku e kiia nei ko te liposarcoma.

Whakaarohia, ka noho tonu tēnei i roto i tō tinana mō ngā tau, kāore he tohu e puta. He maha ngā wā ka tīmata koe ki te kite i ngā tohu i muri i te tipu haere o tēnei pukupuku. Ko te nuinga o te wā ka kitea tēnei mate he puku e puta ana i raro i te kiri i ō waewae, i ō ringaringa rānei. Ko te nuinga o te wā ka pā tēnei mate ki te hunga i waenga i te 20 me te 40 tau te pakeke. Ka whakamahia e ngā tākuta ngā mea pēnei i te pokanga, te chemotherapy me/te radiation therapy rānei hei rongoā.

He mate pukupuku kino tēnei e kiia nei ko te Myxoid Liposarcoma?

I te nuinga o te wā, kāore. He tino puhoi te tipu o te nuinga o ngā pukupuku myxoid liposarcoma. Arā, he tere rawa te tipu, ā, he puhoi rawa te horapa.

Engari, anei tētahi mea hei mōhio māu. I roto i ētahi pukupuku myxoid liposarcoma, tera pea he ranunga o ngā pūtau myxoid liposarcoma me ngā "pūtau porowhita." Kātahi ka tapaina tēnei e ngā tākuta ko 'Myxoid/Round Cell Liposarcoma' (MRCLS). Ko te ingoa "pūtau porowhita" i ahu mai i te tirohanga a ngā tākuta mate pukupuku ki ngā pūtau i raro i te karuārai.

He mea nui, he nui ake te tūponotanga o ēnei pukupuku myxoid/round cell liposaccama (MRCLS) ki te kaha te horapa, ā, ka horapa ki ētahi atu wāhanga o te tinana i ngā myxoid liposaccamas noa. Hei tauira, ka horapa atu i ō ringaringa me ō waewae ki ngā kiko ngohengohe tata, pērā i ngā uaua me te kiri. I ētahi wā, ka taea hoki e tēnei momo liposaccama te whanake i roto i ō wheua, i ō wheua pelvic, i tō tuaiwi rānei, i roto rānei i ngā whekau o roto pērā i tō ngākau, i tō pukahukahu, i tō korokoro rānei.

He mate noa te Myxoid Liposarcoma?

Āe, kāo. He mate pukupuku tino onge te myxoid liposarcoma.Ina hoki, ko te myxoid liposarcoma te take i waenga i te 15% me te 30% o ngā tātaritanga liposarcoma katoa. Whakaarohia, e ai ki ngā whakatau tata mai i te National Cancer Institute i te United States, tata ki te 2,000 noa iho ngā kēhi liposarcoma ka tātaritatia e ngā tākuta ia tau. Nō reira, ka taea e koe te whakaaro he aha te onge o tēnei.

He aha ngā tohu o te Myxoid Liposarcoma?

He mea whakamiharo, engari i ētahi wā ka pāngia koe e te myxoid liposarcoma me te kore e kite i ngā huringa o tō tinana. Ka tīmata te nuinga o te tangata ki te kite i ngā tohu ina, e ai ki taku kōrero i mua, ka nui haere te pukupuku, ka tīmata ki te pā ki tētahi mea. Ko ngā tohu tino kitea ko:

• He puku e kitea ana i raro i tō kiri.
• Mamae - Kei te wāhi pea o te puku, kei te taha rānei o te puku.
• Te ngenge nui rawa atu, kāore he take. (Te ngenge/Te ngenge)
• Whakapairuaki.
• Te whakahekenga taumaha kāore i te āta whakaarohia, kāore rānei i te mārama.

Mena kei a koe tētahi, ētahi rānei o ēnei tohu, ehara i te mea kei a koe te myxoid liposarcoma. Heoi, ki te mau tonu, he mea whakaaro nui kia toro atu ki te tākuta mō ētahi tohutohu.

He aha ngā take o te Myxoid Liposarcoma?

Ina hoki, kāore anō kia tino kitea e ngā kairangahau hauora te take o te myxoid liposarcoma. Engari kotahi te mea e mōhiotia ana e rātou , he maha ngā tāngata whai mate nei he whakarerekētanga ira kei roto i ō rātou ira. Nā tēnei whakarerekētanga ira ka huri ngā ira noa, e kiia nei ko ngā oncogenes, hei ira e puta ai te mate pukupuku.

I te whakarapopototanga, ka taea e ēnei ira, e kiia nei ko ngā oncogenes, te huri i ngā pūtau noa, hauora hei pūtau matepukupuku. Kātahi ka wehea, ka whakanuia hoki ēnei pūtau matepukupuku, ā, ka tupu hei pukupuku.

He aha ngā āhuatanga mōrearea mō tēnei mate?

Kāore anō kia mōhiotia e ngā kairangahau te tino take, engari kotahi te mea e mārama ana. Kua whakaatuhia e ngā rangahau he nui ake te tūponotanga o te hunga kua whiwhi i te rongoā irahiko mō ētahi atu momo mate pukupuku ki te whakawhanake i tētahi momo sarcoma, tae atu ki te myxoid liposarcoma. Ko te tikanga, mēnā kua whiwhi koe i te rongoā irahiko mō te lymphoma, te mate pukupuku ū, te mate pukupuku prostate rānei, he paku teitei ake tō tūponotanga. Engari ehara i te mea kāore te rongoā irahiko i te pai. He mea nui mō aua momo mate pukupuku.

Me pēhea te tautuhi i te Myxoid Liposarcoma?

Ka tīmata ngā tākuta i te tukanga tātaritanga o tēnei mate mā te tirotiro tinana me te pātai atu ki a koe mō ō tohumate. Hei tāpiri, ka taea e rātou te mahi i ētahi whakamātautau, pēnei i:

• Matawai CT (Matawai Tomography Rorohiko): Mā tēnei ka taea e ngā tākuta te kite tika i te wāhi e noho ana ngā puku – inā koa te tata o aua puku ki ngā whekau nui me te rahi o te puku.
• Matawai MRI (MRI - Magnetic Resonance Imaging): Ka āwhina tēnei matawai MRI ki te tirotiro i ngā io, ngā oko toto, me ngā uaua e karapoti ana ka pāngia pea e te liposarcoma.
• Ko te koiora-koiora: Ko te tango i tētahi tauira iti o te kiko mai i te puku, kātahi ka tirotirohia ngā pūtau e te tohunga mate pukupuku i raro i te karuārai. Mā tēnei ka taea te kī tika mēnā he mate pukupuku, ā, he aha te momo.
• Whakamātautau ira me te whakamātautau ira: Ka āwhina ēnei whakamātautau ki te whakaū mēnā he myxoid liposarcoma te puku. Ka taea e rātou te kite i ngā mea pēnei i ngā whakarerekētanga ira i whakahuatia i mua ake nei.

Me pēhea te rongoā mō te Myxoid Liposarcoma?

Ka whakamahia pea e tō tākuta tētahi, ētahi rānei o ngā maimoatanga e whai ake nei hei rongoā i tēnei mate:

• Pokanga: Koinei te maimoatanga matua. Ka tangohia e te taote pokanga te puku matepukupuku me te iti o te kiko hauora e karapoti ana (ka mahia tēnei hei tango i ngā pūtau matepukupuku moroiti).
• Whakaora irahiko: He maha ngā wā ka hoatu tēnei maimoatanga i mua i te pokanga hei whakaiti i te pukupuku, kia māmā ake ai te tango. I ētahi wā, ka hoatu tēnei maimoatanga i muri i te pokanga hei ārai i te hokinga mai o te mate pukupuku.
• Te rongoā matū: Ka taea te whakamahi i te rongoā matū hei rongoā i ngā pukupuku nui rawa kāore e taea te tango mā te pokanga, i ngā pukupuku rānei kua horapa ki ētahi atu wāhanga o te tinana.

He aha ngā pānga taha me ngā raruraru o te maimoatanga?

Pērā i ngā maimoatanga hauora katoa, ka pā mai ētahi pānga taha ki ēnei maimoatanga. Tērā pea he wā whakaora i muri i te pokanga, me ngā pānga taha e pā ana ki te chemotherapy me ngā maimoatanga irahiko (hei tauira, te ngaro o te makawe, te ngenge, te whakapairuaki).

Mō ngā raruraru, inā koa te pokanga, he tūponotanga kei roto i tētahi pokanga. Ka matapakihia ēnei e tō taote pokanga ki a koe i runga i te āhua o tō āhua. Heoi, ko ētahi o ngā raruraru noa ka puta ko:

• Ngā pānga kino ki te rongoā whakamoe whānui.
• Te ngaronga o te toto.
• Kāore ngā patunga pokanga e ora tika ana.
• Te mate urutā.
• Te kino ki ngā whekau, ki ngā kiko rānei e karapoti ana.
• Te mamae kāore e taea te whakahaere e ngā rongoā whakamamae mamae noa.

Nō reira, he mea tino nui kia kōrerohia ēnei mea katoa ki tō tākuta, kia mōhio hoki koe i mua i te tīmatanga o te maimoatanga.

Ka taea te ārai i te Myxoid Liposarcoma?

Engari, kāore te nuinga o te tangata e pērā ana. Ko te nuinga o te tangata ka pāngia e te myxoid liposarcoma i muri i te whiwhinga i te rongoā irahiko mō ētahi atu mate pukupuku (pēnei i te lymphoma, te mate pukupuku ū, te mate pukupuku prostate rānei). Ahakoa ka whakanui ake te rongoā irahiko i tēnei mōrearea, he mea nui mō ētahi atu mate pukupuku. Nō reira, he uaua ake te ārai.

Ka taea te whakaora katoa i te Myxoid Liposarcoma?

Ka taea te whakaora katoa i tēnei mate mā te "whakakorenga mate. " Ko te tikanga o te "whakakorenga mate" kua ngaro katoa ngā tohu me ngā āhuatanga o te myxoid liposarcoma i te maimoatanga. Arā, kua kore e kitea te mate pukupuku ahakoa i runga i ngā matawai.

Engari, anei tētahi mea nui hei mōhio. He mate pukupuku te Myxoid liposarcoma ka hoki mai anō (ka hoki anō). Nō reira, ka haere tonu te tirotiro a ngā tākuta i a koe ahakoa kua hoki koe ki te wā e marino ai.

He aha te āhua o te mate Myxoid Liposarcoma?

Ko te matapae ko te whakaaro o ngā tākuta mō te ahunga whakamua o tō mate me te nui o ō tupono ki te ora. He rerekē tēnei i ia tangata, i ia tangata. He maha ngā āhuatanga e pā ana ki tēnei:

• Kei hea te puku.
• E hia te nui o te puku i tangohia i te wā o te pokanga (pēnei i te mea i tangohia katoatia, i mahue rānei ētahi)
• Mena kua horapa te pukupuku (metastasized) ki ētahi atu wāhanga o te tinana.

I te nuinga o te wā, he pai ake te matapae mō te hunga e rongoatia ana mō te myxoid liposarcoma i mua i tōna horapa atu i te hunga kua horapa te pukupuku. Ko te tikanga he nui ake te tūponotanga o te ora me te roa ake o te oranga. Heoi, ka taea e tō tākuta te hoatu ki a koe ngā mōhiohio pai rawa atu mō ngā mea hei tumanakohia i runga i tō āhua motuhake. Nō reira, kōrero ki a ia mō ngā pātai katoa kei a koe.

Me ako anō hoki tātou mō te auau oranga.

Ina kōrero koe mō tēnei momo mate pukupuku, kua rongo pea koe i te "Survival Rate". Mō te myxoid liposarcoma, i te nuinga o te wā, e 92% o te tangata e ora ana i ngā tau e rima i muri i te tātaritanga. Heoi, i muri i ngā tau 12, ka heke tēnei reiti ki te 55%.

Engari, kotahi te mea me maumahara koe. He whakatau tata noa iho ēnei tatauranga oranga. Ka whakatauhia ēnei e ngā tohunga i runga i ngā wheako o te tini o ētahi atu tāngata kua pāngia e ngā āhuatanga rite. Ko te mea pono mō rātou, kāore pea e pono mōu. Pērā i te matapae mate, ko tō tākuta anake ka taea te hoatu ki a koe te whakaaro pai mō te roa o te oranga e tumanakohia ana e koe. Kaua e mataku ki ēnei tatauranga. He rerekē te haerenga o te katoa.

Me pēhea taku tiaki i ahau anō i muri i te maimoatanga mō te Myxoid Liposarcoma?

He momo mate pukupuku te myxoid liposarcoma ka hoki anō mai, nō reira he mea nui kia tiakina tō hauora ahakoa kua oti te maimoatanga. Ka hoki mai anō te mate pukupuku hei puku hou i te wāhi i tīmata ai. Kāore rānei, ka puta he puku myxoid liposarcoma hou i tētahi atu wāhanga o te tinana.

Nō reira, ka aroturukihia tō hauora whānui e tō tākuta mō ngā tohu o ngā tipu hou. Ko te tikanga me tirotiro auau koe. Pātai atu ki tō tākuta kia hia te auau o ēnei tirotiro. He mea nui kia tirohia auautia ēnei, kaua e mahue, hei oranga mō te wā roa.

Hei whakamutunga, he karere hei kawe ki te kāinga

He mate pukupuku onge, puhoi te tipu o te Myxoid Liposarcoma, e tīmata ana i roto i ō pūtau ngako. I ētahi wā ka roa pea te wā e pāngia ai koe e te mate i mua i te puta o ngā tohu.

Ko te mea pai rawa atu, he maha ngā wā ka taea e te maimoatanga te tango i tēnei puku. Heoi anō, tera pea ka hoki mai anō te myxoid liposarcoma.

Mena kei a koe tēnei mate, kōrero ki tō tākuta mō te tūponotanga ka puta he puku hou. Māna e whakamārama ngā mea ka taea e koe te tumanako. Kaua e ngaro te tumanako. Mā te whai i ngā tohutohu hauora tika, te whiwhi i ngā whakamātautau me ngā maimoatanga tika, me te whai whakaaro pai ka āwhina i a koe ki te whawhai ki tēnei mate. Mena he pātai, he āwangawanga rānei āu, kaua e wehi ki te kōrero ki tō tākuta mō ēnei mea.

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