Kei te ahua ngoikore tō tirohanga me tō tinana? Me kōrero tātou mō te Neuromyelitis Optica (NMO)!

Ka kite ohorere koe i ētahi wā i tētahi panoni o tō tirohanga, ka rongo rānei koe i ētahi wāhanga o tō tinana kua korekore, kua kore rānei he ora? Tērā pea kei te mamae ō kanohi, kei te uaua rānei ki te hikoi? Tērā pea tētahi take mō ēnei mea, ā, i tēnei rā ka kōrero tātou mō tētahi mate he onge noa iho, engari he mea nui kia mōhio tātou katoa. Ko te neuromyelitis optica tēnā, ko te kupu poto rānei ko `(NMO)`.

He aha te Neuromyelitis Optica?

Ki te whakarapopototanga, he mate roa, he mate mau tonu te Neuromyelitis Optica (NMO). Ka pā nui ki tō tirohanga me tō kaha ki te neke i tō tinana. Whakaarohia kei te tīmata te pūnaha parepare o tō tātou tinana, te pūnaha ārai mate, ki te whakaeke i ngā wāhanga o tō tātou ake pūnaha io. Koinei te mea e kiia nei e tātou he mate pūnaha ārai mate. Nō reira, ko te NMO tētahi o aua mate.

Kua roa te wā e karangatia ana tēnei mate ki ngā ingoa rerekē. I te tuatahi i tapaina ko te mate a Devic, i muri i te tohunga roro Wīwī a Eugene Devic, nāna i whakaahua tuatahi. Heoi, i te tau 2015, i tapaina e tētahi rōpū tohunga o te ao ko te Neuromyelitis Optica Spectrum Disorder (NMOSD). Heoi, ko te nuinga o ngā tākuta me ētahi atu kei te kī tonu ko te NMO.

I mua, i whakaaro ngā tohunga he momo onge te NMO o te mate maha-sclerosis (MS). Heoi, kua mārama inaianei he mate motuhake, motuhake hoki i te MS .

Ko wai te hunga ka nui ake te tūponotanga ki te pāngia e te neuromyelitis optica (NMO)?

He nui ake te kitea o tēnei mate i roto i ngā wāhine. E 80% ki te 90% o ngā tūroro he wāhine. I te nuinga o te wā ka pāngia te hunga i waenga i te 30 me te 40 tau te pakeke. He tino onge te pāngia o ngā tamariki nohinohi e te NMO, arā, he iti noa iho, tata ki te 5% o ngā tūroro katoa.

Ahakoa ka taea e te tangata o tētahi iwi, o tētahi iwi rānei te pāngia e te NMO, kāore e pā ki te katoa i te ara kotahi. Ko te hunga nō te uri Āwherika, inā koa ko te hunga nō te uri Āwherika-Karipiana, he nui ake te mōrearea. Ka pā anō hoki ki te hunga nō te uri Āhia.

E pēhea te noa o te ingoa o tēnei mate ko te `(NMO)`?

He tino onge te mate NMO. I te nuinga o te wā ka pāngia e te 0.3 me te 4.4 i roto i te 100,000 tāngata. Ko te tikanga, kei waenganui i te 24,000 me te 350,600 ngā tūroro puta noa i te ao.

He aha te pānga o tēnei `(NMO)` ki tōku tinana?

Hei mārama ki te pānga o te NMO ki a koe, he mea āwhina kia mārama ki tō tātou pūnaha io. Ko te roro me te taurakira te mea hanga o tō tātou pūnaha io. Inaa, ko ngā io whatu e āwhina ana i a tātou ki te kite he wāhanga anō hoki o te roro.

Ina tangohia ngātahitia te roro me te taurakira, ka kiia ko te pūnaha io matua. Kātahi, ko te whatunga io e toro atu ana puta noa i te tinana ka kiia ko te pūnaha io taha.

Ka haria e tō tātou pūnaha io ngā kōrero ki te roro, mai i reira hoki. Mā ngā tohu matū me ngā tohu hiko tēnei mahi. Ka haere ēnei tohu mā roto i ngā pūtau motuhake e kiia nei ko ngā neurons.

Ko te axon te wāhanga tino nui o ia neuron. He rite tēnei ki te ringa o te neuron. Ka haria ngā tohu hiko i runga i tēnei axon. Kei te pito o te axon ngā wāhanga e kiia nei ko ngā synapses. Koinei te wāhi e huri ai ngā tohu hiko hei tohu matū. Ko ēnei synapses te wāhi e hono ai, e kōrero ai hoki te neuron ki ētahi atu neuron.

Kei te taha o tēnei axon he angiangi, he angiangi te hipoki tiaki e kiia nei ko te myelin. He mea hanga tēnei mai i ngā matū ngako. Ka āwhina te hipoki myelin i ngā tohu hiko e haere ana i te taha o te axon, ā, ka ārai i te kino o te axon. (NMO) he mate demyelinating e kino ai te hipoki myelin. He rite tēnei ki te pakaru o te hipoki kirihou i runga i te waea hiko mēnā ka tangohia. Ina tangohia te hipoki myelin, ka ngāwari te pakaru o te axon.

Ko te kino i puta mai i te NMO ka pā ki ngā neuron i ngā wāhi e rua:

1. Te io whatu, e hono ana i ō kanohi ki tō roro.

2. Tō tuaiwi. Koinei te pokapū matua e kohia ai ngā tohu io i mua i te taenga ki te roro.

Ka pāngia pea ngā taumata maha o te taurakira e te NMO. Ka pāngia pea ngā io katoa e hono ana i raro i te taurakira e pāngia ana.

He aha ngā tohu o te neuromyelitis optica (NMO)?

Ka puta ngā tohumate o te NMO i roto i te āhua o ngā "whakaekenga." Ko te tikanga ka puta ohorere mai ngā tohumate, ka roa mō te wā poto, kātahi ka memeha haere. Ka roa pea ēnei whakaekenga mai i ētahi rā ki ētahi marama. He kino te nuinga o ēnei whakaekenga, ā, i ētahi wā ka pā he kino tuturu. I tēnei take, ka pumau pea ngā pānga ahakoa kua mutu te whakaekenga.

Ka taea te wehewehe i ngā tohu o te NMO ki ngā wāhanga matua e toru:

• Te mate pūkahukahu kanohi: Ka puta ēnei tohu i te pupuhi (mumura) o te io whatu i roto i tētahi, i ngā kanohi e rua rānei.
• Myelitis: Ka puta ēnei tohu i te pupuhi (mumura) o te taurakira.
• Ngā raruraru o te mahi a te roro:Ka puta ēnei ina pāngia tō hypothalamus, tō roro rānei e te NMO, arā, ngā wāhanga matua o te tinana e whakahaere ana i ngā tukanga aunoa.

Te neuritis whatu

Ka tangohia e ō tātou kanohi te māramatanga mai i te taiao e karapoti ana i a tātou, ka tukuna ngā tohu ki te roro mā te io whatu. Ka tukatukahia e te roro aua tohu, ā, ka homai he tirohanga ki a tātou.

I roto i te mate neuritis whatu, ka pupuhi te io whatu. Nā te mea kāore i te nui te wāhi i taua wāhanga o te upoko, ka taea e tēnei pupuhi te pēhi nui i te io whatu. Whakaarohia, ina pēhia e tātou te ringa, te waewae rānei, ka ahua ngoikore, ka mamae hoki. Koinei te mea ka tupu ina pēhia te io whatu.

Ka pāngia pea tētahi, ngā kanohi e rua rānei e ngā tohu o te neuritis whatu. I ētahi wā ka pāngia te kanohi kotahi i te tuatahi, kātahi ko tētahi, ka pāngia rānei ngā kanohi e rua i te wā kotahi. Ko ngā tohu ko:

• Mamae kanohi: Ka piki ake pea tēnei mamae, inā koa ka nekehia ngā kanohi.
• Te tirohanga pōuri: Ka piki ake pea tēnei ina ngenge koe.
• Te ngaronga o te tirohanga ā-wāhanga, ā-katoa rānei: Tērā pea ka ngaro katoa, ā-wāhanga rānei tō tirohanga i te kanohi kotahi (hei tauira, tērā pea ka ngaro te pokapū o te mea e titirohia ana e koe). Tērā pea ka pōuriuri tō tirohanga, ka ngaro rānei te tirohanga tae.
• Te uaua ki te kite i te pōuri: Ka uaua pea te mahi i ngā mea pēnei i te taraiwa i te pō.

Te mate pūkahukahu

Ko te myelitis he mumura o tō taurakira. Ka taea e tēnei mumura te pēhi i te taurakira me ngā io tuaiwi e tata ana. Ka taea e tēnei te aukati wāhanga, te aukati katoa rānei i ngā tohu io. Ina aukatia ngā momo tohu io katoa, ka kiia ko te transverse myelitis.

Ko ngā tohu o te myelitis e whakawhirinaki ana ki te wāhi e pupuhi ana, me ngā wāhanga o te taurakira, o ngā io tuaiwi rānei e pāngia ana. Mēnā ka pēhia ngā io tuaiwi e te pupuhi, ka puta ngā tohu ki ngā wāhanga o te tinana e hono ana i aua io ki te roro. Mēnā ka pēhia te taurakira, ka puta ngā tohu ki ngā wāhanga katoa o te tinana e hono ana ki ngā io tuaiwi i raro i te pūwāhi pēhi.

Ko ngā tohu o te myelitis ko:

• Te ngoikore o te uaua, te pararutiki rānei: Ka pā tēnei ki ngā wāhanga o te tinana i raro i te rohe e pāngia ana o te taurakira. Tērā pea ka ngaro te mana whakahaere o ō waewae, ka uaua ai te hikoi, te tū rānei. Mēnā ka pā te myelitis ki te taurakira o te kaki, ka pararutiki pea ngā uaua manawa, ka mate pea.
• Te koretake o te nekehanga: Ka puta tēnei ina ngaro te mana whakahaere o ngā uaua i ngā tohu mai i te roro, ā, ka tīmata te mahi takitahi. Kātahi ka pakari haere ngā uaua, ka wiriwiri.
• Mamae:Ka pā te mamae ki te myelitis nā te pēhanga o te taurakira. Tērā pea nā te pupuhi tonu te mamae, nā te tuku hē rānei o ngā tohu mamae e ngā io kua pāngia.
• Te kore e taea te pupuri i te mimi: Ka taea e te myelitis te whakararuraru i ngā tohu io e whakahaere ana i te mahi a te whekau me te mimi, ka hua ake te kore e taea te pupuri i te mimi, te kore rānei e taea te pupuri i te mimi.
• Te ngoikore o te moepuku: Ka taea e te myelitis te whakararuraru i ngā tohu io e whakahaere ana i te mahi moepuku, i ngā okana rānei.

Ngā raruraru i roto i te mahi roro

Ahakoa he mea noa te kite i ngā panonitanga o te roro i roto i te mate maha o te sclerosis (MS), he onge noa iho i roto i te NMO. Heoi, ina puta, ka taea te whakararuraru i te ara e whakahaere ai te roro i ētahi o ngā tukanga o te tinana. Mena ka puta ēnei whakararuraru i roto i te hypothalamus, i te take roro rānei, ka taea e rātou te whakararuraru nui, tae atu ki te mate.

Ko te take roro te wāhanga o raro rawa o te roro. Kei muri o te upoko, kei raro rawa. He mea tino nui tēnei wāhanga. Nā te mea e hono ana i te roro ki te taurakira, ka whakahaere hoki i ngā tukanga aunoa. Ko ngā tukanga aunoa he mea e puta ana me te kore e whakaarohia e tātou - pērā i te manawa, te toto toto tiketike, te werawera.

Mena ka pāngia te roro e te NMO, ka puta ngā tohu pēnei i:

• Ngā hūpē kore e taea te aukati.
• Te mākūkū kore e taea te aukati (pruritus).
• Whakapairuaki me te ruaki, kāore he take e kitea ana.
• Te ngaronga o te rongo.
• Te kite i ngā mea e rua i te wā kotahi (diplopia), ngā nekehanga kanohi kāore e taea te whakahaere (nystagmus), ētahi atu raruraru rānei ki te whakahaere kanohi.
• Pararutiki kanohi.
• Te whanoke, te āhua hurihuri rānei (vertigo).
• Ngā raruraru ki te taurite, ki te taunga rānei o te tinana (ataxia).
• Te mamae o ngā io kanohi (te neuralgia trigeminal).

Kei runga noa iho i te kakau roro te hypothalamus. Māna anō hoki e whakahaere ngā tukanga aunoa o te tinana. Mena ka pāngia e te NMO, ka taea hoki e ētahi atu pūnaha o te tinana te hē. Hei tauira, ka taea e te NMO te whakaputa i ngā tohu o te narcolepsy (te hiamoe nui i te awatea).

He aha ngā take o te neuromyelitis optica (NMO)?

Kāore anō kia taea e ngā tohunga te whakamārama katoa me pēhea te whanaketanga o te NMO me te take hoki. Ko ngā take e mōhiotia ana, e whakapaetia ana rānei i tēnei wā ko:

• Te ngoikore o te pūnaha ārai mate.
• Ētahi atu āhuatanga autoimmune, mumura rānei.

Te ngoikore o te pūnaha ārai mate

He mate pūnaha ārai mate te NMO. Ko te tikanga o tēnei ka whakaekea hetia e tō tātou ake pūnaha ārai mate tētahi wāhanga o tō tātou ake tinana. I tēnei wā, ka whakaekea e ia ō tātou io whatu me/ranei te taurakira.

E rua ngā momo mate pāwera ā-tinana e mōhiotia ana i tēnei wā o te NMO:

• Ngā paturopi Aquaporin-4 (AQP4):Ko te `(AQP4)` he pūmua kei te mata o ētahi pūtau o te pūnaha io. Ko tana mahi he neke i te wai ki roto, ki waho hoki i ngā pūtau. Ka hē te kī a ngā paturopi `(AQP4)` ki te pūnaha ārai mate kia whakaeke i tēnei pūmua. Kātahi ka pakaru ngā pūtau kei roto i tēnei pūmua. Neke atu i te 80% o te hunga whai `(NMO)` kei roto i ō rātou toto ēnei paturopi `(AQP4)`.
• Ngā paturopi Myelin Oligodendrocyte Glycoprotein (MOG): He pūmua te MOG e āwhina ana ki te hanga me te pupuri i te pūkahu myelin huri noa i ngā neuron. Ka tohutohu hē ngā paturopi MOG i te pūnaha ārai mate kia whakaeke i tēnei pūmua, ā, ka whakararuraru i te pūkahu myelin huri noa i ngā neuron. Tata ki te 6.5% o te hunga whai NMO kei roto i ō rātou toto tēnei paturopi.

He maha ngā wā ka puta tēnei hapa o te pūnaha ārai mate mō ngā take kāore tātou e mōhio. Heoi, e kī ana ētahi raraunga ka puta pea tēnei hapa i muri i te mate. I waenga i te 15% me te 35% o te hunga e pāngia ana e te NMO kua pāngia e te mate i mua i te puta o ngā tohu o te NMO. Heoi, me whai rangahau anō hei whakaū i tēnei.

Kāore ngā tohunga i te mōhio he aha i te hunga kāore he paturopi ki te `(AQP4)` me te `(MOG)` (arā, tata ki te 13.5% o te hunga whai mate) ka pāngia e te `(NMO). Ka whakarōpūtia ēnei momo kēhi hei `(idiopathic)`.

Waihoki, e whakapono ana ētahi tohunga he mate motuhake te ``(MOG)`` e pā ana ki te paturopi ``(NMO)``. Heoi anō, me nui ake ngā rangahau mō tēnei, ā, kāore anō kia whakamanahia mana hei mate motuhake.

Ētahi atu āhuatanga autoimmune, mumura rānei

Ahakoa ka puta ko ia anake te NMO, he nui ake te tūponotanga ka puta i roto i te hunga he mate pūnaha ārai mate, he mate mumura rānei kei a rātou. Heoi, me nui ake ngā rangahau hei whakatau mena ka puta, ka whai wāhi rānei ēnei mate ki te NMO.

Ko ngā āhuatanga penei:

• Lupus `(Lupus - pūnaha lupus erythematosus)`
• Mate celiac
• Te mate a Sjögren
• Te Sarcoidosis
• Te mate pāwera
• Te mate ārai-phospholipid

Ngā āhuatanga ira

E whakapae ana ngā tohunga he pānga anō pea ngā āhuatanga ira ki te NMO. Ko tētahi take he nui ake te kitea o te mate i roto i ētahi iwi. Ko tētahi atu take he tata ki te 3% o ngā tūroro NMO e whānau ana i roto i te whānau kotahi. Ahakoa kāore he taunakitanga he mate tuku iho te NMO, tera pea he āhuatanga ira e nui ake ai te tūponotanga o te whanaketanga o te NMO.

He mate hopuhopu te neuromyelitis optica (NMO) mai i te tangata ki te tangata?

I tēnei wā, kāore he taunakitanga e whakaatu ana ka taea te hora i te NMOSD, i te NMO rānei mai i te tangata ki te tangata.

Me pēhea te tātaritanga o te neuromyelitis optica (NMO)?

Ko te rerekētanga nui i waenga i te mate maha o te sclerosis (MS) me te NMO ko ētahi whakamātautau ka taea te whakaū mēnā he NMO tō te tangata. Ka whakamahia pea e te tākuta he huinga o ēnei e whai ake nei hei tātaritanga i te NMO:

• Ngā whakamātautau toto: Ko tētahi o ngā taputapu tino nui a ngā tākuta hei tātaritanga i te NMO ko te tirotiro i ō toto mō ngā paturopi ki te AQP4, ki te MOG rānei. Ahakoa kāore e taea e te whakamātautau toto te whakaū i te NMO i ngā wā katoa (nā te mea tata ki te 13.5% o ngā keehi kāore he paturopi ka kitea), he tino whai hua ki te whakatau i te mate.
• Matawai Whakaahua Āhua Aukume (MRI): He tino āwhina te matawai MRI ki te tautuhi i te NMO. Ka puta he huringa i roto i tō tuaiwi me ētahi atu wāhanga o tō pūnaha io matua i tēnei āhuatanga, ka kitea i roto i te matawai MRI. Ka taea te wehewehe mārama i ēnei mai i ngā huringa e kitea ana i roto i te MS, kia taea ai e ngā tākuta te whakaū ehara i te MS.
• Ngā whakamātautau tinana me te pūnaha io: Ka rapua e ēnei whakamātautau ngā tohu me ngā āhuatanga ka puta pea i te NMO. He mea tino nui te whakamātautau pūnaha io nā te mea ka taea te tautuhi i ngā raruraru o ō kare ā-roto, ō urupare, ō nekehanga uaua, tō taurite, me ō mahi kanohi.
• Hītori whaiaro me te hauora: I tēnei, ka pātai atu te tākuta ki a koe mō tō hauora, ngā tohumate, me ngā taipitopito o tō hītori whaiaro me te hauora.

Tērā pea ka mahia ētahi atu whakamātautau, nā te mea e whakaaro ana tō tākuta he mea nui kia whakakorehia ētahi atu mate hauora. Ka taea e tō tākuta te kōrero atu ki a koe mō ngā whakamātautau e taunakitia ana e ia me te take e taunakitia ai.

Me pēhea te rongoā i te neuromyelitis optica (NMO)? He rongoā anō kei reira?

Kāore e taea te whakaora katoa i te NMO. Heoi, nā te rangahau tonu, ka taea te rongoā i te mate. Nā te mea he mate pūnaha ārai mate te NMO, e rua ngā kōwhiringa maimoatanga matua: te maimoatanga ohorere me te whakahaere roa.

• Te rongoā whakapeka: Ko te arotahi tēnei ki te rongoā i ngā pānga tonu o te whakaekenga NMO, inā koa te pupuhi. Ko te nuinga o te wā ka mahia tēnei me ngā corticosteroids (me ētahi atu momo rongoā rānei hei whakaiti i te pupuhi e ai ki te tohutohu a te tākuta). He mea tino nui te rongoā whakapeka nā te mea ka whakaiti i te mōrearea o te kino tuturu mai i te whakaekenga.
• Whakahaere mō te wā roa:Ko te NMO ka puta mai i te whakaekenga hē a tō pūnaha ārai mate i tō pūnaha io. Ko te whakahaere i tēnei mate ko te pehi, te whakarerekē rānei i tō pūnaha ārai mate. Ka whakaitihia e tēnei te kaha o tō pūnaha ārai mate ki te kino i tō pūnaha io. Ka āwhina tēnei ki te ārai i ngā whakaekenga NMO, i te iti rawa rānei te whakawhāiti i te kaha me te roa o te wā e mau ana. E taunaki ana ngā tohunga i tēnei maimoatanga mō te hunga whai me te hunga kāore he paturopi AQP4.

He aha te momo rongoā, te momo maimoatanga rānei e whakamahia ana?

He maha ngā rongoā me ngā maimoatanga hei āwhina i te rongoā i te NMO:

• Ngā rongoā ārai-mumura: Ka whakaitihia e ēnei rongoā te pupuhi i roto i tō pūnaha io. Ko te rongoā e whakamahia whānuitia ana mō tēnei ko te corticosteroid pērā i te prednisone. I te nuinga o te wā ka tīmata ngā tākuta i ēnei rongoā mā te uaua (IV). Ka hoatu i a koe i te hōhipera. I muri i tō wehenga atu i te hōhipera, ka huri pea tō tākuta i a koe ki tētahi rongoā rite e tangohia ana e koe mā te waha.
• Whakawhitinga plasma (plasmapheresis): Ki te kore e āwhina ngā steroids, ka tūtohu pea tō tākuta i tētahi tikanga e kīia nei ko te whakawhiti plasma. Ko te tango i te plasma mai i ō toto ka whakakapia ki te plasma mai i tētahi kaituku toto ōrite. Mā te tango i ētahi o ō plasma ka whakakapia ki te plasma kaituku toto, ka tangohia ētahi o ngā pūtau ārai mate me ngā tohu matū (e whakapakari ana i te urupare ārai mate) i roto i te plasma. Ka whakaitihia e tēnei te urupare ārai mate o tō tinana, ka whakaitihia hoki te pupuhi.
• Immunoglobulin Ā-uaua (IVIG): Ko tēnei tikanga he werohanga i te plasma ki roto i tō tinana mā te IV. Kei roto i te plasma ka whiwhi koe he immunoglobulin. Arā, he plasma kei roto ngā paturopi mai i ngā kaituku. Kāore ēnei e whakaeke i tō pūnaha io pērā i tō ake pūnaha ārai mate.
• Ngā rongoā ārai mate: Ko ēnei ngā rongoā me tango e koe i ia wā. Ko ētahi ka hoatu mā te uaua (IV), ka mahia i roto i tētahi whare rongoā werohanga, i tētahi whare hauora rite rānei. Ko ētahi ka puta mai hei pire, ka taea te tango i te kāinga. He maha ngā tāngata me tango i ēnei pire mō ngā tau, i ētahi wā mō ō rātou oranga katoa.

He aha ngā pānga taha, ngā raruraru rānei o te maimoatanga?

He maha ngā pānga taha o ngā maimoatanga e whakawhirinaki ana ki te rongoā, te kaha o tō āhua, me tō hītori hauora. Heoi, kotahi te pānga taha o ngā rongoā ārai mate e kitea nuitia ana: ka whakaitihia tō urupare ārai mate.

Ka tiakina koe e tō pūnaha ārai mate mai i ngā whakaekenga ke pērā i ngā huaketo, ngā huakita, ngā harore, me ngā pirinoa. Ka ārai hoki i ngā pūtau kia kaua e whanonga kino. Mena kei te whanonga kino ngā pūtau o tō tinana, ko te mahi a te pūnaha ārai mate he wawao me te whakangaro i a rātou (ko te mate pukupuku te wā e whanonga kino ai ngā pūtau, e huna ana i te pūnaha ārai mate, ā, ka nui haere, kāore e taea te whakahaere).

Ahakoa ka taea e te tango i ngā rongoā ārai mate te āwhina i te aukati i ngā whakaekenga o te NMO, ka taea hoki e ēnei te whakaiti i te kaha o tō tinana ki te whawhai ki ētahi mate. Ka taea hoki e ēnei te whakanui ake i tō tupono ki te whakawhanake i ētahi momo pukupuku (mate pukupuku me ngā mate kore-mate pukupuku). Mena kei te tango koe i ngā rongoā ārai mate, me mahi koe i ētahi mahi whakatūpato hei whakaiti i tō tupono ki te pāngia e te mate. Me werohia pea koe ki ngā mate pipiri pēnei i te COVID-19, te rewharewha (rewha), me te niumōnia, ka kino pea, ka mate pea ina ngoikore tō pūnaha ārai mate.

Kia pēhea te roa ka pai ake ai taku āhua i muri i te maimoatanga? Kia pēhea te roa ka ora ake ahau i te maimoatanga?

Ka rerekē pea te wā maimoatanga me te wā whakaora mō te NMO, nā te mea he maha ngā āhuatanga e pā ana ki tēnei. Ko tō tākuta te puna mōhiohio pai rawa atu mō tēnei. Ka taea e ia te kī atu ki a koe te wā tino pea mō tō rohe, me ngā mea ka taea e koe te mahi hei āwhina i te tukanga.

He aha ngā mea ka tumanakohia e au mēnā he neuromyelitis optica (NMO) tōku?

Mena kei a koe te NMO, ka taea e koe te tumanako ka tīmata wawe tēnei mate. Kei ētahi tāngata he mate manawa, he mate rānei i mua i tōna whanaketanga, engari ka tupu tēnei i roto i te hautoru (he iti iho rānei) o ngā take.

Ka raru te tirohanga i ngā whakaekenga NMO nā te mea ka pā ki ō io whatu. Ka mamae pea te kanohi, ka pōuri hoki te tirohanga. Ka kino haere i roto i ētahi rā, wiki rānei, kātahi ka piki rawa. Mena ka tino pakaru ngā io whatu, ka pumau tonu pea ēnei tohu, engari ka āwhina te maimoatanga ki te ārai i te kino pumau.

Ka pāngia te wāhanga o raro o tō roro e te NMO - te take o te roro - me tō taurakira. Ka taea e ia te whakararu i ngā mahi aunoa a tō tinana, ka puta ai ngā āhuatanga pēnei i te whakapairuaki, te ruaki, me te kore e taea te whakahaere i te hūpē.

Ki te kaha rawa te myelitis, ka taea e te pēhanga ki te taurakira te whakararuraru i ngā tohu io ki te wāhi e pāngia ana, ki ngā wāhanga katoa rānei o te tinana i raro iho. Ka taea e tēnei te ngoikore o te uaua, te pararutiki, me te ngaronga o te rongo i raro i te wāhi e pāngia ana. Ka taea e tēnei te kino mena ka pāngia ngā uaua e whakahaere ana i te manawa, ka puta te pararutiki, te ngoikore rānei o te uaua. Ka taea e te maimoatanga wawe te ārai i ēnei pānga kei pumau tonu.

(NMO) he mate pūnaha ārai mate. Ko te tikanga ka puta mai tēnei ina he te whakaeke a tō pūnaha ārai mate i ngā wāhanga o tō tinana. I tēnei wā, ka aro atu tō pūnaha ārai mate ki tō pūnaha io. Ko te maimoatanga mō tēnei mate ko te pehi i tō pūnaha ārai mate mō te wā roa. Engari, ka taea e tēnei te whakaraerae ake i a koe ki ngā mate hei pānga taha. Me āta tupato te hunga e tango ana i ngā rongoā ārai mate hei whakaiti i te tūponotanga o te mate.

Kia pēhea te roa o te neuromyelitis optica (NMO)?

Ka puta ngā whakaekenga i te NMO, arā, ka puta ohorere mai ngā tohu. Mō te hunga he paturopi ā rātou ki te AQP4, ki te MOG rānei, he mate mō te wā katoa te NMO. I tēnei wā, me tango e te hunga whai mate ngā rongoā ārai mate mō ngā tau, i ētahi wā mō te toenga o ō rātou oranga, hei ārai i ngā whakaekenga.

I waenganui i te 10% me te 20% o te hunga whai NMO ka pāngia e te kotahi whakaekenga, ā, kāore anō kia pāngia e tētahi atu. He nui ake te tūponotanga o tēnei ka pā ki te hunga kāore he paturopi ki te AQP4, ki te MOG rānei. Heoi, kāore he huarahi e tino mōhio ai, nō reira ka tūtohu pea tō tākuta kia tangohia ēnei rongoā hei whakaiti i tō tupono ki te pāngia e te whakaekenga.

He aha te tirohanga ā-muri mō te neuromyelitis optica (NMO)?

I mua, he mate kino rawa te NMO, ā, he tino kino te āhua o te mate. Heoi, nā ngā kitenga mō te pūtake o te mate, e mōhio ana ngā tohunga inaianei he mate ka taea te rongoā i te NMO. Mā ngā rongoā e whakahaere ana i te mate ka whakaitihia te tere o te hokinga mai o te mate mā te 72% me te 88%. Ko te reiti oranga mō ngā tau e rima me tēnei mate kei waenganui i te 91% me te 98%.

Ko te hunga whai NMO e pāngia ana e ngā whakaekenga maha, he nui ake te tūponotanga ka ngaro ētahi o ā rātou pūkenga, pērā i te tirohanga me te nekehanga. Tata ki te 22% o te hunga ka ora katoa mai i ngā pānga o te NMO, ā, ka hoki mai anō ō rātou pūkenga katoa. Tata ki te 7% kāore e ora katoa. Ko te toenga 71% ka ora i te iti rawa i te wāhanga, engari ka pāngia tonutia pea rātou e ngā pānga.

Me pēhea te whakaiti i te mōrearea o te whanaketanga o te neuromyelitis optica (NMO)? Ka taea te ārai?

Ka puta ohorere te NMO, ā, kāore anō kia tino mārama ngā tākuta ki ngā take. Nō reira, kāore he huarahi hei ārai, hei whakaiti rānei i te tūponotanga o te whanaketanga.

Me pēhea taku tiaki i ahau anō?

He āhua ngāwari te whakahaere i te NMO. Mā tō tākuta koe e ārahi ki te tiaki i a koe anō. Ko ētahi o ngā mea tino nui ka taea e koe te mahi ko:

• Tangohia tika tō rongoā: Ahakoa kei te ora koe i te whakaekenga NMO, kua roa rānei te wā kāore he whakaekenga, he mea nui kia tangohia tō rongoā kia rite ki te whakahaunga. Ka taea e ngā rongoā te āwhina ki te ārai, ki te whakaiti rānei i te kino i puta mai i tētahi whakaekenga o nāianei, me te whakaiti i te mōrearea o ngā whakaekenga a muri ake nei. Kaua e mutu te tango i tēnei rongoā me te kore kōrero ki tō tākuta.
• Tirohia tō tākuta kia rite ki te taunakitanga:He mea tino nui kia kite anō i tō tākuta ina pāngia koe e te NMO. Mā tēnei ka taea e tō tākuta te aroturuki i ngā pānga o te mate. He mea noa te whai whakamātautau toto auau ina pāngia koe e te NMO. Mā tēnei ka taea e tō tākuta te kite i te pai o te mahi a tō pūnaha ārai mate. Kātahi ka taea te whakarerekē i ō rongoā mēnā e tika ana.
• Kia tūpato kia ora tonu ai: Ki te tango koe i ngā rongoā ārai mate, ka taea e ēnei te whakaiti i te kaha o tō pūnaha ārai mate ki te whakaeke i tō pūnaha io. Engari, ka taea hoki e ēnei te whakaiti i te kaha o tō pūnaha ārai mate ki te whawhai ki ngā mate pēnei i te makariri, te rewharewha, te COVID-19, te niumōnia, me ngā mate mimi (UTI). Horoia ō ringaringa i ngā wā katoa (ki te hopi me te wai, ki te wai horoi ringa kei roto i te waipiro rānei). I runga i tō mōrearea whānui, ka tūtohu pea tō tākuta kia mau he kopare kanohi i te aroaro o te marea, kia mahi rānei i ētahi atu tūpato.

Āhea ahau me waea atu ki taku tākuta?

Ko te hunga e tango ana i ngā rongoā ārai mate ka nui ake te tūponotanga ki te pāngia e ngā mate noa, tae atu ki ngā mate kāore i te tino kino. Mena kei te pāngia tetahi e te hunga e tango ana i ngā rongoā ārai mate, me waea atu ki tā rātou tākuta:

• Te ngenge nui (te ahua ngenge rawa, te tino ngenge rānei) te ngoikore rānei.
• Whakapairuaki me te ruaki.
• Ngā huringa taumaha ohorere.
• Te mimi pinepine atu i te tikanga, te mamae o te tuara o raro, te mamae, te wera rānei i te wā e mimi ana (he tohu ēnei o te mate mimi).
• Ngā tohu o ngā mate urutā o te ara manawa o runga, pērā i te maremare, te tihe, te ihu pupuhi, te korokoro mamae rānei.
• Ko ētahi atu tohu o te mate, pērā i te kirika, te makariri, me te mamae o ngā uaua.

He aha te rerekētanga i waenga i te neuromyelitis optica `(NMO)` me te multiple sclerosis `(MS)`?

He maha ngā āhuatanga ōrite me ngā tohu e taupatupatu ana te NMO me te multiple sclerosis (MS). Mō ngā tau, i whakaaro hē ngā tohunga he momo MS te NMO. Engari e mōhio ana ngā kairangahau he āhuatanga motuhake rāua.

Ko te rerekētanga matua i waenga i te `(NMO)` me te `(MS)` ko te āwhina o ngā whakamātautau taiwhanga ki te tautuhi i ngā paturopi e puta ai te `(NMO)` (ahakoa kāore e taea te kite i ngā paturopi i ngā wā katoa). He rerekē anō hoki ngā maimoatanga mō te `(NMO)` me te `(MS)`, ā, ka taea e ētahi maimoatanga mō te `(MS)` te whakakino ake i ngā tohu o te `(NMO)`.

Ki te whakarapopototanga, he mate onge, he roa te Neuromyelitis Optica (NMO). Ka puta mai ina whakaekea e tō ake pūnaha ārai mate ētahi wāhanga motuhake o tō pūnaha io matua. I whakaarohia i mua he momo onge o te multiple sclerosis (MS), engari kua mōhiotia inaianei he mate motuhake. Kāore i rite ki te MS, ko te nuinga o ngā take o te NMO ka taea te whakaū mā roto i ngā whakamātautau taiwhanga. Mā tēnei ka taea e ngā tākuta te tātaritanga me te rongoā wawe.

Ko te mea nui hei maumahara (Karere hei tango ki te kāinga)

Nō reira, ahakoa te ahua whakamataku o te kupu neuromyelitis optica (NMO), me mahara koe he pai ngā maimoatanga mō tēnei mate i nāianei . He rerekē ki ngā wā o mua, he nui ake ngā kōrero mō tēnei mate i nāianei, nō reira he mea nui kia toro atu koe ki te tākuta ina tīmata koe ki te pāngia e ngā tohu me te whiwhi i te tātaritanga tika.

• Ki te pāngia koe e ngā panoni ohorere o te tirohanga, te ngoikore rānei, kaua e warewaretia. Tirohia te tākuta tonu.
• Ehara te `(NMO)` i te `(MS)`. He rerekē ngā maimoatanga mō ngā mea e rua. Nō reira, he mea tino nui te tautuhi tika.
• Ka taea e ngā maimoatanga o nāianei te whakahaere i ngā whakaekenga NMO me te whakaiti i te mōrearea o ngā whakaekenga a muri ake nei. He mea nui kia tangohia te rongoā kia rite ki te whakahaunga a tō tākuta.
• I te wā e tango ana koe i ngā rongoā e pehi ana i te pūnaha ārai mate, kia tino tupato ki te tiaki i a koe mai i ngā mate urutā.

Ko tāku tumanako he whai hua ēnei kōrero ki a koe. Mēnā he pātai anō āu mō tēnei, kaua e mangere ki te pātai atu ki tō tākuta, ki tō kaiwhakawhanau rānei. Kia ora tonu koe!

` neuromyelitis optica, NMO, pūnaha io, io whatu, taurakiraki, pūnaha ārai mate, tohumate, myelin