Kua kite koe kua tawhiti atu ngā kanohi o tāu tamaiti i te mea noa? Kua kōrerotia atu rānei e te tākuta ki a koe mō tēnei āhuatanga? I roto i ngā kupu hauora, ka kiia tēnei āhuatanga ko te Orbital Hypertelorism . I ētahi wā ka kiia hoki ko te Ocular Hypertelorism. Ahakoa he whakamataku ēnei kupu, ehara tēnei i te mea nui rawa atu i tā tātou e whakaaro nei. I tēnei rā, ka kōrerohia tēnei mea kia tino māmā, kia mārama ai koe.
He aha rawa te Orbital Hypertelorism?
Ki te kī māmā noa, ehara te Orbital Hypertelorism i te mate motuhake. He tohu noa iho tēnei nō tētahi atu whānautanga hapa, he mate ira rānei.
Whakaarohia, i te wā e noho ana te pēpi i roto i te kōpū, ka āta hanga ngā wheua o tōna mata. I tēnei wā, ko ngā kōhao kanohi e rua e pupuri ana i ōna kanohi kei tawhiti atu i te mea noa. Nō reira, ka kitea ake te āputa i waenganui i ngā kanohi i tō te tamaiti noa. Ka kī tonu tēnei wāhi kua nui ake i te wheua tāpiri.
Ko te mea nui, ko te nuinga o ngā tamariki he tawhiti rawa ngā kanohi , kāore he raruraru tirohanga. Ko te pānga o te tirohanga kei te tawhiti o ngā kanohi me ētahi atu tohumate o te tamaiti.
Me pēhea te tautuhi tika a ngā tākuta i tēnei?
I te nuinga o te wā, ka tātaritatia tēnei mate e te tākuta i te whānautanga mai o te pēpi. I ētahi wā, ka kitea pea i te wā e tirotirohia ana te pēpi mā te ultrasound i a ia e noho tonu ana i roto i te kōpū.
Kāore he tawhiti kua whakaritea i waenganui i ngā kanohi, engari e rua ngā inenga matua e whakamahia ana e ngā tākuta hei whakatau i tēnei.
| Tikanga ine | He whakamārama ngāwari noa iho |
|---|---|
| Tawhiti Canthal o Roto | Ko te tawhiti mai i te kokonga o tētahi kanohi e tata ana ki te ihu ki te kokonga o tētahi atu kanohi e tata ana ki te ihu. |
| Te Tawhiti o te Pupillary | Ko te tawhiti mai i waenganui o te tauira o tetahi kanohi ki waenganui o te tauira o tetahi atu kanohi. |
He teitei ake ēnei inenga e rua i te mea noa mō ngā tamariki e pāngia ana e te orbital hypertelorism.
He aha tēnei e tupu nei? He aha ngā take matua?
E whakapono ana ngā tākuta kei waenganui i te whā me te waru wiki o te whanaketanga o te pēpi te pūtake o tēnei āhuatanga. Whakaarohia ngā wheua o te angaanga o te pēpi he rite ki ngā wāhanga o te panga toru-ahu (3D) e hono tahi ana. Mēnā he raruraru, he huringa rānei i roto i ngā mahi e uru ana ki te hono i ēnei wāhanga, ka hē te tūnga o ngā kōhao kanohi e rua, ka tawhiti rawa atu.
Ko ngā take matua e rua mō tēnei ko:
1. Ngā hapa whānau
2. Ngā mate ira
1. Ngā āhuatanga whānau
Ko te hapa whānau he āhua rerekē o te āhua, o ngā whekau o roto, o ngā tukanga matū rānei o te tinana o te pēpi i te whānautanga. Ka puta pea ēnei i:
- Ngā āhuatanga ira me ngā āhuatanga tuku iho.
- Ko ētahi mate ka pā ki te whaea i te wā e hapu ana.
- Te pānga ki te irahiko.
- Te whakamahi i ngā raau taero, waipiro rānei i te wā e hapu ana.
I ētahi wā ka puta ngā hapa whānau kāore he take mārama, ahakoa he mea tūpono noa iho. Ko te Craniosynostosis tētahi o aua hapa whānau. Ko te mea e tupu ana i konei ko te hono o ngā hononga e hono ana i ngā wheua o te angaanga o te pēpi. Ka taea hoki e tēnei te puta te Orbital Hypertelorism.
2. Ngā mate ira
Ko ngā ira he waeine iti o te DNA e tuku tohutohu ana ki ngā pūtau o roto i tō tātou tinana. Ka taea e ngā whakarerekētanga ira o ēnei ira te whakaputa mate ira. Ko ētahi o ngā mate ira ka taea te whakaputa i te hypertelorism orbital ko:
- Te mate Apert
- Te mate DiGeorge
- Te mate Edwards
- Te mate Crouzon
- Te mate Noonan
- Neurofibromatosis momo 1
Mena kei tō tamaiti tēnei āhuatanga, ka tukuna pea koe e tō tākuta ki te whai i tētahi tohutohu ira, hei āwhina i a koe ki te mārama ake mō te mōrearea o tō whānau ki ngā mate ira.
He aha ngā maimoatanga mō tēnei?
Ka taea e ngā tamariki whai mate pēnei te whakaora i ō rātou kanohi mā te pokanga. Ka kiia tēnei he pokanga hanga anō . Ko te tikanga ka mahia tēnei pokanga ina kei waenga i te 5 me te 7 tau te pakeke o te tamaiti. Mā tēnei pokanga ka āhua noa ake te tamaiti, ā, ka whakaitihia te tawhiti i waenganui i ngā kanohi.
Me tirotirohia ngā kanohi o tāu tamaiti i mua atu, ā, i muri i te pokanga hei aroturuki i ngā panoni o ngā kanohi me te tirohanga.
E rua ngā tikanga pokanga e whakamahia ana e ngā taote pokanga mō tēnei.
| Momo pokanga | He aha te mea e tupu ana? |
|---|---|
| Pouaka Osteotomy | I konei, ka tangohia e te taote pokanga te wheua me te kiri nui i runga ake i te ihu, ka hurihia te āhua o ngā kōhao kanohi kia uru ki roto i taua wāhi. Whakaarohia te tapahi i tētahi wāhanga tapawhā i te taha o ngā tukemata me runga ake i te ihu, ka kawea mai ngā kōhao kanohi ki roto i taua tapawhā. |
| Wehewehenga Kanohi | He pokanga uaua ake tēnei. Ka mahia ki ngā tamariki he nui ake te uaua o te tirohanga o te kanohi me ētahi atu raruraru wheua kanohi (hei tauira, te kauae, ngā paparinga). Ko te mahi he whakahou i te āhua o ngā kōhao kanohi, te ihu, me ngā paparinga kia tata ai ngā kanohi, me te whakatika anō hoki i ngā raruraru o te kauae me ngā niho. |
Ngā raruraru pea i muri i te pokanga
Pērā i ngā pokanga katoa, he iti noa iho ngā mōrearea kei roto. Ko ētahi o ēnei ko:
- Te toto
- Ngā mate urutā
- Te whara
- Kamo kamo e takoto kau ana ( Ptosis )
- Diplopia (tirohanga takirua)
- Te ngaronga o te tirohanga, te matapo rānei (he tino onge tēnei)
Mā tō taote pokanga ēnei mōrearea e whakamārama atu ki a koe.
Āhea koe me toro atu ki te tākuta?
Ki te kite koe i ētahi panonitanga ki ngā kanohi, ki te tirohanga rānei o tāu tamaiti, me toro atu ki tō tākuta tonu.
Waihoki, ki te puta mai i tāu tamaiti tētahi o ngā tohu e whai ake nei, me haere tonu koe ki te Tari Whawhati Tata (ETU) o te hōhipera tata.
- Te ngaronga ohorere, te heke rānei o te tirohanga.
- Te mamae nui o ngā kanohi.
- Te kite i ngā uira hou, i ngā mea hou rānei e rere ana i mua i ngā kanohi.
Kia maumahara, ahakoa i whānau mai he pēpi me te Orbital Hypertelorism, ehara i te mea kāore e tipu hauora, e ora pai ana pērā i ētahi atu tamariki. I runga i te mate i puta ai, me rongoā pea tō pēpi mō tētahi wā. Kōrero ki tō tākuta mō tēnei.
Karere Tangohia ki te Kāinga
- Ehara te Orbital Hypertelorism i te mate motuhake. He tohu noa iho tēnei nō tētahi atu whānautanga hapa, nō tētahi atu āhuatanga ira rānei.
- He maha ngā tamariki e pāngia ana e tēnei mate, kāore he raruraru tirohanga.
- Ina tae te tamaiti ki te 5-7 tau te pakeke, ka taea te mahi pokanga hei whakahoki i ngā kanohi ki tō rātou tawhiti noa.
- Mena kei tō tamaiti tēnei mate, kaua e wehi ki te kōrero noa ki tō tākuta, kia whiwhi ai koe i ngā tohutohu me ngā maimoatanga e tika ana.
- He mea tino nui kia kite i te tākuta i te wā tika, kia tirotirohia hoki ō kanohi.
👩🏽⚕️ Ngā pātai tāpiri (FAQs)
💬 He aha te momo āhua o te Orbital Hypertelorism?
Ehara tēnei i te panonitanga āhua noa! Ko te 'Orbital Hypertelorism' he hapa ira/whānau e puta ana ina whanake te angaanga o te pēpi me ngā wheua huri noa i ngā kanohi (orbits) i roto i te kōpū, ka puta ai te tawhiti i waenganui i ngā kanohi he rerekē/he tawhiti rawa. Ehara tēnei i te mate o ngā kanohi, engari he raruraru ki te angaanga kanohi!
💬 He aha ngā tino take e tawhiti rawa ai ngā kanohi o te tamaiti (Orbital Hypertelorism)?
Ehara tēnei i te mate e puta takitahi ana, engari he āhuatanga nui o ētahi 'Ngā Mate Ira' tino morearea! I roto i ngā mate kino pērā i te 'Apert Syndrome', te 'Crouzon Syndrome' me te 'DiGeorge Syndrome', ka panaia ēnei wheua kia wehea nā ngā raruraru o te angaanga. I ētahi wā, ka taea hoki e te pukupuku e tupu ana i te mata i roto i te kōpū (encephalocele) te mea ka panaia ngā kanohi kia wehea.
💬 He aha atu ngā tohu kino ka pā ki ngā tamariki he kanohi tawhiti ō rātou, ā, he aha ngā pokanga ka taea te mahi hei rongoā i tēnei?
He maha ngā wā ka pāngia ēnei tamariki e ngā raruraru tirohanga, te hauātanga hinengaro, ngā ngoikoretanga o te ngākau, me ngā mate whakamate pērā i te waha ngatata. Hei rongoā i tēnei, ina tae te tamaiti ki te 5-8 tau te pakeke, me mahi rātou i tētahi pokanga tino nui, uaua hoki (Craniofacial reconstruction / Facial Bipartition) e tapahia ai te angaanga, e tiakina ai te roro, e tapahia ai te kōhao kanohi, e whakatatahia ai, ā, e hangaia anō ai te mata.
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