He uma pokorua tōu? Me kōrero tātou mō (Pectus Excavatum)!

I ētahi wā, kua kite pea koe, kua pāngia rānei e tētahi kōhao i waenganui o te uma. Ki ētahi tāngata, he wāhanga iti noa iho tēnei o te uma, ki ētahi atu ia, he tino kitea, me te mea kua totohu te uma ki roto. Koinei te ingoa o ngā tākuta ko '(Pectus Excavatum)'. Kaua e mataku rawa ina rongo koe i tēnei ingoa, he mate noa tēnei. I tēnei rā, ka kōrerohia e tātou tēnei mea me te taipitopito, he tino māmā noa iho.

He aha tēnei mamae o te uma, (Pectus Excavatum) rānei?

Ki te kī māmā noa, ko te `(Pectus Excavatum)` he putanga mai o te wheua i waenganui o tō tātou uma, arā, te sternum `(Sternum).` Hei whakamārama, ko tēnei wheua waenga o te uma e piko ana ki roto. Nā tēnei, ka kitea he mārama te totohu, te poka rānei o te uma. I te nuinga o te wā, e whā, e rima rānei ngā rara i ia taha o te uma e hono ana ki tēnei.

Ka kiia hoki tēnei he "uma totohu" he "uma whāriki rānei." Ka whakaitihia e tēnei āhuatanga te nui o te wāhi i roto i te uma. Ka ahatia i muri mai? Kāore e ranea te wāhi mō te ngākau me ngā pukahukahu ki te mahi tika.

He mate whānau te `(Pectus Excavatum)`. Arā, ka whānau mai te tangata me tēnei mate. Engari i te nuinga o te wā, ka tīmata te kitea i te tīmatanga o te taiohitanga, tata ki te tekau mā toru, tekau mā whā rānei tau. Kaua e manukanuka, ka taea e ngā tākuta te whakatika i tēnei mate mā te pokanga iti rawa te whakaekenga, mā te pokanga tuwhera tuku iho rānei.

He pehea te nui o tenei ahuatanga (Pectus Excavatum)?

Koinei te mate whānautanga tino noa o te pakitara o te uma. I te nuinga o te wā, ka pāngia e te mate te kotahi ki te waru o ia mano tāngata. He tino noa tēnei i roto i ngā tama.

He aha ngā tohu o te (Pectus Excavatum)?

Ka pāngia te tinana me te hinengaro e ngā tohu o tēnei mate.

Ngā tohu ā-tinana:

• Te uaua ki te manawa i te wā e whakakorikori ana: Tērā pea ka rite koe ki te kore e manawa ahakoa kei te oma koe, kei te tākaro rānei.
• Te tere ake o te ngenge i ērā atu hoa: I a koe e tākaro ana me ō hoa, tera pea ka ngenge koe i mua i a rātou.
• Ngenge: Te ngenge tonu, ahakoa kāore he take.
• Mamae o te uma: I ētahi wā ka pāngia te uma e te kikī, te mamae rānei.
• Te pā o te manawa kāore i te ōrite: Te āhua nei kei te huri te manawataki o tō ngākau.
• Te tere o te manawa: He kare ā-roto ohorere o te rongonga i te haruru o te manawa e pakū ana, e tere ana rānei te pakū.

Ngā tohu hinengaro:

Whakaarohia, ki te mea ka whakama koe, ka kore e pai ki a koe ina kauhoe koe me ō hoa, ina takaro hākinakina rānei nā tēnei panonitanga o tō uma... i ētahi wā, kāore pea koe e hiahia ki te tango i tō T-hate. Ka taea e ēnei mea te whakaiti i tō whakapono ki a koe anō.

• Te whakama nui me te mamae i puta mai i te āhua o te uma.
• Ngā take whakaaro nui ki a koe anō.
• I ētahi wā, ka taea e tēnei āhuatanga te arahi ki te pouri haumanu .

He aha ngā take o te (Pectus Excavatum)?

Kāore i te mōhiotia te tino take o tēnei mate i roto i te nuinga o te tangata. Heoi, i roto i ētahi tāngata, tera pea e hono ana ki ngā mate hononga kiko pērā i te Marfan syndrome, te Ehlers-Danlos syndrome rānei.

He mea ira tēnei?

Kāore anō kia kitea e ngā kairangahau tētahi hononga ira tūturu ki tēnei mate. Engari e whakapae ana rātou he pānga ira pea kei roto . Kua kitea kei waenganui i te 40% me te 53% o te hunga whai Pectus Excavatum he mema whānau kei a rātou te mate.

He aha ngā āhuatanga mōrearea mō te (Pectus Excavatum)?

Nā te mea kāore anō kia kitea te tino pūtake o tēnei mate, he uaua ki te tohu i ngā āhuatanga mōrearea tuturu. Heoi, mēnā kei roto i tō whānau tēnei mate, kei a koe rānei tētahi o ngā mate kua whakahuatia ake nei kua kitea he hononga ki tēnei mate, tera pea ka tūpono koe ki te whakawhanake i tēnei mate.

He aha ngā raruraru ka puta mai i tēnei āhuatanga?

Ko nga raruraru ka pa ki te Pectus Excavatum ko:

• Te ngoikore o te kaha ki te whakakorikori tinana.
• Te hekenga o te takirere mitral (he takirere ngākau kāore e kati tika).
• Te pēhanga o tō ngākau.

Me pehea te whakatau a Pectus Excavatum?

Ka taea e te tākuta te tātaritanga i tēnei mate mā te whakamātautau tinana noa iho. I ētahi wā, kāore pea ngā tākuta e kite i tēnei mate tae noa ki tō tamarikitanga. Tērā pea ka whakahaerehia e rātou ētahi whakamātautau hei tirotiro i te nui o te pānga o te Pectus Excavatum ki tō ngākau me tō pukahukahu.

He aha ngā whakamātautau e whakamahia ana hei tautuhi i te mate (Pectus Excavatum)?

Ko ngā whakamātautau mō tēnei pea ko:

• He matawai whakaahua aukume (MRI) o te uma.
• He matawai CT o te uma.
• Te whakamātautau i ngā mahi whakakori ngākau me ngā pūkahukahu.
• Te hiko o te manawa (EKG).
• He echocardiogram o te ngākau.
• Ngā Whakamātautau Mahi a te Pūkahukahu (PFT).

Me pēhea te rongoā mō te Pectus Excavatum?

Ka taea e te taote pokanga te whakatika i tēnei āhuatanga (Pectus Excavatum) mā te tikanga iti rawa te whakaekenga (tikanga Nuss) mā te tikanga tuwhera rānei (tikanga Ravitch) . Ka matapakihia e tō taote pokanga ki a koe ko tēhea tikanga te mea pai mōu. Ko te tikanga o tēnei tikanga ko te neke i tō wheua uma (sternum) kia paku teitei ake. Mō ngā tikanga e rua:

• Ka whakaitihia te pēhanga ki tō ngākau me ō pukahukahu, ka pai ake te mahi a aua whekau.
• Kei te pai haere tō uma.

Mena kei te pāngia koe e ngā tohu ā-tinana, kei te pāngia rānei koe e te mamae hinengaro nā te Pectus Excavatum, he kōwhiringa pai pea te pokanga māu. Ko te wā pai rawa atu ki te pokanga ko te wā i waenganui i te 10 me te 14 tau te pakeke, i te wā e ngāwari tonu ana te pakitara o te uma. Mā tō tākuta koe e āwhina ki te whakatau i te wā pai rawa atu mō te pokanga.

Tukanga Nuss

Koinei te tikanga tino iti rawa te whakaekenga. I roto i tēnei, ka:

• Ka whakauruhia he kāmera ki roto i te uma hei ārahi i te pokanga.
• E rua ngā tapahi iti ka mahia ki ia taha o te uma.
• Ka whakaurua he here rino, he here rānei, he mea hanga motuhake ki raro i te waenganui o te wheua o te uma, ā, ka whakatikatikaina kia hiki ake taua wheua.
• Ka herea tēnei whitiki ki ngā taha o te uma, ā, ka whakakorea te āhua piko.

Me waiho tēnei whitiki maitai ki tōna tūranga mō ngā tau maha. Kātahi ka tangohia e te taote pokanga i roto i tētahi tikanga ngāwari i waho o te hōhipera (arā, ka taea e koe te hoki ki te kāinga i taua rā anō).

Tukanga Ravitch

Koinei te tikanga pokanga tuwhera tuku iho. I roto i tēnei, ka:

• Ka tapahia te uma ki mua.
• Ka tangohia te kiko honohono kua tupu nui e pana ana i waenganui o te wheua o te uma ki roto.
• Ka nekehia te sternum kia matara atu i te ngākau me ngā pukahukahu, ka kumea ki mua, ka whakahokia ki te tūranga tika i runga i te pakitara o te uma.
• Kātahi ka whakau te waenganui o te wheua uma ki tōna tūranga hou mā te whakamahi i tētahi pereti iti me ngā tīwiri iti , i tētahi here whakarewa iti rānei.

Ka tangohia tēnei whitiki whakarewa i muri i te 6 ki te 12 marama i roto i tētahi tikanga poto i waho o te hōhipera. He iti ake tēnei whitiki i te whitiki i whakamahia i roto i te "tikanga Nuss". Kāore ngā pereti e tangohia, nō reira kāore he pokanga tāpiri e hiahiatia ana.

Ngā raruraru o te maimoatanga

Pērā i ngā pokanga nui katoa, he mōrearea anō hoki kei roto i te pokanga hei whakatika i te Pectus Excavatum. He haumaru, he whai hua hoki te tikanga Nuss me te tikanga Modified Ravitch. Heoi, he onge noa iho te puta o ngā raruraru.

Ngā raruraru pea o te pokanga `(Pectus Excavatum)`:

• Te pūkahukahu.
• Te toto.
• Te rerenga wai i roto i te pleural.
• Te mate urutā.
• Kei te porangi haere i te wāhi i whakaurua ai te whitiki.
• Te hokinga mai o te āhua `(Pectus Excavatum)` i muri i te tangohanga o te whitiki.
• Te kino ki ngā kiko e karapoti ana.
• Mamae mau tonu.

Kia pēhea te roa o te wā e ora ai i muri i tēnei maimoatanga?

Nā te whanaketanga o te whakahaere mamae, kua poto ake te wā whakaora i muri i te pokanga, ā, kua iti ake te mamae i tērā o mua.

Ka whakatio te cryoablation i ngā io i roto i te pakitara o te uma i waenganui i ngā rara e rongo ana i te mamae mō te wā poto. Ka werohia ngā rongoā whakamoe ā-rohe ki roto i aua io i mua atu me muri i te pokanga, ā, ka hoatu hoki ngā rongoā whakamamae waha.

Mā te whakamahi i tēnei tikanga "Cryoablation" hei whakaiti i te mamae nui e puta ana i muri i te "tikanga Nuss" kua tino whakaitihia te roa o te noho ki te hōhipera, me te hiahia hoki ki ngā rongoā whakamamae pēnei i te "Opioids".

I mua, nā te mea e tata ana ki te kotahi marama te roa o te whakaora i tēnei "tikanga Nuss," me mahi ngā tamariki kura i ngā hararei roa. Engari ināianei, nā ngā tikanga whakahaere mamae hou pērā i te "Cryoablation," he poto ake te noho hōhipera, ā, he tere ake te whakaora, nō reira ka taea te mahi ahakoa he poto ngā hararei kura.

Ko ngā tikanga tuku iho mō te whakahaere mamae e hiahiatia ana kia kotahi wiki i te hōhipera i muri i te tikanga Nuss. Me whakamahi hoki he epidural, ā, muri iho ka tangohia he rongoā mamae opioid mō ētahi wiki, ka taea ai te whakawara.

Engari mā te Cryoablation, ka taea e te nuinga o te tangata te hoki ki te kāinga i te rā i muri i te pokanga. Ko ētahi tāngata kāore e hiahia ki ngā IV, ki ngā opioid ā-waha rānei i a rātou e noho ana i te hōhipera. Ahakoa ko te hunga e hiahia ana ki ngā opioid ā-waha, ka taea e rātou te whakamutu i te tango i aua opioid i roto i te rā kotahi, e rua rānei. Ka taea e te Cryoablation te waiho i te pakitara o te uma kia kore e māhorahora mō te ono marama ki te tau.

Ka taea te aukati i te Pectus Excavatum?

Kāo. Kia kitea rā anō te tino pūtake o te `(Pectus Excavatum)`, kāore he huarahi hei ārai.

Mena kei a au (Pectus Excavatum), he aha taku e tumanako ai?

Ko te whāinga matua o te pokanga Pectus Excavatum he whakaiti i te pēhanga ki tō ngākau me ō pukahukahu, kia pai ake ai te mahi. Ko te tikanga ka pai ake te manawa, ka uaua ki te whakakorikori tinana, ka mamae hoki te uma. Tērā pea i whakaaro koe he noa tō manawa me tō kaha i mua i te pokanga, engari i muri i te pokanga ka mōhio koe ki te pai ake o te āhua.

Ko te hunga i raru nui ko te āhua rerekē o ō rātou ū , kua kite i te whakapainga nui o tō rātou whakaaro nui ki a rātou anō me te whakapono ki a rātou anō i muri i te pokanga.Kāore pea ngā pakeke whai `(Pectus Excavatum)` e kite i ngā herenga mārama o ā rātou mahi tae noa ki te mutunga o ngā tau 30, tae noa ki te 40 tau.

Kia pēhea te roa o te (Pectus Excavatum) e ora ai?

Ka pāngia koe e tēnei āhuatanga kia tae rā anō ki te wā e pokangahia ai koe hei whakatika.

Āhea ahau ka taea ai te hoki ki aku mahi o ia rā?

I muri i te pokanga, me okioki koe mō tētahi wā, nā te mea ka pāngia koe e te mamae. Kia memeha haere te mamae, ka taea e koe te tīmata anō ki te hikoi me te oma. Mā tō taote pokanga e whakatau āhea koe ka taea ai te tīmata anō ki te hiki taumaha me te tākaro anō i ngā hākinakina whakataetae.

E rua, e toru rānei wiki i muri i te pokanga ‘(Pectus Excavatum)’, ka taea e ngā tamariki kura te hoki ki te kura.

He aha te tirohanga mō (Pectus Excavatum)?

He tino pai ngā hua o ngā tikanga Nuss me Ravitch. I muri i te whakaoranga, ka makona te iwi ki ō rātou kare ā-roto me te āhua. He iti iho i te 1% te auau hokinga mai mō ngā tikanga e rua.

Me pēhea taku tiaki i ahau anō?

Mō te hunga kāore anō kia rongoatia te `(Pectus Excavatum)`, he wāhanga noa iho o te oranga o ia rā ngā tohu ā-tinana me ngā tohu hinengaro. Ahakoa ka kī ētahi, "He take āhua noa iho," kāore pea rātou e whakaae ki ō kare ā-roto. Kimihia he tākuta e mārama ana ki ō tohu, ā, ka taea e ia te āwhina i a koe ki te whakahaere i aua tohu.

Āhea ahau me toro atu ki taku tākuta?

Mā ngā tirotiro auau me tō tākuta rātou e āwhina ki te whakatau āhea koe e hiahiatia ai he pokanga (mēnā rānei he kino rawa tō āhua hei hiahia pokanga). I muri i te pokanga, me toro atu koe ki tō taote pokanga i runga i te wā auau kia ora rawa koe.

He aha ngā pātai me pātai atu e au ki taku tākuta?

Ko ētahi pātai ka taea e koe te pātai atu ki tō tākuta mō te `(Pectus Excavatum)`:

• " Ka taea e koe te tuku mai i ahau ki tētahi kaitohutohu hei āwhina i ahau me te mamae hinengaro e pāngia nei e ahau nā tēnei āhuatanga?"
• " He rōpū tautoko kei reira mō te hunga e pāngia ana e te `(Pectus Excavatum)`?"
• " E taunaki ana koe kia pokangahia tōku mate?"
• " I tehea tau ahau me pokanga?"

Ka kino haere te (Pectus Excavatum) i te kaumātuatanga?

Tērā pea ka kino haere ō tohu i te roanga o te wā. Tērā pea nā te tukanga koroheketanga noa tēnei. Waihoki, ka uaua ake te whakaea i ngā herenga i whakatakotoria ki tō ngākau me ō pukahukahu e te Pectus Excavatum i a koe e pakeke haere ana.

Ki te kore au e pokangahia, ka kino rānei (Pectus Excavatum) tōku ngākau me ōku pukahukahu, ka whakawhāiti rānei i tōku roanga ora?

Kāore he taunakitanga e whakaatu ana ka whakawhāitihia e te Pectus Excavatum te roanga o te ora, ka kino rānei te ngākau me ngā pukahukahu i roto i te wā. Heoi, ka kino ake pea ō tohu mena kāore koe e pokanga.

Ka taea e ngā wāhine whai `(Pectus Excavatum)` te hapu me te whānau tamariki i roto i te āhua noa.

Mena kei a au te Pectus Excavatum, ā, me pokanga te ngākau, ka taea te mahi i ngā mahi e rua i te wā kotahi?

Āe. Kua whakahaerehia e ngā taote pokanga te pokanga whakatikatika Pectus Excavatum me ngā pokanga ngākau, ā, he tino pai ngā hua. Me whai mahi tahi pai ngā taote pokanga e mahi ana i ngā tikanga e rua.

Hei whakamutunga, he karere hei kawe ki te kāinga:

Ko te Pectus Excavatum, he mate e tipu rerekē ai te wheua o te uma, ka pāngia e te mamae nā ōna tohu ā-tinana me ā-hinengaro. Kōrerohia ō whakaaro, ā, tikina te āwhina e hiahiatia ana e koe mō ō tohu. Kaua e wehi ki te kōrero ki ō tākuta mō tō mate. Kei reira rātou hei āwhina i a koe, pērā i tā rātou āwhina i ētahi atu i mua i a koe. Mena ko te pokanga te kōwhiringa tika māu, pātai atu kia mārama ai koe ki te momo pokanga e pai ana māu. Kia maumahara, he maimoatanga whai hua mō tēnei mate, ā, ka taea e koe te noho ora, ora kaha!

` Pectus excavatum, uma totohu, mamae uma, pokanga uma, tikanga Nass, tikanga Ravitch, poto te manawa, mamae uma, sternum, āhua whānau, uma totohu