He maha ngā wā ka ngenge koe, ka ngoikore hoki? He uaua ki a koe te manawa ina tere ake tō hikoi, ina piki arawhata rānei? Tērā pea kei te mā ake tō kiri i tō tikanga. He tohu ēnei mō te kore toto i roto i te tinana, koinei te mea e kiia nei e tātou i roto i te rongoā he anemia. Engari i ētahi wā ko te take o tēnei anemia he mate uaua ake, he onge ake i tā tātou e whakaaro nei. I tēnei rā ka kōrero tātou mō tētahi mate onge engari he tino nui e pā ana ki te toto. Ko te Pure Red Cell Aplasia, e kiia nei e tātou ko te PRCA.
He aha te PRCA?
Whakaarohia te hinu wheua i roto i tō tātou tinana he wheketere hanga toto. Ka hangaia e tēnei wheketere ngā momo pūtau e toru e hiahiatia ana e tō tātou tinana: ngā toto whero, ngā toto mā, me ngā pereti toto. Ko te mahi matua a ngā toto whero ko te kawe i te hāora e tae mai ana ki ō tātou pukahukahu ina manawa tātou ki ngā pūtau katoa o tō tātou tinana. He rite ki te ratonga taraka e tuku hāora ana.
Ināianei, mō te PRCA, ka tino whakaitihia, ka mutu rānei te hanga toto e te wheketere hanga toto, arā, te hinu wheua, i ngā toto whero anake . Ka puta noa te hanga o ētahi atu momo pūtau (ngā toto mā me ngā pereti toto). Nō reira, ina heke te maha o ngā toto whero e kawe ana i te hāora ki te tinana, kāore ngā whekau o roto i tō tātou tinana e whiwhi i te hāora e hiahiatia ana e rātou. Ko te mate toto nui e puta mai ana i tēnei te raruraru matua o te PRCA.
He aha ngā tohu ka pā ki te tangata whai PRCA?
Ka puta ngā tohumate rite tonu ki te mate toto nui, engari tera pea ka nui ake te kino i te mate toto noa. He mea nui kia mōhio koe ki ēnei tohumate.
| Tohu | He whakamārama māmā |
|---|---|
| Ngenge | Te āhua kore ora, te ngenge tonu, ahakoa te roa o te moe. |
| Te uaua ki te manawa (Dyspnea) | Te pōuri o te manawa ahakoa i muri i te mahi i tētahi mahi iti, i te hikoi poto rānei. |
| Pōuriuri | Te pōuriuri, ina koa ka ara ake i te tūnga noho. |
| Kiri mā | Ka nui atu te mā o te kiri, ngā ngutu, me raro i ngā maikuku i tō te tikanga. |
| Ngā mamae o te upoko | Ko te take o te maha o ngā mamae o te upoko ko te hekenga o te nui o te hāora e hiahiatia ana e te roro. |
| Te rongonga i te tangi o ngā taringa (Pulsatile tinnitus) | Ka rangona he oro whiowhio i roto i ngā taringa e ai ki te manawataki o te ngakau. |
| Mamae o te uma (Angina) | Te mamae o te uma nā te kore o te hāora ki ngā uaua o te ngākau. |
Ko te mea nui, ki te pāngia koe e tētahi, e ētahi rānei o ēnei tohu, kaua e mataku, kaua hoki e whakaaro he PRCA. Ka kitea anō hoki ēnei i roto i te toto toto noa. Engari ki te mau tonu ēnei tohu, he mea pai kia kite i te tākuta me te rapu tohutohu.
He aha i puta ai tēnei āhuatanga e kiia nei ko te PRCA?
Ehara te PRCA i te mate kotahi. He maha ngā take pea. I ētahi wā, he pānga taha pea nō tētahi atu mate hauora.
1. Ngā raruraru o te pūnaha ārai mate (Ngā Mate Pūnaha Ārai Mate)
Koinei te tino take o te PRCA. Ki te kī māmā noa, ka tīmata te pūnaha ārai mate o tō tātou tinana ki te whakaeke i ngā pūtau take i roto i tō tātou ake hinu wheua e hanga ana i ngā pūtau toto whero. Ko ētahi tauira o ēnei āhuatanga ko:
- Mate Lupus (Systemic Lupus Erythematosus)
- Te Mate Rumati
- Mate Puku Mumura
2. Matepukupuku
Ka taea hoki e ētahi momo mate pukupuku te whakaputa i te PRCA.
- Ngā matepukupuku e pā ana ki te toto: Ko te Chronic Lymphocytic Leukemia (CLL) me te Large Granular Lymphocytic Leukemia (LGL) ngā momo matepukupuku toto e rua e pā nui ana ki tēnei.
- Ngā pukupuku: Ko te Thymoma, he mate pukupuku o te repe thymus, te pukupuku mate pukupuku matua e pā ana ki te PRCA.
3. Ngā mate huaketo me ngā mate kitakita
Ka taea hoki e ētahi mate pāwera te whakaputa i te PRCA, ahakoa mō te wā poto, mō te wā pumau rānei.
- Ngā Huaketo: Ko te Parvovirus B19 te mea tino rongonui o ēnei. Ka whakaekea tika e tēnei huaketo ngā pūtau i roto i te hinu wheua e tata ana kia huri hei toto whero. Ka taea hoki e te HIV, te huaketo Epstein-Barr, me ngā huaketo hepatitis te take.
- Huakita: Ka taea hoki tēnei e ngā mate pēnei i te Group C Streptococcus, te Tuberculosis, me te Bacterial Sepsis.
4. Ētahi rongoā
Ka puta anō hoki te PRCA hei pānga taha o ētahi rongoā. Hei tauira, ko ngā Erythrocyte-Stimulating Agents (ESA), arā, ko ngā rongoā e hoatu ana ki ngā tūroro whatukuhu hei whakanui ake i te hanga o ngā pūtau toto whero, ka taea te whakaputa i tēnei mate i ētahi wā.
5. Te haputanga
He tino onge te pāngia o ētahi wāhine e te PRCA i te wā e hapu ana. Heoi anō, ka memeha haere te mate i muri i te whānautanga o te pēpi.
6. Ngā āhuatanga ira e kitea ana i te whānautanga
He mate toto whānau onge te Diamond-Blackfan Anemia. I te nuinga o te wā ka kitea i te tamarikitanga. Ka taea hoki e ēnei tūroro te pāngia e te PRCA.
Me pēhea te tautuhi tika a ngā tākuta i tēnei mate?
Ina haere koe ki te tākuta me ngā tohu kua whakahuatia ake nei, ka tirotirohia koe e ia, ā, ki te whakapae ia he mate tēnei, ka tukuna koe kia maha ngā whakamātautau.
| Whakamātautau | He aha tāu e kite nei i konei? |
|---|---|
| Tatau Toto Katoa (CBC) | Ka tirohia te toto kia kitea ai mēnā he tino iti te maha o ngā pūtau toto whero, ā, mēnā he noa te maha o ngā pūtau toto mā me ngā pereti toto. |
| Te Tatau o ngā Reticulocyte | E pā ana tēnei ki ngā toto whero hou kua hangaia, kāore anō kia pakari. I roto i te PRCA, he tino iti tēnei tau. Ko te tikanga kāore he toto whero hou e hangaia ana. |
| Te Pane Toto Āpiti | Ka tangohia he pata toto, ka tirohia i raro i te karuārai hei tirotiro i te āhua me te āhua o ngā toto toto whero. |
| Te Momi/Te Kohikohi i te Huka Wheua | Koinei te whakamātautau matua hei whakaū i te mate . Ka tangohia he tauira iti rawa o te hinu wheua mai i tētahi wāhi pēnei i te hope i muri i te rongoā whakamoe. Mō te PRCA, kāore e kitea ngā pūtau take e hanga ana i ngā pūtau toto whero i roto. |
| Ētahi atu whakamātautau | Hei kimi i te pūtake o te mate, ka taea te whakahaere i ngā whakamātautau pēnei i te whakamātautau huaketo Parvovirus B19 me ngā matawai CT (hei tirotiro mō ngā puku pēnei i te thymoma). |
He aha ngā maimoatanga mō te PRCA?
Ko te maimoatanga mō te PRCA e whakawhirinaki ana ki te pūtake o te mate. Ko te tikanga o tēnei, kāore e rite te maimoatanga mō te katoa. Ka āta tirotirohia e te tākuta tō āhua, ā, ka whiriwhiria e ia te maimoatanga tino tika.
- Ngā rongoā ārai mate: Mena he raruraru kei te pūnaha ārai mate te take o te mate, ka mahi ēnei rongoā ki te whakahaere i te pūnaha ārai mate e kaha rawa ana te mahi. Ko ngā corticosteroids pēnei i te Prednisone me te Cyclosporine e whakamahia whānuitia ana mō tēnei.
- Te Whakawhitinga Toto: Mena he tino kino te mate toto, ka tukuna he toto ki waho hei whakaora wawe i te taumata o te toto. Heoi, mā te whakawhiti toto tonu ka piki ake te taumata o te rino o te tinana. I taua wā, me whai maimoatanga motuhake (whakaora chelation) hei tango i te rino taikaha.
- Pokanga: Mena he thymoma te pūtake o te mate, ko te maimoatanga he tango pokanga i te repe (Thymectomy).
- Whakaora Immunoglobulin: Mena ka puta te PRCA i te mate parvovirus B19, ka whawhai tēnei maimoatanga ki te huaketo, ā, ka aukati i te kino o ngā toto toto whero.
- Te Whakatō Pūtau Taketake:Mō te hunga whānau mai he mate pēnei i te Diamond-Blackfan Anemia, ko te maimoatanga ko te whakato i ngā pūtau take hauora hei whakakapi i te hinu wheua mate.
He pānga taha kei te rongoā?
Ae, pērā i ngā maimoatanga katoa, tera pea ka pā mai ngā pānga taha. Engari kāore he take e manukanuka ai koe mō ēnei. Mā tō tākuta koe e whakamōhio atu mō ēnei mea katoa i mua i te tīmatanga o te maimoatanga. Māna anō hoki koe e hoatu ki te tākuta ngā tohutohu e tika ana hei whakahaere i ngā pānga taha.
Hei tauira, ka taea e ngā rongoā ārai mate te whakanui ake i te tūponotanga o te pangia e te mate, te whakanui ake i tō toto toto, me te whakanui ake i tō taumaha. Ka taea e ngā whakawhiti toto te whakararu i te kirika me ngā mate pāwera. Nō reira, he mea tino nui kia aro nui koe ki ngā huringa o tō tinana i te wā e rongoatia ana.
He aha ngā mea me mōhio koe ina noho tahi koe me te PRCA?
He mate mau tonu pea te PRCA i ētahi wā. Ko te tikanga, ahakoa i muri i te maimoatanga, ka taea tonu te hoki mai o te mate. Nō reira, he mea nui kia noho tonu i raro i te tirotiro a te taote.
- Te Whakaora Tiaki: Me tango tonu pea ētahi tāngata i ngā rongoā ārai mate i te horopeta iti hei ārai i te hokinga mai o te mate.
- Te Aroturuki Tonu: He mea nui kia toro atu koe ki tō tākuta i ngā wā katoa, kia whakamātauria hoki tō toto. Mā tēnei ka āwhina i a koe ki te tautuhi wawe mēnā ka hoki mai anō te mate, ka puta rānei ētahi atu raruraru.
- Te āhua noho hauora:
- Kai tōtika: He mea nui kia kai i tētahi kai taurite, tae atu ki ngā kai whai kiko i te rino (pīnihi, mīti, pī, rēneti). Pātai atu ki tō tākuta mō te kai e tika ana māu.
- Inumia he wai nui: Ārai i te matewai o te tinana.
- Tiakina koe i ngā mate urutā: Horoia ō ringaringa i ngā wā katoa. Kia tūpato ki ngā wāhi kī tonu i te tangata. Tikina ngā werohanga e tika ana.
- Whakakorikori Tinana: Whakakorikori tinana kia rite ki te taumata e taea e tō tinana te aro atu. Me kōrero hoki ki tō tākuta mō tēnei.
Ina rongo koe mō te PRCA, tera pea ka mataku koe. He mea noa tēnā. Engari kia maumahara, he mate ka taea te rongoā. Ko te mea nui ko te rapu tohutohu hauora wawe tonu, me te whai i te maimoatanga tika, me te kore e wareware ki ngā tohu.
Karere Tangohia ki te Kāinga
- He mate toto onge te PRCA e aukati ana i te hinu wheua ki te whakaputa i ngā toto whero.
- Ko ōna tohu matua ko te ngenge tonu, te kiri mā, me te uaua ki te manawa.
- Ka puta pea tēnei i ngā raruraru o te pūnaha ārai mate, te mate pukupuku, ngā mate pāwera, me ētahi rongoā.
- Ko te whakamātautau matua hei whakaū i te mate ko te koiora wheua.
- He rerekē ngā tikanga maimoatanga i runga i te pūtake o te mate, ā, ka taea e te maimoatanga te whakahaere i ngā tohumate.
- Nā te mea ka puta anō tēnei i ētahi wā, he mea tino nui te aroturukitanga hauora mō te wā roa me ngā tirotiro hauora auau.
- Ki te mau tonu ngā tohu e rite ana ki te mate toto iti, kaua e mataku, me toro atu ki tō tākuta tonu.
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