Kei te ngenge tonu koe, kei te pōuri, kei te uaua rānei te piki arawhata? Tērā pea kua pātai mai tētahi ki a koe, "He aha koe i tino mā ai i ēnei rā?" He tohu ēnei mō te anemia. Engari i tēnei rā ka kōrero tātou mō tētahi mate onge e puta ai te anemia, kāore anō kia rongohia e te tini tāngata, engari me mōhio tātou. Ko te Pure Red Cell Aplasia tēnā, ko te PRCA rānei te whakarapopototanga.
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He aha te Pure Red Cell Aplasia (PRCA)?
Whakaarohia kei roto i ō tātou wheua nui, te hinu wheua, he rite ki tētahi wheketere hanga toto nui. Kei roto i tēnei wheketere te wāhi e hangaia ai ngā momo pūtau e toru e hiahiatia ana e tō tātou tinana, arā, ngā toto whero, ngā toto mā, me ngā pereti toto. Ko te mahi matua a ngā toto whero ko te kohi i te hāora e tae mai ana ki ō tātou pukahukahu ina manawa tātou, ā, ka tohatoha atu ki ngā pūtau katoa puta noa i te tinana.
Ināianei, i roto i tētahi āhuatanga e kiia nei ko te Pure Red Cell Aplasia (PRCA) , ka mutu ohorere te mahi a te raina whakaputa o te wheketere e hanga ana i ngā toto whero. Ko te whakaputanga o ētahi atu momo pūtau, arā, ko ngā toto toto mā me ngā pereti toto, kāore e tino rerekē. Ina mutu noa te whakaputanga o ngā toto toto whero, ka heke haere te maha o ngā toto toto whero i roto i te tinana. Koinei te mea e kiia nei e tātou ko te anemia . Ina kore e ranea ngā pūtau hei kawe i te hāora puta noa i te tinana, ka tīmata te puta mai o ngā tohu kua whakahuatia ake nei, pērā i te ngenge me te ngoikore.
He aha ngā tohu tino kitea o te PRCA?
He mate te PRCA e hua ai te anemia kino, nō reira he mārama ake ngā tohu i ērā e kitea ana me te anemia noa.
| Tohu | He whakamārama māmā |
|---|---|
| Ngenge | Tino ngenge koe, kāore e taea e koe te mahi i te roanga o te rā, me te kore rawa e taea te mahi i ētahi mahi uaua. |
| Te uaua ki te manawa (Dyspnea) | Te poto o te manawa i a koe e mahi ana i ngā mahi o ia rā, e hikoi ana, e piki arawhata ana rānei. |
| Pōuriuri | Te pōuriuri nā te hekenga o te nui o te hāora e hiahiatia ana e te roro. |
| Kiri mā | He mā te kiri, ngā ngutu, me ngā maikuku nā te kore o ngā toto whero, ā, nā ēnei i puta ai te tae māwhero ki te kiri. |
| Ngā mamae o te upoko | Te mamae o te upoko nā te iti o te hāora e tukuna ana ki te roro. |
| Te rongonga i ngā haruru i roto i ngā taringa (Pulsatile Tinnitus) | Te rongonga i te haruru i roto i ngā taringa e rite ana ki te manawataki o te ngakau. |
| Mamae o te uma (Angina) | Te mamae o te uma i puta mai i te korenga o te hāora e tae atu ana ki te uaua o te ngākau. |
He aha i puta ai tēnei āhuatanga onge?
Kāore he take kotahi mō te PRCA. He maha ngā āhuatanga e whai wāhi ana ki tēnei. I ētahi wā ka puta mai anō hoki hei pānga taha o tētahi atu mate hauora.
- Ngā Mate Pūnaha Ārai Mate: Ki te kī māmā noa, koinei te wā ka whakaekea hētia ai e te pūnaha ārai mate o tō tātou tinana (pūnaha ārai mate) tō tātou ake tinana. I ētahi wā ka taea hoki e tēnei whakaeke te aro ki ngā pūtau i roto i te hinu wheua e hanga ana i ngā toto toto whero. Hei tauira, ka pā te PRCA me ngā mate pēnei i te (Systemic Lupus Erythematosus - SLE) me te (Rheumatoid Arthritis).
- Matepukupuku Toto: He tūponotanga kei te pāngia koe e te PRCA me ētahi momo matepukupuku e pā ana ki te toto, inā koa ko te Chronic Lymphocytic Leukemia (CLL) me te Large Granular Lymphocytic Leukemia (LGL).
- Ngā Pūkahukahu Matepukupuku: Ko te Thymoma he pūkahukahu matepukupuku e tupu ana i roto i te repe thymus i roto i te uma. Tērā pea koinei tētahi o ngā tino take o te PRCA.
- Ngā Mate Huaketo: Parvovirus B19Ko te huaketo e hua ai te PRCA te tino take. Ka whakaekea tika e tēnei huaketo ngā pūtau take i roto i te hinu wheua e hanga ana i ngā pūtau toto whero. Ka taea hoki te hua mai i te HIV, te huaketo Epstein-Barr, me ngā huaketo hepatitis.
- Ngā Mate Pukupuku: Ko ngā mate pukupuku kino, pērā i te mate kohi, kāore e tino pāngia e te PRCA.
- Ētahi rongoā: Ka puta anō hoki te PRCA hei pānga taha o ētahi rongoā.
- Hapūtanga: He tino onge te pānga o te PRCA rangitahi ki ētahi wāhine i te wā e hapū ana. Heoi, ka memeha noa iho te mate i muri i te whānautanga.
Me pēhea te tautuhi a te tākuta i tēnei mate?
Mena kei a koe ngā tohu kua whakahuatia i runga ake nei, ka tirohia koe e te tākuta, kātahi ka tūtohu kia maha ngā whakamātautau hei whakaū i te mate.
- Tatau Toto Katoa (CBC): Ka ine tēnei i te maha o ngā toto whero, ngā toto mā, me ngā pereti toto i roto i tō toto. I roto i te PRCA, he tino iti te maha o ngā toto whero.
- Te Tatau o ngā Reticulocyte: Ka ine tēnei i te maha o ngā toto whero kāore anō kia pakari kua hangaia houtia i roto i te hinu wheua, ā, kua tāpirihia ki te toto. I roto i te PRCA, he tino iti hoki tēnei tau.
- Te Pane Toto Āpiti: Ka tangohia he pata toto ka tirohia i raro i te karu hiko hei tirotiro i te āhua me te āhua o ngā toto toto whero.
- Whakamātautau Parvovirus B19: Ka mahia tēnei whakamātautau mēnā kei te whakapaetia he mate huaketo.
- Matawai CT: Ka taea tēnei whakamātautau mēnā kei te whakapaetia he pukupuku pēnei i te "Thymoma" i roto i te uma.
- Te Momi/Te Koiora o te Huango Wheua: Koinei te whakamātautau tino nui hei whakaū i te mate. Ka whakamahia he ngira iti hei tango i tētahi tauira o te hinu wheua mai i tētahi wāhi pēnei i te wheua hope i raro i te rongoā whakamoe. I roto i te PRCA, ka taea e tēnei te whakaū kua pau katoa ngā pūtau toto whero i roto i te hinu wheua.
Me pēhea te rongoā mō te PRCA?
Ka rongoātia te PRCA mā te tautuhi i te pūtake o te mate me te aro atu ki taua pūtake.
Ko te mea nui ko te mahi i tēnei maimoatanga i raro i te tirotiro a tō tākuta anake. Ka pā mai pea ngā hua kino ki te tango koe i te rongoā.
He maha ngā tikanga maimoatanga:
- Ngā rongoā ārai mate: Mena he raruraru kei te mahi a te pūnaha ārai mate te pūtake o te mate, ka hoatu ngā rongoā pēnei i te (Corticosteroids) (hei tauira, te Prednisone) me te (Cyclosporine) hei whakahaere.
- Te Whakawhiti Toto:Mena he tino iti te tatau toto, ā, he kino ngā tohu, ka tukuna ngā whakawhiti toto hei whakaora tere. Engari he otinga rangitahi tēnei. Nā te mea ka taea e ngā whakawhiti toto tonu te whakaemi i te rino i roto i te tinana, me whai maimoatanga motuhake (Chelation Therapy) hei tango i te rino taikaha.
- Pokanga: Mena he pukupuku repe thymus (Thymoma) te pūtake o te mate, ka whakahaerehia he pokanga hei tango i te repe (Thymectomy).
- Te Whakatō Pūtau Taketake: I roto i ētahi āhuatanga ira, ka whakatōkia ngā pūtau take mai i tētahi tangata hauora hei ngana ki te waihanga i tētahi pūnaha wheua hauora hou.
- Whakaora Immunoglobulin: Mena ka puta te PRCA i te mate Parvovirus B19, ka whakahaerea e tēnei maimoatanga te huaketo.
Me ako anō hoki tātou mō ngā pānga taha o ngā maimoatanga.
Pērā i ngā maimoatanga katoa, ka pā mai ētahi pānga taha i ngā maimoatanga PRCA. Engari mā tō tākuta ēnei mea katoa e whakamārama ki a koe i mua.
Ngā pānga taha o ngā rongoā ārai mate
- Te hanganga o te hakihaki
- Te tūponotanga o te whakawhanake i te mate huka
- Te toto toto tiketike
- Osteoporosis
- Te pikinga o te taumaha
- Te puku pōuri me te whakapairuaki
Ngā pānga taha o te whakawhiti toto
- Te kirika me te mate pāwera (mākūkū)
- Te tūponotanga o te mate
- Te nui rawa o te rino
Kāore ēnei pānga taha e pā ki te katoa, ā, mā tō tākuta koe e āwhina ki te whakahaere i aua pānga. Nō reira, kāore he take e manukanuka ai.
He aha te āhua o te noho me te PRCA, ā, me pēhea taku tiaki i ahau anō?
He mate mau tonu pea te PRCA i ētahi wā. Ka taea e te mate te memeha rawa i muri i te maimoatanga, ka taea rānei te hoki mai anō. Nō reira, he maha ngā mea hei whakaaroaro māu ina noho tahi ana koe me tēnei mate.
- Tirohia tō tākuta i ia wā: Ahakoa ka ngaro ō tohu i muri i te maimoatanga, kia mahara kia tirohia koe i ngā wā kua whakaritea e tō tākuta. Mā tēnei ka āwhina i a koe ki te kite i te tūponotanga o te hokinga mai o te mate i te wā wawe.
- Ngā horopeta tiaki: Me tango tonu pea e ētahi tāngata te rongoā i te horopeta iti iho hei ārai i te hokinga mai o te mate.
- Te āhua noho hauora:
- He kai pai: Pātai atu ki tō tākuta mō ngā kai whai kiko te rino me tētahi kai whai kiko.
- Inumia he wai nui: Ārai i te matewai o te tinana.
- Whakakorikori Tinana: Whakakorikori tinana haumaru e tika ana māu, e ai ki ngā tohutohu a tō tākuta.
- Tiakina koe i ngā mate urutā:Horoia ō ringaringa i ngā wā katoa. Kia tūpato ki ngā wāhi kī tonu i te tangata. Kōrero ki tō tākuta mō ngā werohanga e tika ana.
- Kia tūpato ki ō tohumate: Ki te kite koe i tētahi huringa o tō tinana, i tētahi atu tohumate rānei, me whakamōhio atu ki tō tākuta.
Karere Tangohia ki te Kāinga
- Ko te Aplasia Pūtau Whero Parakore (PRCA) he mate onge engari he kino e mutu ai te hanga o ngā pūtau toto whero e te hinu wheua.
- Ko te raruraru matua e puta mai ana i tēnei ko te toto toto nui. Ko ngā tohu matua ko te ngenge nui, te kiri mā, me te uaua ki te manawa.
- He maha ngā take mō tēnei, ko ngā raruraru o te pūnaha ārai mate, te mate pukupuku, me ngā mate huaketo ngā mea matua.
- He mea nui ngā whakamātautau toto me te whakamātautau hinu wheua hei whakatau tika i te mate.
- He tino whai hua ngā maimoatanga e wātea ana i runga i te pūtake o te mate. Heoi, i te mea ka hoki anō te mate, he mea tino nui kia whai i ngā tohutohu a tō tākuta.
- Mena kei a koe, kei tētahi atu rānei e mōhio ana koe, ēnei tohu, kaua e mataku, engari me rapu tohutohu hauora tonu.
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