Kua rongo koe i te kupu G6PD? Tērā pea kua kōrerotia e tētahi tākuta ki a koe, kua kōrerotia rānei e tētahi o tō whānau. Tērā pea he mea hou rawa atu ki a koe. Heoi, kaua e mataku ina rongo koe i te ingoa. He mate ira noa te korenga o te G6PD e pāngia ana e te 400 miriona tāngata puta noa i te ao. He rite tonu ki tētahi panoni iti i roto i ō tātou tinana, kaua ki tētahi mate. Nō reira, me kōrero tātou mō tēnei mea katoa i tēnei rā, he māmā noa iho, he hoa hoki.
He aha rawa te ngoikore o te G6PD?
Āe, me whakamāmā noa iho tēnei. Kei roto i ō tātou toto tētahi momo pūtau e kiia nei ko ngā toto whero . Ka haria e ēnei pūtau te hāora puta noa i ō tātou tinana. He rite ki tētahi waka e kawe ana i ngā taonga ki tētahi whare.
Ināianei, kei reira tētahi whākōkī motuhake e āwhina ana i ēnei toto whero kia noho hauora, kia kaha hoki. Ka kiia e mātou ko 'Glucose-6-Phosphate Dehydrogenase', ko G6PD rānei te poto. Whakaarohia tēnei whākōkī hei kaitiaki mō ngā toto whero, hei 'pūnaha hiko' rānei e homai ana ki a rātou he pūngao. Ka tiakina e tēnei whākōkī G6PD ngā toto whero mai i ētahi o ngā matū kino o te toto.
Ko te mea ka tupu i roto i te tinana o te tangata he ngoikore te G6PD, ko te korenga o te whākōkī G6PD e whakaputahia i roto i te nui e tika ana. Kāore rānei te whākōkī e whakaputahia ana e mahi tika ana. He mea tuku iho tēnei. Ko te tikanga ka riro mai i a koe tēnei i tō whaea, i tō pāpā rānei, ehara i te mate hopuhopu.
I te nuinga o te wā, ehara i te raruraru nui te ngoikore o te G6PD. Heoi, ki te tango koe i ētahi rongoā, matū, kai rānei (ina koa ko ētahi momo pīni), ka tīmata te pakaru o ngā toto whero nā te mea kua ngaro taua parepare. Koinei te mea e kiia nei e tātou ko te 'anemia hemolytic.' Me titiro atu tātou ki tēnei mea.
He aha ngā tohu? Me pēhea tātou e mōhio ai ki tēnei?
Ko te mea whakamiharo i konei, he tokomaha ngā tāngata he ngoikore te G6PD kāore e whakaatu i ngā tohu . He oranga noa iho tā rātou. Ka puta noa te raruraru ina pāngia rātou e tētahi o ngā 'mea whakaoho' i kōrerotia i mua ake nei, arā, he rongoā kino, he kai rānei.
Heoi, i ētahi wā ka pāngia te pēpi e te jaundice (te kōwhai o te kiri) i muri i te whānautanga, ā, he ngāwari noa iho te rongoā i tēnei mea.
Ki te pāngia te tangata he ngoikore te G6PD e tetahi mea kino, ka pāngia rātou e te mate e kiia nei ko te 'anemia hemolytic'. He māmā noa iho, koinei te wā ka pakaru ngā pūtau toto whero, ā, ka tere ake te whakangaromanga i te mea ka taea te hanga. Ko ngā pūtau toto whero ngā mea e kawe ana i te hāora puta noa i te tinana. Nō reira, ina whakangaromia, kāore ngā whekau o te tinana e whiwhi i te hāora e hiahiatia ana e rātou.
Ki te puta tēnei āhuatanga o te 'anemia hemolytic', ka tino kino rawa atu. Nō reira, he mea tino nui kia mōhio ki ēnei tohu.
Kei te ripanga i raro nei ngā tohu noa o te anemia hemolytic.
| Tohu | Whakaahuatanga |
|---|---|
| Kiri mā | Ka memeha haere te kiri, ka mā, me te mea kāore he toto i roto i te tinana. |
| Te kōwhai o te kiri me ngā kanohi (Jaundice) | Ko te bilirubin, he matū e puta ana i te wā e pakaru ana ngā pūtau toto whero, ka huri hei kōwhai te kiri me te mā o ngā kanohi. |
| Mimi pouri | Ka huri te mimi ki te parauri pouri, ki te kōra rānei. |
| Kirika | Tērā pea ka pāngia koe e te kirika, kāore he take. |
| Te ngenge me te ngoikore | E kore e ora, e poto ana te manawa, ā, e tino ngenge ana. |
| Te pōhēhētanga | Ina kore e nui te hāora e whiwhi ana te roro, ka pōhēhē pea koe, ka kore hoki e mōhio ki te huarahi tika. |
| Ngā tere o te ngakau | Ka piki ake te tere o te ngakau. |
Mena he kino, he roa hoki ēnei tohu, me toro atu koe ki te tākuta tonu . I ētahi wā, me haere pea koe ki te Tari Whawhati Tata (ETU) o te hōhipera.Me tango atu pea. Engari i te nuinga o te wā, ina tangohia te pūtake o tēnei mate, ka ora ake i roto i te rua wiki pea.
He aha te take mō tēnei? Ko wai te mea ka nui ake te tūponotanga ka pāngia e tēnei mate?
E ai ki tā mātou i kōrero ai i mua ake nei, he mate ira tūturu te ngoikore o te G6PD. Ko te tikanga ka riro mai i a koe tēnei mate mai i ō mātua. Kāore he huarahi hei ārai i tēnei mate.
Heoi anō, he nui ake te tūponotanga o ētahi rōpū tāngata ki te pāngia e tēnei mate.
- Mō ngā tāne (he nui ake i ngā wāhine).
- Mō te hunga i ngā whenua o Āwherika, Āhia, te Waenganui Rawhiti, me te rohe o te Moana-nui-a-Kiwa.
Ki te mōhio koe kei te pāngia tētahi o tō whānau e te ngoikore o te G6PD, tera pea kei a koe anō hoki. Nō reira, he mea pai kia kōrero koe ki tō tākuta mō tēnei mea.
Me pēhea te mōhio mēnā kei a koe te ngoikore o te G6PD?
He huarahi tino māmā tēnei hei kimi i tēnei. Mā te whakamātautau toto . Ka tūtohu tō tākuta i tēnei whakamātautau i runga i tō hītori whānau me te mea kei a koe ngā tohumate.
I te nuinga o te wā, ka mahia tuatahitia he whakamātautau tirotiro hei tirotiro mēnā kei te kitea te ngoikore o te G6PD. Mēnā ka kitea he ngoikore, ka mahia ētahi atu whakamātautau hei tirotiro i te kaha o te ngoikore. Ko te 'whakamātautau Beutler' tētahi o aua whakamātautau.
Mā roto i ēnei whakamātautau, ka taea e koe te kite tika mēnā kei a koe te ngoikore o te G6PD, ā, mēnā koinā, he aha te taumata.
Me pēhea te noho me te korenga o te G6PD? He aha ngā mea hei karo?
Koinei te wāhanga tino nui. Mēnā kua tāpaetia koe he ngoikore G6PD, kāore he maimoatanga motuhake e hiahiatia ana . Ko tāu noa he karo i ngā 'mea whakaoho' e kino ai ō toto whero, e puta ai te mate e kiia nei ko te anemia hemolytic.
Ko te tikanga me karo rawa koe i ētahi rongoā, matū, me ngā kai. E kiia ana ēnei he mea e hua ai te 'aukati waikura'.
Kia maumahara ki te ripanga i raro nei. He mea tino nui kia kaua e uru atu ēnei mea ki roto i tō ao.
| Ngā mea me karo e te hunga he ngoikore te G6PD | |
|---|---|
| Momo | Ngā tauira |
| Kai | Pīni fava - Koinei te kai tino nui, tino morearea hoki. I ētahi whenua, ka kiia hoki ēnei he pīni whānui. |
| Ngā rongoā | Ko ētahi rongoā whakamamae mamae (hei tauira, te aspirin nui te horopeta) |
| Ngā paturopi kei roto ko te "Sulf" (hei tauira, Sulfonamides) | |
| Ngā rongoā ārai-malaria kei roto ko te "quine" | |
| Ngā matū | Naphthalene - Kei roto i ngā pōro naphthalene ēnei e whakatakotoria ana ki roto i ngā kāpata kakahu. Ahakoa te hongi i tōna kakara he kino. |
He mea nui: Mena he ngoikore tō G6PD, me kōrero koe ki tō tākuta i ia wā ka kite koe i a ia. Kātahi, ina tohua e ia he rongoā māu, ka whiriwhiria e ia he rongoā haumaru māu. Kaua rawa e tango i tētahi rongoā me te kore e kōrero tuatahi ki te tākuta.
Karere Tangohia ki te Kāinga
- Ehara te korenga o te G6PD i te mate hei wehi. He mate ira tēnei e pāngia ana e te tini o te tangata o te ao, ā, ka tukuna iho i tētahi whakatipuranga ki tētahi whakatipuranga.
- He tokomaha te hunga kāore he tohu, ā, ka pāngia rātou e te mate mena ka pāngia rātou e tētahi rongoā kino, e tētahi kai (ina koa ko ngā pīni fava), e tētahi matū rānei.
- Hei whakahaere angitu i tōu ao, me mārama koe ki ngā mea e kino ana ki a koe, ā, me noho matara atu i aua mea.
- Ki te pāngia koe e ngā tohu pēnei i te kirika, te ngenge rawa, te kōwhai o te kiri, me te mimi pouri, me toro atu ki te tākuta tonu.
- Whakamaumaharatia tō tākuta i ia wā ka kite koe i a ia kei te ngoikore tō G6PD. He mea tino nui tēnei mō tō haumaru.
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