Kodi mumamvanso ululu wosapiririka komanso kutentha pakhungu lanu mukakhala padzuwa? Kwa anthu ena, izi sizachilendo, ndipo zitha kukhala chizindikiro cha matenda osowa otchedwa Erythropoietic Protoporphyria (EPP) . Kwa munthu amene ali ndi vutoli, kuwala kwa dzuwa ndi chinthu chopweteka kwambiri. Lero, tikambirana za mankhwala apadera omwe amaperekedwa kuti athandize anthu otere, koma ndi njira yosiyana pang'ono.
Kodi jakisoni wa Afamelanotide ndi chiyani?
Mwachidule, Afamelanotide ndi mankhwala omwe amathandiza kuchepetsa kuwonongeka kwa khungu lanu chifukwa cha dzuwa komanso ululu womwe limabweretsa. Amagwiritsidwa ntchito makamaka kwa anthu omwe ali ndi vuto lomwe talitchula kale lotchedwa Erythropoietic Protoporphyria (EPP).
Tangoganizirani, EPP ndi vuto losowa lomwe limayamba chifukwa cha majini. Pankhaniyi, mankhwala otchedwa 'protoporphyrin' m'thupi lathu amasonkhana m'magazi ambiri. Anthuwa akamatuluka padzuwa, mankhwala amenewo amayamba kugwira ntchito ndipo amawononga khungu, zomwe zimapangitsa kupweteka kwambiri ndi kutupa. Mankhwala a Afamelanotide amagwira ntchito powonjezera kupanga utoto woteteza khungu (melanin) ndikuwonjezera mphamvu yake yolimbana ndi kuwala kwa dzuwa. Chifukwa chake, ndizotheka kutuluka pamlingo wina popanda kupweteka. Mankhwalawa amagulitsidwa pansi pa dzina lakuti SCENESSE .
Zinthu zomwe muyenera kuuza dokotala wanu musanalandire chithandizochi
Iyi si piritsi kapena kirimu. Iyi ndi kachidutswa kakang'ono kamene kamayikidwa pansi pa khungu. Chifukwa chake, musanayambe chithandizochi, ndikofunikira kwambiri kukambirana momasuka ndi dokotala wanu. Onetsetsani kuti mwamuuza za zinthu zotsatirazi.
- Zokhudza ziwengo zanu: Onetsetsani kuti mwatiuza ngati muli ndi ziwengo zilizonse, osati za Afamelanotide yokha, komanso za mankhwala ena aliwonse, chakudya, zosungira, kapena utoto.
- Ngati muli ndi pakati kapena mukufuna kutenga mimba: Sizikudziwika bwino momwe mankhwalawa angakhudzire mimba. Chifukwa chake, ndikofunikira kuuza dokotala wanu ngati muli ndi pakati kapena mukuyembekezera mwana posachedwa.
- Ngati ndinu mayi woyamwitsa: Sizikudziwika ngati mankhwalawa amalowa mu mkaka wa m'mawere. Chifukwa chake, kuti mwana wanu akhale wotetezeka, uzani dokotala wanu ngati ndinu mayi woyamwitsa musanalandire chithandizo.
Kodi mumagwiritsa ntchito bwanji mankhwalawa?
Iyi si mankhwala omwe mungapite nawo kunyumba. Iyi ndi kachidutswa kakang'ono ka implant. Kachidutswa aka, ka kukula ngati ka mpunga, kamayikidwa mosamala pansi pa khungu m'mimba mwanu ndi dokotala wodziwa bwino ntchito.
- Malo oikiramo ayenera kukhala oyera komanso ouma kwa maola 24. Izi zikutanthauza kuti sayenera kuyikidwa pamadzi.
- Kawirikawiri patatha miyezi iwiriDokotala adzachotsa choyikamo chakale. Ngati mukufuna chithandizo chopitilira, choyikamo chatsopano chikhoza kubwezeretsedwanso m'malo mwake.
- Muyenera kusamala kwambiri popereka mankhwalawa kwa ana, choncho lankhulani ndi dokotala wanu za vutoli.
Chofunika kudziwa: Mankhwalawa aperekedwa kwa inu nokha. Musagawane ndi wina aliyense pazifukwa zilizonse.
Chochita pakakhala ngozi?
Kumbukirani, ngati mukuganiza kuti mwamwa mankhwala mopitirira muyeso, musachite mantha. Pitani ku chipatala cha Emergency Unit (ETU) nthawi yomweyo. Kapena, imbani National Poisons Information Centre ku Colombo National Hospital kuti mupeze malangizo.
Zinthu zofunika kuziganizira mukamalandira chithandizo
Ndikofunikira kusamalira thupi lanu pang'ono pamene mukulandira chithandizochi.
- Kuyezetsa matenda nthawi zonse: Onetsetsani kuti mwapita kukayezetsa matenda pa masiku omwe dokotala wanu wakupatsani. Uzani dokotala wanu ngati zizindikiro zanu sizikusintha kapena ngati zikuoneka kuti zikuipiraipira.
- Kuyezetsa khungu: Mankhwalawa angapangitse khungu lanu, madontho, ndi matuza kukhala akuda. Chifukwa chake, ndikofunikira kuti khungu lanu lonse liziyezedwe ndi dokotala osachepera kawiri pachaka .
- Kutulutsa chiwalo cha implant: Nthawi zambiri, chiwalochi, chomwe chili pansi pa khungu, chimatha kutuluka chokha. Ngati mukuganiza kuti chiwalocho chatuluka, imbani dokotala nthawi yomweyo.
Zotsatirapo zomwe zingachitike chifukwa cha mankhwala
Monga mankhwala ena aliwonse, pali zotsatirapo zina zomwe zingachitike. Tiyeni tiwone zomwe zili. Izi zitha kugawidwa m'magulu awiri akuluakulu.
| Mtundu wa zotsatira zoyipa | Kufotokozera |
|---|---|
| Zinthu zoti muuze dokotala wanu nthawi yomweyo | |
| Matenda a ziwengo | Kutupa pakhungu, kuyabwa kapena ziphuphu, kutupa kwa nkhope, milomo kapena lilime. |
| Ululu pamalo opachikidwa | Ululu woopsa pamalo olowetsedwa. |
| Zinthu zomwe nthawi zambiri sizili zazikulu, koma ziyenera kufotokozedwa kwa dokotala ngati zikupitirira | |
| Zinthu zosiyanasiyana | Chifuwa, chizungulire, kugona, nseru, kutopa. |
| Kusintha kwa malo oikapo implant | Kufiira kapena kupweteka pang'ono/kupsa pamalo obayira. |
Mndandandawu suli ndi zotsatirapo zonse zomwe zingachitike. Ngati muwona china chake chachilendo, chonde funsani dokotala wanu kuti akupatseni upangiri.
Kodi pangakhale mavuto ndi mankhwala ena?
Pakadali pano palibe malipoti oti mankhwalawa amayambitsa kuyanjana ndi mankhwala ena. Komabe, sizikutanthauza kuti simuyenera kuuza dokotala wanu za mankhwala onse omwe mumamwa.
Perekani dokotala wanu mndandanda wa zonse zomwe mumagwiritsa ntchito. Uyenera kuphatikizapo izi:
- Mankhwala olembedwa ndi dokotala wa matenda ena
- Mankhwala osaperekedwa ndi dokotala
- Mankhwala achikhalidwe, zitsamba
- Mavitamini ndi zakudya zowonjezera
Kuphatikiza apo, onetsetsani kuti mwauza dokotala wanu ngati mukusuta fodya, kumwa mowa, kapena kugwiritsa ntchito mankhwala ena osaloledwa. Zinthu zina zingakhudze mankhwala anu.
Uthenga Wopita Nawo Kunyumba
- Afamelanotide ndi mankhwala apadera omwe amachepetsa ululu wa khungu lomwe limakhudzidwa ndi dzuwa lomwe limayambitsidwa ndi matenda osowa otchedwa Erythropoietic Protoporphyria (EPP).
- Iyi si mankhwala omwe mungapite nawo kunyumba, koma kachidutswa kakang'ono kamene kamayikidwa pansi pa khungu ndi dokotala wodziwa bwino ntchito.
- Musanayambe chithandizo, uzani dokotala wanu za ziwengo zonse zomwe muli nazo, kaya muli ndi pakati kapena mukuyamwitsa, komanso mankhwala onse omwe mukumwa.
- Mukalandira chithandizo, dziwani kusintha kulikonse kwa mtundu wa khungu. Yang'anani khungu lanu osachepera kawiri pachaka. Ngati choyikacho chatuluka chokha, uzani dokotala wanu nthawi yomweyo.
- Ngati mukukumana ndi zizindikiro zoopsa za ziwengo, monga kutupa kwa nkhope, funsani upangiri wa dokotala nthawi yomweyo.
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