Tikudziwa kuti kukhala ndi Ankylosing Spondylitis, kapena monga momwe tonse tikudziwira, sikophweka. Si vuto la msana lokha. Ndi vuto la nthawi yayitali lomwe lingakhudze moyo wanu wonse, ntchito yanu, ntchito zanu zapakhomo, nthawi yanu ndi anzanu, zonsezi. Koma simuyenera kukumana ndi vutoli nokha. Zidzakhala mphamvu yayikulu kuuza omwe amakukondani komanso omwe ali pafupi nanu za izi ndikupeza chithandizo chawo.
Kodi mukufuna kumuuza ndani za izi?
Kulankhula ndi munthu wina za matenda a moyo wonse monga AS ndi nkhani yaumwini kwambiri. Choncho, amene mukumuwuza komanso kuchuluka kwa zomwe mungamuuze ndi udindo wanu. Ndi chisankho chanu.
Taganizirani izi, nthawi zina mumayenera kusintha ulendo womwe mwakonzekera, kapena kupempha thandizo kuti muchite zinazake. Anthu omwe mumakhala nawo nthawi yambiri tsiku lililonse, monga banja lanu, mwamuna kapena mkazi wanu, kapena mnzanu wapamtima, ndi omwe amakhudzidwa kwambiri ndi vutoli.
Nthawi zina mungamve chisoni kapena kukhumudwa ndi vuto lanu. Kapena mungamve ngati mukukhumudwitsa anzanu pamene simungathe kuchita nawo zinthu zina. Koma mukalankhula zambiri za izi momasuka komanso moona mtima ndi okondedwa anu, zimakhala zosavuta kuti akhalepo kwa inu nthawi zabwino ndi zovuta m'moyo wanu .
Mukufuna kunena chiyani? Mukufuna kunena bwanji?
Mwina mukuganiza kuti, "Chabwino, ndikuuzeni. Koma ndinene chiyani? Ndiyambe bwanji?" Kulankhula za izi nthawi zina kungakhale kovuta, ngakhale ndi munthu amene muli naye pafupi kwambiri. Chinthu chabwino kwambiri choti muchite ndikukhala osavuta komanso olunjika momwe mungathere.
Ngati mukufuna kuwafotokozera za AS, tsatirani mfundo zoyambira pokhapokha ngati akufunsani zambiri. Ngati mukulankhula za momwe mukumvera, yesani kunena momveka bwino. Mwachitsanzo, m'malo mongonena kuti, "Ndikuvutika," mungalankhule za zizindikiro zomwe zimakuvutitsani kwambiri.
Tangoganizani kuti simungathe kugwira ntchito inayake kapena kupita paulendo. Fotokozani chifukwa chake kwa wokondedwa wanu. Munganene kuti, "Chifukwa cha kuuma kwa msana wanga, kukhala nthawi yayitali kumapweteka kwambiri. Ndicho chifukwa chake sindingathe kupita ulendowu." Mwanjira imeneyi, adzamvetsa bwino vuto lanu mosavuta.
Tiyeni tiwafotokozere za matenda anu.
Banja lanu ndi anzanu sadziwa zambiri za AS. Angaganize kuti ndi "vuto lopuma." Choncho athandizeni kumvetsetsa tanthauzo la AS ndi momwe limakhudzira moyo wanu watsiku ndi tsiku.
Mwachidule, AS ndi vuto lomwe chitetezo chathu cha mthupi chimaukira mafupa a msana wathu chifukwa cha vuto linalake. Izi zimayambitsa kupweteka, kuuma, komanso kuvutika kuyenda.
Ngati mukufuna, ndi bwino kubweretsa mnzanu, mnzanu, kapena wachibale wanu ku nthawi yanu yokumana . Izi zidzawapatsa mwayi wophunzira zambiri za njirayi mwachindunji kuchokera kwa dokotala ndikufunsa mafunso aliwonse omwe angakhale nawo.
Mukakhala ndi zofooka zakuthupi chifukwa cha AS, mungafunike thandizo lowonjezera pa ntchito zapakhomo kapena ntchito. Ngakhale kupempha thandizo kungakhale kovuta, ndi njira yabwino yogawana zomwe mwakumana nazo ndi munthu wina ndikuwapatsa mwayi wolumikizana nanu.
| Mutu woti tikambirane | Momwe mungafotokozere ndi zitsanzo |
|---|---|
| Zizindikiro | "Ngakhale sindikuwona kusiyana kwakukulu kunja, ululu ndi kuuma komwe ndimamva mkati mwanga ndi kwakukulu kwambiri. Ndizovuta kwambiri ndikadzuka m'mawa." |
| Zizindikiro zosaoneka | "Chinthu chachikulu chomwe chimabwera ndi matendawa ndi kutopa . Ndikanena kuti kutopa pang'ono, sikuti ndi kutopa kwachibadwa, ndikumva ngati thupi lanu lonse likutaya mphamvu zake." |
| Zofooka zakuthupi | "Ndimavutika kunyamula zinthu zolemera, kuwerama kwambiri, kapena kukhala pansi kwa nthawi yayitali. Ndicho chifukwa chake ndimapewa ntchito zina." |
| Kuphulika kwa moto | "Masiku ena, ululu uwu ndi zizindikiro zina zimakula mwadzidzidzi. Timazitcha kuti 'kuphulika kwa magazi.' Masiku amenewo, ndimafunikira thandizo lina kuchokera kwa inu." |
Lankhulaninso za momwe mukumvera.
Popeza zizindikiro za AS zingakhudze moyo wanu watsiku ndi tsiku, ndikofunikira kudziwitsa ena kuti zinthu monga kupweteka, kuuma, ndi kutopa zingasinthe zochita zanu zatsiku ndi tsiku. Izi zingatanthauze kuti simungathe kuchita zinthu zina, kapena momwe mumachitira zinthuzo zingasinthe.
Anthu akamvetsa zimenezo, amathanso kumvetsetsa momwe kupsinjika maganizo komwe mumamva chifukwa cha AS kungakhudzire momwe mukumvera. Kulankhula za malingaliro anu ndi momwe mukumvera ndi munthu wapafupi nanu kungakuthandizeninso kwambiri.
Kumbukirani, zizindikiro za AS ndi zinthu zomwe mumamva koma sizimaoneka kwa ena. Mwachitsanzo, kutopa ndi chizindikiro chofala kwambiri chomwe simungachizindikire, ngakhale mutavutika bwanji nacho.
Tiuzeni momwe mukuthanirana ndi vutoli.
Anthu omwe ali m'moyo wanu sangadziwe momwe mumachitira ndi AS tsiku ndi tsiku. Ndibwino kuwauza za dongosolo lanu la chithandizo kuti athe kudziwa zomwe angayembekezere.
Izi zingaphatikizepo zinthu monga masewera olimbitsa thupi omwe muyenera kuchita, mankhwala ochiritsira thupi, zakudya zomwe zimafunika kuti muchepetse vuto lanu la AS, ndi mankhwala omwe mumamwa. Akadziwa izi, zimakhala zosavuta kuti amvetse chifukwa chake muyenera kuchita masewera olimbitsa thupi tsiku lililonse komanso chifukwa chake simuyenera kudya zakudya zina.
Ngati inu ndi banja lanu mukufuna kudziwa zambiri za izi, pali zambiri zodalirika pa mawebusayiti a mabungwe apadziko lonse lapansi monga Spondylitis Association of America (SAA). Mutha kuwerenga zambirizo ndikukambirana ndi dokotala wanu za izi.
Uthenga Wopita Nawo Kunyumba
- Matenda a Ankylosing Spondylitis (AS) si vuto la msana lokha, koma limakhudza moyo wanu wonse. Musapitirire ulendowu nokha.
- Ndi udindo wanu kusankha amene muuze za izi komanso kuchuluka kwake. Koma kulankhula ndi anthu omwe ali pafupi nanu kungakuthandizeni kwambiri.
- Mukamalankhula, lankhulani momveka bwino komanso moona mtima za momwe mukumvera, makamaka fotokozani zizindikiro zilizonse zomwe sizingawonekere, monga kutopa.
- Kupempha thandizo si chizindikiro cha kufooka. Kumapatsa okondedwa anu mwayi wokuthandizani.
- Auzeni za dongosolo lanu la chithandizo (masewera olimbitsa thupi, mankhwala) kuti athe kumvetsetsa zosowa zanu za tsiku ndi tsiku.
- Ngati mukukayikira chilichonse, lankhulani ndi dokotala wanu kuti akupatseni upangiri wabwino komanso wodalirika.
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