Kodi mwana wanu ali ndi mawanga akuda komanso osintha mtundu pakhungu lake? (Juvenile Localized Scleroderma)

Kodi munayamba mwaonapo kadontho pa thupi la mwana wanu, mwina pa mwendo kapena m'mimba mwake, komwe mwadzidzidzi kunasintha mtundu ndipo kunamuvuta pang'ono kukhudza? Monga kholo, mwina munachita mantha pang'ono komanso kuda nkhawa mutaona. "Ichi n'chiyani? N'chifukwa chiyani izi zinachitika?" Mwina munaganizapo. Musachite mantha. Nthawi zambiri, vutoli lingayambitsidwe ndi matenda omwe tikukamba lero, `Juvenile Localized Scleroderma`. Ngakhale kuti dzinali ndi lovuta pang'ono, tiyeni tikambirane mwachidule, m'njira yomwe mungamvetse.

Mwachidule, kodi matenda a Juvenile Localized Scleroderma n’chiyani?

Tiyeni tiyambe ndi dzinalo. Mawu akuti `Scleroderma` amapangidwa ndi mawu awiri achi Greek: "sclera" amatanthauza 'cholimba', ndipo "derma" amatanthauza 'khungu'. Amangotanthauza "khungu lolimba" . "Juvenile" ndi chifukwa chakuti imapezeka mwa ana ndi achinyamata. "Localized" ndi chifukwa chakuti imangokhala m'malo enaake a thupi, monga khungu, minofu yomwe ili pansi pa khungu, ndipo nthawi zina minofu ndi mafupa. Dzina lina la izi ndi `Morphea`.

Imeneyi ndi vuto la chitetezo chamthupi . Mwachidule, chitetezo chamthupi chathu, chitetezo chamthupi, chimasokonekera pang'ono ndipo chimayamba kuukira khungu lake labwino. Poyankha kuukira kumeneku, khungu la mwana limayamba kutupa, kapena kutupa.

Kutupa kumeneku kumapangitsa maselo olumikizana pakhungu kupanga puloteni yochuluka yotchedwa `collagen` . `Collagen` ndi chinthu chomwe chimapereka mphamvu ndi kulimba kwa minofu yambiri m'thupi, kuphatikizapo khungu lathu. Koma ikawonjezeka kwambiri, monga chilonda pambuyo povulala, khungu limakhuthala ndipo limakhala lolimba. Timatchanso kuti `fibrosis` . Mutha kuwona izi pathupi la mwana wanu ngati malo olimba, osinthika mtundu ngati awa.

Kodi mitundu ikuluikulu ya vutoli ndi iti?

Pali mitundu ikuluikulu ingapo ya Localized Scleroderma. Mtundu uliwonse uli ndi zizindikiro zosiyana pang'ono. Tiyeni tiwone zomwe zili.

Mtundu wapadera: "En coup de sabre"

Ili ndi mtundu wa `Linear Morphea`. Mwana akamakula mawanga ngati mikwingwirima pankhope kapena pamutu pake, timatcha vutoli kuti "en coup de sabre." Ili ndi liwu la Chifalansa lomwe limatanthauza "ngati kuti wadulidwa ndi lupanga." Chifukwa limawoneka ngati mzere wosinthika, nthawi zina wolowa pamphumi.

Kodi zizindikiro zomwe mwana akuwonetsa ndi ziti?

Zizindikirozi zimatha kusintha pakapita nthawi. Zingayambe ndi kadontho kakang'ono komwe kamawoneka ngati bala.

• Gawo loyambirira: Pakhungu la mwana pamakhala chigamba chofiira kapena chofiirira. Pa gawoli, khungu silimakhala lolimba ndipo limakhala labwinobwino.
• Gawo lapakati: Pakapita nthawi, malowo amakhala olimba, otupa, komanso okulirapo pang'ono. Pakati pa malowo pamakhala oyera kapena achikasu, sera, komanso owala. Pakhoza kukhala kuwala kofiirira kapena kofiirira kuzungulira malowo.
• Pambuyo pake: Pakapita nthawi, kutupa kukatha, khungu lomwe lakhudzidwa likhoza kukhala lofiirira (lokhala ndi mtundu wa hyperpigmented) kapena loyera (lokhala ndi mtundu wa hypopigmented). Nthawi zina khungu likhozanso kuonda.

Pa milandu yoopsa, mawanga awa amatha kukhudza minofu yakuya, zomwe zimayambitsa zizindikiro monga:

• Ululu ndi kusasangalala.
• Kulephera kusuntha miyendo ndi minofu bwino.
• Ngati zichitika pankhope, zingayambitse mavuto a mano kapena maso.

N’chifukwa chiyani ana amakula ndi izi?

Kunena zoona, chifukwa chenicheni cha izi sichinapezekebe , koma madokotala amakhulupirira kuti mwina chimayambitsidwa ndi zinthu zosiyanasiyana.

Chofunika kwambiri, monga tanenera kale, ndi kuyambitsa chitetezo cha mthupi . Kuphatikiza apo, zinthu zina zachilengedwe, mwachitsanzo, matenda, kuvulala pakhungu, ndi zina zotero, zikuganiziridwa kuti ndi zomwe zimayambitsa vutoli. Koma uwu si matenda opatsirana.

Kodi dokotala amazindikira bwanji izi?

Mukapita ndi mwana wanu kwa dokotala, chinthu choyamba chimene angachite ndi kumufufuza mwanayo mosamala ndikukufunsani za zizindikiro zake. Nthawi zambiri mutha kuganiza ngati izi ndi 'Localized Scleroderma' poyang'ana mtundu wa mawanga pakhungu.

Kuti mutsimikizire matendawa, mungafunikenso kuchita mayeso monga awa:

• Kufufuza Khungu: Izi zimaphatikizapo kutenga chidutswa chaching'ono kwambiri cha khungu lomwe lakhudzidwa ndikuyang'ana pansi pa maikulosikopu. Izi zimatithandiza kuona bwino kusintha komwe kwachitika m'maselo a khungu.
• Kujambula kwa MRI (Magnetic Resonance Imaging): Izi zingathandize kuona momwe chilonda cha pakhungu chafalikira komanso ngati minofu kapena mafupa omwe ali pansi pa khungu akhudzidwa.

Kodi mankhwala ochizira izi ndi otani?

Zolinga zazikulu za chithandizo ndi kuchepetsa kutupa (kutupa) pakhungu, kuletsa matendawa kufalikira kwambiri, komanso kuchepetsa zipsera (fibrosis) pakhungu. Chithandizo chimadalira mtundu ndi kuopsa kwa matendawa mwa mwana.

Pali njira zingapo zochizira:

• Corticosteroids: Izi zitha kuperekedwa ngati mafuta opaka pakhungu, mapiritsi omwa, kapena jakisoni wolowetsedwa m'mitsempha.
• Mitundu ina ya mafuta odzola pakhungu: Mafuta odzola okhala ndi mankhwala monga `Calcipotriene`, `tacrolimus`, `pimecrolimus`.
• Mankhwala oletsa chitetezo chamthupi: Ngati matendawa ndi oopsa kwambiri, mankhwala monga `Methotrexate` kapena `Mycophenolate Mofetil` amaperekedwa kuti achepetse kugwira ntchito mopitirira muyeso kwa chitetezo chamthupi.
• Kuchiza thupi ndi kutikita minofu: Izi ndizofunikira kwambiri kulimbitsa minofu ndikusunga kuyenda bwino kwa mafupa, makamaka m'matenda monga `Linear Morphea`.
• Chithandizo cha kuwala (Phototherapy):Mankhwalawa amagwiritsa ntchito kuwala kwa ultraviolet kuti achepetse mawanga akuda pakhungu. Komabe, izi zingayambitse kukalamba kwa khungu kapena khansa ya pakhungu, kotero dokotala adzafotokoza izi mosamala.
• Opaleshoni ya pulasitiki: Matendawa akangosiya kugwira ntchito, opaleshoni ikhoza kuchitidwa kuti khungu liwonekenso bwino.

Kodi inu monga kholo mungamuthandize bwanji mwana wanu?

Kuwonjezera pa chithandizo chamankhwala, palinso zinthu zingapo zomwe mungachite kunyumba kuti muteteze khungu la mwana wanu.

• Pewani kugwiritsa ntchito sopo ndi sopo wouma: Zinthu zomwe zili ndi fungo loipa zimatha kupangitsa khungu la mwana wanu kukhala louma komanso loyabwa kwambiri.
• Gwiritsani ntchito mafuta odzola omwe ndi abwino kwa khungu: Pakani mafuta odzola abwino omwe ndi oyenera khungu lofewa kangapo patsiku.
• Sambani m'madzi ofunda: Pewani madzi otentha kwambiri kapena ozizira kwambiri.
• Dzitetezeni ku dzuwa: Onetsetsani kuti mwapaka mafuta abwino oteteza ku dzuwa mukatuluka panja.
• Sungani chinyezi m'nyumba mwanu: Ngati mpweya uli wouma, kugwiritsa ntchito chotenthetsera madzi kungathandize kupewa khungu louma.

Kodi vutoli limakhudza bwanji moyo wa mwana?

Ngakhale izi zingakuopseni, zoona zake n'zakuti ana omwe ali ndi matenda a Juvenile Localized Scleroderma akhoza kukhala ndi moyo wabwinobwino .

Palibe choletsa mwana kupita kusukulu, kusewera ndi anzake, kusewera masewera, komanso kutenga nawo mbali pazochitika za m'banja monga mwachizolowezi. Ndipotu, kuchita masewera olimbitsa thupi ndi chinthu chabwino chifukwa kumalimbitsa minofu. Palibe chifukwa chodyera zakudya ndi zakumwa zapadera, kungopatsa chakudya chabwino komanso chokwanira ndikokwanira.

Nthawi zina, madontho pakhungu angapangitse mwana kumva wosasangalala komanso manyazi pang'ono pakati pa anthu. Pazochitika zotere, udindo wanu monga kholo ndikulankhula ndi mwanayo mwachikondi, kumuthandiza kumvetsetsa kuti si vuto lake, ndikumulimbitsa kudzidalira.