Kodi mwana wanu amagona masiku ambiri? Dziwani za vuto lodabwitsa ili lotchedwa Kleine-Levin Syndrome!

Nthawi zina mumadabwa kuona mwana wanu akugona kwa masiku ambiri. Mwina mumadzifunsa kuti, 'Kodi kugona konseku n'kutani?' Ndipotu, ichi chikhoza kukhala chizindikiro cha matenda osowa kwambiri otchedwa Kleine-Levin Syndrome. Tiyeni tikambirane za izi mwatsatanetsatane lero, chifukwa ndikofunikira kudziwa za chinthu chonga ichi.

Kodi Kleine-Levin Syndrome ndi chiyani?

Mwachidule, matenda a Kleine-Levin ndi matenda osowa kwambiri, zomwe zikutanthauza kuti ndi osowa kwambiri. Anthu ena amatcha "sleeping beauty syndrome", koma ngakhale ndi dzina labwino, vutoli si lokongola kwambiri. Chomwe chimachitika pamenepa ndichakuti simungathe kukhala maso tsiku lonse, ndipo mumagona mopitirira muyeso. Madokotala amatchanso kugona mopitirira muyeso (`hypersomnia`) . Munthu amene ali ndi vutoli amatha kugona maola pafupifupi 16 mpaka 20 patsiku panthawi ya tulo. Tangoganizirani, tsiku lonse limakhala likugona! Izi zikutanthauza kuti mumadzuka m'mawa, kenako n’kubwerera kukagona pakapita kanthawi. Kunena zoona, amavutika kwambiri kukhala maso. Pamodzi ndi tulo tofa nato, mutha kuwona kusintha kwa khalidwe.

Ndani amene akukhudzidwa kwambiri ndi vutoli?

Aliyense akhoza kudwala matendawa, otchedwa Kleine-Levin Syndrome (KLS). Komabe, kafukufuku wapeza kuti anyamata ndi anyamata ndi omwe ali ndi mwayi waukulu wochira matendawa. Zizindikiro nthawi zambiri zimayamba ali achinyamata , pafupifupi zaka 12-15. Nkhani yabwino ndi yakuti pakapita nthawi, zaka zikamapita, kuchuluka ndi kuopsa kwa tulo totere kumachepa pang'onopang'ono. Pa avareji, vutoli limachepa kwambiri akafika zaka 14.

Kodi matenda a Kleine-Levin (KLS) amapezeka bwanji?

Izi ndi zachilendo kwambiri . Taganizirani izi, akuti munthu m'modzi kapena awiri okha pa anthu miliyoni ndi omwe ali ndi vutoli. Ndicho chifukwa chake sizikunenedwa zambiri.

Kodi zizindikiro za Kleine-Levin Syndrome (KLS) ndi ziti?

Zizindikiro zimenezi nthawi zambiri zimayamba ali mwana. Kugona kumeneku kumatha kuchitika kangapo pachaka. Akuti vutoli limatenga zaka pafupifupi 14. Zizindikiro zazikulu ndi izi:

• Kugona tulo tosatha komanso kulephera kukhala maso: Ichi ndiye chizindikiro chachikulu. Zili ngati kugona kwa masiku ambiri. Kaya mugone tulo totani, zimamveka ngati sizikwanira.
• Kudya kwambiri (`hyperphagia`): Anthu ena amakhala ndi chilakolako chowonjezeka modabwitsa panthawiyi. Angadye chakudya chambiri nthawi imodzi. Nthawi zina amadya m'njira zachilendo.
• Kuwonjezeka kwa chilakolako chogonana ('hypersexuality'): Ichi ndi chizindikiro chomwe anthu ena amakumana nacho. Chilakolako chogonana chimatha kukhala chachikulu kwambiri komanso chosalamulirika.
• Kuona zinthu m'maganizo:Mungaone, kumva, ndi kumva zinthu zomwe sizili pamenepo. Izi zitha kukhala zoopsa pang'ono, koma ndi gawo la vutoli.
• Kukwiya kapena kusintha kwa khalidwe: Mungazindikire kuti mukukwiya pa zinthu zazing'ono, kukwiya, kapena kuchita zinthu mosiyana ndi masiku onse.
• Nkhawa kapena kuvutika maganizo: Mungamve mantha, nkhawa, chisoni, kapena kusafuna chilichonse.
• Kusokonezeka kapena kuiwalika: Mungakhale ndi vuto lokumbukira zomwe zinachitika, kapena kusokonezeka. Nthawi zina mungaiwale komwe muli kapena nthawi yomwe ili.

Ngati zizindikirozi zimatenga masiku osachepera awiri, timazitcha "gawo," kapena nthawi yomwe matendawa alipo. Gawoli limatha kukhala masiku angapo, nthawi zambiri masiku 10, kapena milungu ingapo. Kafukufuku wina akusonyeza kuti munthu amene ali ndi KLS amatha kukhala ndi avareji ya zochitika pafupifupi 20 m'moyo wake.

Kawirikawiri, sakumbukira zomwe zinachitika panthawiyi. Angadzuke kuti adye kapena kupita kuchimbudzi, koma zochita zawo zolimbitsa thupi zimakhala zochepa chifukwa cha kugona kwambiri.

Pambuyo poti chochitikachi chatha, amayambanso kuchita zinthu mwachizolowezi. Kupatulapo nthawi zina kuiwala, zizindikiro zina zonse zimatha.

Kodi n’chiyani chimayambitsa matenda a Kleine-Levin Syndrome (KLS)?

Zochitika zina zingayambitse kuyamba kwa zizindikiro za KLS, kutanthauza kuyamba kwa nthawi inayake. Izi ndi izi:

• Matenda kapena matenda, monga malungo kapena chimfine.
• Kugwiritsa ntchito mankhwala osokoneza bongo ndi mowa.
• Kuvulala mutu (kuvulala mutu).
• Kuchita zinthu zolimbitsa thupi mopitirira muyeso.
• Kupsinjika maganizo.

Zinthu ngati zimenezi zikachitika, munthu amene ali ndi KLS angayambe kugona.

Kodi chifukwa chenicheni cha matenda a Kleine-Levin (KLS) n'chiyani?

Choyambitsa chenicheni cha KLS sichikudziwikabe , koma asayansi ali ndi malingaliro osiyanasiyana. Kafukufuku wina akusonyeza kuti vutoli likhoza kuchitika chifukwa cha kuwonongeka kwa gawo la ubongo lomwe limalamulira tulo, hypothalamus , chifukwa cha matenda kapena kuvulala.

Poyang'ana mbiri ya odwala ambiri a KLS, amayamba vutoli atadwala chimfine kapena fuluwenza. Chifukwa chake, ofufuza ena amakhulupirira kuti KLS ikhoza kukhala "yoyankha yokha." Mwachidule, chitetezo cha thupi lathu chimaukira maselo ake athanzi molakwika. Pankhaniyi, thupi limaganiza kuti gawo lake ndi kachilombo kachilendo ndipo limachitapo kanthu motsutsana nalo.

Kafukufuku wina akusonyeza kuti izi zitha kukhala kulumikizana kwa majini , makamaka m'majini ena otchedwa LMOD3 ndi TRANK1.Zapezeka kuti kusintha kwa majini kumakhudza izi. Izi zikutanthauza kuti kungakhale kobadwa nako.

Kodi matenda a Kleine-Levin Syndrome (KLS) amawapeza bwanji?

Kuzindikira KLS kungakhale kovuta pang'ono . Palibe mayeso enieni omwe angakuuzeni kuti "iyi ndi KLS." Madokotala amazindikira matendawa posankha matenda ena omwe ali ndi zizindikiro zofanana. Izi zikutanthauza kuti amayamba wafunsa za zizindikiro zanu (nthawi yomwe zakhalapo, kuchuluka kwake, ndi zina zotero). Kenako, angachite mayeso monga:

• Kuyesa kugona: Izi zimatha kuyeza ntchito yamagetsi ya ubongo.
• Mayeso a kukumbukira: Yang'anani mavuto a kukumbukira.
• Kuyezetsa magazi: Yang'anani matenda ena.
• Mayeso ojambulira zithunzi monga MRI: Yang'anani ngati pali kusintha kulikonse muubongo.

Madokotala akachita zonsezi ndikuchotsa zina zonse zomwe zingatheke, amafika poganiza kuti ndi KLS.

Kodi matenda a Kleine-Levin Syndrome (KLS) amachiritsidwa bwanji?

Mwatsoka, palibe mankhwala enieni komanso athunthu a KLS. Nthawi zambiri, anthu omwe ali ndi KLS safunikira ngakhale mankhwala. Pa nthawi ina, dokotala wanu adzakuthandizani kupeza mpumulo womwe mukufuna - monga kutenga tchuthi kusukulu kapena kuntchito. Izi zidzapatsa thupi lanu tulo lomwe likufunika.

Njira zina zochiritsira zilipo kuti zithandize kuchepetsa zizindikiro za KLS. Ngakhale kuti mankhwala ena angakuthandizeni kukhala maso, palibe mankhwala amodzi omwe angachepetse zizindikiro zonse, makamaka zomwe zimakhudza khalidwe ndi kuzindikira. Mankhwala angaphatikizepo:

• Lithiamu: Izi zitha kuchepetsa kuchuluka kwa zochitika.
• Ma steroids a IV: Izi zitha kuperekedwa kuti zifupikitse nthawi zomwe zimakhala nthawi yoposa masiku 30.
• Zolimbikitsa kapena zinthu zolimbikitsa kudzuka: Zimachepetsa tulo ndipo zimakuthandizani kukhala maso.

Kuphatikiza apo, dokotala wanu angakutumizireni ku chithandizo chothandizira , chomwe chimaphatikizapo kulankhula ndi mlangizi kuti akuthandizeni kuthana ndi zinthu monga kusintha kwa khalidwe lanu, chilakolako chachikulu chogonana, nkhawa, ndi kuvutika maganizo.

Kodi pali zotsatirapo zilizonse za mankhwalawa?

Popeza palibe mankhwala enieni a Kleine-Levin syndrome (KLS), dokotala wanu adzayang'anira zizindikiro zanu mosamala komanso momwe thupi lanu limayankhira ku mankhwala osiyanasiyana. Izi ndizofunikira makamaka mukamagwiritsa ntchito mankhwala monga amphetamines, omwe amatha kukhala osokoneza bongo.

Kodi matenda a Kleine-Levin Syndrome (KLS) angapewedwe?

Popeza chifukwa chenicheni sichikudziwika, palibe njira yopewera KLS.Popeza vutoli lingagwirizane ndi kusintha kwa majini, ngati mukukonzekera kukhala ndi mwana, ndi bwino kulankhula ndi dokotala wanu za kuyezetsa majini . Izi zikuthandizani kumvetsetsa chiopsezo chanu chopatsira mwana wanu matenda a majini.

Ngati ndili ndi KLS, ndiyenera kuyembekezera chiyani?

Anthu omwe amapezeka ndi matenda a KLS nthawi zambiri amakhala ndi chiyembekezo chabwino . Pakapita nthawi, kuopsa ndi kuchuluka kwa matendawa kumachepa. Matendawa nthawi zambiri amakhala pakati pa zaka 10 ndi 20, ndipo pafupifupi zaka 14. Ngati palibe matenda kwa zaka zisanu ndi chimodzi , madokotala amaona kuti matendawa achiritsidwa.

Kodi ndingadzisamalire bwanji? / Kodi banja lingathandize bwanji?

Mukapezeka ndi matenda a Kleine-Levin Syndrome (KLS), lankhulani ndi dokotala wanu za chithandizo chabwino kwambiri kwa inu. Imwani mankhwala monga momwe mwalangizidwira. Khalani panyumba komanso pamalo otetezeka panthawi ya vuto. Yembekezerani zochita monga sukulu ndi ntchito. Pewani kuyendetsa galimoto kapena kugwiritsa ntchito makina olemera. Mutha kugona tulo tofa nato ndikuika moyo wanu pachiwopsezo komanso wa ena.

Ndikofunikira kukhala ndi gulu lamphamvu la achibale ndi abwenzi omwe akukuzungulirani omwe akumvetsa vuto lanu ndipo angakuthandizeni. Angakuthandizeni panthawi ya chochitikacho, kapena chitatha.

Ngati muli ndi vuto linalake pamene muli nokha, ndi bwino kuvala chizindikiro cha dokotala kuti ena adziwe, komanso kusunga khadi ladzidzidzi m'chikwama chanu.

Kodi ndiyenera kupita kwa dokotala liti?

Matendawa otchedwa KLS angakhudzenso thanzi lanu la maganizo . Ngati muli ndi zizindikiro monga nkhawa, kuvutika maganizo, kudzimva wopanda thandizo, kapena muli ndi maganizo ofuna kudzipha, pitani kwa dokotala wanu . Musabise zinthu zotere.

Ndi mafunso ati omwe ndiyenera kufunsa dokotala wanga?

Mukapita kwa dokotala, mungafunse mafunso monga awa:

• Kodi pali zotsatirapo zilizonse pa mankhwala omwe mwalemba?
• Kodi ndiyenera kumwa mankhwala nthawi yanji komanso kangati kuti ndichiritse zizindikiro zanga?
• Kodi mungandilimbikitse kuti ndilankhule ndi mlangizi za nkhawa yanga ndi kuvutika maganizo?
• Kodi ndingadziteteze bwanji panthawi ya chochitika?

Pomaliza, zinthu zoti muzikumbukira (Uthenga Wopita Nawo Kunyumba)

Matenda a Kleine-Levin (KLS) ndi matenda osowa kwambiri, koma angayambitse mavuto aakulu akuthupi ndi m'maganizo. Mukapezeka ndi matendawa, pitirizani kukumana ndi dokotala nthawi zonse.Zidzakuthandizani kuona ngati chithandizocho chikugwira ntchito bwino komanso ngati pali zotsatirapo zake. Komanso, sonkhanitsani banja lanu ndi anzanu kuti akuthandizeni. Zidzakupatsani mphamvu zambiri kuti mumalize bwino tsiku lililonse. Musadandaule, simuli nokha. Mutha kukhala bwino ndi vutoli.

Matenda a Kleine-Levin, KLS, kugona kwambiri, mavuto ogona, matenda a ana, matenda amitsempha, thanzi la maganizo