Kodi nthawi zonse mumakhala otopa? Mukumva kutopa? Zingakhale Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)!

Kodi mumamvanso kutopa kwambiri tsiku lonse? Kodi nthawi zina mumamva kufooka kwambiri kuti mutuluke pabedi? Ngakhale mutagona bwino ndikupuma tsiku lonse, kutopa kumeneku sikutha? Ndiye ichi ndi chinthu chomwe chingakhale chofunikira kwa inu. Lero tikambirana za matenda otchedwa `Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), omwe ena amangotcha `Chronic Fatigue Syndrome (CFS).`

Kodi 'ME/CFS' iyi ndi chiyani? Mwachidule...

Mwachidule, ME/CFS ndi vuto lomwe limakupangitsani kumva kutopa kwambiri komanso kutopa, mpaka kufika pokulepheretsani kuchita zinthu zanu zatsiku ndi tsiku, nthawi zina ngakhale kudzuka pabedi kuti muchite ntchito zazing'ono. Chofunika kwambiri ndichakuti kutopa kumeneku sikutha mosasamala kanthu kuti mumapuma kapena kugona motani. Komanso, kutopa kumeneku kumakula kwambiri ngati muchita ngakhale pang'ono chabe, kapena ngati mukuvutika maganizo (mwachitsanzo, ngati mukuganiza zambiri za chinachake). Zizindikirozi nthawi zambiri zimakhalapo kwa miyezi isanu ndi umodzi kapena kuposerapo.

Madokotala nthawi zina amapatsa vutoli mayina ena, omwe ndi:

• ``Myalgic Encephalomyelitis (ME)``
• "Matenda Osalolera Kuchita Zinthu Mopitirira Muyeso (SEID)"

Musadandaule ngati mukumva izi, izi ndi zomwezo.

Kodi vuto limeneli lotchedwa `ME/CFS` ndi lofala bwanji?

Vutoli ndi lofala kwambiri kuposa momwe mungaganizire. Anthu mamiliyoni ambiri padziko lonse lapansi amavutika ndi vutoli. Koma chomvetsa chisoni n'chakuti, anthu ambiri amavutika ndi vutoli, koma silinapezeke bwino. Chifukwa chimodzi ndi kusadziwa za vutoli. Chinanso ndi vuto lomwe anthu ena amakumana nalo akamapita kuchipatala.

Kodi zizindikiro za `ME/CFS` ndi ziti? Onani ngati muli nazonso...

Chizindikiro chachikulu cha ME/CFS ndi kutopa kwambiri, kosalekeza . Ndiko kuti, kutopa komwe kumatenga miyezi yoposa isanu ndi umodzi ndipo sikumachepa ndi kupuma kapena kugona.

Komanso, mukhoza kuona zizindikiro monga:

• Mavuto a tulo: Kusagona mokwanira, kudzuka ngakhale mutagona, kapena kumva kutopa mosasamala kanthu kuti mwagona tulo totani.
• Mutu: Mutu wopweteka pafupipafupi, nthawi zina woopsa.
• Kupweteka kwa mafupa: Kupweteka m'malo olumikizirana mafupa a thupi.
• Kupweteka kwa minofu: Kupweteka kwa minofu, kupweteka kwa thupi.
• Mavuto Oganiza: Kuvutika kuganiza bwino, kuvutika kuganizira bwino, kulephera kukumbukira. Anthu ena amatchanso izi kuti "ubongo wa munthu."

Kuwonjezera pa izi, pakhoza kukhala zizindikiro zina:

• Mavuto a masomphenya.
• Kumva kuzizira, mwina kutuluka thukuta usiku.
• Kutupa kwa ma lymph nodes.
• Kusamva bwino m'mimba: Zizindikiro zofanana ndi Irritable Bowel Syndrome (IBS), monga kudzimbidwa, kumva kukhuta, kupweteka m'mimba, kudzimbidwa kapena kutsegula m'mimba.
• Kuvutika maganizo, kukwiya, mantha, ndi nkhawa.
• Kusanza m'miyendo, kusanza m'kamwa.
• Chizungulire, mutu wopepuka, ndipo nthawi zina kukomoka.

Tangoganizirani, bwanji ngati munali ndi ululu womwewo womwe mumamva mukakhala ndi malungo kenako n’kutopa kwa miyezi ingapo, mwina zaka zambiri? Umu ndi momwe munthu amene ali ndi ME/CFS amamvera.

Chofunika ndichakuti zizindikirozi zimatha kusiyana malinga ndi munthu. Anthu ena akhoza kukhala ndi zizindikiro zochepa, ena akhoza kukhala ndi zizindikiro zambiri. Komanso, zizindikirozi zimatha kuchepa masiku ena koma masiku ena zimatha kuchulukirachulukira.

Chofunika kwambiri ndi matenda otchedwa `Post-Exertional Malaise (PEM).` Izi zikutanthauza kuti ngati muchita masewera olimbitsa thupi pang'ono (monga kuyenda mtunda waufupi, kugwira ntchito zapakhomo pang'ono) kapena kuchita zinthu zolimbitsa thupi (monga kuphunzira mayeso, kupanga chisankho chofunikira), zizindikiro zanu (makamaka kutopa) zimakhala zazikulu kwambiri kwa maola ambiri, kapena masiku angapo, pambuyo pake. Ichi ndi chizindikiro chachikulu cha `ME/CFS`.

N’chifukwa chiyani `ME/CFS` imeneyi imayamba? Kodi chifukwa chake n’chiyani?

Madokotala sakudziwabe chomwe chimayambitsa ME/CFS. Komabe, kafukufuku wapeza zifukwa zingapo zomwe zingayambitse:

• Kuthamanga kwa magazi kotsika .
• Kupsinjika maganizo .
• Pambuyo potenga matenda (monga matenda a mavairasi).
• Kusintha kwa chitetezo chamthupi : Izi ndi kusintha kwa dongosolo lomwe limateteza thupi lathu ku matenda ndi kupsinjika maganizo.
• Kusintha kwa momwe matupi athu amapangira ndi kugwiritsa ntchito mphamvu .

Izi ndi mfundo zazikulu zomwe zikuganiziridwa panopa, koma kafukufuku wowonjezereka ukuchitika.

Ndani ali pachiwopsezo chachikulu chotenga matenda a ME/CFS?

Ngakhale kuti vutoli lingayambire aliyense, anthu ena ali pachiwopsezo chachikulu:

• Azimayi ndi omwe ali ndi vuto limeneli kuposa amuna.
• Ngakhale kuti imatha kufalikira mwa ana ndi achinyamata, imapezeka kwambiri mwa akuluakulu azaka zapakati pa 40 ndi 60 .
• Zapezeka kuti pakhoza kukhala kulumikizana kwa majini. Izi zikutanthauza kuti ngati wina m'banja mwanu ali ndi vutoli, mungakhalenso ndi mwayi waukulu woti mudwale. Komabe, majini enieni omwe amakhudza vutoli sanadziwikebe.

Ndi mavuto ena ati omwe angachitike chifukwa cha ME/CFS?

Kutopa kwambiri komwe kumachitika chifukwa cha vutoli kungapangitse kuti anthu ena azivutika kwambiri, kapena kuti zosatheka, kuti agwire ntchito za tsiku ndi tsiku. Kafukufuku wasonyeza kuti pafupifupi theka la anthu omwe ali ndi ME/CFS sangathe kugwira ntchito yanthawi zonse kapena yanthawi yochepa.

Tangoganizirani, moyo ungakhale wovuta bwanji ngati simungadzuke m'mawa ndi kuphika tiyi, ngati simungathe kusamalira ana anu, ngati simungathe kupita kuntchito?

Komanso, kuvutika maganizo chifukwa cha ME/CFSKukhumudwa kumatha kuchitika. Ndizachibadwa kumva chisoni mukatopa nthawi zonse, mukumva ululu, komanso mukulephera kuchita zomwe mukufuna. Ngati mukumva chisoni, lankhulani ndi dokotala wanu za vutoli. Pali mankhwala abwino ochizira.

Kodi madokotala amazindikira bwanji vuto ili lotchedwa `ME/CFS`?

Palibe mayeso enieni oti adziwe matenda a ME/CFS. Dokotala adzazindikira matendawa mwa kukufufuzani, kumvetsera mosamala zizindikiro zanu, komanso kuyang'ana thanzi lanu la maganizo.

Dokotala angachitenso mayeso a magazi ndi mkodzo kuti atsimikizire kuti palibe matenda ena omwe amayambitsa zizindikiro zofanana.

Pali zinthu zingapo zofunika zomwe madokotala amafufuza akamaganiza kuti muli ndi ME/CFS (njira zodziwira matenda). Zinthu zake ndi izi:

• Payenera kukhala kutopa kwakukulu komwe kwakhalapo kwa miyezi yosachepera 6 .
• Kutopa kumeneku sikuchepa ngakhale mutapuma kapena kugona .
• Kuvuta kugona mokwanira komanso momasuka .
• Kutopa kumawonjezeka ndi kuchita masewera olimbitsa thupi kapena amisala (iyi ndi `Post-Exertional Malaise - PEM` yomwe tidakambirana kale).
• Nthawi zina, pangakhale kusasangalala mukakhala pansi kapena kuyimirira ('orthostatic tolerance') ndi/kapena mavuto a kuganiza ndi kukumbukira ('cognitive function').

Dokotala akaganizira zonsezi, amasankha ngati muli ndi ME/CFS kapena ayi.

Kodi mankhwala a ME/CFS ndi ati?

Cholinga chachikulu chochiza ME/CFS ndikuchepetsa zizindikiro zanu ndikukuthandizani kukhala ndi moyo wabwinobwino momwe mungathere. Anthu ena sangabwerere ku thanzi lawo lonse asanayambe matendawa. Komabe, chithandizo chingathandize kwambiri.

Pali njira zingapo zazikulu zochizira:

1. Kusintha zizolowezi zogona ('Kusintha kwa chizolowezi chogona')

2. Mankhwala

3. Kuyang'anira zochitika (komwe kumatchedwanso 'kuyenda pang'onopang'ono')

Tiyeni tikambirane za chilichonse mwa izi mwatsatanetsatane .

1. Kusintha zizolowezi zogona (kuzolowera kugona bwino - `Ukhondo wa Kugona`)

Dokotala wanu asanakulembereni mankhwala, angakulangizeni kuchita zinthu zosavuta kuti mugone bwino, monga:

• Gonani nthawi yoikika, dzukani nthawi yoikika. Kuchita izi nthawi yomweyo tsiku lililonse kudzakuthandizani kuti thupi lanu liyambe kugwira ntchito bwino.
• Ngati mumagona masana, musagone kwa mphindi zoposa 30. Kugona nthawi yayitali masana kungapangitse kuti zikhale zovuta kugona usiku.
• Gwiritsani ntchito bedi lanu ndi chipinda chanu chogona pogona komanso kuchita zinthu zogonana. Pewani kuonera TV, kugwiritsa ntchito foni yanu, kapena kugwira ntchito mutakhala pabedi. Ndi bwino kuchotsa zipangizo zamagetsi m'chipinda chogona.
• Pewani kudya chakudya chambiri musanagone.Komanso, pewani kumwa mowa ndi caffeine (yomwe imapezeka mu tiyi ndi khofi) musanagone.

Izi ndi zomwe timazitcha 'ukhondo wa kugona' kapena 'makhalidwe abwino ogona'.

2. Mankhwala

Malinga ndi zizindikiro zanu, dokotala wanu angakulangizeni mankhwala otsatirawa:

• Pa ululu: Mankhwala opha ululu monga `Nonsteroidal anti-inflammatory drugs (NSAIDs)`.
• Pa tulo, ululu, ndi kutopa: Mankhwala ena oletsa kuvutika maganizo, monga mankhwala oletsa kuvutika maganizo (tricyclics).
• Pochepetsa kuvutika maganizo ndi ululu: Mankhwala monga `Selective serotonin reuptake inhibitors (SSRI)` ndi `Serotonin-norepinephrine reuptake inhibitors (SNRI)`.
• Ngati pali matenda: Mankhwala oletsa mavairasi.
• Kupititsa patsogolo ntchito ya chitetezo chamthupi: Intravenous immunoglobulin (IVIG).
• Pa kutopa: `Corticosteroids` (izi ziyenera kugwiritsidwa ntchito mosamala kwambiri komanso pokhapokha ngati dokotala wakupatsani upangiri).

Si mankhwala onsewa omwe amagwira ntchito kwa aliyense. Dokotala wanu ndiye adzasankha mankhwala omwe ali abwino kwa inu. Mankhwala atsopano akufufuzidwanso.

3. Kuyang'anira zochitika ('Kuyang'anira zochitika' - 'kuyenda')

Monga tanenera kale, zizindikiro za ME/CFS zimawonjezeka chifukwa cha kuchita masewera olimbitsa thupi kapena maganizo (Post-Exertional Malaise - PEM). Monga chithandizo cha izi, madokotala amaphunzitsa njira yotchedwa "pacing." "Pacing" imangotanthauza kulinganiza bwino nthawi yanu yopuma komanso zochita zanu.

Pamene mukuchita "kuyenda pang'onopang'ono," mumaphunzira zomwe "zolepheretsa" zanu zili. Ganizirani zolepheretsa izi ngati mipanda. Muyenera kuyesetsa kukhala mkati mwa malire otetezeka a zomwe thupi lanu lingathe kuchita. Ngati mutuluka kunja kwa malire awa, ndiko kuti, ngati mudzikakamiza kupitirira malire anu, thupi lanu silidzathanso kuthana nazo. Izi zingapangitse zizindikiro zanu kukhala zovuta kwambiri.

Dokotala wanu angakuthandizeni kudziwa malire anu akuthupi ndi amisala. Zingakhale zothandiza kulemba zolemba zanu za zochita zomwe mumachita komanso momwe mumamvera mukamaliza kuchita zimenezo. Mukadziwa malire anu, mutha kukonzekera zochita zanu kuti zikhalebe malire amenewo.

Mwachitsanzo, ngati mukumva kutopa mutayenda kwa mphindi 15, muyenera kuyesa kuyenda kwa mphindi 10 zokha tsiku lotsatira ndikupuma. Chinsinsi cha "kuyenda" ndikumvetsera thupi lanu pang'onopang'ono ndikuzindikira malire anu.

Kuchita masewera olimbitsa thupi kwambiri, monga kuchita masewera olimbitsa thupi, kungapangitse kuti zizindikiro za ME/CFS ziwonjezeke kwambiri. Choncho, lankhulani ndi dokotala wanu za masewera olimbitsa thupi omwe ndi otetezeka komanso oyenera kwa inu.

Kodi ME/CFS ingapewedwe?

Mwatsoka, pakadali pano palibe njira yodziwika yopewera ME/CFS.

Kodi munthu amene ali ndi ME/CFS ayenera kuyembekezera chiyani?

Palibe mankhwala a ME/CFS. Komabe, zizindikiro zimatha kuthetsedwa ndi kusintha tulo, kuyang'anira zochita (kuyenda bwino), komanso mankhwala. Cholinga cha chithandizo ndikuthandizira kuchepetsa zizindikiro momwe zingathere ndikukweza moyo wabwino.

Chithandizo cha Maganizo (CBT) chawonetsedwa kuti n'chothandiza kwa anthu ambiri omwe ali ndi ME/CFS. Chimawathandiza kuthana bwino ndi zizindikiro zawo komanso maganizo ndi makhalidwe omwe amawatsogolera.

Muyenera kusamala kwambiri kuti musagwire ntchito yopitirira mphamvu zanu. Mukatopa mwakuthupi ndi m'maganizo, "kupuma pang'ono" - kutanthauza kuti, kupuma pakati pa ntchito zolimbitsa thupi ndi ntchito zamaganizo - kungakhale kothandiza kwambiri.

Dokotala wanu angakulimbikitseninso kuti mulowe nawo gulu lothandizirana ndi anthu ena omwe ali ndi ME/CFS. Magulu awa angakupatseni chilimbikitso, chidziwitso, komanso mwayi wogawana zomwe mwakumana nazo ndi vuto lanu.

Kodi chiyembekezo cha ME/CFS ndi chotani?

Ndi chithandizo, zizindikiro zambiri za ME/CFS zimakula pang'ono. Komabe, anthu ena sangabwererenso ku thanzi lawo asanayambe zizindikiro. Momwe vutoli limakhudzira munthu aliyense ndi zosiyana. Ndi bwino kulankhula ndi dokotala wanu za vuto lanu komanso momwe zinthu zilili.

Kodi muyenera kupita kwa dokotala liti?

Ngati muli ndi zizindikiro za ME/CFS (makamaka kutopa komwe kumatenga miyezi yoposa isanu ndi umodzi), onetsetsani kuti mwaonana ndi dokotala. Dokotala wanu adzawunika zizindikiro zanu ndikupanga dongosolo la chithandizo kuti akuthandizeni kupeza mpumulo.

Nthawi zina, mukatopa kwambiri moti simungathe kudzuka pabedi, kukaonana ndi dokotala kungakhale vuto lalikulu. Pazochitika zotere, musazengereze kufotokozera dokotala wanu pafoni momwe zizindikiro zanu zikukukhudzirani. Dokotala wanu akhoza kukupatsani 'nthawi yokumana' kuti mulumikizane kuchokera kunyumba kwanu.

Mukazindikira vutoli msanga ndikuyamba kulandira chithandizo, mutha kupeza mpumulo mwachangu.

Ndi mafunso ati omwe ndiyenera kufunsa dokotala wanga?

Mukapita kwa dokotala, mungafunse mafunso monga awa:

• Kodi mukundilangiza chithandizo chamtundu wanji?
• Kodi pali zotsatirapo zilizonse za mankhwalawa?
• Kodi ndingapeze bwanji malire a zochita zanga?
• Ngati ndikumva bwino, kodi ndingathe kugwira ntchito mopitirira malire anga?
• Kodi ndingatani kuti ndiziwongolera machitidwe anga ogona ('ukhondo wogona')?

Funsani mafunso ngati awa kuti mumvetse bwino momwe zinthu zilili.

Uthenga Womaliza Wopita Nawo Kunyumba

Matenda a Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) ndi matenda oopsa komanso oopsa kwambiri. Koma simuli nokha.Ngati mumvetsetsa vutoli ndi kulithetsa bwino, mutha kuwongolera zizindikiro zake ndikukhala ndi moyo wabwino.

• Ngati mukutopa nthawi zonse koma simukutopa mukapuma , musanyalanyaze. Funsani upangiri kwa dokotala.
• Phunzirani njira yotchedwa "pacing" ndipo gwiritsani ntchito mphamvu zanu mosamala.
• Yesetsani kugona tulo tabwino usiku .
• Ngati mukufuna thandizo, musachite manyazi kupempha thandizo kwa abale anu, anzanu, ndi madokotala .
• Magulu othandizira angakuthandizeni kukhala ndi mphamvu zambiri zamaganizo.

Ndikukhulupirira kuti izi zikuthandizani. Khalani ndi thanzi labwino!

Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, kutopa, kutopa kosatha, matenda otsatira masewera olimbitsa thupi, kusowa tulo, kupweteka kwa thupi, thanzi la Sinhala