Kodi mukutayanso mphamvu poyenda ndipo mukuvutika kusuntha maso anu? Ikhoza kukhala PSP (Progressive Supranuclear Palsy)!

Kodi mumataya mphamvu zanu zonse n’kugwa nthawi iliyonse mukamayenda? Kapena mumavutika kulamulira maso anu mukayesa kuyang’ana pansi? Mwina mwaonapo munthu amene mumamudziwa ali ndi vutoli. Izi zitha kukhala zina mwa zizindikiro zoyambirira za matenda osowa otchedwa PSP, kapena Progressive Supranuclear Palsy, omwe tikambirane lero. Musadandaule, tikambirana izi mwatsatanetsatane.

Kodi PSP (Progressive Supranuclear Palsy) ndi chiyani? Tiyeni timvetse mosavuta!

Chabwino, tsopano tiyeni tiwone kuti matendawa omwe ali ndi dzina lalitali la PSP (Progressive Supranuclear Palsy) ndi otani. Mwachidule, ndi matenda amitsempha omwe amawononga mbali zina za ubongo wathu. Amatha kukhudza zinthu monga momwe mumayendera, momwe mumaganizira, momwe mumameza, komanso momwe mumayendera maso anu. Alinso ndi mayina ena, kuphatikizapo matenda a Steele-Richardson-Olszewski.

Tsopano onani, n'zosavuta ngati mukumvetsa mawu ena omwe ali m'dzinalo.

• "Kupita patsogolo" kumatanthauza, monga ndanenera kale, kuti zizindikirozi zimakula pang'onopang'ono pakapita nthawi. Chifukwa cha izi ndi kufooka pang'onopang'ono kwa maselo a ubongo (vuto la neurodegenerative).
• Mawu akuti "Supranuclear" ndi "Palsy" amaphatikizidwa kuti afotokoze vuto lomwe limakhudza kuyenda kwa maso. "Supranuclear" amatanthauza kuti kuwonongeka kuli pamwamba pa nuclei mu ubongo zomwe zimalamulira kuyenda kwa maso. "Palsy" amatanthauza kuti minofu ndi yofooka kapena imavutika kuigwiritsa ntchito.

Kumbukirani, nthawi zina PSP ingasokonezedwe ndi matenda a Parkinson, makamaka kumayambiriro kwa matendawa. Madokotala amatcha izi "atypical parkinsonian syndrome" kapena "Parkinson-plus disorder." Izi zikutanthauza kuti ngakhale ili ndi zizindikiro zofanana ndi matenda a Parkinson, ndi vuto losiyana komanso lovuta kwambiri. Koma kumbukirani, PSP imakula mofulumira kuposa matenda a Parkinson.

Matendawa amapezeka kwambiri mwa anthu azaka zopitirira 60. Ndikosowa kwambiri kuti munthu wosakwana zaka 40 akhale nawo.

Kodi mitundu ikuluikulu ya PSP (Progressive Supranuclear Palsy) ndi iti?

Pali mitundu ikuluikulu inayi, kapena mitundu yosiyanasiyana, ya PSP. Ngakhale kuti mitundu yonseyi ili ndi zizindikiro zofanana, pali kusiyana pang'ono. Mitundu iwiri yodziwika kwambiri ndi iyi:

1. Matenda a Richardson

2. Mtundu wofanana ndi matenda a Parkinson (mtundu wofanana ndi PD - PSP-P)

Mitundu iwiriyi ikuyimira pafupifupi 75% ya odwala a PSP.

Munthu amene ali ndi matenda a Richardson angakumane ndi zizindikiro zotsatirazi:

• Mavuto ndi kuyenda ndi kulinganiza bwino.
• Kusalankhula bwino (kulankhula molakwika, kusintha kwa mawu).
• Mavuto okhudzana ndi kukumbukira ndi kuganiza.
• Kuvuta kulamulira mayendedwe a maso (makamaka akamayang'ana pansi).
• Nkhope yake ikuwoneka ngati ikuyang'ana patsogolo ndi maso otseguka.

Anthu omwe ali ndi matenda a Parkinson's disease-like variant (PSP-P) ali ndi zizindikiro zofanana ndi za Richardson syndrome, koma zimafanana kwambiri ndi matenda a Parkinson. Chizindikiro chachikulu ndi kugwedezeka (kugwedezeka komwe kumachitika chifukwa cha kugwedezeka kwa minofu kosafunikira). Kunjenjemera kumaonekera kwambiri kuposa mavuto olinganiza bwino komanso kusintha kwa khalidwe. PSP-P imayankha bwino mankhwala oletsa Parkinson kuposa mitundu ina ya PSP.

Mitundu ina iwiri yosowa ndi iyi:

• Matenda a Corticobasal.
• Kuzizira koyera ndi kuyenda mozizira (kuvuta kusuntha ndi kuzizira poyenda).

Kodi PSP (Progressive Supranuclear Palsy) ndi matenda ofala?

Ayi, PSP ndi matenda osowa kwambiri. Akuti anthu asanu okha pa anthu 100,000 aliwonse ali ndi vutoli. Munthu m'modzi yekha pa anthu 100,000 aliwonse amadwala matendawa chaka chilichonse. Kotero mutha kuona momwe izi zimachitikira kawirikawiri.

Kodi zizindikiro za PSP (Progressive Supranuclear Palsy) ndi ziti?

Zizindikiro za PSP zimatha kusiyana malinga ndi munthu. Nthawi zambiri zimayamba pang'onopang'ono ndipo pang'onopang'ono zimakula pakapita nthawi.

Zizindikiro zoyamba zodziwika bwino zitha kukhala:

• Kutaya mphamvu poyenda kapena kukwera masitepe. Izi zingayambitse kugwa pafupipafupi, makamaka chammbuyo.
• Kuvutika kuyang'ana pansi ndi maso.
• Nkhope yake ikuwoneka ngati ikuyang'ana patsogolo ndi maso otseguka.

Zizindikiro zina zomwe zingawonekere ndi izi:

• Kuvuta kumeza chakudya ndi chakumwa.
• Kuuma kwa minofu kumapangitsa kuti thupi likhale lovuta kusuntha (kuyenda).
• Kuvuta kulankhula. Mawu angakhale odekha komanso osamveka bwino. Kungakhalenso kovuta kutchula mawu.
• Kusintha kwa maganizo: kukhumudwa, kusamvera, kukwiya.
• Kusintha kwa umunthu.
• Kusintha kwa khalidwe: kuchita zinthu mosasamala, kulephera kusankha chabwino ndi choipa.
• Dementia (kuchepa pang'onopang'ono kwa kukumbukira ndi nzeru).
• Kusowa tulo.
• Matenda a REM sleep behavior disorder (RBD) (kulira ndi kugwedezeka kwa miyendo mumaloto).
• Kusamva kuwala kowala (photophobia).

Kodi n’chiyani chimayambitsa matenda a Progressive Supranuclear Palsy (PSP)?

Asayansi sakudziwabe chomwe chimayambitsa PSP. Komabe,Puloteni yotchedwa "tau" yapezeka kuti imagwira ntchito pa izi. Tau ndi puloteni yofunika kwambiri pa thanzi la ubongo wathu. Ndi puloteni iyi yomwe imateteza kapangidwe kabwino ka maselo a ubongo (ma neuron).

Ngati muli ndi PSP, mapuloteni a tau awa muubongo wanu amasonkhana pamodzi ndikupanga magulu. Magulu a mapuloteni a tau awa amawononga maselo a ubongo. Ofufuza akupereka zifukwa zingapo zomwe zingayambitse izi:

• Kusintha kwa majini mwachisawawa.
• Mankhwala opatsirana osadziwika.
• Mankhwala osadziwika omwe amapezeka m'malo athu (mpweya, madzi, chakudya) omwe amawononga pang'onopang'ono mbali zina za ubongo zomwe zimakhala zosavuta kumva.

PSP siikhudza aliyense mofanana. Imakhudza mbali zosiyanasiyana za ubongo pamlingo wosiyana wa matendawa, m'magawo osiyanasiyana. Pamapeto pake, PSP imafalikira ku ubongo wonse. Poyamba, vutoli nthawi zambiri limakhudza basal ganglia ndi brainstem.

Ubongo wanu umagwira ntchito zambiri zofunika, monga kumeza ndi kaimidwe ka thupi. Chigoba cha basal chimakuthandizaninso kukhalabe ndi kaimidwe ka thupi, kusuntha maso anu, kuganiza, ndi kulamulira malingaliro anu.

Kodi PSP (Progressive Supranuclear Palsy) ndi yobadwa nayo?

Ayi, PSP ndi yosowa kwambiri. Ngati muli ndi PSP, chiopsezo choti anthu ena m'banja mwanu, kuphatikizapo abale anu ndi ana anu, atenge matendawa n'chochepa kwambiri. Choncho palibe chodetsa nkhawa.

Kodi ndi zinthu ziti zomwe zimayambitsa matenda a PSP (Progressive Supranuclear Palsy)?

Choopsa chachikulu cha matenda a PSP ndi ukalamba. Chiwopsezo chanu cha matenda a PSP chimawonjezeka mukakhala ndi zaka 60 kapena kuposerapo. Matendawa amapezeka kwambiri mwa amuna kuposa akazi.

Kodi mavuto a PSP (Progressive Supranuclear Palsy) ndi otani?

Pamene PSP ikupita patsogolo, odwala nthawi zambiri amalephera kulamulira minofu ya mkamwa, pakhosi, ndi lilime lawo.

Kulephera kulamulira minofu ya pakhosi kungapangitse kuti zikhale zovuta kumeza chakudya ndi chakumwa. Izi zingayambitse kufunika kwa chubu chodyetsera kuti chakudya chisamamatire komanso matenda pachifuwa.

Anthu ambiri omwe ali ndi PSP alinso ndi mavuto ndi ntchito ya m'matumbo ndi chikhodzodzo. Mwachitsanzo:

• Kudzimbidwa.
• Kuvuta kukodza.
• Kukodza pafupipafupi usiku.
• Kuyenda m'mimba mosadzifunira (kusadziletsa m'mimba).
• Kulephera kudziletsa mkodzo.

Kodi PSP (Progressive Supranuclear Palsy) imapezedwa bwanji?

PSP ikhoza kukhala yovuta pang'ono kwa madokotala kuti azindikire matenda molondola. Monga ndanenera kale, imatha kusokonezedwa ndi matenda a Parkinson, makamaka kumayambiriro.Pakadali pano palibe mayeso enieni omwe angapeze matenda a PSP. Madokotala nthawi zambiri amafufuza matendawa kutengera zizindikiro zanu ndi mayeso ojambulira zithunzi omwe amajambula ubongo wanu.

Ngati dokotala wanu akukayikira kuti muli ndi PSP, mwina angakupatseni MRI (magnetic resonance imaging scan) muubongo wanu . Izi zitha kuchotsa matenda ena omwe angayambitse zizindikiro zanu, monga matenda a Parkinson kapena sitiroko. Komanso, ngati MRI ikuwonetsa kuchepa kwa ubongo, zimawonjezera mwayi wokhala ndi PSP.

Kuti mudziwe matendawa molondola, muyenera kuonana ndi katswiri wa mitsempha yemwe ndi katswiri wa matenda a Parkinson ndi matenda oyenda.

Ngakhale pali zizindikiro zambiri za PSP, chizindikiro chachikulu chomwe chimatsimikizira matendawa ndi kuvutika kusuntha maso mmwamba ndi pansi. Zizindikiro zina zodziwika bwino ndi monga kugwa pafupipafupi komanso kuvutika kumeza.

Kodi mankhwala a PSP (Progressive Supranuclear Palsy) ndi otani?

Mwatsoka, pakadali pano palibe mankhwala kapena chithandizo cha PSP. Komabe, pali njira zingapo zothandizira kuchepetsa zizindikiro zanu ndikukweza moyo wanu.

Njira zochiritsira zikuphatikizapo:

• Mankhwala omwa.
• Mankhwala ochiritsira kuyenda.
• Mankhwala a maso.
• Percutaneous endoscopic gastrostomy (PEG) - kudya kudzera mu chubu chomwe chimayikidwa m'mimba.
• Chisamaliro cha kupweteka kwa mutu.

Pakhoza kukhalanso mayesero azachipatala a PSP omwe mungathe kutenga nawo mbali. Funsani gulu lanu lachipatala za izi.

Mankhwala omwa

Mankhwala oletsa Parkinson nthawi zina angathandize kuwongolera zizindikiro za PSP. Amatha kuchepetsa kwakanthawi zizindikiro monga mavuto okhazikika, kuuma kwa minofu, kuyenda pang'onopang'ono, ndi kunjenjemera. Komabe, sagwira ntchito mofanana kwa aliyense. Mankhwala odziwika kwambiri a PSP ndi awa:

• Levodopa (mwachitsanzo, Atamet®, Rytary®, Sinemet®).
• Levodopa yokhala ndi mankhwala oletsa choleretic.
• Amantadine (monga Symmetrel®).

Mankhwala oletsa kuvutika maganizo amagwiritsidwa ntchito pochiza matenda a maganizo. Madokotala angakulembeni mankhwala awa kuti akuthandizeni kuthana ndi mavuto amisala omwe amayamba chifukwa cha PSP. Mankhwala oletsa kuvutika maganizo omwe amalembedwa kwambiri ndi awa:

• Fluoxetine (monga Prozac®).
• Amitriptyline (monga Elavil®).
• Imipramine (monga Tofranil®).

Chithandizo cha maganizo (kulankhula ndi munthu) ndi njira yabwino yothandizira mavuto amisala komanso kukhala ndi matendawa.

Mankhwala ochiritsira kuyenda

Mankhwalawa angathandize kuchepetsa zizindikiro zina za PSP:

• Kuchiza thupi: Kuchiza thupi kumathandiza kulamulira zinthu monga kupweteka, kuuma, ndi kuvutika kuyenda.
• Chithandizo cha Occupational Therapy: Katswiri wa opaleshoni ndi munthu amene amakuthandizani kukonza luso lanu lochita ntchito za tsiku ndi tsiku. Angakuphunzitseni momwe mungayimire, kukhala, kuyenda, kapena kugwiritsa ntchito zida zosiyanasiyana kuti mugwire ntchito yanu mosamala.
• Chithandizo cha kulankhula: Akatswiri olankhula amathandiza anthu kuthana ndi mavuto olankhula komanso kumeza.

Mankhwala a maso

Mankhwalawa angathandize ndi mavuto osiyanasiyana a maso:

• Jakisoni wa Botox® (botulinum toxin): Ngati mukuvutika kulamulira maso anu, jakisoni wa Botox ukhoza kumasula minofu ya maso kwakanthawi.
• Madontho a m'maso ndi misozi yopangidwa: Izi zingathandize kunyowetsa maso anu ngati maso anu ali ouma chifukwa cha kuchepa kwa mafuta m'maso.
• Magalasi apadera: Magalasi apadera okhala ndi magalasi a prism amakuthandizani kuwona zinthu zomwe sizikuwoneka bwino.
• Magalasi ozungulira: Ngati mukumva kuwawa kwambiri, kuvala magalasi akuda omwe amazungulira maso anu, monga magalasi a dzuwa, kungakuthandizeni kukhala ndi mpumulo.

Percutaneous Endoscopic Gastrostomy (PEG)

Ngati PSP yakula kwambiri, mungafike poti simungathe kumeza chakudya kapena chakumwa chilichonse. Izi zikutanthauza kuti simungathe kudya kapena kumwa. Musanafike poti, dokotala wanu angakulangizeni kuti muyesedwe ndi percutaneous endoscopic gastrostomy (PEG) .

Mwachidule, PEG ndi njira yomwe dokotala wa opaleshoni amalowetsa chubu kudzera m'mimba mwanu kupita m'mimba mwanu. Chakudya chanu, mankhwala, ndi madzi anu amalowa m'thupi mwanu kudzera mu chubuchi.

Chisamaliro cha kupweteka kwa mtima

Chisamaliro cha palliative ndi njira yapadera yosamalira yomwe imapereka mpumulo, chitonthozo, komanso chithandizo kwa anthu omwe ali ndi matenda aakulu monga PSP. Sichimangothandiza wodwala yekha, komanso osamalira ake ndi abale ake.

Chisamalirochi chikuwonjezera pa chithandizo chomwe mumalandira kuchokera kwa madokotala anu kuti chikuthandizeni kusamalira PSP yanu. Chisamaliro chochepetsa ululu chimapereka chithandizo chamankhwala, chikhalidwe, komanso chamaganizo chomwe mukufunikira kuti mukhale ndi moyo wabwino komanso kuthana ndi matenda oopsa.

Kodi PSP (Progressive Supranuclear Palsy) imati chiyani? (Malangizo)

Matenda a PSP nthawi zambiri amakhala oipa. Zizindikiro zimakula pakapita nthawi, ndipo pakadali pano palibe mankhwala ochiritsira kapena kuletsa PSP. Komabe, mukapezeka ndi matendawa msanga ndikuyamba dongosolo la chithandizo, moyo wanu umakhala wabwino kwambiri.

Anthu ambiri omwe ali ndi PSP pamapeto pake amafunika mpando wa olumala. Angafunike chisamaliro cha nthawi yochepa kapena cha nthawi zonse mkati mwa zaka zitatu kapena zinayi kuchokera pamene matendawa ayamba. Komabe, izi zimasiyana malinga ndi munthu aliyense. Pakapita nthawi, mavuto ochokera ku PSP amatha kukhala pachiwopsezo chachikulu.

Kodi munthu amene ali ndi PSP (Progressive Supranuclear Palsy) amakhala ndi moyo wautali bwanji?

Anthu omwe ali ndi PSP nthawi zambiri amakhala ndi moyo zaka zisanu ndi chimodzi mpaka zisanu ndi zinayi atapezeka ndi matendawa, koma izi zimatha kusiyana.

Zizindikiro za PSP zimawonjezera chiopsezo chotenga chibayo, chomwe chingathe kupha. Chomwe chimayambitsa imfa pakati pa anthu omwe ali ndi PSP ndi aspiration pneumonia. Apa ndi pamene chakudya ndi zakumwa zimalowa m'mapapo mwangozi kudzera mu mkodzo chifukwa minofu ya pakhosi ndi yofooka ndipo siigwirizana bwino.

Anthu omwe ali ndi PSP nawonso ali pachiwopsezo chachikulu chogwa. Kugwa kungayambitse kusweka mafupa ndi kuvulala mutu. Kugwa komwe kumayambitsa kuvulala kwakukulu ndi komwe kumayambitsanso imfa pakati pa anthu omwe ali ndi PSP.

Kodi PSP (Progressive Supranuclear Palsy) ingapewedwe?

Popeza ofufuza sakudziwabe chomwe chimayambitsa PSP, pakadali pano palibe njira yopewera izi.

Kodi ndiyenera kupita kwa dokotala liti?

Muyenera kuonana ndi gulu lanu lachipatala nthawi zonse kuti muwone momwe zizindikiro zanu zikuyendera komanso kuti muwonetsetse kuti dongosolo lanu la chithandizo likugwira ntchito bwino.

Ngati mukumva zizindikiro zilizonse zomwe zimakudetsani nkhawa , imbani dokotala nthawi yomweyo.

Kudziwa kuti muli ndi PSP (Progressive Supranuclear Palsy) kungakhale kovuta kuthana nako. Gulu lanu la zachipatala lidzakuthandizani kupanga dongosolo lothandizira zizindikiro zanu. Chofunika kwambiri ndikuwonetsetsa kuti mwalandira chithandizo chomwe mukufuna ndikuyang'ana kwambiri thanzi lanu. Kumbukirani kuti gulu lanu lachipatala limakhalapo nthawi zonse kuti likuthandizeni inu ndi banja lanu.

Pomaliza, zinthu zofunika kwambiri kukumbukira

PSP ndi matenda ovuta komanso osowa. Komabe, ndikofunikira kudziwa za matendawa, kuzindikira zizindikiro zake msanga, ndikupempha upangiri woyenera wa dokotala ndi chithandizo.

• Dziwani zizindikiro zoyambirira: Samalani zinthu monga kuvutika kuyenda, kulephera kukhazikika, komanso kuvutika kuyang'ana pansi.
• Funani upangiri kwa dokotala: Ngati mukukayika, pitani kwa dokotala wa mitsempha kuti akakufufuzeni.
• Pitirizani kulandira chithandizo: Ngakhale kuti matendawa sangachiritsidwe, pali mankhwala oletsa zizindikiro ndikuwongolera moyo wabwino.
• Ganizirani za thanzi lanu la maganizo: Ndikofunikira kukhala olimba m'maganizo mukakhala ndi vuto ngati ili. Funsani uphungu ngati kuli kofunikira.
• Dziwani chithandizo chothandizira: Kuchiza thupi, chithandizo cha ntchito, chithandizo cha kulankhula, ndi chisamaliro chochepetsa ululu kungakuthandizeninso.

Ndikukhulupirira kuti izi zikuthandizani. Ngati inu kapena wokondedwa wanu mukukumana ndi vutoli, musavutike nokha. Ndi chithandizo choyenera chamankhwala ndi chisamaliro cha okondedwa anu, mutha kuthana ndi vutoli.

PSP , Progressive Supranuclear Palsy, Matenda a Ubongo, Matenda a Mitsempha, Parkinson's, Matenda Oyenda, Kulinganiza