Kodi nthawi zina mumamva ngati maso anu akutopa tsiku likupita, lilime lanu likusokonekera mukamalankhula, kapena ziwalo zanu zikuyamba kuchita dzanzi? Izi sizingakhale chifukwa cha kutopa kokha. Lero tikulankhula za vuto lapadera lotchedwa ' Myasthenia Gravis ' lomwe limayambitsa zizindikiro zotere komanso mankhwala atsopano omwe agwiritsidwa ntchito pa izi. Ndikofunikira kwambiri kudziwa izi.
Kodi Myasthenia Gravis ndi chiyani kwenikweni?
Mwachidule, myasthenia gravis ndi matenda osatha omwe chitetezo cha mthupi lathu, chitetezo cha mthupi, chimawononga maselo athu athanzi molakwika. Izi zimatchedwa matenda odziteteza okha.
Tangoganizirani, uthenga wotumizidwa kuchokera muubongo wathu umadutsa m'mitsempha ndikufikira minofu, yomwe imagwira ntchito. Kulumikizana kwa mitsempha pakati pa mitsempha ndi minofu kumawonongeka ndi matendawa. Ma antibodies ena opangidwa ndi chitetezo chathu chamthupi amafika pamgwirizanowu ndikuletsa kuyenda kwa mauthenga. Zotsatira zake , minofu imayamba kufooka pang'onopang'ono .
Mitundu iwiri ikuluikulu ya ma antibodies omwe amayambitsa vutoli ndi anti- acetylcholine receptor (AChR) ndi anti-muscle-specific tyrosine kinase (MuSK) . Dokotala wanu adzakufotokozerani izi.
Kodi zizindikiro zofala za matendawa ndi ziti?
Zizindikirozi zimatha kusiyana malinga ndi munthu. Komanso, mukamagwiritsa ntchito minofu kwambiri, imakhala yofooka kwambiri. Tebulo ili pansipa likuwonetsa zina mwa zizindikiro zodziwika bwino.
| Chizindikiro | Kufotokozera |
|---|---|
| Zikope zowerama | Kuwerama kosalamulirika kwa diso limodzi kapena onse awiri. Anthu ena amatha kuona awiri. |
| Kusintha kwa nkhope | Kufooka kwa minofu ya nkhope ndi nsagwada kungayambitse kusintha kwa zinthu monga kumwetulira ndi kusonyeza mkwiyo. |
| Kufooka m'manja, miyendo, ndi zala | Kuvuta kuchita ntchito za tsiku ndi tsiku monga kunyamula chinthu, kupesa tsitsi, kapena kuyenda. |
| Kuvuta kumeza | Kumva ngati ukukanthidwa mukamameza chakudya kapena chakumwa. |
| Kuvuta kulankhula | Kusintha kwa mawu mukamalankhula, kumamveka ngati mukulankhula kudzera m'mphuno mwanu, kapena kulankhula mopanda lirime. |
Kodi mankhwala atsopano a Rystiggo amagwira ntchito bwanji?
Rystiggo (Rozanolixizumab-noli) ndi mankhwala atsopano ovomerezeka kuchiza myasthenia gravis. Ndi a gulu la mankhwala otchedwa neonatal Fc receptor (FcRn) blockers.
Tsopano tiyeni tiwone momwe izi zimagwirira ntchito. Monga ndanenera kale, chomwe chimayambitsa matendawa ndi ma antibodies owopsa (AChR ndi MuSK) m'magazi mwathu. Chomwe Rystiggo amachita ndikulunjika ma antibodies owopsawa ndikufulumizitsa kuchotsedwa kwawo m'thupi lathu.
Mwachidule, mankhwalawa amagwira ntchito ngati fyuluta yomwe imayeretsa magazi athu ndikuchepetsa kuchuluka kwa ma antibodies oipa omwe amayambitsa matendawa.
Kuchuluka kwa ma antibodies amenewa kukachepa, kusokoneza kwa mauthenga pakati pa mitsempha ndi minofu kumachepa. Zotsatira zake, mphamvu ya minofu imawonjezekanso ndipo zizindikiro zimawongoleredwa.
Kodi mankhwalawa ndi abwino kwa aliyense?
Ayi. Rystigmo imavomerezedwa kuti igwiritsidwe ntchito kwa odwala akuluakulu omwe ali ndi myasthenia gravis omwe adayesedwa ma antibodies a AChR kapena MuSK m'magazi mwawo. Anthu omwe alibe ma antibodies awa sangapindule ndi mankhwalawa. Chifukwa chake, dokotala wanu adzasankha ngati chithandizochi chili choyenera kwa inu.
Kodi chithandizochi chimaperekedwa bwanji ndipo zotsatira zake ndi ziti?
Mankhwalawa nthawi zambiri amaperekedwa ngati jakisoni m'minofu ya pansi pa mimba m'chipatala kapena kuchipatala. Kawirikawiri amaperekedwa m'dera lomwe lili pansi pa mimba.
- Kuzungulira kwa chithandizo:Katemerayu nthawi zambiri amaperekedwa kamodzi pa sabata kwa milungu 6. Izi zimatchedwa nthawi yolandira chithandizo. Pambuyo pake, mutha kukhala osalandira chithandizo kwa kanthawi ndikuyamba nthawi yatsopano ngati pakufunika kutero. Zonsezi zimasankhidwa ndi dokotala wanu.
- Chenjezo: Mudzayang'aniridwa ndi dokotala kwa mphindi pafupifupi 15 mutalandira jakisoni, chifukwa nthawi zina pamakhala zotsatirapo za ziwengo.
| Zoopsa/zotsatira zake | Chochita ndi chodziwa |
|---|---|
| Nthawi zina muyenera kuuza dokotala wanu nthawi yomweyo | |
| Matenda Ogwira Ntchito | Ngati muli ndi zizindikiro monga malungo, kupweteka kwa thupi, chifuwa, kutupa kwa mphuno, kupuma movutikira, kapena kutsegula m'mimba, uzani dokotala nthawi yomweyo musanayambe kapena mukuyamba kulandira chithandizo. Chithandizo chingafunike kuchedwetsedwa mpaka matendawa atatha. |
| Zotsatira zoyipa zofala | |
| Mutu | Izi nthawi zambiri zimakhala zazing'ono. Ngati zakula kwambiri kapena zikupitirira, uzani dokotala wanu. |
| Kusanza ndi kutsegula m'mimba | Izi zimachitika kawirikawiri m'masabata oyamba a chithandizo. Imwani madzi ambiri ndipo idyani zakudya zopanda thanzi (mpunga, nthochi). Ngati zikupitirira, uzani dokotala wanu. |
| Zochita pa malo obayira jakisoni | Pakhoza kukhala kufiira, kuyabwa, ndi kutupa pamalo obayira jakisoni. Izi zitha kuchepetsedwa posintha malo obayira jakisoni m'malo mobayira jakisoni pamalo omwewo nthawi iliyonse. |
Kodi pangakhale mavuto ndi mankhwala ena ndi katemera?
Inde, nkhani yofunika kwambiri imeneyo.
- Katemera: Katemera wina sangapatsidwe musanayambe kapena panthawi ya chithandizo cha Rystiggo. Choncho, uzani dokotala wanu pasadakhale za katemera aliyense amene mukulandira.
- Mankhwala ena: Mankhwala ena omwe mukumwa, makamaka mankhwala okhudzana ndi chitetezo chamthupi monga Intravenous Immunoglobulin (IVIg) , ndi ma monoclonal antibodies , angagwirizane ndi Rystiggo.
Choncho, ndikofunikira kuuza dokotala wanu za mankhwala onse omwe mumamwa (kuphatikizapo mavitamini ndi mankhwala azitsamba) popanda kubisa chilichonse.
Kodi mumadziwa bwanji ngati mankhwalawo akugwira ntchito?
Pakatha milungu ingapo mutayamba kugwiritsa ntchito Rystiggo, mudzayamba kumva minofu yanu ikulimba ndipo zizindikiro zanu zikuchepa. Komabe, ngakhale zizindikiro zanu zitachepa, musasiye kumwa mankhwala popanda upangiri wa dokotala. Kuchita zimenezi kungayambitse zizindikiro zanu kubwerera. Nthawi zonse lankhulani ndi dokotala wanu za vuto lanu.
Uthenga Wopita Nawo Kunyumba
- Myasthenia Gravis ndi matenda omwe chitetezo cha mthupi lathu chimaukira minofu yathu.
- Rystigmo ndi mankhwala atsopano a matendawa. Amathandiza kuchotsa ma antibodies oopsa omwe amayambitsa matendawa m'thupi.
- Mankhwalawa si oyenera aliyense. Dokotala wanu adzadziwa ngati izi ndi zoyenera kwa inu pofufuza ngati muli ndi ma antibodies a AChR kapena MuSK m'magazi anu.
- Ngati mukupeza zizindikiro za matenda monga malungo ndi chifuwa panthawi ya chithandizo, dziwitsani dokotala wanu nthawi yomweyo.
- Ndikofunikira kwambiri kuuza dokotala wanu za mankhwala ena onse omwe mukumwa.
- Pewani kusiya kumwa mankhwala olembedwa popanda upangiri wa dokotala pazifukwa zilizonse.
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