Kodi mukuvutika ndi ululu wa matenda a Sickle Cell? Tiyeni tikambirane momwe mungathanirane ndi ululuwu.

Ululu ndi vuto losatha kwa munthu amene ali ndi matenda a Sickle Cell Disease ( SCD ). Mwachidule, maselo ofiira a m'magazi mwanu amasintha kuchoka pakukhala ozungulira kupita pakukhala ngati sickle. Maselo ooneka ngati sickle awa amamatira m'mitsempha yaying'ono kwambiri yamagazi m'thupi lanu, zomwe zimaletsa kuyenda kwa magazi . Pamenepo ndi pomwe mwadzidzidzi mumamva kupweteka kwakukulu. Timatcha izi kuti "mavuto a ululu." Ululuwu nthawi zambiri umapezeka m'munsi mwa msana, m'manja, m'miyendo, pachifuwa, ndi m'mimba. Kwa anthu ena, ululu ukhoza kukhala wopitirira, kapena wokhalitsa, chifukwa cha mavuto ena azaumoyo omwe amayamba chifukwa cha matendawa . Mukakhala ndi ululu wotere, mumakhala ndi mwayi waukulu wopeza kuvutika maganizo, kupsinjika maganizo, ndi nkhawa .

Koma kaya muli ndi ululu wamtundu wanji, pali njira zambiri zokuthandizani kupeza mpumulo. Chofunika kwambiri ndikulankhula ndi dokotala wanu za kupanga dongosolo labwino lothandizira ululu wanu.

Kodi mumachita bwanji ndi vuto la ululu?

Nthawi zambiri, mutha kuchepetsa ululu kunyumba ukangoyamba. Nthawi zambiri mutha kupeza mpumulo ndi mankhwala ochepetsa ululu omwe amagulitsidwa kunja kwa chipatala monga Paracetamol kapena Ibuprofen . ( Koma kumbukirani kuti aspirin sivomerezeka kwa anthu osakwana zaka 19. ) Kuphatikiza apo, pali zinthu zina zomwe mungachite kuti muthandize.

Tiyeni tiwone motere kuti timvetse bwino zomwe zingachitike kunyumba.

Koma nthawi zina, ngati zinthuzi sizikuthandiza, kapena ngati ululu uli waukulu kwambiri, inu kapena mwana wanu mungafunike kugonekedwa kuchipatala. Kumeneko, dokotala angakupatseni mankhwala amphamvu ochepetsa ululu ndi mankhwala amphamvu ochepetsa ululu. Ngati ululuwo ndi wosapiririka, musakhale panyumba. Pitani ku chipinda chapafupi chadzidzidzi (ETU) mwachangu momwe mungathere.

Madokotala ambiri amapatsa anthu omwe ali ndi matenda a sickle cell dongosolo lothandizira kupweteka kuti liwathandize kuthana ndi ululu. Limafotokoza njira zomwe mungachite kuti muthane ndi ululu wanu nokha. Limakuuzaninso momwe madokotala ena, anamwino, kapena ogwira ntchito ku ambulansi angakuthandizireni pakagwa mwadzidzidzi. Chifukwa chake, lankhulani ndi dokotala wanu musanayambe kumva ululu ndikupanga dongosolo.

Ndi mankhwala ati omwe alipo kuti achepetse komanso kupewa ululu?

Pali mankhwala angapo apadera omwe angathandize kuchepetsa kuchuluka kwa nthawi zomwe zimakhala zowawa.

• Hydroxyurea:Kumwa mankhwalawa tsiku lililonse kungachepetse kuchuluka kwa ululu kwa akuluakulu ndi ana.
• L-glutamine (L-glutamine - Endari): Ikagwiritsidwa ntchito, ingachepetse nthawi yomwe mumakhala m'chipatala chifukwa cha ululu kapena kuchepetsa chiwerengero cha anthu omwe amalowa m'chipatala.
• Crizanlizumab-tmca (Adakveo): Iyi ndi imodzi mwa mankhwala atsopano omwe avomerezedwa ku matenda a sickle cell. Ndi mankhwala ochiritsira omwe amaperekedwa kwa odwala. Izi zikutanthauza kuti mankhwalawa amagwira ntchito makamaka polimbana ndi maselo ofiira amagazi kuti asagwirizane. Izi zimachepetsa kuchuluka kwa matenda a vaso-occlusive crisis (VOCs), zomwe zingayambitse kupweteka pang'ono komanso kuwonongeka kwa ziwalo zamkati.

Muyenera kulankhula ndi dokotala wanu kuti mudziwe ngati mankhwala awa ndi oyenera kwa inu kapena mwana wanu.

Kodi chingachitike n’chiyani pa ululu wosatha?

Zotsatira za nthawi yayitali za matenda a sickle cell zingayambitse mavuto opweteka kwa nthawi yayitali, makamaka kwa okalamba. Mwachitsanzo, kuchepa kwa magazi m'thupi lonse kumatha kuwononga mafupa ndi mafupa, zomwe zimapangitsa kuti munthu azimva kupweteka kosatha.

Kuti muchepetse ululu wamtunduwu, dokotala wanu angakulembeni mankhwala ochepetsa ululu omwe mungatenge tsiku lililonse. Angakulimbikitseninso chithandizo chamankhwala kapena zida zochizira mafupa kuti zikuthandizeni kuchirikiza msana ndi miyendo yanu. Nthawi zina, madokotala angakulimbikitseni opaleshoni kuti akonze vuto lomwe likuyambitsa ululu kapena mitsempha yomwe imachititsa dzanzi kwakanthawi kuti muchepetse ululuwo.

Kodi mumakhala bwanji olimba m'maganizo ndi ululu uwu?

Kukhala ndi matenda a sickle cell kungakhale kovuta kwambiri, makamaka kwa ana. Anthu omwe amamva ululu nthawi zonse amakhala ndi mavuto amisala, monga nkhawa komanso kuvutika maganizo. Angamve ngati sakukhudzidwa ndi zinthu zomwe ena amasangalala nazo chifukwa cha matenda awo. Maganizo amenewa angawonjezere mavuto ena omwe amayamba chifukwa cha matendawa.

Ngati inunso mukumva kupsinjika maganizo, chisoni, kapena kutaya chiyembekezo, uphungu kapena chithandizo chamaganizo chingakuthandizeni kwambiri.Mukakambirana za mavuto anu ndi dokotala wanu, mutha kupeza njira zokhalira ndi moyo wabwino komanso wathanzi ndi ululu ndi mavuto ena omwe amabwera chifukwa cha matendawa.

Komanso, funsani dokotala wanu kapena namwino za magulu othandizira komwe anthu ena ndi mabanja omwe ali ndi matenda a sickle cell angakumane. Magulu awa angakupatseni mwayi wogawana zomwe mwakumana nazo ndi ena za momwe zimakhalira kukhala ndi matendawa, komanso kupeza upangiri wothana ndi ululu ndi mavuto ena.