Kodi mwana wanu nthawi zambiri amatuluka madzi m'mphuno? Sangathe kuona thupi lake akadya? Kodi amalira mluzu akamapuma? Izi zitha kukhala zizindikiro za chimfine, koma nthawi zina pakhoza kukhala china chake chachikulu kumbuyo kwake. Monga mayi, ndikwachibadwa kuti mudandaule ndi zinthu izi. Lero, tikambirana za vuto losowa koma lofunika komanso mayeso apadera omwe angagwiritsidwe ntchito pozindikira.
Choyamba, tiyeni tiwone, kodi cystic fibrosis ndi chiyani?
Mwachidule, Cystic Fibrosis (CF) ndi matenda a majini omwe amafalikira kudzera m'majini athu, zomwe zikutanthauza kuti amabadwa nawo. Si matenda opatsirana. Mafinya ndi zinthu zina zomwe munthu amene ali ndi matendawa amachita zimakhala zokhuthala komanso zomata kuposa zomwe munthu wamba amachita.
Taganizirani izi, makoma a machubu (monga mapaipi) m'thupi lathu nthawi zambiri amakhala ndi ntchofu yopyapyala komanso yoterera. Izi ndi zomwe zimapangitsa ziwalo zathu kukhala zonyowa, zoyera, komanso zotetezeka. Koma mwa munthu amene ali ndi CF, ntchofu iyi imakhala yokhuthala, yomata, komanso yokhuthala. Ntchentche yokhuthala iyi imayamba kutseka machubu ndi njira zodutsa, makamaka m'mapapo ndi m'mimba (makamaka kapamba).
Izi zingayambitse mavuto opuma, matenda opatsirana m'mapapo pafupipafupi, komanso kusowa zakudya zina chifukwa thupi silimayamwa chakudya chomwe limadya moyenera. Kuwonjezera pa mapapo ndi kapamba, vutoli lingakhudzenso chiwindi, sinuses, matumbo, ndi ziwalo zoberekera.
Matenda a CF ndi matenda osatha. Izi zikutanthauza kuti sangachiritsidwe kwathunthu, koma ndi chithandizo choyenera komanso kuyang'aniridwa bwino, zizindikiro zimatha kuthetsedwa ndipo anthu amatha kukhala ndi moyo wabwinobwino. Ndi matenda omwe amayamba pang'onopang'ono pomwe zizindikiro zimakula pang'onopang'ono pakapita nthawi.
Kodi zizindikiro za mwana wamng'ono yemwe ali ndi CF ndi ziti?
Mwana amene ali ndi matenda a CF angasonyeze chimodzi kapena zingapo mwa zizindikirozi nthawi imodzi. Dziwani zizindikirozi mwa mwana wanu. Koma kumbukirani kuti si mwana aliyense amene ali ndi zizindikirozi amene ali ndi matenda a CF. Koma ndikofunikira kuzidziwa.
| Chizindikiro | Kufotokozera Kosavuta |
|---|---|
| Kulephera kukula bwino | Ngakhale kuti mwana amamwa mkaka wambiri ndikudya bwino, amakhala woonda ndipo salemera mokwanira malinga ndi msinkhu wake. Chifukwa cha izi ndi chakuti njira zotulutsira pancreatic zimatsekedwa ndi ntchofu, zomwe zimalepheretsa ma enzyme ofunikira kugaya chakudya kufika m'matumbo. |
| Chimbudzi chotayirira kapena chamafuta | Chimbudzi chingakhale chotuwa, chokhala ndi fungo loipa, komanso chooneka ngati mafuta. Izi zimachitika chifukwa mafuta ochokera muzakudya amatuluka osagayidwa. |
| Kuvuta kupuma komanso kupuma movutikira | Mafinya okhuthala amamatira m'mapapo, zomwe zimapangitsa kuti zikhale zovuta kupuma. Mukapuma, makamaka mukatulutsa mpweya, mumamva phokoso la mluzu kuchokera pachifuwa chanu. |
| Matenda opatsirana m'mapapo pafupipafupi | Popeza mabakiteriya amakula mosavuta pa ntchofu yokhuthala, matenda monga chibayo kapena bronchitis nthawi zambiri amakula. |
| Chifuwa chomwe sichidzatha | Pakhoza kukhala chifuwa chosalekeza komanso chotupa pamene thupi likuyesera kuchotsa mamina omwe ali m'mapapo. |
| Kumva kukoma kwa mchere pakhungu la mwana | Ichi ndi chinthu chapadera kwambiri. Makolo amanena kuti akapsompsona mwana wawo, amamva kukoma kwa mchere pakhungu lawo. Tidzakambirana chifukwa chake chotsatira. |
Kodi madokotala amazindikira bwanji matendawa? - Kuyesa Thukuta
Mwana akakhala ndi zizindikiro zomwe zili pamwambapa, dokotala angakayikire izi ndipo angamulimbikitse kuti ayesedwe kangapo. Izi zikuphatikizapo mayeso a majini ndi X-ray pachifuwa. Komabe, mayeso ofunikira kwambiri kuti atsimikizire kuti ali ndi CF ndi mayeso a thukuta.
Ichi ndi chinthu chosavuta kuchita. Mwachidule, thukuta lathu lili ndi mchere. Mchere uwu umapangidwa ndi chloride.ndi sodium. Popeza kloridi simayenda bwino m'maselo a munthu amene ali ndi CF, thukuta lake limakhala ndi kloridi yambiri kuposa munthu wamba. Kuyesa thukuta kumayesa kuchuluka kwa kloridi.
Kodi mayeso a thukuta amachitidwa bwanji? Kodi angamuvulaze mwana?
Monga mayi, ndi zachilendo kuti mukhale ndi funso ili. Koma palibe chifukwa choopera. Ili si mayeso opweteka konse.
Mayesowa akhoza kuchitidwa kwa aliyense wa msinkhu uliwonse. Komabe, makanda obadwa kumene sangakhale ndi thukuta lokwanira loti ayezedwe m'masiku oyamba a moyo wawo. Chifukwa chake, mayesowa nthawi zambiri amachitika mwana akakwanitsa milungu iwiri kapena inayi.
Umu ndi momwe mayeso amachitikira:
1. Choyamba, wogwira ntchito zachipatala adzayeretsa bwino malo ang'onoang'ono pa mkono kapena mwendo wa mwana (nthawi zambiri pamphumi).
2. Kenako, gel yokhala ndi mankhwala otchedwa pilocarpine imayikidwa pamalopo, ndipo electrode yaying'ono imayikidwa pamwamba pake.
3. Tsopano mphamvu yamagetsi yochepa kwambiri, yosaoneka bwino imaperekedwa kudzera mu elekitirodi iyi. Musadandaule, izi sizigwiritsa ntchito singano, ndipo sizingavulaze mwana mwanjira iliyonse. Mungamve ngati mukukoka pang'ono. Izi zimalimbitsa ma glands a thukuta ndikufulumizitsa kupanga thukuta.
4. Pakatha mphindi zochepa, malowo amayeretsedwa ndipo chipangizo chapadera (monga chozungulira cha pulasitiki) chomwe chimasonkhanitsa thukuta chimayikidwapo ndikumangidwa.
5. Mwana akamasewera kwa mphindi pafupifupi 30, thukuta lofunikira limawonjezeredwa pamenepo.
6. Chitsanzo cha thukuta chomwe chasonkhanitsidwa chimatumizidwa ku labu kuti chiyeze kuchuluka kwa kloridi.
Kodi lipoti la mayeso likuti chiyani?
Dokotala akalandira lipoti la mayeso, amatha kudziwa ngati mwanayo ali ndi CF kapena ayi kutengera ndi zomwe zili mu CF. Miyezo imayesedwa mu mayunitsi otchedwa `mmol/L` (millimoles pa lita).
Kumbukirani, dokotala wanu yekha ndi amene angatanthauzire zotsatira izi ndikukupatsani malangizo a zomwe mungachite kenako. Choncho musachite mantha ndikupanga zisankho kutengera manambala omwe ali mu lipotilo.
| Mlingo wa Chloride | Kodi zimenezo zikutanthauza chiyani? (Zikutanthauza chiyani) |
|---|---|
| Ngati mulingo wa shuga uli pamwamba pa 60 mmol/L | N'kutheka kuti mwanayo ali ndi CF. Dokotala angalamule kuti apimidwenso kuti atsimikizire izi. |
| Ngati ndi pansi pa 40 mmol/L | Mwanayo alibe CF. Dokotala adzafufuza zifukwa zina zomwe zimayambitsa zizindikirozo. |
| Pakati pa 40 ndi 60 mmol/L | Izi ndi zotsatira zapakati. Mungafunike kubwereza mayesowo. Dokotala wanu angakulangizeninso kuti muyesedwenso kuti muwone mitundu ya CF yosazolowereka. |
Kodi mungakonzekere bwanji mwana kuti akayezedwe?
Iyi ndi gawo losavuta. Mayeso awa safuna kukonzekera kwapadera.
- Palibe chifukwa chosinthira zakudya za mwana wanu, mankhwala ake, kapena zochita zake musanayesedwe. Mutha kupitiriza tsiku lanu monga mwachizolowezi.
- Chofunika kwambiri ndichakuti musapake mafuta kapena mafuta odzola m'thupi la mwana wanu tsiku lisanafike tsiku loyesedwa. Makamaka osati pa mkono kapena mwendo womwe ukuyesedwa. Izi zingakhudze zotsatira za mayeso.
Ngati mwana wanu ali ndi zizindikiro izi, musamachite mantha kapena kuchita mantha, koma pitani kwa dokotala woyenerera mwamsanga kuti akupatseni upangiri. Matendawa akapezeka msanga, mwayi woti mwana ayambe kulandira chithandizo ndikukhala ndi moyo wathanzi umakhala wabwino.
Uthenga Wopita Nawo Kunyumba
- Matenda a cystic fibrosis ndi matenda a majini omwe amabadwa nawo ndipo amachititsa kuti nembanemba ya mucous membranes ya thupi ikule, zomwe zimakhudza ziwalo monga mapapo ndi kapamba.
- Ndikofunikira kwambiri kuonana ndi dokotala ngati mwana wanu ali ndi zizindikiro monga kusalemera, kutsekeka pachifuwa pafupipafupi, kupuma movutikira, komanso chimbudzi chokhala ndi mafuta ambiri.
- Kuyesa thukuta ndiye mayeso ofunikira kwambiri, osapweteka, komanso otetezeka kuti adziwe matendawa.
- Kuyesa kumeneku kumayesa kuchuluka kwa chloride (mchere) mu thukuta. Ana omwe ali ndi CF amakhala ndi chloride yambiri kuposa yachibadwa mu thukuta lawo.
- Musachite mantha ndi zotsatira za mayeso, nthawi zonse lankhulani ndi dokotala wanu kuti mumvetse bwino.
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