Tiyeni tiphunzire za Tezacaftor; mapiritsi a Ivacaftor a cystic fibrosis

Kodi inuyo kapena wina m'banja mwanu ali ndi vuto la cystic fibrosis? Ngati ndi choncho, dokotala wanu mwina adakupatsani piritsi lophatikiza mankhwala awiri otchedwa Tezacaftor ndi Ivacaftor. Mutha kupeza piritsili pansi pa dzina la Symdeko. Uwu ndi mankhwala apadera. Lero, tiyeni tikambirane m'njira yosavuta komanso yochezeka za zomwe mankhwalawa amagwiradi ntchito, momwe angagwiritsire ntchito bwino, zinthu zomwe muyenera kusamala nazo, komanso zotsatirapo zake.

Kodi kwenikweni chimachitika ndi mankhwala awa ndi chiyani?

Mwachidule, cystic fibrosis ndi matenda omwe amayamba chifukwa cha vuto la majini lomwe limalamulira bwino mchere ndi madzi m'thupi lathu. Zotsatira zake, kutuluka kwa madzi m'thupi, makamaka m'mapapo ndi m'mimba, monga ntchofu, kumakhala kolimba kwambiri komanso komata. Ndipotu, kumakhala ngati guluu. Ntchentche yokhuthala imeneyi imapangitsa kuti zikhale zovuta kupuma m'mapapo, ndipo ingayambitse matenda opatsirana pafupipafupi .

Taganizirani izi ngati zitseko zazing'ono m'maselo a thupi lathu, komwe mchere ndi madzi zimalowa ndi kutuluka m'maselo. Mu cystic fibrosis, zitseko izi sizigwira ntchito bwino.

Apa ndi pomwe mankhwala awiriwa, Tezacaftor ndi Ivacaftor, amalowa. Chomwe mankhwalawa amachita ndichakuti amapita ku zipata zomwe sizikugwira ntchito bwino (mapuloteni) ndikuwathandiza kugwira ntchito bwino . Pamene kayendedwe ka mchere ndi madzi kabwezeretsedwa mwanjira imeneyi, mamina okhuthala amasungunuka pang'onopang'ono ndipo amachotsedwa mosavuta m'mapapo. Kenako kupuma kumakhala kosavuta, ndipo zizindikiro zimawongoleredwa kwambiri.

Zinthu zomwe muyenera kuuza dokotala wanu musanamwe mankhwala

Musanayambe kumwa mankhwalawa, ndikofunikira kwambiri kuuza dokotala wanu za thanzi lanu lonse. Chifukwa pali matenda ena omwe amafunika chisamaliro chapadera mukamagwiritsa ntchito mankhwalawa. Onetsetsani kuti mwawauza za izi makamaka.

• Ngati muli ndi matenda a impso .
• Ngati muli ndi matenda aliwonse a chiwindi , izi ndizofunikira kwambiri, chifukwa mankhwalawa amachotsedwa m'thupi kudzera m'chiwindi .
• Ngati muli ndi vuto la Tezacaftor, Ivacaftor, kapena mankhwala ena aliwonse, chakudya, kapena utoto .
• Ngati muli ndi pakati kapena mukufuna kutenga mimbaMayina.
• Ngati ndinu mayi woyamwitsa .

Kutengera ndi izi, dokotala adzasankha ngati mankhwalawa ndi oyenera kwa inu kapena ayi, kapena ngati mlingo wake uyenera kusinthidwa.

Mankhwalawa ayenera kugwiritsidwa ntchito moyenera.

Kuti mupindule kwambiri ndi mankhwalawa, ndikofunikira kwambiri kumwa moyenera.

• Imwani ndi chakudya: Piritsi ili liyenera kumwedwa ndi chakudya chonenepa . Mwachitsanzo, mazira, batala wa mtedza , tchizi, mkaka, yogati, kapena chakudya chokhala ndi mafuta pang'ono a kokonati. Iyi ndiyo njira yabwino kwambiri yoyamwira mankhwalawo.
• Imwani nthawi yomweyo: Yesani kumwa mankhwala anu nthawi yomweyo tsiku lililonse momwe mungathere. Siyani maola 12 pakati pa mlingo wa m'mawa ndi madzulo.
• Mezani piritsi lonse: Musaswe, kuphwanya, kapena kutafuna piritsi. Mezani piritsi lonse ndi kapu ya madzi . Chifukwa mapiritsi awa adapangidwa kuti asungunuke pang'onopang'ono m'thupi, kuwaswa kungasinthe momwe mankhwala amagwirira ntchito.
• Madzi a Mphesa: Chinthu china chofunika kwambiri ndichakuti musamwe mankhwalawa pamodzi ndi madzi a mphesa. Zingakhudze kwambiri mphamvu ya mankhwalawa. Komanso, siyani kudya mphesa.
• Musasiye: Musasiye kumwa mankhwala anu mpaka dokotala wanu atakuuzani kuti mutero. Pitirizani kumwa ngakhale mutamva bwino.

Kodi mungachite chiyani ngati mwaphonya mlingo wa mankhwala?

Tangoganizirani kuti mwayiwala kumwa mankhwala anu nthawi ya 8 koloko m'mawa. Ngati mukukumbukira pafupifupi 12 koloko masana, kutanthauza kuti kwatsala maola opitilira 6 kuti mutenge mlingo wotsatira, imwani mlingo womwe mwaphonya mwamsanga mukangokumbukira. Koma ngati kwatsala maola ochepera 6 kuti mutenge mlingo wotsatira, dumphani mlingo womwe mwaphonya ndikumwa mlingo wotsatira panthawi yomwe yakonzedwa. Musamwe milingo iwiri nthawi imodzi.

Mankhwala ena omwe angagwirizane ndi mankhwalawa

Mankhwalawa angagwirizane ndi mankhwala ena. Chifukwa chake, ndikofunikira kuuza dokotala wanu za mankhwala onse omwe mukumwa (kuphatikizapo mavitamini, mankhwala azitsamba, ndi zowonjezera).

Mndandandawu sunathe, choncho uzani dokotala wanu zonse zomwe mumagwiritsa ntchito.

Zinthu zoti muzisamala nazo mukamamwa mankhwala

Dokotala wanu adzakuyang'anirani nthawi zonse mukamamwa mankhwalawa.

• Kuyezetsa pafupipafupi: Dokotala wanu adzakuuzani kuti mubwere ku chipatala masiku omwe akonzedwa. Musawaphonye. Izi ndizofunikira kuti muwone ngati zizindikiro zanu zikuchepa kapena ayi.
• Kuyezetsa magazi: Dokotala wanu mwina angakupatseni mayeso angapo a magazi pamene mukumwa mankhwalawa. Adzayesa ma enzyme a chiwindi chanu, makamaka ma enzyme a chiwindi chanu. Izi sizachilendo, choncho musadandaule. Ndi kuonetsetsa kuti mankhwalawa akukuthandizani ndipo sakukhudza chiwindi chanu.
• Kuyezetsa maso: Mungapemphedwenso kuti muyezetse maso musanayambe kumwa mankhwala komanso mukamamwa. Ngati muwona kusintha kulikonse m'maso mwanu (monga kuwona movutikira, kuwona mphete mozungulira magetsi) , uzani dokotala wanu nthawi yomweyo.

Kodi zotsatirapo zake zingakhale zotani?

Monga mankhwala ena aliwonse, mankhwalawa angayambitse zotsatira zina zoyipa. Si aliyense amene amalandira mankhwalawa. Koma ndikofunikira kuwadziwa bwino.

Ngati mukukumana ndi zizindikiro zina zachilendo zomwe sizinatchulidwe pamndandandawu, chonde dziwitsani dokotala wanu za zizindikirozo.

Kodi mungasunge bwanji mankhwala mosamala?

• Sungani kutali ndi ana: Nthawi zonse sungani mankhwala pamalo otsekedwa, pamalo omwe ana ndi ziweto sangafikire.
• Kutentha koyenera: Sungani kutentha kwa chipinda (pakati pa madigiri 20 ndi 25 Celsius). Tetezani ku kutentha kwambiri ndi chinyezi.
• Mankhwala Otha Ntchito: Musagwiritse ntchito mankhwala omwe atha ntchito. Tayani bwino.
• Kutaya mankhwala: Musatulutse mankhwala osagwiritsidwa ntchito m'chimbudzi kapena mwachindunji m'zinyalala. Funsani dokotala wanu za njira yoyenera yowatayira.