Nthawi zina timaona kusintha pang'ono m'maso mwa ana athu. Mwina diso limodzi limaoneka ngati likupitirira pang'ono kuposa linalo, kapena mwanayo nthawi zambiri amanena kuti likuwoneka losawoneka bwino. Ngakhale timaganiza kuti izi ndi zinthu zachibadwa, nthawi zina pangakhale chifukwa chomwe chikuchititsa izi chomwe tiyenera kulabadira. Chimodzi mwa zifukwa zimenezi chingakhale vuto lotchedwa Optic Glioma. Ichi ndi chotupa chomwe chimayamba muubongo. Choncho tiyeni tikambirane za chilichonse mwachidule lero.
Kodi Optic Glioma ndi chiyani?
Mwachidule, Optic Glioma ndi chotupa cha muubongo chomwe chikukula mofulumira kwambiri . Chimapezeka kwambiri mwa ana osakwana zaka 10. Ndipotu, ndi 5% yokha ya zotupa zonse za muubongo zomwe zimakhala za ana.
Chotupachi chimakula mozungulira mitsempha ya maso, mitsempha yomwe imalumikiza maso athu ndi ubongo wathu. Pali mtundu wa selo mu ubongo wathu womwe umathandiza ndikudyetsa maselo a mitsempha, otchedwa maselo a glial. Maselo awa ndi komwe chotupachi chimayambira.
Pamene chotupachi chikukulirakulira, chimayamba kukanikiza diso ndi mitsempha ya maso. Izi zingayambitse kusawona bwino ndipo, ngati sichikuchiritsidwa bwino, ngakhale khungu . Komabe, chifukwa chakuti chimakula kwambiri, kusintha kwa masomphenya sikungawonekere nthawi yomweyo. Kungakhudze diso limodzi kapena onse awiri.
Koma nkhani yabwino kwambiri apa ndi yakuti, ngakhale kuti vutoli ndi lalikulu, nthawi zambiri limatha kuchiritsidwa kwathunthu.
Chifukwa chachikulu chomwe chotupachi chilili choopsa ndi chifukwa cha malo ake muubongo. Mitsempha yathu ya maso imalumikizana ndi ubongo kudzera pakati pa mahomoni m'thupi lathu. Chifukwa chake chotupacho chikakula, chimathanso kukhudza zimenezo. Izi zikutanthauza kuti chingayambitse kusalingana kwa mahomoni, mavuto olamulira kuchuluka kwa mchere ndi madzi m'thupi, komanso zinthu monga chilakolako cha chakudya ndi tulo .
Kawirikawiri, ubongo wathu umakhala ndi 'chotchinga magazi ndi ubongo' kuti chiteteze. Izi ndi zomwe zimaletsa matenda kufika mu ubongo. Chifukwa cha chotchinga ichi, zotupa ngati izi nthawi zambiri sizifalikira kunja kwa ubongo kupita ku ziwalo zina za thupi. Komabe, nthawi zambiri, ndiko kuti, zosakwana 5%, n'zotheka kuti chotupachi chifalikire kupitirira ubongo ndi msana.
Kodi zizindikiro za izi ndi ziti?
Zizindikiro za chotupa cha muubongo zimasiyana malinga ndi komwe chimagwira muubongo. Pankhani ya glioma ya maso, mavuto a maso ndi omwe amakula kwambiri. Koma tingaganizirenso izi ngati zizindikiro za matenda ena. Tiyeni tiwone zizindikiro zazikulu.
| Chizindikiro | Kufotokozera Kosavuta |
|---|---|
| Kutuluka kwa diso (Proptosis) | Diso limodzi kapena onse awiri amaoneka ngati akutuluka kwambiri kuposa masiku onse. Timati 'maso akutuluka ngati chotupa'. |
| Mavuto a masomphenya | Kusawona bwino, kuvutika kuzindikira mitundu, kutayika pang'onopang'ono kwa maso m'diso limodzi kapena onse awiri. Ana aang'ono amayesa kuyandikira wailesi yakanema ndikuyionera. |
| Mavuto okhudzana ndi mahomoni | Kulemera kapena kuchepa thupi kosayembekezereka, kukula kosazolowereka (kulephera kukula), komanso kutha msinkhu msanga. |
| Mavuto a dongosolo la endocrine | Zinthu monga kukodza pafupipafupi komanso kumwa mowa kwambiri. |
Palinso chinthu china chapadera. Ngati mwana wanu wapezeka ndi matenda a majini otchedwa Neurofibromatosis 1 (NF1) , ali pachiwopsezo chachikulu chotenga matenda a Optic Glioma. Pafupifupi 15% ya ana omwe ali ndi NF1 amakula ndi matendawa. Koma chofunika apa ndichakuti zotupa zambiri zomwe zimayamba motere zimachepa kapena kusiya kukula zokha pakapita nthawi, popanda chithandizo chilichonse. Chifukwa chake si ana onse omwe ali ndi NF1 omwe amafunikira chithandizo cha izi.
Kodi matendawa amapezeka bwanji?
Ngati dokotala wanu akuganiza kuti muli ndi matendawa, adzakuyesani mayeso angapo kuti atsimikizire. Matendawa akapezeka, chotupacho chimapatsidwa 'giredi', kapena gulu, kutengera kuopsa kwake. Giredi iyi imaperekedwa potenga chidutswa chaching'ono cha chotupacho ndikuchiyang'ana pansi pa maikulosikopu. Giredi 1 ndi 2 ndi zotupa zamtundu wotsika. Ziwiri mwa zitatu za matenda onse a maso a ana ndi amtunduwu. Giredi 3 ndi 4 ndi zotupa zamtundu wapamwamba.
Zotsatirazi ndi mayeso akuluakulu omwe amagwiritsidwa ntchito pozindikira matenda.
| Mayeso | Kodi ichi chachitika ndi chiyani? (Kodi chachitika ndi chiyani?) |
|---|---|
| Kuwunika kwathunthu thupi | Dziwani bwino za thanzi la mwana. Yang'anani zinthu monga kutalika, kulemera, ndi kukula kwake. |
| Mayeso a masomphenya | Katswiri wa maso amayesa molondola zinthu monga maso ndi mawonekedwe amitundu. |
| Mayeso a CT scan | Izi zitha kujambula zithunzi za ubongo ndi mitsempha yolumikizidwa ndi diso. Zingathandizenso kudziwa ngati pali chotupa komanso komwe chili. |
| Mayeso a MRI scan | Izi zikufanana ndi CT scan, koma imagwiritsa ntchito maginito ndi mafunde a wailesi kuti ipange zithunzi zomveka bwino. Imapereka tsatanetsatane wabwino kwambiri wokhudza mtundu wa chotupacho. |
Mayeso amenewa angaphatikizepo akatswiri osiyanasiyana. Mwachitsanzo, dokotala wa ana, katswiri wa mitsempha, ndi dokotala wa maso. Onse adzakumana pamodzi, adzayang'ananso zotsatira za mayeso, afika pamapeto, ndikukufotokozerani. Ngati matendawa atsimikizika, gawo lotsatira ndikusankha njira yabwino kwambiri yothandizira kutengera thanzi la mwana wanu komanso kuopsa kwa chotupacho.
Kodi mankhwala ochizira izi ndi otani?
Madokotala amaganizira zinthu zingapo posankha njira yabwino kwambiri yothandizira.
- Zaka za mwana, thanzi lake lonse, ndi mbiri yake yachipatala
- Mtundu, malo, ndi kukula kwa chotupacho
- Kukula kwa matendawa
- Mmene thupi la mwana limayankhira mankhwala, chithandizo, ndi opaleshoni (izi ndizofunikira kwambiri kwa ana aang'ono)
- Kuthamanga komwe matendawa angapitirire
Mankhwala a Chemotherapy
Zotupa zimenezi nthawi zambiri zimachiritsidwa ndi mankhwala a chemotherapy, omwe amaphatikizapo kupereka mankhwala m'thupi omwe amapha maselo a khansa, kuchepetsa chotupacho, ndikubwezeretsa masomphenya.
Chithandizo chamakono (Thandizo Lolunjika)
Mankhwala atsopano otchedwa 'machiritso olunjika ku maselo' nawonso ndi opambana kwambiri. Mankhwalawa amalimbana ndi maselo a khansa makamaka.
Chithandizo cha Mahomoni
Ngati chotupacho chakhudza gawo la ubongo lomwe limayang'anira mahomoni, chithandizo cholowa m'malo mwa mahomoni chingakhale chofunikira kuti chiwongolere zizindikiro zomwe zimayambitsa (monga kuchedwa kukula).
Opaleshoni
Opaleshoni siifunikira kawirikawiri pa zotupa izi. Opaleshoni imaganiziridwa kokha ngati chotupacho chikukhudza kwambiri masomphenya kapena ngati mwanayo akumva kupweteka kwambiri. Ngati dokotala wanu akulangiza opaleshoni, adzakutumizirani kwa dokotala wa opaleshoni ya mitsempha.
Chithandizo cha radiation
Ngati chotupacho sichikuyankha ku chemotherapy, njira yotsatira ndi chithandizo cha radiation. Izi zikuphatikizapo kugwiritsa ntchito makina apadera kuti apereke kuwala kwamphamvu kwambiri ku chotupacho, kuwononga maselo a khansa ndikuchipangitsa kuti chichepe.
Uthenga Wopita Nawo Kunyumba
- Optic glioma ndi chotupa cha muubongo chomwe chimayamba mwa ana, koma nthawi zambiri chimachiritsidwa.
- Ngati mwana wanu ali ndi zizindikiro monga kusintha kwa masomphenya ake, diso limodzi lotulukira patsogolo, kapena kusintha kwa mahomoni, yang'anirani. Ngati muwona chilichonse chonga ichi, pitani kwa dokotala nthawi yomweyo.
- Mayeso monga MRI ndi CT scan amagwiritsidwa ntchito pozindikira matendawa. Musachite mantha, izi zimachitika mosamala moyang'aniridwa ndi madokotala.
- Mankhwala a chemotherapy ndi omwe amagwiritsidwa ntchito kwambiri. Opaleshoni ndi yosowa kwambiri.
- Ngati muli ndi mafunso kapena kukayikira pankhaniyi, ndi bwino kukambirana zonse momasuka ndi dokotala wanu.
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