Ese wigeze wumva indwara yitwa hemophilia ? Iyi ni indwara idasanzwe ariko ikomeye cyane. Muri make, ni indwara aho amaraso adafata neza mu mibiri yacu. Ibi bivuze ko n'igikomere gito, kugwa, cyangwa gukomereka rimwe na rimwe bishobora gutera kuva amaraso menshi. Hari igihe kuva amaraso mu buryo butunguranye bishobora kubaho nta mpamvu igaragara.
Hemophilia ni iki mu by'ukuri?
Tekereza ko iyo tuvuye amaraso, imibiri yacu ifite itsinda rito ry'abakozi bakora kugira ngo bayahagarike. Ibyo bintu abakozi babyita 'ibintu'. Mu by'ukuri ibi ni ubwoko bwihariye bwa poroteyine. Ibi bintu bihurira hamwe kugira ngo bikore amaraso afunganye kandi bihagarike kuva amaraso.
Hari ubwoko bubiri bw'ingenzi bwa hemophilia:
- Hemofiliya A: Aba bantu ntibagira poroteyine ihagije yitwa factor VIII , ikenewe kugira ngo amaraso avunge.
- Hemophilia B : Aba bantu badafite poroteyine yitwa factor IX .
Ibi bikunze kuvurwa na muganga wawe aguha ikintu kidahagije mu mitsi. Uburyo bwo kuvura kugira ngo wirinde kuva amaraso bwitwa "prophylaxis", naho uburyo bwo kuvura iyo kuva amaraso bwitwa "on-demand".
Ariko, hari ikibazo gito hano...
Ku barwayi bamwe na bamwe, umubiri utangira gukorana n'ibi bintu dutanga binyuze mu gukingirwa. Nk'aho utekereza ko ari umwanzi maze ukabatera. Ibi tubyita "inhibitors" . Iyo ibi bibaye, imbaraga z'ubuvuzi dutanga ziragabanuka. Rero, kuvura abantu bafite ubwo bwoko bwa "inhibitors" biragoye gato.
Bigenda bite kuri uyu muti mushya witwa Alhemo?
Alhemo(concizumab-mtci) ni umuti mushya wemewe kugira ngo ugabanuke cyangwa urinde kuva amaraso, cyane cyane ku barwayi bafite hemophilia A cyangwa hemophilia B bafite 'inhibitors' zavuzwe haruguru.
Mu magambo make, imibiri yacu ifite poroteyine ibuza amaraso kubumba. Yitwa TFPI (Tissue Factor Pathway Inhibitor) . Tekereza nk'umuntu utwara imizigo mu mibiri yacu; igenzura uburyo amaraso abumba. Icyo Alhemo ikora ni ukubangamira gato akazi k'uyu muntu witwa TFPI. Hanyuma, umubiri wongera umusaruro w'ikindi kintu gifasha amaraso kubumba (factor Xa), kandi ubushobozi bwo gukora kubumba amaraso burushaho kuba bwiza. Ibi bigabanya cyane ibyago byo kuva amaraso.
Ni gute wakoresha Alhemo?
Alhemo ni urushinge rwo munsi y'umubiri ruterwa buri munsi. Ruza mu ikaramu yuzuye mbere, bityo biroroshye cyane kuyikoresha. Niba muganga wawe afashe icyemezo cy'uko ushobora kwitera uru rushinge mu rugo, azakwereka neza uko wabikora.
- Igipimo: Igipimo cyo hejuru gato (igipimo cyo gushyiramo umuvuduko) gitangwa ku munsi wa mbere w'ubuvuzi. Nyuma y'ibyo, ugomba gufata igipimo cyo kubungabunga cyagenwe buri munsi. Igipimo kigenwa hashingiwe ku buremere bwawe, bityo ugomba kubwira muganga wawe niba ibiro byawe bihindutse.
- Ibizamini: Nyuma y'ibyumweru bine utangiye kuvurwa, uzapimwa amaraso kugira ngo urebe niba ingano y'imiti iri mu mubiri wawe ari yo. Hashingiwe ku bisubizo, muganga wawe ashobora guhindura ingano y'imiti yawe.
- Ahantu ho gukingirwa: Urukingo rutangwa mu nda (santimetero 2 zikikije umukondo) cyangwa mu itako. Ntugatere ahantu hamwe buri munsi, ahubwo hindura aho hantu. Ntugatere ahantu hababara, hakomeretse, hatukura, hafite eczema, cyangwa hari inkovu .
Igikuru ni uko utareka gufata uyu muti utabanje kuvugana na muganga. Kugira ngo wirinde kuva amaraso, ni ngombwa cyane gufata uyu muti ku gihe gikwiye buri munsi.
| Niba mu byumweru bine bya mbere | Hamagara muganga wawe ako kanya kandi ushake inama. |
| Niba wabuze dose nyuma yo gutangira dose yo kubungabunga | Bifate vuba ubyibuka. Bifate ku gihe usanzwe ukoresha umunsi ukurikiyeho. |
| Niba usibye amasengesho abiri kugeza kuri atandatu (2-6) | Ukibyibuka, fata amafunguro abiri icyarimwe. Kuva ku munsi ukurikiyeho, fata ifunguro rimwe nk'uko bisanzwe. |
| Niba amasengesho arindwi (7) cyangwa arenga yasibwe | Hamagara muganga wawe ako kanya. Uzakenera kongera gufata 'umuti wo kongera gutanga'. |
Ingaruka mbi ni izihe? Wabyitwaramo ute?
Kimwe n'indi miti yose, Alhemo ishobora kugira ingaruka mbi.
Ingaruka zisanzwe
Kubera ko uru ari urukingo, hashobora kubaho ingaruka nke aho umuntu atewe inshinge . Urugero:
- Kubabara, gutukura, kuribwa, cyangwa kuva amaraso make aho bateye inshinge.
- Kugira ngo ubifashe, ushobora gushyira agakoresho gakonje kuri ako gace.
- Ibi bishobora kandi kugabanuka no guhindura aho batera inshinge buri munsi.
- Ntugafate imiti igabanya ububabare cyangwa indi miti utabanje kugisha inama muganga wawe.
Ingaruka mbi zikomeye - witondere cyane ibi!
Ariko, hari ikintu kimwe gikomeye cyane ugomba kumenya: hari ibyago bidasanzwe byo kuvura amaraso mu mitsi .
Ibi biganza, amaguru, ibihaha, umutima byapfutse amarasoCyangwa bishobora kwibasira imitsi ahantu nk'ubwonko. Niba witegura kubagwa uko ari ko kose, ugomba no kubimenyesha muganga wawe.
Niba ubonye kimwe muri ibi bikurikira, shaka ubufasha bwa muganga vuba vuba:
- Umutima utera cyane
- Kubabara mu gituza cyangwa gufungana
- Guhumeka bigoranye
- Kugorwa no kuvuga, impinduka mu byo umuntu abona
- Kubabara cyangwa kubyimba amaguru
Niba ubonye kimwe muri ibi bimenyetso, hamagara muganga wawe vuba, cyangwa ujye mu cyumba cy’ubutabazi bw’ibanze cy’ibitaro biri hafi yawe. Ibi ni ingenzi cyane.
Ni gute ubona umuti wihariye nk'uyu?
Alhemo si umuti ushobora kugura muri farumasi isanzwe. Iyi ni ubwoko bw' 'imiti yihariye'. Hari uburyo bwihariye bwo kuyigura.
Nyuma yuko muganga wawe aguhaye umuti, uzavugirwa na farumasi yihariye. Nibo bazaguha ibisobanuro birambuye ku buryo bwo kohereza umuti iwawe. Ushobora kandi gukenera uruhushya mbere y'igihe ruturutse ku kigo cy'ubwishingizi. Uhagarariye ikigo gikora uwo muti na we ashobora kugufasha muri iki gikorwa. Muganga wawe azagufasha muri ibi byose.
Ubutumwa bwo kujyana mu rugo
- Hemophilia ni ikibazo cyo kubura amaraso mu mikorere yo kuvura amaraso.
- Alhemo ni urushinge rutangwa buri munsi kugira ngo hagenzurwe kuva amaraso, cyane cyane ku barwayi bafite "inhibitors" zo kuvura indwara.
- Ntugahagarike gufata uyu muti utabanje kugirwa inama na muganga. Buri gihe fata ingano yatanzwe.
- Menya neza ibyago bikomeye byo kubyimba kw'amaraso. Niba ugize ibimenyetso nko kubabara mu gatuza cyangwa guhumeka nabi, jya kwa muganga cyangwa ETU ako kanya.
- Kubera ko uyu ari umuti wihariye, ganira na muganga wawe ku bijyanye n'inzira yo kuwufata kandi umenye neza ko uwusobanukiwe neza.
💬 Comments (0)
Kwipimisha kanseri y'ibere, kwisuzuma no kwirinda byakozwe byoroshye. Kanseri y'ibihaha
Ishyirireho intego ya calorie hanyuma ubare itariki yo kugabanya ibiro.