Ese wigeze utekereza ku bubabare bw'amagufwa wumva gusa? Akenshi ntabwo dutekereza cyane ku mbaraga z'amagufwa yacu. Ariko tekereza, igufwa rikomeye mu mubiri wawe rihita rishonga riturutse imbere, ahubwo rigasa n'inkovu nk'umugozi. Ni yo ndwara tuvuga uyu munsi, Fibrous Dysplasia. Iyi ni indwara idasanzwe. Ntugahangayike, tuzavuga kuri byose mu buryo bworoshye kandi busobanutse.
Mu magambo make, Fibrous Dysplasia ni iki?
Indwara ya Fibrous Dysplasia ni igihe ingingo zacu z’amagufwa zizima kandi zikomeye zisimburwa n’ingingo zidasanzwe, zimeze nk’inkovu. Mu yandi magambo, aho hagomba kuba hari igufwa nyaryo, ingingo idakomeye kandi ifite imigozi irasimburwa. Bigenda bite? Kubera ko ingingo nshya idakomeye nk’igufwa nyaryo, igufwa ricika intege cyane. Ibi bituma rishobora kuvunika (kuvunika) byoroshye .
Nubwo iyi ndwara ishobora kugaragara mu igufwa iryo ari ryo ryose mu mubiri, ikunze kugaragara ahantu hakurikira:
- Ifu y'umugore
- Igufwa ry'uruti rw'umugongo (tibia)
- Imbavu
- Amagufwa y'agahanga n'ay'isura
- Igufwa ryo hejuru ry'ukuboko (humerus)
Ariko dore ikintu cy'ingenzi ugomba kwibuka. Indwara ya Fibrous Dysplasia ntabwo ari kanseri (itera kanseri). Ibyo bivuze ko idakwirakwira mu igufwa rimwe ijya mu rindi. Ibyo ni ihumure rikomeye, si byo se?
Hari ubwoko bubiri bw'ingenzi bwa Fibrous Dysplasia:
Abaganga bashyira iyi ndwara mu byiciro bakurikije umubare w'amagufwa mu mubiri. Kubera iyo mpamvu, hari ubwoko bubiri bw'ingenzi.
| Ubwoko bw'indwara | Ibisobanuro byoroshye |
|---|---|
| Dysplasia ya Monostotike Fibrous | Muri ubu bwoko, indwara ifata igufwa rimwe gusa . Ubu ni bwo bwoko bukunze kugaragara cyane. Ibimenyetso akenshi biba byoroshye. |
| Dysplasia ya Polyostotic Fibrous | Muri ubu bwoko, iyi ndwara ifata amagufwa menshi.Ibi bishobora kugorana gato. Hari igihe iyi ndwara ijyana n'indi ndwara idakunze kugaragara yitwa McCune-Albright syndrome, ifata amagufwa, uruhu, n'urusobe rw'imisemburo. |
Ni ibihe bimenyetso by'iyi ndwara? Uyimenya ute?
Kimwe mu bintu bitangaje kuri Fibrous Dysplasia ni uko hari abantu bashobora kuyirwara nta bimenyetso . Tekereza ko urimo gupimwa X-ray kugira ngo ubone ikindi kintu hanyuma kikavumburwa ku bw'impanuka.
Ariko niba ibimenyetso bigaragaye, bishobora kuba nk'ibi bikurikira:
- Ububabare bw'amagufwa: Iki ni cyo kimenyetso nyamukuru. Ni ububabare budakomeye kandi bubabaza bukomeza guturuka ahantu hamwe. Hari igihe ubu bubabare bushobora kwiyongera iyo umuntu agenda cyangwa aterura ibyuma.
- Kuvunika: Nkuko byavuzwe mbere, kubera ko amagufwa aba afite intege nke, rimwe na rimwe amagufwa ashobora kuvunika byoroshye, ndetse no kugwa gato cyangwa gukubitwa bikomeye.
- Imiterere y'amagufwa irahinduka: Uko ingingo zidasanzwe zikura, igufwa rishobora kubyimba. Ibi bishobora gutuma ukuguru gupfukama gato, cyangwa guhinduka gato mu ishusho y'isura mu gihe cy'igufwa ryo mu maso.
- Kubyimba imbavu nta bubabare bishobora kubaho.
- Iyo uruti rw'umugongo rugize ikibazo, umugongo ushobora kugorama (scoliosis) .
- Iyo amagufwa y'agahanga agize ikibazo, ibintu nk'amaso abyimbye, impinduka mu mwanya w'amagufwa y'umusaya, amenyo agenda, no kuziba izuru bishobora kubaho.
Igikuru ni uko umuntu urwaye indwara ya polyostotic aba afite amahirwe menshi yo kugira ibimenyetso n'ingorane kurusha umuntu urwaye indwara ya monoostotic.
Kuki ibi bibaho?
Ibi biterwa n'impinduka mu ngirabuzimafatizo yitwa GNAS1 mu mubiri wacu. Ibi bibaho nyuma y'uko umwana asamwe mu nda. Kubera iyi mpinduka mu ngirabuzimafatizo, imikorere y'uturemangingo twitwa osteoblasts, dufasha mu mikurire y'amagufwa, irahungabana. Icyo gihe ni bwo iyo ngingo y'umubiri idakomeye, ifite uturemangingo itangira gukora aho kuba igufwa rizima.
Abaganga ntibaramenya neza icyateye iyi mpinduka mu ngirabuzimafatizo.
Ariko ibuka ibi: Fibrous Dysplasia si indwara umuntu arwara mu mizi. Ibi bivuze ko iyo umubyeyi cyangwa se afite iyi ndwara, atazayikura ku bana be. Ni impinduka zibaho mu buryo butunguranye.
Umuganga abibona ate?
Iyo ugiye kwa muganga ufite ububabare bw'amagufwa budashira, abanza kugusuzuma neza. Azakubaza ibibazo byinshi, nko aho ububabare buri, igihe bumaze, n'uko bumeze. Hanyuma, ashobora gukora ibizamini byinshi kugira ngo yemeze ko indwara yanduye.
- Gupima amaraso cyangwa inkari: Ibi bireba urugero runaka rwa enzyme mu mubiri. Hari igihe urugero rwinshi rw'izi enzymes rushobora kuba ikimenyetso cy'imikurire idasanzwe y'ingingo mu mubiri.
- Ibizamini byo gushushanya: Ibi ni byo by'ingenzi cyane.
- X-ray: X-ray ishobora kubona byoroshye ibitagenda neza, kuvunika, n'impinduka mu miterere y'amagufwa.
- Gupima CT cyangwa MRI: Ibi bishobora gutanga ishusho isobanutse neza kandi irambuye y'amagufwa n'ingingo zikikije.
- Isuzuma ry’umubiri: Niba muganga agishidikanya, azafata agace gato cyane k’umubiri udasanzwe akoresheje ikinya hanyuma akagasuzuma akoresheje mikorosikopi. Ibi bishobora kwemeza indwara neza 100%.
Ni ubuhe buryo bwo kuvura ibi?
Uburyo bwo kuvura indwara ya Fibrous Dysplasia buterwa n'ibimenyetso ufite, uburemere bw'indwara, n'uko bigira ingaruka ku buzima bwawe. Nta buryo bumwe bwo kuvura bushobora kugufasha.
Uburyo bw'ingenzi bwo kuvura ni ubu:
1. Kwitegereza: Niba nta bimenyetso cyangwa ububabare ufite, muganga wawe ashobora kutaguha imiti iyo ari yo yose, ahubwo akagusaba kugaruka kwisuzumisha rimwe na rimwe. Ibi bivuze kwitegereza kugira ngo urebe niba hari impinduka mu buzima bwawe.
2. Imiti: Hari imiti imwe n'imwe (cyane cyane bisphosphonates) ishobora gutangwa kugira ngo ifashe gukomeza amagufwa no kwirinda kuvunika. Iyi miti ishobora kandi kugabanya ububabare bw'amagufwa.
3. Gutera amaguru: Iyo iki kibazo kibaye ku igufwa, cyane cyane ku kuguru k'umwana uri gukura, hashobora kuba inama yo gukoresha ibyuma byihariye kugira ngo bifashe igufwa gukura neza no gukumira kugorama.
4. Kubagwa:
- Iyo igufwa ryavunitse (ryacitse), bizasaba kubagwa kugira ngo rikosorwe.
- Iyo igufwa ridafite imbaraga nyinshi, rifite imiterere mibi, kandi rigatera ububabare bukabije, ingingo idasanzwe ishobora gukurwaho igasimbuzwa agashinge k’amagufwa gafite ubuzima bwiza cyangwa hagashyirwamo inkoni z’icyuma kugira ngo igufwa rikomeze.
Ni ryari ukwiye kujya kwa muganga?
Niba urwaye ububabare bw'amagufwa budashira nta mpamvu igaragara , ntubyirengagize. Jya kwa muganga ubiganireho.
Niba usanzwe uzi ko urwaye Fibrous Dysplasia, vugana na muganga wawe vuba niba:
- Niba wumva ibimenyetso byawe birimo kwiyongera.
- Niba wumva ko uburyo ukoresha ubu ntacyo bugufasha.
Ibyihutirwa!
Kubera ko indwara ya Fibrous Dysplasia igabanya intege z'amagufwa, uba ufite amahirwe menshi yo kuvunika igufwa kurusha andi. Kubwibyo, niba uguye mu buryo butunguranye, ukagonga igufwa cyane, cyangwa ukagira impanuka y'imodoka, jya mu Ishami ryita ku Butabazi bw'Ibanze (ETU) ry'ibitaro biri hafi yawe vuba. Kuko nubwo bitagaragara neza inyuma, imbere hashobora kuba hari icyavunitse.
Ni gute wabaho n'iyi ndwara?
Nta gisubizo kimwe kuri iki kibazo, kuko indwara ya Fibrous Dysplasia igira ingaruka ku muntu mu buryo butandukanye. Ariko ikintu kimwe kizwi: ni indwara idakira kandi idashobora gukira .
Ariko nta mpamvu yo kubitinya cyangwa ngo ugire agahinda. Iyi si indwara yica. Iyo uvuwe neza kandi ugafatwa neza, ingaruka iyi ndwara igira ku buzima bwawe zishobora kugenzurwa cyane. Ushobora no kudakenera ubuvuzi ubwo aribwo bwose. Nubwo byaba bikenewe ubuvuzi, uburyo bwo kuvura bwa none bushobora kugufasha kugenzura ububabare, gukumira kuvunika, no kubaho ubuzima busanzwe kandi bwishimye.
Niba ufite iyi ndwara, ganira na muganga wawe mu buryo bweruye kugira ngo usobanukirwe icyo wakwitega mu gihe kiri imbere bitewe n'uburwayi bwawe n'uburyo bwo kuvura bukubereye.
Ubutumwa bwo kujyana mu rugo
- Indwara ya Fibrous Dysplasia ni indwara idakunze kugaragara, itari kanseri aho ingingo z’umubiri zidakomeye kandi zifite uturemangingo zikurira mu mwanya w’amagufwa mazima.
- Ibi bigabanya intege z'amagufwa, bikongera ibyago byo kubabara no kuvunika.
- Iyi si indwara ikomoka ku ruragi, ahubwo iterwa n'impinduka mu miterere y'uturemangingo ibaho mu nda ya nyina.
- Hari abantu bashobora kutagira ibimenyetso na bimwe kandi bashobora kuvumburwa ku bw'impanuka.
- Niba urwaye ububabare bw'amagufwa budashira, ni ngombwa cyane kutabyirengagiza ngo ushake inama kwa muganga.
- Nubwo idashobora gukira burundu, ibimenyetso birashobora kugenzurwa kandi ubuzima busanzwe bushobora kubaho ukoresheje imiti, kubagwa, n'ubundi buryo bwo kuvura.
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