Reka itsinda ry'abaganga bawe risuzume indwara ya Amyloidosis ya ATTR

Niba ufite indwara y’igihe kirekire, cyangwa idakira, nka amyloidosis yo mu bwoko bwa ATTR, ukeneye itsinda rinini ry’abaganga n’inzobere mu by’ubuzima kugira ngo bagufashe kuyirwanya. Ibi ni ukuri cyane cyane ku bantu bafite amyloidosis ya hATTR. Iyi ni indwara iterwa n’uturemangingo. Icyaba ari uko poroteyine idasanzwe yitwa amyloid yibumbira mu ngingo z’ingenzi nk’umutima, impyiko, uturemangingo tw’imitsi n’amara. Kubera ko iyi ndwara igira ingaruka ku bice byinshi by’umubiri wawe, itsinda ryawe ry’ubuvuzi rya hATTR rizaba ririmo inzobere nyinshi.

Ni nde uri mu itsinda ry'abaganga ba hATTR amyloidosis?

Reka turebe abaganga b'ingenzi bazagufasha mu bijyanye n'ubuvuzi bwawe. Bafatanyije, bazagufasha gucunga neza ikibazo cyawe.

Inzobere mu ndwara z'imitsi

Muri hATTR, indwara yitwa peripheral neuropathy ikunze kugaragara cyane. Muri make, ibi ni ukwangirika kw'imitsi yo mu biganza byawe, ibirenge, n'amaguru yo hasi. Ushobora kugira ibimenyetso nk'ibi:

• Ububabare
• Gucika intege
• Ububyimbirwe
• Intege nke mu ngingo
• Bisa nkaho birimo guterwa icyuma nk'inkoni.

Uko indwara ikomeza kwiyongera, imitsi yawe ishobora gukomera no gucika intege, bigatuma bigoye kugenda no gukora ikintu cyose gisaba ubuhanga bwo gukora imiyoboro myiza.

Umuganga w’indwara z’imitsi azakora ibizamini, nko gupima uburyo imitsi ikora, kugira ngo akurikirane neza imikorere y’imitsi yawe yo mu gice cy’imbere. Ibi bizagufasha kumenya niba ufite ikibazo cy’imitsi n’ubukana bwacyo.

Uburyo bwinshi bwemewe bwo kuvura hATTR bushobora kandi kugufasha kuvura indwara yawe y'imitsi. Muganga wawe ashobora kandi kukwandikira indi miti igufasha kubabara imitsi.

Inzobere mu by'umutima

Uyu muganga avura indwara z'umutima n'imitsi. Abantu bafite hATTR bafite ibyago byinshi byo kurwara indwara z'umutima. Ibi biterwa nuko imiyoboro ya amyloid ishobora kwirundanya mu mutima. Ibi bishobora gutera indwara zikurikira:

Iyo ufashwe na hATTR, umuganga w’umutima azakora ibizamini byinshi kugira ngo arebe uko umutima wawe ukora. Ibi bishobora kuba birimo echocardiogram , scan ya MRI , ikizamini cyo kugenda n’amaguru mu minota 6, n’ibizamini by’amaraso. Niba umutima wawe ufite intege nke, uzahabwa imiti yo kuvura iyo ndwara, nko kunywa diuretics, umunyu n’amazi make, ndetse wenda n’umuti ugabanya umuvuduko w’amaraso.

Inzobere mu by'amaso

Niba ufite hATTR, ni ngombwa kujya kwa muganga w’amaso buri gihe. Hafi 20% by’impinduka mu miterere y’uturemangingo zitera hATTR zigira ingaruka ku maso. Ibi bishobora gutera ibimenyetso nka:

• Ibirere byijimye (kubona utudomo tw'umukara tureremba imbere y'amaso)
• Amaso yumye
• Glaucoma cyangwa kwiyongera k'umuvuduko w'amaso
• Kudasobanutse neza kw'ijisho (guhinduka kw'igihu cy'umusemburo wuzuye imboni y'ijisho)
• Izindi mpinduka mu iyerekwa

Iyo bibaye ngombwa, umuganga w'amaso ashobora kubaga bita trabeculectomy kugira ngo avure glaucoma. Ashobora kandi kubaga bita vitrectomy kugira ngo akureho gel mu jisho.

Umujyanama mu by'ingirabuzima fatizo

Niba umuganga wawe akeka ko ufite hATTR, azakohereza umujyanama mu by’imiterere y’uturemangingo . Bashobora gupima ihinduka ry’uturemangingo rishobora gutera iyi ndwara. Nanone, niba hari umuntu wo mu muryango wawe wa hafi (umubyeyi, umuvandimwe wawe, cyangwa umwana) wanduye hATTR, ugomba kwipimisha rwose. Ibi biterwa nuko abagize umuryango wawe wa hafi bafite amahirwe angana na 50% yo kuzungura iyi hinduka ry’uturemangingo. Umujyanama mu by’imiterere y’uturemangingo azagusobanurira ibi bizamini kandi akabiganiraho nawe ibisubizo bimaze kugaragara.

Abandi banyamuryango b'ingenzi mu ikipe yawe y'abaganga

Uretse inzobere zavuzwe haruguru, hari n'abandi benshi bagira uruhare runini mu mibereho myiza yawe.

Akenshi, uzabasha kubona serivisi zose ukeneye mu kigo nderabuzima cyangwa mu bitaro binini byihariye mu kuvura amyloidosis ya hATTR. Ibi byorohereza abaganga bawe bose gukorana nk'ikipe. Vugana na muganga wawe w'ibanze ku bijyanye no guhuza ubuvuzi bwawe.