Urimo kubabara? Ese amaguru yawe arimo gucika intege? Ibi bishobora kuba ari indwara ya myositis y’umubiri (IBM)!

Ese hari igihe wumva bigoye gufata ibintu, gukanda buto, cyangwa kugenda? Ushobora kuba utekereza uti "Oh, ibi ni ibintu bibaho iyo ugeze mu za bukuru." Ariko rimwe na rimwe, ibi bintu ntabwo byoroshye cyane. Uyu munsi, tugiye kuvuga ku kibazo kidasanzwe ariko cy'ingenzi cyane ugomba kumenya. Icyo cyitwa 'Inclusion Body Myositis', kizwi kandi nka '(IBM)' mu magambo ahinnye.

`Impungenge z'umubiri ziterwa n'imitsi (IBM)` ni iki? Reka tubisobanukirwe mu buryo bworoshye!

Mu magambo make, `Inclusion Body Myositis` ni indwara igabanya imitsi buhoro buhoro, ariko ntabwo itera ububabare bwinshi. Akenshi itangira nyuma y'imyaka 50. Tekereza nawe, ushobora kugira ikibazo cyo 'gukanda' ikintu gito, kugorwa no gufata ikintu, cyangwa se kugwa ukagwa iyo ugenda gusa. Ibi ni ibimenyetso bya mbere ushobora kubona.

Iyi ndwara, yitwa `IBM`, ikura buhoro buhoro mu myaka myinshi. Si indwara ishobora gushyira ubuzima mu kaga. Ibi bivuze ko itazakwica. Ariko, uko igihe kigenda gihita, ishobora gutuma bigorana gukora imirimo ya buri munsi, ibyo bikaba byagutera ubumuga. Hari igihe uruhande rumwe rw'umubiri wawe rugira ingaruka nyinshi. Hafi kimwe cya kabiri cy'abantu bafite iyi ndwara bashobora no kugira 'ingorane zo kumira'.

Ikibabaje ni uko nta muti wa IBM uraboneka kugeza ubu. Ariko ntugire ikibazo! Ubuvuzi bw'umubiri bushobora kugufasha kugumana imbaraga z'imitsi yawe igihe kirekire gishoboka.

Ni mu rugero rungana iki ikibazo cya 'IBM'?

Indwara ya myositis yo mu mubiri iterwa no kugabanya imitsi yitwa myopathies. Myopathies ni indwara zifata imitsi yawe zigatuma igabanuka. Ubushakashatsi bwerekana ko IBM yibasira abantu bakuru bari hagati ya 5 na 9 muri buri miliyoni. Ikunze kandi kuba inshuro eshatu ku bagabo kurusha abagore (3:1).

Ni ibihe bimenyetso bya `Inclusion Body Myositis (IBM)`? Reka tubimenye neza!

Intege nke z'imitsi ziterwa na IBM zigenda buhoro cyane. Akenshi zitangirira ku maguru. Ushobora kubanza kubona intege nke mu maguru, mu bibero, cyangwa mu maboko, mu maboko, cyangwa mu ntoki. Tekereza kuri ubu buryo: hari abantu bagorwa no gupfunyika amapfundo ku ishati, cyangwa amakaramu yabo ntanditse neza. Abandi bagorwa no kuzamuka ingazi, cyangwa bagasitara bakagwa mu gihe bagenda gusa.

Uko ibimenyetso bigenda byiyongera buhoro buhoro, ushobora kubona ibintu nk'ibi:

• Imitsi yo mu maboko, amaguru, ku bitugu, mu kibuno, mu biganza no mu ntoki igenda irushaho kuba mito. Tekereza, ntushobora guterura ibintu washoboraga guterura byoroshye, kandi ukagorwa no guhaguruka mu ntebe.
• Gucika intege kw'imitsi yo mu ijosi cyangwa mu muhogo. Ibi bishobora gutuma bigorana gufata umutwe uhagaze, bikagora kumira ibiryo, ndetse bigatera n'ibiryo kubura umurongo.
• Kugabanuka kw'imitsi bigaragara neza. Ibi bivuze ko imitsi yagabanutse kandi ikagira ubunanu bwinshi.
• Ububabare bworoheje kandi bukunze kubaho mu mitsi (`myalgia`). Ariko, ubu bubabare ntibuba kuri buri wese, kandi nubwo bwaba bubaho, ntabwo buba bukabije cyane.

Urugero, tekereza ufite inshuti yitwa Sunil. Amaze igihe atabasha gufata igikombe cye cy'icyayi neza, gikomeza kumucika. Iyo agiye gusoma ikinyamakuru, ukuboko kwe kumva nk'aho kurimo kunyeganyega. Mbere na mbere, yatekereje ko ari umunaniro gusa. Ariko nyuma, yaje kubona ko iki gishobora kuba ikimenyetso cya mbere cya 'IBM'.

Kuki iyi ndwara ya 'Inclusion Body Myositis (IBM)' ibaho? Ni iyihe mpamvu?

Mu by’ukuri, iyi ndwara yitwa `Inclusion Body Myositis` ni `idiopathic`. Ni ukuvuga ko isa nkaho ibaho nta mpamvu yihariye. Kimwe n’ubundi bwoko bwa `myositis`, muri iki gihe, kubyimba mu mitsi igihe kirekire (`chronic inflammation`) ni yo mpamvu nyamukuru ituma imitsi inanirwa gukora neza. Ariko, abashakashatsi ntibaramenya neza impamvu iyi ndwara ibaho. Bakeka ko ishobora kuba iterwa n’ikibazo cy’ubudahangarwa bw’umubiri (`autoimmune disease`) . Ni ukuvuga ko uturemangingo turinda umubiri wacu twibasira uturemangingo tw’imitsi yacu mu buryo butari bwo.

`Imibiri ikubiyemo` nayo ifitanye isano na `IBM`. Iyi ni uduce duto twa poroteyine twinshi tuba mu turemangingo tw’imitsi. Bishobora guterwa n’ubwandu bwa virusi, kwangirika kw’uturemangingo, cyangwa impinduka mu miterere y’uturemangingo . Iyi `mibiri ikubiyemo` igaragara no mu ndwara zo kwangirika k’ubwonko nka `ALS`. Ishobora kubangamira imikorere isanzwe y’uturemangingo.

Itandukaniro riri hagati ya `Inclusion Body Myopathy` na `Inclusion Body Myositis`

Hari igihe `Inclusion Body Myositis` yitwa kandi `sporadic inclusion body myositis (sIBM)`. `Sporadic` bivuze ko bibaho ku buryo butunguranye, cyangwa nta mpamvu yihariye. Ibi ni ukugira ngo bitanduke n'ibintu bisa nk'ibyo mu buryo bw'umurage. Ibyo mu buryo bw'umurage byitwa `hereditary inclusion body myopathies (hIMB)`. Iyo tuvuze `inclusion body myopathies`, ubwo bwoko bwombi ni bwo buhari. Ubu turimo kuvuga `sIBM` ibaho ku buryo butunguranye.

Ni gute `Inclusion Body Myositis` ipimwa? Ni ibihe bipimo bikorwa?

Kugira ngo amenye niba ufite IBM, umuganga azabanza kukubaza ibimenyetso byawe kandi asuzume imitsi yawe. Ibimenyetso bya myositis yo mu mubiri bishobora gusa n'iby'izindi ndwara, nka polymyositis na myasthenia gravis. Umuganga wawe azashaka ibintu byihariye nka:

• Ni iyihe mitsi ifatwa n'ingaruka? (urugero, mu ntoki cyangwa mu bibero?)
• Ese uruhande rumwe gusa rw'umubiri nirwo rugira ingaruka nyinshi?
• Ese imitsi iragabanuka neza?
• Ufite imyaka ingahe igihe ibimenyetso byatangiraga? (Akenshi nyuma y'imyaka 50)

Hanyuma, hashobora gukorwa ibizamini byinshi kugira ngo "hagaragare" izindi ndwara, nko:

• Ikizamini cya Creatine Kinase (CK): Iki gipimo cy'urugero rwa enzyme yihariye mu maraso. Uru rugero rwa 'CK' rushobora kwiyongera iyo habayeho kwangirika kw'imitsi.
• Gupima amaraso kugira ngo harebwe virusi n'indwara zitandukanye ziterwa n'ubwiyongere bw'umubiri.
• Electromyogram (EMG): Ibi bipima imikorere y'amashanyarazi mu mitsi yawe. Bikorwa hifashishijwe utuntu duto mu mitsi.
• Inyigo yo Gutwara Imitsi (NCS): Iyi ni yo ipima umuvuduko w'ingufu z'amashanyarazi zinyura mu mitsi (imitsi iyobora imitsi) iyobora imitsi yawe.

Ikizamini cya biopsy y'imitsi

Uburyo bwiza bwo kwemeza niba ufite inclusion-body myositis ni ugufata agace gato k'umubiri (biopsy) mu mitsi yangiritse. Umuganga w'indwara azareba iyi fatizo y'umubiri akoresheje mikorosikopi. Niba ufite IBM, azashobora kubona inclusion bodies (udutsi duto twa poroteyine, utubyimba, cyangwa vacuole) muri iyo fatizo.

Ese hari uburyo bwiza bwo kuvura `Inclusion Body Myositis`?

Ikibabaje ni uko nta buryo bwiza bwo kuvura indwara ya myositis yo mu mubiri iboneka. Bitandukanye n'izindi ndwara ziterwa no kubyimbirwa n'umubiri, ntabwo ikira imiti ya corticosteroids cyangwa imiti igabanya ubudahangarwa bw'umubiri.

Ariko ntucike intege! Ubuvuzi bw'umubiri n'imyitozo ngororamubiri ihoraho ni ingenzi kugira ngo imitsi yawe ikomeze gukomera igihe kirekire gishoboka. Imyitozo ngororamubiri ishobora gufasha gukumira intege nke z'imitsi.

Uko indwara ikomeza kwiyongera kandi bikagorana gukora imirimo ya buri munsi, ushobora gukenera kwiga uburyo bushya bwo gukora ibintu. Aha niho ubuvuzi bw'akazi bushobora gufasha. Urugero, bashobora kukwigisha uburyo bwo gukoresha ibikoresho bitandukanye kugira ngo bagufashe kwambara, kurya no kwandika. Hari abantu bashobora kandi gukenera kwiga gukoresha intebe y'abamugaye. Niba ufite ikibazo cyo kumira, inzobere mu ndwara zo mu rurimi rw'ikivunge (SLP) irashobora kugufasha. Bashobora kukwigisha uburyo bwo kumira neza no gukora imyitozo yo kumira.

Niba mfite `Inclusion Body Myositis`, ni iki nkwiye kwitega?

Niba ufite `IBM`, izakomeza kwiyongera buhoro buhoro. Nkuko nabivuze mbere,Ibi ntibizagira ingaruka ku buzima bwawe. Ariko, bishobora kugira ingaruka ku mibereho yawe. Ushobora gukenera kwishingikiriza ku bandi cyangwa kwiga uburyo bushya bwo gukora ibintu. Abantu benshi ntibatakaza ubushobozi bwabo bwo kugenda burundu, ariko bamwe bashobora gukenera intebe y'abamugaye nyuma y'imyaka 10-15.

Ni gute nakwiyitaho mu gihe mbayeho n'indwara ya myositis inclusion-body myositis?

Uzagomba kubaho igihe kirekire ufite ``Inclusion body myositis``, kandi bishobora kugorana uko igihe kigenda gihita. Uburyo bwiza bwo guhangana n'iki kibazo ni ugukora gahunda y'igihe kirekire yo kwita ku buzima bwawe bw'umubiri n'ubwo mu mutwe. Ibyo bivuze gukomeza gukora utumenyero duto tugufasha kuguma umeze neza. Urugero:

• Komeza gahunda yawe yo gukora imyitozo ngororamubiri. Ushobora kuba uri mu buvuzi bw'umubiri, cyangwa ukaba warahisemo gukora imyitozo ngororamubiri yo mu rugo. Gukomeza iyi gahunda bizagufasha gukomeza imitsi yawe uko bishoboka kose.
• Kurikiza "ubuzima bwiza." Niba urya neza, uryama neza, ugahangana n'imihangayiko, kandi ugakomeza umubano wawe w'ingenzi, uzumva umeze neza muri rusange.
• Jya mu matsinda y'abaterankunga. Ushobora kubona imbaraga nyinshi zo mu mutwe n'inama zifatika ziturutse ku bandi bantu banyuze mu bintu nk'ibyo unyuzemo cyangwa barimo kunyuramo. Ni byiza kandi kumva uti "Si njye wenyine unyuze muri ibi."
• Reba uburyo bwo guhindura imikorere mu rugo no ku kazi. Hari ibikoresho byinshi bifasha abantu bafite ubumuga bwo mu mutwe koroshya imirimo ya buri munsi.
• Jyana na muganga wawe buri gihe. Komeza kuvugana na muganga wawe. Bibwire muganga wawe ako kanya niba ubonye ibimenyetso bishya, nko kugorwa no kumira, cyangwa niba ikimenyetso gisanzwe kirushaho gukomera.
• Reba ku igeragezwa ry’ubuvuzi. Abashakashatsi bahora bashaka uburyo bushya bwo kuvura indwara ya myositis ikubiyemo. Ushobora kandi kwitabira aya magerageza.

Iyi ndwara, yitwa 'Inclusion body myositis', ikunze kubaho mu gihe cy'imyaka yo hagati mu buzima, iyo nta cyizere kirimo. Nta muntu witeze kurwara indwara idakira kandi ikomeza kwiyongera. Bishobora kugorana kuyihanganira no kuyisobanurira abakwitaho, cyane cyane niba batigeze bumva iyi ndwara mbere.

Ariko ibuka ko iyi ari indwara ikura buhoro buhoro. Rero, hari umwanya uhagije wo gutekereza ku mpinduka ziri imbere no gukora impinduka zijyanye nayo. Ntawe ushobora kuvuga neza uko ibi bizakugiraho ingaruka. Ariko,Uramutse ufite icyizere, hari byinshi ushobora gukora kugira ngo ukomeze kugira ubuzima bwiza n'imibereho myiza mu myaka iri imbere.

Ibintu by'ingenzi tugomba kwibuka (Ubutumwa bwo kujyana mu rugo)

Sawa, twaganiriye cyane kuri `Inclusion Body Myositis (IBM)`. Hanyuma, dore ibintu by'ingenzi ugomba kwibuka:

• IBM ni indwara itera intege nke z'imitsi ikunze kugaragara cyane nyuma y'imyaka 50. Ububabare ni buke, ariko uko igihe kigenda gihita bushobora kugira ingaruka ku mirimo ya buri munsi.
• Nta muti uhari , ariko ubuvuzi bw'umubiri n'imyitozo ngororamubiri bishobora gufasha gukomeza gukomera kw'imitsi igihe kirekire gishoboka.
• Ibimenyetso bishobora kuba birimo kugorwa no gufata ibintu, gusitara mu gihe ugenda, no kugorwa no kumira ibiryo .
• Impamvu nyayo ntiramenyekana (`idiopathic`), ariko ishobora kuba ikibazo ku budahangarwa bw'umubiri.
• Iyi ndwara yemezwa burundu no gupima imitsi.
• Ibi ntabwo bibangamira ubuzima , ariko bishobora kugira ingaruka ku mibereho myiza.
• Ni ingenzi cyane kugumana icyizere, gukurikiza inama za muganga, no kubona ubufasha bukenewe.

Niba wowe cyangwa undi muntu uzi afite ibi bimenyetso, ni byiza gushaka inama kwa muganga. Wibuke ko utari wenyine, hari abantu benshi bashobora kugufasha!

Intege nke z'imitsi , indwara ya IBM, ubuvuzi bw'umubiri, indwara z'imitsi, ubuzima bw'abageze mu zabukuru, ingorane zo kumira, indwara z'imitsi