Hari igihe zimwe mu ndwara abana bacu barwara ziba zigoye cyane. Kandi imiti itangwa kuri bo nayo ni idasanzwe. Uyu munsi tugiye kuvuga ku wundi muti udasanzwe. Uyu muti witwa Odevixibat, uhabwa abana bamwe kugira ngo bavure ubushye bw'uruhu buterwa n'indwara idakunze kugaragara y'umwijima. Niba umwana wawe yarahawe uyu muti na muganga, iyi nkuru izaba ingenzi cyane kuri wewe.
Ni ubuhe bwoko bw'umuti Odevixibat ari wo?
Muri make, Odevixibat ni umuti utangwa mu kurwanya ubushye bukabije buterwa n'ikibazo cy'umwijima w'umwana wawe. Uzwi ku izina ry'isoko rya Bylvay.
Mu buvuzi, iyi miti iri mu bwoko bw'imiti yitwa inhibitor ya IBAT (Ileal Bile Acid Transporter) . Ibi bivuze ko uyu muti ugenzura uburyo aside bile ishobora kongera kwinjiza mu mara yacu mu mubiri.
Uyu muti ukoreshwa cyane cyane mu kugenzura uburyaryate ku barwayi bafite indwara yitwa Progressive Familyal Intrahepatic Cholestasis (PFIC) . PFIC ni indwara idakunze kugaragara mu buryo bw'uturemangingo ibangamira urujya n'uruza rw'inkari mu turemangingo tw'umwijima. Ibi bituma inyo yiyongera mu mubiri, bigatera uburyaryate budashoboka. Odevixibat ikora mu kugenzura impamvu nyamukuru itera uburyaryate.
Ibintu ugomba kubwira muganga wawe mbere yo gutangira imiti
Mbere yo gukoresha uyu muti, ni ngombwa guha muganga wawe ibisobanuro byuzuye ku buzima bwawe cyangwa bw'umwana wawe. Menya neza ibi bikurikira by'umwihariko:
- Kubura Vitamine: Niba muganga yakubwiye ko ufite vitamine A, D, E, cyangwa K nke mu maraso yawe, mubwire.
- Gutwita: Niba utwite, cyangwa uteganya kubyara umwana mu gihe cya vuba, ugomba kubimenyesha muganga wawe.
- Niba uri umubyeyi wonsa: Niba uri umubyeyi wonsa, menya neza ko ubimenyesheje umuforomo.
Kuganira na muganga udahishe bene aya makuru ni ingenzi cyane ku mutekano wawe n'uw'umwana wawe.
Uburyo bwiza bwo gukoresha umuti
Kugira ngo uyu muti wungukire neza, ni ngombwa cyane kuwukoresha neza. Fata igipimo gikwiye, mu gihe gikwiye, nk'uko muganga wawe yabigutegetse.
| Inama | Uburyo bwo kubikora |
|---|---|
| Gufata umuti | Fata igihe kimwe buri munsi, unywe n'ikirahure cyiza cy'amazi. Ni byiza kugifata hamwe n'ifunguro. |
| Kumira kapsule | Mirira kapsule yose . Ntukayimene, ntuyishenye, ntuyijanjagure cyangwa ngo uyihekenye ku mpamvu iyo ari yo yose. |
| Niba bigoye kumira | Niba ugorwa no kumira kapsule, uyifungure witonze, uvange ifu iri imbere n'ibiyiko bibiri by'ibiryo bikomeye nka yawurute cyangwa isosi y'amapera, hanyuma umire vuba utabanje guhekenya. Ntuzigere uvanga uyu muti n'ibintu binyobwa (amazi, amata, umutobe). |
| Hamwe n'indi miti | Niba ufata imiti igabanya cholesterol (resins zo gufata aside bile) nka Cholestyramine, Colesevelam, cyangwa Colestipol, uyifate amasaha 4 mbere cyangwa amasaha 4 nyuma yo gufata Odevixibat. |
Ni ryari umwana agomba guha uyu muti?
Abaganga basaba uyu muti ku bana bato kugeza ku mezi atatu mu bihe bimwe na bimwe byihariye. Ariko, hari ibintu bimwe na bimwe ugomba kwitondera. Kubwibyo, mu gihe uha umwana wawe uyu muti, kurikiza amabwiriza ya muganga neza.
Wakora iki niba ufashe imiti myinshi?
Niba utekereza ko wowe cyangwa umwana wawe mwafashe uyu muti urenze urugero, ntugatinde.
Hita uhamagara ikigo cy’igihugu gishinzwe amakuru ku burozi mu bitaro by’igihugu bya Colombo . Cyangwa ujye mu ishami rishinzwe kuvura byihutirwa (ETU) ry’ibitaro biri hafi yawe.
Bite ho nintakaza urugero rw'umuti?
Niba wibagiwe gufata dose, uyifate ako kanya wibuka. Ariko, niba igihe cyo gufata dose ikurikira kigeze, jya usimbuka dose yabuze hanyuma ufate dose ikurikira ku gihe cyagenwe.Ntuzigere ufata dose ebyiri kugira ngo wishyure dose wibagiwe.
Ibindi bintu bishobora kugira ingaruka kuri uyu muti
Imiti imwe n'imwe ishobora kugira ingaruka kuri Odevixibat, cyane cyane nk'uko twabivuze mbere, hamwe n'imiti yo mu bwoko bwa bile binding resins .
- Kolesitiramine
- Kolesevelam
- Colestipol
Uru rutonde ntirwuzuye. Kubwibyo, ni ngombwa cyane kubwira muganga wawe imiti yose ufata (harimo n'imiti y'izindi ndwara, vitamine, n'ibimera gakondo).
Ibintu ugomba kwitondera mu gihe ufata imiti
- Gusuzumwa buri gihe: Menya neza ko ujya kwa muganga wawe cyangwa ku mwana wawe ku isuzuma ryateguwe. Vugana na muganga wawe niba ibimenyetso byawe birimo kugenda birushaho kuba bibi cyangwa bikabije.
- Vitamine: Ni ngombwa kumenya neza ko ubona vitamine ukeneye (cyane cyane vitamine A, D, E, na K) mu gihe ufata uyu muti. Vugana na muganga wawe ku byo urya n'inyongeramusaruro ufata.
- Gupima amaraso: Mu gihe cyo kuvurwa, muganga wawe ashobora gutegeka ko habaho isuzuma ry'amaraso kugira ngo arebe ibintu nk'imikorere y'umwijima wawe. Ntukabireke.
Ni izihe ngaruka mbi zishobora kubaho?
Kimwe n'indi miti iyo ari yo yose, Odevixibat ishobora gutera ingaruka zimwe na zimwe. Zimwe muri zo zishobora kuba zikomeye, bityo ni ngombwa kuzimenya.
| Ubwoko bw'ingaruka mbi | Ibimenyetso |
|---|---|
| Ingaruka mbi zigomba kumenyeshwa muganga ako kanya | |
| Ubushobozi bwo kugira ubwivumbure | Uruhu rushyushye, kuribwa cyane, kubyimba mu maso, iminwa cyangwa ururimi. |
| Ibimenyetso by'indwara y'umwijima | Inkari z'umuhondo wijimye cyangwa umukara, kumva unaniwe, umuriro, kubura ubushake bwo kurya, kubabara mu gice cyo hejuru cy'iburyo cy'igifu, no guhinduka umuhondo w'amaso cyangwa uruhu (jaundice). |
| Impiswi | Impiswi idashira. |
| Ibintu ugomba kubwira muganga wawe niba bikomeje cyangwa bikubangamiye | |
| Kubabara mu nda | Kubabara igifu muri rusange. |
| Kuruka | Kuruka. |
Ukwiye kubika gute imiti yawe?
- Bika ahantu abana n'amatungo batagera .
- Bika ahantu humutse, ahantu hashyushye cyane (hagati ya dogere selisiyusi 20 na 25) .
- Ntugakoreshe imiti yarengeje igihe. Ijugunye.
Ni gute wakuraho imiti idakoreshwa?
Si byiza kujugunya imiti yarengeje igihe cyangwa idakenewe mu myanda cyangwa mu bwiherero. Baza muganga wawe inama. Niba bavuze ko nta kibazo cyo kujugunya umuti mu myanda, kuraho umuti mu icupa, uwuvange n'ibibabi by'icyayi byakoreshejwe, ifu ya kawa, cyangwa ubutaka, hanyuma uwushyire mu gikapu gifunze neza.
Ubutumwa bwo kujyana mu rugo
- Odevixibat ni umuti utangwa ku gushyuha guterwa n'indwara runaka y'umwijima witwa PFIC kandi ugomba gukoreshwa gusa iyo muganga agusabye.
- Mirira kapsule yose. Ntukayisye cyangwa ngo uyihekenye. Vanga gusa n'ibiryo bikomeye niba bikugora kumira.
- Bwira muganga wawe indi miti yose ufata n'uko ubuzima bwawe buhagaze.
- Niba ubonye ingaruka mbi zikomeye, nko kugira ibimenyetso by’ubwivumbure cyangwa ibimenyetso by’umwijima (amaso ahinduka umuhondo, inkari zijimye), menyesha muganga wawe vuba.
- Iyo urenze urugero rw'umuti, jya ku Kigo cy'Igihugu gishinzwe gutanga amakuru ku burozi cyangwa ETU ako kanya.
- Niba ufite ikibazo icyo ari cyo cyose kuri uyu muti, menya neza ko wavugana na muganga wawe.
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Ishyirireho intego ya calorie hanyuma ubare itariki yo kugabanya ibiro.