Ese umwana wawe araruka kandi arwaye indwara yo mu nda nyuma y'amasaha make nyuma yo kurya? Bishobora kuba indwara ya FPIES (Food Protein Induced Enterocolitis Syndrome)!

Ba mama na ba papa, iyo umwana wanyu muto aruka akarira nyuma yo kurya, birateye ubwoba kandi birababaza, si byo se? Cyane cyane iyo mudashobora kumenya icyabitera. Uyu munsi tugiye kuvuga ku ruhu rw'ibiribwa rutandukanye gato, ariko rufite akamaro cyane. Ibi ni byo twita FPIES (Food Protein Induced Enterocolitis Syndrome).

Reka dusobanukirwe gusa icyo FPIES (Indwara y’Interocolitis Induced Protein) ari cyo?

Mu magambo make, FPIES ni allergie y'ibiryo itera gutinda gutangira. Bitandukanye n'izindi allergie, ibaho amasaha menshi nyuma yo kurya. Tekereza umwana wawe, tuvuge ko yariye umuceri ku ifunguro rya saa sita. Ariko nyuma y'amasaha abiri cyangwa atatu, cyangwa wenda arenzeho, atangira kuruka inshuro nyinshi zikurikiranye. Hamwe n'ibyo, arwara impiswi, kandi ararakara cyane. Arananirwa kandi agasinzira mu gihe ategereje. Iyo akomeje kuruka no kurwara impiswi, amazi mu mubiri w'umwana aragabanuka kandi ashobora kubura amazi. Ibyo si byiza na gato.

Iyi ndwara, yitwa FPIES, itandukanye n'izindi allergie z'ibiribwa dukunze kubona. Mu zindi allergie, ibimenyetso nk'ibisebe, kugorwa no guhumeka, cyangwa kuruka bigaragara mu minota mike uhereye igihe uriye ibiryo. Ariko, kubera ko ibimenyetso bya FPIES biza bitinze, bishobora kugorana gato kumenya ko ari FPIES mbere na mbere. Abaganga nabo bagomba gushaka iyi myitwarire.

Iyi 'Chronic FPIES' ni iki?

Hari abana bashobora kugira indwara yitwa 'Chronic FPIES'. 'Chronic' bivuze igihe kirekire . Ibi bibaho iyo umwana afite ikibazo gihoraho ku biryo arya buri gihe, nk'amata y'inka. Uretse kuruka, aba bana bashobora no kugira ibibazo byo kwiyongera ibiro no kunanirwa gukura . Ibi birababaza umubyeyi gute? Iyo wonsa umwana wawe ariko ntamuheke.

Ni ibihe biribwa bishobora gutera indwara zandurira mu nda?

Hari ibiryo byinshi byagaragaye ko ari byo bintu by’ingenzi bitera indwara zandurira mu nda. Ibikunze kugaragara cyane ni amata, soya , umuceri n'ingano . Ariko icy'ingenzi ni ukwibuka ni uko ibiryo ibyo ari byo byose bishobora gutera ibimenyetso bya FPIES.Ibi bivuze ko bitagarukira gusa ku biribwa byavuzwe haruguru. Hari abana bashobora kugira ibyiyumvo byo kurya kimwe gusa. Ariko hari abana bashobora kugira ibyiyumvo byo kurya byinshi.

Mu bihe nk'ibi, ni byiza kugisha inama umuganga w'indwara ziterwa n'ubwivumbure bw'umubiri udatinya. Ashobora kukugira inama ku biribwa bidafite ingaruka ku mwana wawe n'ibitari byo.

Wamenya ute neza niba ufite FPIES?

Iki ni ikibazo ababyeyi benshi bibaza. Nta kizamini cyihariye gihari gishobora kwemeza neza niba umuntu afite uburwayi bwa FPIES. Hari igihe abaganga bashobora gukora ibindi bizamini kugira ngo barebe niba ibyo bimenyetso biterwa n'indi ndwara .

Umuganga w’indwara z’ubwivumbure azakubaza byinshi ku bimenyetso by’umwana wawe, urugero nk’ibyo kurya yariye uwo munsi, igihe yamaze arya ibiryo yatangiye kugira ibi bimenyetso. Ibyo ubona n’ibyo wibuka ni ingenzi cyane hano. Bishobora kuba ingirakamaro cyane kuvuga ikintu nk’iki ngo “Muganga, umwana yanyoye amata mu gitondo, hanyuma ukamuha icyo gikoma gishya saa sita. Yatangiye kuruka amasaha atatu cyangwa ane amaze kuyarya.” Muganga ashobora kandi gukora ibizamini bimwe na bimwe by’ubwivumbure kugira ngo arebe niba ari indwara isanzwe iterwa n’ibiryo.

Ni gute wakira umwana ufite indwara zandurira mu nda?

Iyo hagaragaye ko hari indwara ziterwa n’ubwandu bw’inkondo y’umura, icy’ingenzi ni ukureka burundu guha umwana ibiryo bimutera ubwivumbure. Ubu ni bwo buryo bw’ibanze bwo kuvura.

Niba umwana wawe afite indwara zo mu mutwe (FPIES), umuganga w’indwara zo mu mutwe azaguha gahunda yihariye y’ibikorwa . Iyi gahunda ishobora kuba ikubiyemo ibintu nk'ibi:

• Ni ibihe biribwa bidafite ubuzima bwiza, n'uburyo bwo kubimenya no kubyirinda.
• Wakora iki umwana wawe aramutse ariye ibyo biribwa ku bushake maze akagaragaza ibimenyetso?
• Icyo wakora mu gihe cy'impanuka.

Ntabwo bihagije kugira iyi gahunda y'ibikorwa gusa. Ugomba kandi kuyisobanurira neza undi muntu wese uzarera umwana (urugero: ba sekuru na ba nyirakuru, abarimu b'irerero ). Muri ubwo buryo, buri wese amenya icyo gukora.

Ni iki cyakorwa mu gihe ibimenyetso bigaragaye?

Iyo ibimenyetso bya FPIES bigaragaye, cyane cyane iyo hari kuruka cyane no kubabara mu nda, umwana ashobora gukenera guhabwa amazi yo mu nda kugira ngo adatakaza amazi . Hari igihe imiti nka steroide ishobora gutangwa kugira ngo igenzure ibimenyetso.

Kubera ko indwara ziterwa n'ubwivumbure bw'umubiri (FPIES) zidakunze kugaragara, ushobora gusaba umuganga wawe w'indwara ziterwa n'ubwivumbure ibaruwa yihariye . Iyi baruwa izashyikirizwa abakozi bo mu cyumba cy'ubutabazi bwihuse .abakozi b'abaganga). Bizaba ingirakamaro cyane mu gihe cy'ubutabazi bwihutirwa, kuko bigaragaza neza ikibazo cy'umwana wawe n'uko yavurwa.

Ni iki kindi dukeneye kumenya kuri FPIES?

Inkuru nziza ni uko abana benshi bakura barenga abana bavutse mu myaka ya za FPIES, bivuze ko badakwiye gutinya ibiryo iteka ryose.

Kugira ngo umenye neza niba umwana afite indwara zo mu mutwe, umuganga w’indwara zo mu mutwe ashobora kukugira inama yo kumugaburira ibiryo byo mu kanwa . Ibi bikubiyemo guha umwana wawe ibiryo bike bike akeka ko ari byo bitera indwara yo mu mutwe, ukurikiranwe na muganga, kandi ukamukurikiranira hafi kugira ngo urebe ibimenyetso mu masaha make ari imbere. Ibi si byiza kubikorera mu rugo. Bigomba gukorwa mu mutekano, kwa muganga.

Hari n'ibikoresho byo kuri interineti aho ushobora kumenya byinshi kuri FPIES, gusangira ubunararibonye n'abandi babyeyi, no kubona ubufasha. Urugero, urubuga rwa 'The FPIES Foundation' ruragufasha cyane muri ibi.

None se, ni ikihe kintu cy'ingenzi tugomba kwibuka muri ibi byose? (Ubutumwa bwo kujyana mu rugo)

Sawa, dore ibintu bimwe na bimwe ugomba kuzirikana mu byo twavuze:

• FPIES ni allergie y'ibiryo iterwa n'igihe umuntu atinze gutangira kurya. Ibimenyetso by'ingenzi ni kuruka, impiswi, no gusinzira cyane .
• Nubwo amata, soya, umuceri, n'ingano ari ibintu bikunze gutera ubwivumbure, FPIES zishobora guterwa n'ibiryo ibyo ari byo byose.
• Nubwo nta gipimo cyihariye gitangwa kugira ngo gisuzume ibi, umuganga w’indwara ziterwa n’ubwivumbure ashobora kubyemeza arebye ibimenyetso byawe n’amateka yawe.
• Uburyo bw'ingenzi bwo kuvura ni ukwirinda burundu ibiryo bishobora kubangamira umubiri.
• Inkuru nziza ni uko iyi ndwara igenda ishira ku bana benshi uko bagenda bakura.
• Wihangayika. Iyo ubifashe neza kandi ugakurikiza inama za muganga wawe, umwana wawe ashobora kugira ubuzima bwiza n'ibyishimo . Ntabwo uri wenyine, abaganga n'amakuru nk'aya barahari kugira ngo bagufashe.

Niba umwana wawe afite kimwe muri ibi bimenyetso, nyamuneka jya kwa muganga vuba bishoboka. Kumenya neza indwara hakiri kare no kuyifata neza ni byo by'ingenzi cyane.

` Indwara z'abana, Allergie y'ibiribwa, Ubuzima bw'umwana, kuruka, impiswi, Allergie itinze, Enterocolitis iterwa na poroteyine y'ibiribwa.