Nk'umubyeyi, uzi ko iyo abana bato bamwe na bamwe bafite ubwivumbure ku biryo nk'ubunyobwa, bagaragaza ibimenyetso ako kanya. Ibintu nk'uduheri, kugorwa no guhumeka , nibindi. Ariko iyi ubwivumbure budasanzwe tuvuga uyu munsi bwitwa FPIES (Food Protein-Induced Enterocolitis Syndrome) butandukanye gato. Ikibaho hano ni uko ibimenyetso bitangira kugaragara amasaha make umwana amaze kurya ibiryo. Ababyeyi benshi batekereza ko iyi ari indwara isanzwe ya virusi cyangwa ko ari indwara yo mu nda iterwa no kurya ibiryo byarangiye.
FPIES ni iki mu by'ukuri?
Muri make, FPIES ni ukubyimba gukabije mu mara guterwa na poroteyine zikomoka ku biribwa. Ntabwo bitera ibimenyetso bisanzwe by'uburwayi busanzwe, nko kurwara ibisebe, kuribwa, cyangwa kubyimba. Ahubwo, umwana wawe ashobora kuruka no gucibwamo igihe kirekire.
Iyi ndwara ikunze gutangira iyo umwana ahawe amata y'ifu cyangwa ibiryo bikomeye. Akenshi, iyi ndwara ntibaho mu mashereka. Ariko, ni gake cyane, ishobora kugaragara ku bana bonsa. Inkuru nziza ni uko abana benshi bakura iyo ndwara y'ubwivumbure mu gihe bafite imyaka 3 cyangwa 4 .
Ni ibihe bimenyetso by'ibi?
Tekereza ko wahaye umwana wawe ibiryo bishya. Nyuma y'amasaha abiri cyangwa atatu, umwana wawe atangira kuruka ubudatuza kandi mu buryo budasubirwaho. Hanyuma, umwana atangira kugira imyanda idasobanutse. Iki ni cyo kimenyetso cy'ingenzi cya FPIES.
Hari abana bashobora kugira ibi bimenyetso buhoro buhoro uko igihe kigenda gihita. Bashobora kandi kwiyongera ibiro no gukura nabi bitewe nuko batabona indyo yuzuye bakeneye.
Mu bihe bikomeye, kuruka cyane no gucibwamo bishobora gutera umwuma ndetse no gutungurwa. Iyi ni indwara iteje akaga cyane.
| Ibimenyetso bishobora kugaragara mu gihe umuntu arwaye indwara ikomeye (shock) - jya kwa muganga ako kanya! | |
|---|---|
| Ibiranga | Ibisobanuro |
| Urujijo | Umwana ashobora kugaragara nk'utazi ibiri kuba hafi ye kandi atazi ibiri kuba. |
| Uruhu rukonje kandi rushyushye | Umubiri wumva ubukonje budasanzwe iyo uwukozeho, kandi wumva ubushuhe nk'aho uri kubira ibyuya. |
| Inyota ikabije | Umwana akeneye kunywa amazi igihe cyose. |
| Uruhu rwerurutse cyangwa rufite ibara ry'umukara | Uruhu rushobora guhindura ibara, rugahinduka ibara ry'umukara, cyangwa rugahinduka ubururu hirya no hino ku minwa. |
| Impinduka mu guhumeka | Guhumeka bishobora kuba byihuse cyangwa bigufi. |
| Ubunebwe/gusinzira | Umwana arasinziriye mu buryo budasanzwe, biragoye kubyuka, kandi ntakina. |
| Itera ry'umutima rigabanuka | Itera ry'umutima riba rito cyane, hafi ya ryose ritagaragara. |
Niba ubonye kimwe muri ibi bimenyetso, jyana umwana wawe mu bitaro bikuru by’ubutabazi bw’ibanze (ETU) biri hafi yawe vuba.
Kuki ibi bibaho?
Ibi biterwa nuko hari uturemangingo tumwe na tumwe two mu budahangarwa bw'umubiri bw'umwana wawe tugira ingaruka mbi kuri poroteyine zo mu biribwa bimwe na bimwe. Iyi nyito itera ingaruka zikomeye mu mfuruka y'igogora ry'umwana (inzira y'igifu), ni ukuvuga amara. Ariko ibimenyetso by'iyi nyito bifata amasaha hagati ya 2 na 8 kugira ngo bigaragare. Niyo mpamvu bitandukanye n'izindi nyito.
Amateka y'umuryango agaragaza ko hagati ya 40% na 80% by'abana barwaye indwara ya FPIES bafite amateka yo kurwara izindi ndwara zo mu muryango, nk'ibicurane by'ibyatsi cyangwa eczema. Igitangaje ni uko 20% gusa by'abana barwaye indwara ya FPIES bafite amateka yo kurwara izindi ndwara zo mu biribwa mu muryango.
Ni ibihe biribwa bikunze gutera indwara zandurira mu mibonano mpuzabitsina?
Iki kibazo gikunze guterwa n'ibi bikurikira:
- Amata y'inka n'ibikomoka ku mata (urugero: yawurute, foromaje)
- Amata ya soya na soya
- Ingano n'izindi mbuto (urugero: ingano, sayiri)
Uretse ibi, hari abana bashobora no kurwara indwara zandurira mu mubiri (FPIES) bitewe n’ibiribwa tutari dusanzwe dutekereza ko bitera allergie .
- Sayiri
- Inyama y'inkoko cyangwa iy'inkoko
- Ifi
- Ibishyimbo
- Ingano
- Amashaza
- Umuceri
- Ibihumyo
- Ibijumba
Uru rutonde ntirugutere ubwoba. Si buri mwana wese uzaba afite ubwivumbure kuri ibi byose. Ikintu kigira ubwivumbure ku mwana umwe gishobora kuba kitari ku wundi.
Isuzuma rikorwa rite?
Niba utekereza ko umwana wawe afite indwara zo mu nda, ikintu cyiza wakora ni ukuganira na muganga w’abana kuri iyo ndwara. Ashobora kukwohereza kwa muganga w’indwara zo mu nda z’abana cyangwa umuganga w’indwara zo mu nda z’abana.
Muganga azabanza kukubaza ibimenyetso by'umwana wawe ndetse niba hari umuntu wo mu muryango ufite ubwivumbure. Hanyuma, azagukorera ibizamini kugira ngo arebe neza ko nta zindi mpamvu zisanzwe zitera kuruka no gucibwamo (nk'ubwandu bwa virusi).
Hari igihe ibizamini by'amaraso n'ibizamini by'uruhu (Atopy Patch Test - APT) bishobora gufasha. APT ikubiyemo gushyira isahani nto y'icyuma irimo ibiryo bikekwa ku ruhu rw'umwana mu gihe cy'amasaha agera kuri 48. Ariko, ibi bizamini ntibishobora kwemeza FPIES 100% by'igihe.
Uburyo bwonyine bwo kwemeza niba ari uko bimeze ni ugupima indwara yo mu kanwa (OFC) . Ibi bikubiyemo guha umwana ibiryo bikekwaho ku rugero ruto akurikiranwe na muganga, mu bitaro cyangwa mu ivuriro. Ibi birabujijwe rwose kubikorera mu rugo.
Ivurwa ite?
Uburyo bwo kuvura ni ubworoshye cyane. Bukubiyemo gukuraho burundu ibiryo cyangwa ibiryo umwana afite ubwivumbure mu mirire ye.
- Niba umwana wawe anyoye amata y'inka, uzakenera gukoresha amata yihariye atarimo amata y'inka cyangwa soya (amata y'inka adatera ubwivumbure). Muganga wawe azakugira inama kuri ibi.
- Soma witonze icyapa kiri kuri buri paki y'ibiribwa uguze mu iduka urebe niba hari ibintu bishobora gutera ubwivumbure.
- Ugomba kwandika inyandiko ya muganga wawe ivuga ko umwana wawe afite uburwayi bwanduza abana. Bizagufasha cyane gusobanurira abaganga uko umwana wawe amerewe mu gihe habaye ikibazo cyihutirwa.
Ni ibisanzwe kumva ufite ubwoba no guhangayika iyo umenye iby'iyi ndwara. Ariko iyo umwana wawe yitabwaho neza, ashobora kugira ibyishimo n'ubuzima bwiza.
Ubutumwa bwo kujyana mu rugo
- FPIES ni indwara idakunze kugaragara iterwa no kuruka no gucibwamo ibaho amasaha make nyuma yo kurya ibiryo.
- Ibimenyetso nk'uduheri no kwishimagura, kimwe no muri allergie isanzwe, ntabwo biboneka hano.
- Niba umwana afite ubunebwe budasanzwe, afite ibara ry'ubururu ku ruhu, cyangwa agaragaza ibimenyetso byo kutamenya, mujyane mu bitaro byihutirwa (ETU) byihutirwa.
- Menya neza ko wasabye inama kwa muganga wawe kugira ngo umenye niba indwara ihari kandi uyifate neza.
- Abana benshi bakira iyi ndwara mu gihe bafite imyaka 3-4, bityo ntugatinye kandi wihangane.
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