Urukingo rwa Pegcetacoplan (EMPAVELI): Uburyo bwo kurwanya indwara idakunze kugaragara mu maraso (Pegcetacoplan inshinge)

Ese wowe cyangwa umuntu uzi ufite indwara idakunze kugaragara yo mu maraso yitwa Paroxysmal Nocturnal Hemoglobinuria , cyangwa PNH mu magambo ahinnye? Bishobora kumvikana nk'ibigoye, ariko mu magambo make, ni indwara ituma uturemangingo dutukura mu mubiri wacu dupfa imburagihe. Ibi bishobora gutera ibibazo byinshi, birimo kubura amaraso, umunaniro, no kuzura kw'amaraso. Uyu munsi rero tugiye kuvuga ku rukingo rwitwa Pegcetacoplan (rwitwa: peg-seta-co-plan) rwazanye icyizere gishya ku bantu benshi bafite iyi ndwara.

Pegcetacoplan ni iki? Ikora ite?

Tekereza ku tunyangingo dutukura tw'amaraso nk'imodoka nto zitwara umwuka wa ogisijeni mu mubiri wose. Ku muntu urwaye PNH, ubudahangarwa bw'umubiri (ingabo ziturinda indwara) butekereza ko utwo tunyangingo dutukura ari umwanzi maze bukatugabaho ibitero bukanaturimbura. Ibi biterwa n'ikibazo cy'imikorere mibi mu gice cy'ubudahangarwa bw'umubiri cyitwa sisitemu y'inyongera .

Aha niho umuti witwa Pegcetacoplan winjirira. Uru rukingo ni nk'uburinzi bw'ubwenge. Rukora mu guhagarika igice cy'ubudahangarwa bw'umubiri cyibasira kandi kikarinda uturemangingo tw'amaraso dutukura. Ibi bigenzura kwangirika kw'uturemangingo dutukura kandi bigabanya cyane ibimenyetso bya PNH.

Ibintu ugomba kubwira muganga wawe mbere yo gukoresha uyu muti

Kubera ko uyu muti ari ingenzi cyane, ni ngombwa kuganira ku bintu bimwe na bimwe na muganga wawe ku mugaragaro mbere yo gutangira kuvurwa. Ku bw'umutekano wawe, ntugahishe ibi bintu.

• Ese hari ubwandu ufite ubu? Bwira muganga wawe indwara iyo ari yo yose, nk'umuriro, ibicurane, inkorora, cyangwa kubabara mu muhogo.
• Ese hari izindi aleriji ufite? Si kuri uyu muti gusa, ahubwo no ku wundi muti uwo ari wo wose, ibiryo, cyangwa imiti irinda uburibwe, turagusaba kubitumenyesha.
• Uratwite? Cyangwa uteganya gutwita? Ni ngombwa gushaka inama kwa muganga mbere yo gufata icyemezo cyo gukoresha uyu muti mu gihe utwite.
• Ese uri umubyeyi wonsa? Ugomba kandi kuganira na muganga wawe ku bijyanye no gukoresha uyu muti mu gihe wonsa.

Umuti ukoreshwa ute?

Pegcetacoplan ni urushinge ushobora kwitera uri mu rugo. Ni urushinge rwo mu mubiri . Mu ntangiriro rushobora gusa n'aho ruteye ubwoba, ariko ntugahangayike.

Ubusanzwe, muganga wawe cyangwa umuforomo wabyigiye azakwereka neza uburyo bwo gutanga uru rukingo neza.

• Uburyo bwo gutegura icupa ry'umuti.
• Ingano ikwiye y'umuti ugomba gufata muri syringe.
• Ahantu hakwiye ho guterwa inshinge (akenshi mu nda, mu kibero).
• Uburyo bwo gusukura uruhu.

Bazagufasha kumenyera ibi byose. Ibisubizo byiza bigerwaho iyo uhawe urukingo nk'uko muganga yabigutegetse, ku minsi yagenwe, kandi hafi mu gihe kimwe .

Guta inshinge n'inshinge mu buryo bwizewe

Hari agasanduku kabigenewe kagenewe ibi. Ushobora kubaza muganga wawe cyangwa farumasi aho uvana imiti yawe. Baza uburyo bwo kuyijugunya mu buryo bwizewe igihe yuzuye.

Ibintu ugomba kwitondera mu gihe ukoresha umuti

Ugomba kwita cyane ku buzima bwawe mu gihe ufata uyu muti.

• Gusuzumwa kwa muganga buri gihe: Muganga wawe akunze kugusaba gupimwa amaraso. Menya neza ko ubikoze kugira ngo urebe uko ubuvuzi bukora. Menya neza ko ugiye kwa muganga wawe.
• Irinde indwara zandura: Kubera ko uyu muti ugabanya imikorere y'igice cy'ubudahangarwa bw'umubiri, ibyago byo kurwara zimwe na zimwe bishobora kwiyongera gato. Kubwibyo, niba ugaragaje ibimenyetso nk'umuriro , ubukonje, kuribwa mu muhogo, inkorora, ibikomere bidakira, cyangwa ububabare mu gihe uri kunyara , ntukivure ubwawe kandi uhamagare muganga wawe ako kanya . Gabanya kujya ahantu abantu barwaye.

Ingaruka mbi zishobora guterwa n'umuti

Kimwe n'indi miti iyo ari yo yose, Pegcetacoplan ishobora gutera ingaruka zimwe na zimwe. Zimwe muri zo zigomba guhita zitangazwa, izindi ntizibe zikomeye cyane.

Bite ho nintakaza urugero rw'umuti?

Niba wabuze dose, fata ako kanya wibuka. Ariko, niba igihe cyo gufata dose ikurikira kigeze, jya usimbuka dose yabuze hanyuma ufate dose ikurikira ku gihe cyagenwe. Ntukigere ufata dose ebyiri icyarimwe.

Bite ho iyo mfashe imiti myinshi?

Niba utekereza ko wafashe uyu muti urenze urugero ku bushake, icyo wakora ni ukujya mu bitaro bikuru by’ubutabazi bw’ibanze (ETU) cyangwa ugahamagara ikigo cy’igihugu gishinzwe amakuru ku burozi mu bitaro by’igihugu bya Colombo .

Ni gute wabika umuti?

• Bika uyu muti muri firigo . Ntubike muri firigo/muri firigo.
• Kura urukingo muri firigo iminota 30 mbere yo kurutanga hanyuma ureke rugere ku bushyuhe bw'icyumba.
• Ni byiza kuyibika mu gasanduku kayo ka mbere, kugira ngo irinde urumuri.
• Bika ahantu abana n'amatungo batagera.
• Ntugakoreshe umuti warengeje igihe.

Uyu muti ni uwawe gusa. Wanditswe na muganga wawe, bityo ntuwusangire n'undi muntu uwo ari we wese.