Ngatidzidzei nezvebvunzo yekudikitira kuti tione kana muine cystic fibrosis.

Mwana wako mudiki anombonetseka here kufema, kana kuti ane dambudziko rekusawedzera uremu? Kana kuti unoona chimwe chinhu chakaita sekukosora nguva dzose kana kurira kwekufema muchipfuva? Dzimwe nguva, kuseri kwezvinhu izvi, panogona kunge paine chirwere chatisati tanzwa zvakawanda nezvacho, asi zvakakosha kuziva. Ndizvo zvatichataura nezvazvo nhasi. Izvi zvinonzi Cystic Fibrosis , dzimwe nguva zvichipfupikiswa se (CF) . Ngationei kuti chii, kuti chinoonekwa sei, uye kunyanya mamwe mashoko nezve 'Sweat Test' inoitirwa izvi.

Chii chinonzi cystic fibrosis?

Zvichitaurwa zviri nyore, cystic fibrosis chirwere chinogara nhaka . Kureva kuti, chinhu chinogona kupfuudzwa kubva kuvabereki kuenda kuvana. Chinoitika apa ndechekuti mamwe emvura ari mumiviri yedu, kunyanya madzihwa, anova makobvu uye anonamira. Funga nezvazvo, madzihwa ari mumapapu nemusinasi yemunhu ane hutano haatsvedzere semvura here? Ndiwo anoita kuti nzira dzedu dzekufema dzichene uye abvise utachiona.

Asi muvanhu vane cystic fibrosis, manyoka aya akakora zvikuru, seglue. Saka manyoka aya akakora anoiswa munhengo dzakakosha dzakadai semapapu nepancreas , zvichikanganisa mashandiro adzo enguva dzose. Kunyanya kana manyoka aya akakora akaungana mumapapu, nzira dzekufema dzinotanga kuvharika. Zvadaro zvinova zvakaoma kufema, uye hutachiona hunogona kuitika kakawanda. Kana pancreas ikakanganiswa, matambudziko ekugaya chikafu uye kushaya chikafu zvinovaka muviri zvinogona kuitika. Kwete izvi chete, zvinogonawo kukanganisa nzvimbo dzakadai sechiropa, ura, uye nhengo dzesikarudzi.

Cystic fibrosis chirwere chisingaperi . Izvi zvinoreva kuti chinogara kwenguva yakareba uye hachigone kurapwa zvachose. Chinoonekwawo sechirwere chinoenderera mberi . Izvi zvinoreva kuti zviratidzo zvinogona kuwedzera zvishoma nezvishoma nekufamba kwenguva uye matambudziko anogona kuitika. Ndosaka zvichikosha kuti uzvizive nekukurumidza uye uzvigadzirise nemazvo.

Ndezvipi zviratidzo zveizvi muvana?

Kana mwana mudiki, kunyanya mucheche, aine cystic fibrosis, anogona kusangana nechimwe chezviratidzo izvi kana kupfuura. Haasi mwana wese achava nezviratidzo izvi zvese panguva imwe chete, uye kuoma kwezviratidzo kunogona kusiyana kubva pamwana kusvika pamwana. Zvakakosha kurangarira izvozvo.

Heano mamwe emabasa aya:

• Kukundikana kukura zvakanaka: Kunyangwe mwana achiyamwisa zvakanaka uye achidya zvakanaka gare gare, anogona kusawedzera huremu uye anogona kuita seane huremu hwakaderera kana tichienzanisa nevamwe vana vezera rimwe chete.
• Tsvina isina kusimba kana ine mafuta: Dzimwe nguva tsvina yemwana wako inogona kunge isina kusimba, ine mvura, kana ine mafuta. Dzimwe nguva tsvina inogona kunge iine hwema hwakaipa.
• Kuoma kufema:Nguva dzose ndinonzwa sekunge zvakaoma kufema, sekunge uri kudzipwa.
• Kufemera nguva dzose: Ruzha rwekufemera nguva dzose runobva muchipfuva. Izvi zvinogonawo kuitika mumamiriro ezvinhu akadai seasthma, asi chiratidzo chinowanzoitika muCF.
• Kutapukirwa nezvirwere zvemapapu kakawanda: Semuenzaniso, pneumonia nebronchitis zvakajairika. Kana ukabatwa nezvirwere zvemapapu kamwe chete kana kaviri pamwedzi, chinhu chekufunganya nezvacho.
• Kudzokororwa kwehutachiona hwemuma sinus: Kuwanikwa kwehutachiona mumhuno (sinus) kakawanda. Zviratidzo zvinosanganisira mhuno yakavharika, mhuno inoyerera, uye mhuno yakavharika.
• Kukosora kunoramba kuripo, pamwe kunokonzera manyoka: Kukosora kunoramba kuripo kusingazoperi. Kunogona kutove kukosora kunoburitsa madzihwa akakora.
• Kukura zvishoma nezvishoma: Kureba nehuremu hwemwana zvinoita sekunge zviri kukura zvishoma nezvishoma zvichienzaniswa nevamwe vana vezera rimwe chete.
• Dzimwe nguva ganda remwana rinonaka munyu: Vamwe vabereki vanotaurawo kuti pavanokwiza ganda remwana wavo rine ziya, rinonzwa munyu.

Kana uchifungidzira kuti mwana wako ane chimwe chezviratidzo izvi kana kupfuura, chinhu chakanakisa chekuita ndechekuona chiremba wevana kuti akupe mazano.

Chii chinonzi bvunzo yekudikitira uye chii chinoita?

Vanachiremba vanoongorora cystic fibrosis nekuongorora murwere nokungwarira, kuteerera zviratidzo zvake, uye kuita bvunzo dzakasiyana-siyana. Izvi zvinosanganisira bvunzo dzemajini - dziri bvunzo dzeropa dzinotsvaga shanduko mumajini - X-ray dzechipfuva ne sinus, uye bvunzo dzekushanda kwemapapu.

Zvisinei, bvunzo inonyanya kukosha uye ine humbowo hwekuti une cystic fibrosis here kana kuti kwete ndeye bvunzo yeziya. Iyi bvunzo iri nyore kwazvo, isingarwadzi. Inoyera huwandu hwechloride muziya rako. Waizviziva here kuti munyu watinodya unoumbwa nemakemikoro maviri anonzi chloride nesodium. Saka, huwandu hwechloride muziya revanhu vane cystic fibrosis hwakakwira zvakanyanya kupfuura hwemunhuwo zvake.

Chikonzero cheizvi ndechekuti, nekuda kwekusakwana kwemajini kunokonzera cystic fibrosis, mashandiro eprotein inobatsira chloride kufamba nemasero edu anokanganiswa. Nekuda kweizvozvo, chloride haigone kupinda kana kubuda mumasero zvakanaka. Apa ndipo apo chloride inoungana zvisina kujairika mudikita. Kunyangwe zvingaita sezviri nyore, iyi ndiyo hwaro hwesainzi hwekuongorora chirwere ichi.

Kazhinji, vanachiremba vanokurudzira bvunzo iyi yekudikitira kana mwana ari panjodzi yekuzvara cystic fibrosis (semuenzaniso, kana mumwe munhu mumhuri aine chirwere ichi), kana kuti ari kuratidza zviratidzo zvatakambotaura nezvazvo. Dzimwe nguva, vanun'una vemwana vanokumbirwawo kuti vaite bvunzo iyi. Izvi zvinoitirwa kuona kana vakagara nhaka jini iri uye kana vana vavo vari panjodzi yekuzvara jini iri mune ramangwana.

Kuongororwa kwedikita uku kunoitwa sei? Chinhu chekutya here?

Kuyedzwa kwedikita uku kunogona kuitwa kune chero munhu wezera ripi zvaro. Zvisinei, vacheche vachangoberekwa vangasakwanisa kuburitsa ziya rakakwana rekuyedzwa uku mumazuva mashoma ekutanga ehupenyu hwavo. Nokudaro, bvunzo iyi inowanzoitwa pavacheche vari pakati pemavhiki maviri nemana ekuberekwa , pavanenge vachikwanisa kuburitsa ziya rakakwana.

Bvunzo iyi iri nyore kwazvo kuita, uye haina kana kukuvara. Saka usatye, zvakanaka here? Hezvino zvinoitika:

1. Kutanga, mushandi wehutano, angava mukoti kana chiremba, anoisa gel kana mvura ine kemikari inonzi pilocarpine paganda reruoko rwemwana (kazhinji ruoko rwemusana) kana gumbo. Pilocarpine mushonga unokurudzira matumbu edikita.

2. Zvadaro, maerekitirodhi maviri anoiswa panzvimbo iyi uye kukurudzirwa kwemagetsi kudiki, kusina njodzi kunopihwa kuti kuwedzere kukurudzira matumbu edikita uye kuburitsa ziya. Izvi zvinoitwa kwemaminitsi angangoita mashanu. Hapana kurwadza kana kurwadziwa zvachose. Mwana mudiki anogona kunzwa kurwadza kana kudziya muruoko rwake kana tsoka, asi ndizvo chete. Vacheche vazhinji havatombozvinzwi.

3. Zvadaro, maerekitirodhi anobviswa, nzvimbo yeganda inocheneswa, uye mudziyo wakakosha wekuunganidza ziya (ingava coil yepurasitiki, chidimbu chepepa rekusefa, kana chidimbu chegauze) unoiswa panzvimbo yacho. Izvi zvinosiyiwa panzvimbo yacho kwemaminitsi angangoita makumi matatu kuti zviunganidze ziya.

4. Pakupedzisira, sampuro iyi yedikita inounganidzwa inotumirwa kurabhoritari kuti ionekwe nemazvo huwandu hwechloride iripo.

Bvunzo yese inotora awa imwe chete. Zviri nyore kuchengetedza mwana wako akadzikama kana uine toyi kana bhodhoro remukaka pedyo.

Mhedzisiro yebvunzo iyi inoti chii?

Zvakanaka, ngationei kuti mhedzisiro yekuyedzwa kwedikita iyi inoti chii. Kana mwana aine cystic fibrosis, kuyedzwa kwedikita kucharatidza kuti mune huwandu hwakanyanya hwechloride mudikita rake.

Panyaya yehunhu hwakayerwa, izvi zvinotevera (hunhu uhwu hunogona kusiyana zvishoma kubva murabhoritari kuenda kune imwe, asi kazhinji hwakaita seizvi):

• Kana huwandu hwechloride mumwana wako hwakakwira kupfuura 60 mmol/L (millimol/litre) : Zvingangoita kuti ane cystic fibrosis.Kazhinji, kana mhinduro yakaita seiyi ikabuda, bvunzo yacho inodzokororwa kuti isimbiswe.
• Huwandu hwechloride mumwana huri pasi pe30 mmol/L (millimol/litre) (mimwe mitemo inoti iri pasi pe40 mmol/L): Zvinogona kutaurwa kuti haana cystic fibrosis.
• Kana huwandu hwechloride yemwana wako huri pakati pe30 ne59 mmol/L ( mune dzimwe nzvimbo 40-59 mmol/L): Izvi zvinoonekwa semhedzisiro yepakati kana yemuganhu . Muchiitiko ichi, bvunzo ingangoda kudzokororwa . Mimwe miedzo, yakadai sekuongororwa kwemajini, inogonawo kudiwa kuti pasave nemamwe marudzi eCF asina kujairika.

Chinhu chinonyanya kukosha ndechekuti mhinduro idzi dzinofanira kududzirwa nachiremba. Saka, kana mhinduro dzasvika, chinhu chakanakisa chekuita kutaura nachiremba nezvazvo uye kutevedzera mirairo yake. Usavhunduke.

Munogadzirira sei mwana wenyu bvunzo yekudikitira? Pane chimwe chinhu chikuru chamunoda kuita here?

Izvi zviri nyore kwazvo kuna amai nababa. Hamufanirwe kuita chero chinhu chakakosha kugadzirira mwana wenyu bvunzo yekudikitira.

• Hapana chikonzero chekuchinja kana kumisa kudya kwemwana (maitiro ekumupa chikafu, chikafu chakasimba kana akapihwa), mabasa, kana mishonga iri kutorwa mwana asati aongororwa. Chengetai sezvakajairika.
• Chinhu chimwe chete ndechekuti, musazora mafuta kana mafuta ekudzivirira paganda remwana wenyu kwemaawa makumi maviri nemana bvunzo isati yaitwa. Kunyanya musazora chero chinhu paruoko kana gumbo riri kuongororwa. Izvi zvinogona kukanganisa mhedzisiro yeongororo.

Ona, zviri nyore kwazvo. Pfekedza mwana wako zvipfeko zvakajeka uye zvinomunyaradza pazuva rekuongororwa.

Zvinhu zvakakosha zvatinofanira kurangarira kubva munyaya iyi (Mharidzo Yekuenda Kumba)

Zvakanaka, saka ndinovimba wava kunzwisisa zvakanaka zvatataura nezvazvo nhasi, Cystic Fibrosis and the Sweat Test. Kunyangwe izvi zvingaita senyaya yakaoma, hazvina kuoma kana wangonzwisisa zvinhu zvekutanga. Kubva pane zvatakurukura, hezvino zvimwe zvinhu zvekurangarira:

• Cystic fibrosis (CF) chirwere chinokonzerwa nemajini chinoita kuti manyoka emuviri akobvu, kunyanya zvichikanganisa mapapu nekugaya chikafu.
• Ziva zviratidzo: Kana uine chimwe chezviratidzo izvi kana kupfuura, zvakaita sekudzikira uremu, kushaya mweya nguva nenguva, kukosora nguva dzose, kana tsvina ine mafuta, ona chiremba wokurukura nezvazvo.
• Kuyedzwa kweziya ndiyo nzira huru uye yakavimbika yekusimbisa cystic fibrosis: inoyera huwandu hwechloride muziya.
• Kuongororwa uku hakurwadzi uye hakuna njodzi: saka musatya kuendesa mwana wenyu kunorapwa.
• Zvakakosha kuziva chirwere ichi nekukurumidza:Nekuti ipapo, nzira dzinodiwa dzekurapa nekutarisira dzinogona kutanga nekukurumidza, zvichideredza matambudziko angasangana nemwana uye zvichimubatsira kurarama hupenyu huri nani uye hune hutano.

Kana iwe kana mumwe munhu waunoziva ari kusangana nedambudziko iri, chinhu chakanakisa chekuita ndechekusatya kana kutenda zvese zvaunowana pa internet, asi kutaura nachiremba ane hunyanzvi. Vachakutungamira nemazvo uye vachakupa rutsigiro rwaunoda.

` Cystic Fibrosis, bvunzo yekuyamwa, chloride, vana, zvirwere zvemajini, zvirwere zvemapapu