Unoda kuziva nezveAmniotic Band Syndrome, chirwere chine njodzi apo mabhandi anoputirwa nemwana wako?

Unogara uchifunga nezvehupenyu hwemwana wako panguva yekuzvitakura, handiti? Dzimwe nguva, paunoona chimwe chinhu chidiki panguva yekuongororwa, unonzwa kutya kukuru. Ndizvo zvinoita vanaamai vazhinji, asi kana ukanyatsoziviswa, chirwere ichi chinonzi amniotic band syndrome chinorapika. Ngatitaure nezvazvo zviri nyore, nenzira yaunogona kunzwisisa.

Chii chinonzi Amniotic Band Syndrome?

Zvichitaurwa zviri nyore, izvi zvinoitika kana mabhandi matete emvura anobva muamniotic sac (yatinodaidza kuti ``Amniotic Sac'') akakomberedza mwana ari mudumbu akaputira muviri wemwana. Funga nezvemwana seakaita sebharumu rakazara nemvura. Kana membrane yakapfava iri mukati meamnion ikakuvara neimwe nzira, inogona kutsemuka kuita zvidimbu zvakaita seshinda kana bhandi yoyangarara mukati meamniotic sac. Izvi ndizvo zvatinodaidza kuti ``Amniotic Bands''. Mabhandi aya anoyangarara, sebhora reshinda, anogona kupetwa paruoko, gumbo, chigunwe, kana chimwe chikamu chemuviri wemwana ari mudumbu. Kana mabhandi aya akabatana zvakasimba, kuyerera kweropa kuenda kuchikamu ichocho kunodzikira, dzimwe nguva kutomira zvachose. Zvadaro chikamu ichocho hachikure zvakanaka. Dzimwe nguva izvi zvinogona kukanganisa nhengo dzemukati dzemwana uye kunyange umbilical cord. Izvi zvinogona kutungamira kuzvikanganiso zvekuzvarwa (Congenital Disorders) uye, muzviitiko zvakakomba, kuchekwa kwenhengo. Kuoma kwechirwere kunoenderana nekuti mabhandi acho akaputirwa zvakasimba sei uye kuti akaputirwa kupi pamuviri wemwana. Vamwe vacheche vanogona kunge vaine zvikwangwani zveganda zvidiki, zvakamanikana pakuzvarwa. Zvisinei, vamwe vacheche vanogona kuzvarwa vasina maoko, makumbo, kana zvigunwe. Kana mabhandi aya akavhara ropa remwana kubva muplacenta, zvinogona kuisa upenyu panjodzi. Dzimwe nguva vanachiremba vanogona kuona chirwere ichi ne ultrasound scan panguva yekuzvitakura. Zvisinei, kazhinji, izvi hazvisimbiswi kusvika mwana azvarwa. Dambudziko iri hariwanzoitiki. Rinoitika muvana vanenge 1 pavana 1,200 kusvika 15,000 vanozvarwa vari vapenyu. Rinozivikanwawo se:

• Kutevedzana kweBhendi reAmniotic
• Chirwere cheKuvharwa kweBhendi/Rings
• Amniotic Band Disruption Complex
• Mabhendi/Mhete dzeKudzvanya Dzinoberekwa Nadzo
• ADAM Complex `(ADAM Complex - Kukanganisika kweAmniotic/ Kunamatira /Kuchekwa kwenhengo dzemuviri)`
• Kusanzwisisika kweMugwagwa

Ndezvipi zviratidzo zveizvi? Ungazviziva sei?

Zviratidzo zvechirwere ichi zvinonyanya kuenderana nekuti tambo yacho yakasungirirwa papi pamuviri wemwana uye kuti yakasungirirwa zvakasimba sei.Zvinenge 80 muzana yezvirwere zvinokanganisa maoko nemakumbo. Asi mabhandi aya anogonawo kusungwa mumusoro, mumutsipa, nemudumbu. Dzimwe nguva izvi hazvina kunyanya kuipa. Zvinongoderedza kuyerera kweropa pamusoro peganda. Ipapo mwana paanozvarwa, panogona kunge paine zvinhu zvakaita semhete dzinovhara ganda, kana kuti zvirema zvidiki mumakumbo. Asi dzimwe nguva mabhandi aya anosungwa zvakasimba uye zvakadzama zvekuti kuyerera kweropa kunhengo iyoyo kana chikamu chemuviri kunobviswa zvachose. Ipapo chikamu ichocho chinogona kurasika, ropa rinorasika, uye dzimwe nguva matambudziko anotyisidzira hupenyu anogona kuitika. Zvimwe zviratidzo zvinogona kuonekwa muchirwere ichi ndeizvi:

• Kuzvarwa usina maoko, makumbo, kana zvigunwe.
• Zvigunwe zvakanamirwa pamwe chete (Syndactyly). Panogona kunge paine ganda pakati peminwe, seredhadha.
• Makumbo mapfupi uye haana kukura zvakanaka.
• Kuzvimba uko tambo dzakasungirirwa.
• Rutsoka rwechikwata .
• Muromo Wakachekwa uye Muromo Wakachekwa .
• Kuremara kwemapfupa, senge scoliosis.
• Choanal Atresia (kusakura kwemhino zvakakwana). Izvi zvinogona kuita kuti mwana aomerwe kufema.
• Maziso madiki kana asina kukura zvakanaka (Microphthalmia).

Ndezvipi zvinetso zvinogona kukonzera izvi?

Amniotic band syndrome inogona kukonzera matambudziko akawanda, mamwe acho anogona kuva ehupenyu hwese. Mamwe matambudziko akakomba zvikuru uye anotoisa upenyu panjodzi. Semuenzaniso:

• Maburi ari mudehenya (Encephalocele). Muchiitiko ichi, chikamu cheuropi chinogona kubuda nepadehenya.
• Maburi kana kuremara mumadziro edumbu kana echipfuva.
• Kukuvadzwa kwezvikamu zvakakosha zvakaita sedumbu kana genitourinary system.
• Matambudziko anogona kuitika kana tambo idzi dzikabatirira murukuvhute dzovhara kufamba kweropa remwana.

Dambudziko iri rinowanzoita kuti mwana aberekwe nguva isati yakwana. Kuberekwa nguva isati yakwana kune njodzi dzaro. Kunewo njodzi yekubviswa pamuviri kana kuberekwa akafa. Vana vane dambudziko iri vangada kurapwa kwemuviri uye kurapwa nebasa kwemakore, kana kusvika vajaira matambudziko ekushaya nhengo kana kukura zvakanaka.

Sei chirwere cheAmniotic Band (ABS) chichiitika? Ndezvipi zvikonzero?

Ongororo dzakawanda dzinoratidza kuti hapana chikonzero chakajeka uye chaicho cheizvi.Zvinofungidzirwa kuti zvinokonzerwa nekukuvara kwemukati meamnion (bhegi remvura rakakomberedza mwana). Zvimwe zvezvikonzero zvinogona kukonzera kukuvara kwebhegi remvura iri zvinosanganisira:

• Mimwe miedzo inoitwa panguva yekuzvitakura , senge Chorionic Villus Sampling (CVS) kana Amniocentesis. Izvi zvinosanganisira kubaya bhegi remvura netsono uye kutora sampuli yemvura kana tishu kubva kumwana. Zvisinei, hazviwanzoitiki kuti bvunzo idzi dzikuvadze.
• Kuvhiyiwa kwemwana asati aberekwa: Izvi zvinongoitwa chete muzviitiko zvakakomba, zvine njodzi kuhupenyu.

Zvisinei, mune dzimwe nguva chirwere che amniotic band syndrome, bhegi remvura harina kukuvara zvachose. Nokudaro, dzimwe nyanzvi dzinofunga kuti izvi zvinokonzerwa nedambudziko rekufamba kweropa mumuviri wemwana. Pamwe vamwe vacheche vane mukana wekusafamba zvakanaka kweropa nekuda kwesimba remajini.

Ndiani ari panjodzi huru yechirwere ichi?

Mikana yako yekuva nemwana ane chirwere ichi inogona kunge yakakwira zvishoma kana iwe:

• Kana uine mamwe matambudziko panguva yekuzvitakura.
• Kana uine chirwere chinonzi `(Vascular Ehlers-Danlos Syndrome)`.
• Kana uchisvuta panguva yekuzvitakura.
• Kana uri kushandisa mishonga yausina kunyorerwa pasina kurairwa nachiremba, kana kuti uri kutora mimwe mishonga panguva yekuzvitakura.

Unoona sei izvi chaizvo?

Chiremba anowanzoona chirwere ichi mushure mekunge mwana aberekwa, pavanenge vachiongorora mwana. Asi dzimwe nguva, zviratidzo zveizvi zvinogona kuonekwawo panguva yekuongorora kwe ultrasound panguva yekuzvitakura. Kuongororwa uku kunogona kuratidza mitsetse inokonzerwa nemabhandi akamanikana. Asi kazhinji, kuongororwa uku kunoratidza kuti nhengo dzemuviri hadzina kuoneka, kana kuti nhengo dzemuviri hadzina kukura zvakanaka.

Izvi zvinoonekwa nekukurumidza sei pascan?

Zviratidzo zve amniotic band syndrome dzimwe nguva zvinogona kuonekwa pakutanga kwemavhiki gumi nemaviri ekuzvitakura, asi zvakaoma zvikuru. Kazhinji, chiremba wako anoona zviratidzo zveizvi panguva yekuongorora muviri, uko kunoitwa mavhiki makumi maviri. Kana paine kusava nechokwadi, chiremba wako anogona kuraira mimwe miedzo, senge MRI (Magnetic Resonance Imaging).

Ndezvipi zvinorapwa izvi?

Kurapa kunowanzoitwa mushure mekunge mwana wako azvarwa. Rudzi rwekurapwa runoenderana nekuti tepi yacho yaive kupi uye kuti yaive yakasimba sei. Muzviitiko zvisina kuoma, kuongororwa kwakanyatsoitwa nachiremba ndiko chete kunodiwa.Asi kana chirwere chacho chakanyanya kukanganisa pfungwa dzemwana, chinofanira kurapwa nekukurumidza. Dzimwe nguva kuvhiyiwa kunogona kugadzirisa matambudziko akadai se clubfoot, cleft lip and palate, uye syndactyly. Vacheche nevana vane nhengo dzisina kana dzakapfupika vanogona kubatsirwa ne prosthetics. Kurapa nemuviri uye occupational therapy zvinogona kuvabatsira kushandisa nhengo idzi dzekugadzira uye kuvandudza mashandiro adzo.

Kashoma, chiremba anogona kuita nzira inonzi fetoscopy yekubvisa amniotic sac mwana achiri mudumbu. Chinangwa chekuvhiyiwa uku ndechekusunungura tight sac uye kudzivirira kukuvara kwakawanda. Zvisinei, nzira iyi inogona kukonzera njodzi huru kuhutano kuna amai nemwana. Izvi zvinowanzoitwa chete kana tight sac yacho yakanyanya zvekuti inogona kuisa hupenyu panjodzi.

Mwana anogona kurarama nechirwere ichi here?

Ehe, vacheche vazhinji vanorarama nechirwere ichi. Kuti vanorarama here kana kuti kwete zvinoenderana nezvinhu zvakaita sekuti tepi yacho yaive kupi uye kuti yaive yakasimba sei.

Mabhandi aya eAmniotic anopera here?

Kwete. Kazhinji , mavanga anokonzerwa nemabhandi emudumbu haabvi. Izvi zvinoenderana nekuti mabhandi acho apinda zvakadii paganda. Bvunza chiremba wako nezvekurapa kungaitwa marudzi aya emavanga.

Pane nzira yekudzivirira izvi here?

Hapana nzira chaiyo yekudzivirira amniotic band syndrome. Vanachiremba vanotenda kuti kazhinji zvinoitika zvisina tsarukano, pasina chikonzero.

Chii chatingafunga nezvenyaya iyi mune ramangwana? (Outlook)

Kune vacheche vane ABS isina kusimba, tarisiro yakanaka. Vana vanozvarwa vaine mamwe matambudziko emakumbo vanowanzo kwanisa kushandisa ma prosthetics uye zvirongwa zvekurapwa. Zvisinei, vacheche vane nhengo dzakakuvara zvakanyanya uye ropa shoma rinoyerera neparukuvhute havawanzopona. Inenge 1 pavana makumi manomwe vanozvarwa vakafa imhaka ye amniotic band syndrome.

Chii chaunofanira kuita kana mwana wako aine amniotic band syndrome?

Vana vane chirwere ichi vanoda rutsigiro rwakasimba uye kutarisirwa kwenguva refu.Vabereki, nhengo dzemhuri, uye vanachiremba vese vanofanira kushanda pamwe chete kuti vabatsire mwana wenyu kugadzirisa kuchinja kwechitarisiko nematambudziko ekushanda kwemuviri anokonzerwa nechirwere ichi. Mwana wenyu angangoda kuona nyanzvi dzakasiyana-siyana. Semuenzaniso, vanachiremba vemapfupa nenyanzvi dzetsinga (zvichienderana nekuti ndeapi nhengo dzemuviri dzakabatwa). Nhengo dzemhuri nevanin'ina vanogonawo kuwana rutsigiro mumapoka ekutsigira mhuri dzine vana vane chirwere ichi. Paunoona kuti mwana wako ane amniotic band syndrome, ungave nemibvunzo yakawanda nekutya. Chekutanga, yeuka kuti timu yako yezvekurapa iripo kuti ikubatsire iwe nemwana wako, kuti ikutarisire zvakanaka. Hunhu chaihwo hwechirwere chako hunoenderana nekuti tambo dzakasimba sei uye kuti dziri papi. Izvi zvinogona kureva kuti uchafanirwa kuongororwa kakawanda panguva yekuzvitakura kwako. Kana kuti ungangoda kuvhiyiwa mushure mekuzvarwa kwemwana, kugadziriswa kwenguva refu, kana kushandiswa kwemakumbo ekugadzira kuti udzorere mashandiro emuviri. Usatya kutaura nachiremba wako wekiriniki yepamberi pekusununguka kana timu yezvekurapa yemwana wako nezvechirwere ichi uye kuti chichakanganisa sei mhuri yako.

Mharidzo Yekupedzisira Yekuenda Kumba

Amniotic Band Syndrome chinhu chinotyisa zvikuru, asi zvakakosha kuti uzive nezvazvo.

• Iyi inyaya isingawanzoitiki.
• Kazhinji, izvi zvinoitika zvisina tsarukano, zvichireva kuti haisi mhosva yemunhu.
• Vana vazhinji vanoberekwa vaine chirwere ichi vanorarama zvakanaka kana vaine rubatsiro rwakanaka rwechiremba uye mhuri dzavo.
• Kana izvi zvikaonekwa panguva yekuzvitakura, zvichabatsira kuronga kurapwa kunodiwa kumwana.
• Kana muine kusava nechokwadi kana mibvunzo, iva nechokwadi chekutaura nachiremba wenyu. Vachakupai ruzivo rwese nerutsigiro rwamunoda. Musazvidya mwoyo, hamusi mega.