Panguva yakanaka kwazvo muhupenyu hwako, paunenge uri kuchikoro, pakoreji, uri mubasa rakanaka, uye uchirota kuva nemhuri, unogara uchirwadziwa nemusana nguva dzose, usinganzwisisike here? Pamwe kurwadziwa uku kunotanga muhudyu mako uye zvishoma nezvishoma kunofamba kumusana wako, kuchidzvanya mutsipa wako? Uku kunowanzova kutanga kwechirwere chinonzi Ankylosing Spondylitis (AS). Chinokanganisa vechidiki vazhinji vari kutanga hupenyu. Asi kune avo, pachinzvimbo chekurega hupenyu nekuda kwekurwadziwa uku, vanorwisa uye vanoita kuti zviroto zvavo zvizadzike. Nhasi tichataura nezvevanhu vashoma vakadaro.
'Ndinokoshesa kunyange zvinhu zvidiki izvozvi' - nyaya yaJake
Jake aive mutambi akanaka kuchikoro nekuchikoro. Saka pakutanga akati kurwadziwa kwake kwakanyanya uye kusingaperi kwakakonzerwa nekukuvara kwemitambo. Asi rimwe zuva, akanga achiteerera podcast pamusoro pezvirwere zve autoimmune.
"Zviratidzo zvataurwa ndizvo chaizvo zvandakagara ndiinazvo," anodaro Jake.
Zvichitaurwa zviri nyore , chirwere che autoimmune chinoitika apo masoja emuviri, ayo anofanirwa kuchengetedza miviri yedu, anotanga kurwisa masero emuviri wedu zvisirizvo. Ankylosing Spondylitis chimwe chezvirwere zvakadaro.
Mushure memavhiki maviri, Jake akaonekwa aine chirwere cheAS paakaona chiremba wemapfupa. Zvaifadza kuziva kuti chii chakakonzera kutambura kwake kwemakore akawanda, asi kurwadziwa kwacho kwakaramba kuripo. Mamwe mazuva, kurwadziwa kwacho kwairwadza zvekuti aifanira kuendeswa kuchipatara kashanu kana katanhatu panguva yesemester yake yekutanga yechikoro chemutemo.
Asi Jake haana kurega. Mumwe munhu aive papodcast akati akanzwa zororo guru paakachinja kuenda kukudya kwenyama chete. Jake akasarudza kuzviedza.
"Ndakatevedzera kudya kwacho nemazvo. Ndaingodya nyama nemvura chete. Zvinoshamisa kuti mushure mevhiki, kurwadziwa kwandakanzwa kwakanga kwaderera zvikuru. Ganda rangu rakanga ratsvuka nekuda kwekuzvimba, uye izvozvo zvakanga zvaperawo," anodaro Jake.
Asi hechino chimwe chinhu chakakosha chatinofanira kunzwisisa tese. Rudzi urwu rwekudya haruna kukodzera munhu wese. Hazvina kunaka kupinda muchinhu chakadai usina kutaura nachiremba wako. Nekuti unogona kupedzisira wava kushaisa muviri wako zvakawanda zvinovaka muviri zvaunoda. Saka , iva nechokwadi chekubvunza chiremba wako usati waita chero chinhu.
Jake aive nerimwe dambudziko. Marwadzo ake aiwedzera paaigara pachigaro mukirasi zuva rese. Saka akawanawo mhinduro yeizvozvo. Yaive tsika yekurovedza muviri yaaizvigadzirira iye.
- Mangwanani ega ega, ndinopedza maminitsi gumi nemashanu ndiri mudziva rinotonhora mvura inotonhora inosvika mumutsipa.
- Zvadaro, anotambanudza tsandanyama yake yepsoas, tsandanyama refu inotangira kumusana wake wepasi kusvika pachidya chake.
- Ndinoitawo yoga uye maekisesaizi ekufema zvakadzama.
"Ndakanga ndisingachakwanisi kufema zvakanaka kwenguva yakati. Ndakazongoona kuti pandakakwanisa kutambanudza tsandanyama dzangu zvishoma," anodaro Jake. "Zvinorwadza zvikuru pandinoita izvi zvekutambanudza. Asi zororo randinonzwa mushure mezvo rinopfuura kukosha."
Jake anoti kurarama nekurwadziwa hakusi nyore. Asi akunda dambudziko iroro, ava kufunga nezvehupenyu zvakasiyana. "Iye zvino ndinokoshesa kunyange nguva shoma yandinogona kupedza nemhuri yangu ndisingarwadziwe. Handichatoreri chero chinhu sechinhu chisingakoshi."
'Ndinofanira kuramba ndichienderera mberi' - nyaya yaJess
Jess mukadzi wechidiki anobva kuCanada. Aiva nemakore gumi nemasere ekuberekwa paakatanga kurwadziwa muhudyu yake yekurudyi nepamagaro ake paaiva parwendo neshamwari. Pakutanga, akafunga kuti imhaka yekuti akanga agara mumotokari kwenguva yakareba. Asi mushure memazuva mashoma, kurwadziwa kwacho kwakawedzera zvekuti akatadza kana kumuka pamubhedha.
Zvakatora makore mana vanachiremba kuti vazive kuti chii chaizvo chaiva naJess. Nekuti chirwere ichi hachiwanzoitiki kuvakadzi, dzimwe nguva chinogona kunge chiri chirwere chinoitika panguva yekunonoka. Jess akaora mwoyo zvikuru paaiedza kunzwisisa kuti chii. Asi paakaziva kuti chii, Jess akanzwa zororo guru.
Nhasi, Jess ari kutora mushonga waakanyorerwa nachiremba wekudzivirira kuzvimba kwake, uyo unovhara puroteni inonzi interleukin-17 (IL-17), iyo inokonzera kuzvimba mumuviri.
"Mushonga iwoyo unoshamisa zvechokwadi. Ndiri kungonzwa kurwadziwa vhiki imwe chete ndisati ndabaiwa jekiseni rinotevera," anodaro.
Jess akaona kuti nzira yakanakisisa yekurarama nemarwadzo aya ndeyekuita maekisesaizi.
"Ndakarasikirwa nemakore mana ehupenyu hwangu hweudiki nekuda kwekurwadziwa uye kusagona kufamba. Saka ndakazvivimbisa kuti kunyange ndichiri kukwanisa kufamba, ndaizoshandisa mukana uyu zvakanyanya," anodaro Jess.
Akabatana nechirongwa chekurovedza muviri nevanorapa muviri pachipatara uye iye zvino ava kukwanisa kurovedza muviri ari ega.
- Anoita maekisesaizi zuva nezuva kuti asimbise tsandanyama dzemusana wake wepazasi nedzepakati.
- Kuita maekisesaizi eyoga akadai sekuti 'child's pose', iyo inotambanudza musana.
- Kuedza kuchengetedza chimiro chakakodzera.
Asarudzawo kudya zvekudya zvinoderedza kuzvimba (muriwo, michero, hove, nzungu), kusasangana nevanhu vanoputa fodya, uye kurega kunwa doro zvachose.
"Ndinoziva kuti rimwe zuva musana wangu unogona kubatana zvachose, uye mushonga wangu unogona kumira kushanda. Asi ndinogara ndichizvibvunza kuti, 'Chii chimwe chandingaita?' Ndinozviudza kuti ndinofanira kuramba ndichienderera mberi, chaizvoizvo, nguva dzose ndichienderera mberi."
Vanhu ava vakashandisa nzira dzipi kudzora marwadzo?
Jake naJess vakashandisa nzira dzakasiyana dzekugadzirisa marwadzo avo. Ngatitarisei dzimwe dzacho patafura.
| Maitiro / Maitiro | Izvozvo zvinobatsira sei? | Ndiani akaishandisa? |
|---|---|---|
| Mishonga yakanyorwa nachiremba | Inodzora maitiro emakemikari mumuviri anokonzera kuzvimba nekurwadziwa. | Jess |
| Kurovedza muviri uye Kutambanudza | Inoderedza kuomarara kwemajoini netsandanyama, inowedzera kuchinjika, uye inovaka simba. | Jake naJess |
| Kurapa nechando | Inoderedza kuzvimba kwetsandanyama nekurwadziwa kwenguva pfupi. | Jake |
| Kuchinja mukudya | Kune vamwe, zviratidzo zvinogona kudzorwa nekuderedza zvikafu zvinozvimba ( kuburikidza nekurapwa chete ). | Jake naJess |
| Kuchinja kwemararamiro | Kudzivisa zvinhu zvinogona kuwedzera chirwere ichi, zvakaita sekusvuta fodya nedoro. | Jess |
Zvinhu zvaunogona kuita
Kana uine zviratidzo izvi, chinhu chekutanga chekuita kusatya woona chiremba ane hunyanzvi.Zvaizova nani kana ukaona chiremba ane ruzivo rwezvirwere zvemapfupa nemajoini (rheumatologist).
- Kuongorora chirwere nemazvo: Chinhu chakakosha kutanga waziva kuti chirwere chacho chii chaizvo.
- Kurapwa: Chiremba wako achakupa mishonga inoderedza marwadzo, mishonga inorwisa kuzvimba, kana mishonga yebhayoloji yakakodzera iwe.
- Kurapa muviri: Dzidza kuti ndeapi maekisesaizi uye kutambanudza muviri kwakakunakira iwe nekupa mazano kubva kuna chiremba wemuviri.
- Gara uchitaura nachiremba wako: Usati watanga maekisesaizi matsva, kudya, kana chimwe chinhu, taura nachiremba wako kuti uve nechokwadi chekuti zvakakunakira. Hazvisi zvese zvaunoona paindaneti zvingave zvakakunakira.
Chirwere cheAnkylosing Spondylitis idambudziko. Asi hachisi mugumo wehupenyu. Nekurapwa kwakakodzera, kurovedza muviri, uye mafungiro akanaka, iwewo unogona kudzora marwadzo aya uye kuzadzisa zviroto zvako.
Mharidzo Yekuenda Nayo Kumba
- Chirwere cheAnkylosing Spondylitis (AS) chirwere chaicho chinokanganisa musana nemajoini achiri mudiki. Hachisi chinhu chawakambofungidzira.
- Kana uchirwadziwa musana zvisinganzwisisike, kunyanya kana uchinzwa sekunge musana wako wakaoma paunomuka mangwanani, enda kuna chiremba nekukasika.
- Kuwana chirwere chakarurama ndicho danho rekutanga uye rinokosha pakurapa.
- Kuderedza marwadzo hakusi chinhu chimwe chete. Musanganiswa wemishonga, kurovedza muviri, kurovedza muviri, uye shanduko dzemararamiro.
- Kurovedza muviri kwakakosha kuti urarame nechirwere ichi, asi iva nechokwadi chekuti wataura nachiremba wako usati watanga maitiro matsva ekurovedza muviri.
- Hausi wega. Kune vanhu vazhinji vari kurarama zvakanaka uye vachifara nedambudziko iri. Saka ramba wakasimba.
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