Kana chiremba wako akakuudza iwe kana mwana wako kuti une chirwere chinonzi Hypophosphatasia (HPP), unogona kuudzwa kuti ushandise mushonga unonzi Asfotase alfa (Strensiq) semushonga. Zvakajairika kuti unzwe kutya uye kupererwa kana ukanzwa nezvemushonga uye kuti ungautora sei zuva nezuva. Asi usazvidya mwoyo. Munyaya ino, tichataura nezvemushonga uyu, mashandisirwo awo, uye zvekungwarira.
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Chii chinonzi Asfotase alfa (Strensiq) chaizvo?
Zvichitaurwa zviri nyore, izvi hazvina kufanana nemushonga watinowanzo shandisa. Muchirwere chinonzi Hypophosphatasia (HPP), pane kudzikira kana kurasikirwa kweenzyme inokosha pakukura kwakanaka kwemapfupa nemazino mumuviri wedu. Saka, Asfotase alfa mushonga unopa muviri enzyme iyoyo yakaderera kubva kunze. Uyu mushonga unodzora zviratidzo uye unokubatsira kurarama hupenyu hwakanaka, pane kurapa chirwere chose. Nemamwe mashoko, uyu mushonga unodzora chirwere, kwete mushonga.
Zvinhu zvekuudza chiremba wako usati watora mushonga uyu
Usati watanga kurapwa uku, unofanira kukurukura nyaya idzi nachiremba wako.
- Kana uine matombo muitsvo kana zvimwe zvirwere zvine chekuita neitsvo.
- Kana uine allergies kuAsfotase alfa kana chero imwe mishonga, chikafu, kana dhayi.
- Kana uine pamuviri kana kuti uchitarisira mwana .
- Kana uri amai vanoyamwisa .
Ruzivo urwu rwakakosha zvikuru kuti chiremba akupe kurapwa kwakakodzera uye kwakachengeteka.
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Check Availability →Nzira yekushandisa sei mushonga wekudzivirira chirwere nemazvo?
Jekiseni iri rinopihwa sejekiseni repasi pemuviri. Usavhunduke nazvo. Chiremba kana mukoti akadzidziswa achatsanangura zvakajeka nzira chaiyo yekukupa izvi. Saka uchawana kudzidziswa kunodiwa kusvika wagona kuzviita wega.
- Tora mushonga wakakodzera, panguva yakakodzera: Tora mushonga wakakodzera, panguva yakakodzera, sezvakarairwa nachiremba wako. Usambofa wakawedzera mushonga kana kuushandisa kakawanda kupfuura zvawakarairwa.
- Tsono nemasirinji akamboshandiswa: Izvi zvakakosha zvikuru. Usamborasa tsono nemasirinji akamboshandiswa mumarara. Pane mudziyo wakakosha wavanoisa, unonzi 'mudziyo unopinza.' Kana usina, bvunza chiremba wako kana nesi wako.
- Kushandiswa kwevana:Mushonga uyu unoshandiswa kuvana vadiki nevacheche kana zvataurwa nachiremba. Zvisinei, kune matanho akakosha ekudzivirira. Taura nachiremba wevana nezvenyaya iyi.
- Ko kana ukanwa mushonga wakawandisa? Kana ukatora mushonga wakawanda kupfuura zvaunofunga kuti unofanira, fonera National Poisons Information Centre kuColombo National Hospital nekukasika. Kana kuti enda kuEmergency Treatment Unit (ETU) yechipatara chiri pedyo.
- Ko kana ukarasikirwa nedosi? Kana ukarasikirwa nedosi, itore nekukurumidza sezvaunoyeuka. Zvisinei, kana yava nguva yekutora dosi yako inotevera, siya dosi yawakarasikirwa wotora dosi yako inotevera panguva yakatarwa. Usambofa wakatora dosi mbiri panguva imwe chete.
Mushonga uyu wakanyorerwa iwe chete. Usambougovana nemumwe munhu.
Ndezvipi zvingakonzera migumisiro yekutora mushonga?
Kufanana nemushonga upi zvawo, Asfotase alfa inogona kukonzera mimwe migumisiro yakaipa. Mimwe yacho yakakomba, asi mimwe inowanzoonekwa. Zvakakosha kuziva nezvazvo.
| Mhedzisiro yedivi | Tsananguro |
|---|---|
| Migumisiro yakakomba inofanira kutaurwa kuna chiremba wako nekukasika | |
| Kusawirirana kwemuviri | Zviratidzo zvakaita semapundu paganda, kuvaviwa, kuzvimba kwechiso, miromo, kana rurimi. |
| Ropa muweti | Kurwadziwa kwemudumbu kana kumusana, kurwadziwa pakuita weti, uye ropa muweti. |
| Kuchinja kwemaonero | Kuona kusina kujeka kana chero shanduko. |
| Fivha kana kutonhora | Fivha kana kutonhora pasina chikonzero. |
| Kurutsa | Kurutsa nguva dzose. |
| Migumisiro isingawanzova yakanyanya (asi inofanira kutaurwa kuna chiremba kana ikaramba iripo) | |
| Musoro, kuda kurutsa, kusagadzikana | Izvi zvinowanzouya zvoenda. |
| Kurwadziwa/kutsvuka panzvimbo yekubaiwa jekiseni | Kurwadziwa, mavanga, kutsvuka, kana kuzvimba panzvimbo yekubaiwa jekiseni. |
| Kukora kana kuti kukora kweganda | Kuramba uchibaya panzvimbo imwe chete kunogona kukonzera kuti ganda rikure kana kuti riite maburi. Saka, tenderedza nzvimbo yaunobaya. |
Nzira yekuchengetedza mushonga nemazvo sei?
Zvakakosha zvikuru kuchengeta mushonga uyu nemazvo.
- Chengeta mufiriji: Chengeta mabhodhoro emushonga asina kuvhurwa nguva dzose patembiricha iri pakati pe2 ne8 degrees Celsius, kureva kuti, munzvimbo yakajairika mufiriji.
- Usaomese: Usachengete mufiriji. Usarega mushonga wacho uchiomesese.
- Usazunza: Usazunza bhodhoro usati washandisa.
- Dzivirirai kubva kuchiedza: Chengetai chirongo chemushonga mubhokisi rayo kusvika nguva yekuchishandisa yasvika uye chidzivirire kubva kuchiedza.
- Mushure mekushandisa: Inofanira kushandiswa mukati meawa imwe chete mushure mekuibvisa mufiriji.
- Kana paine mushonga wasara: Kana paine mushonga wasara kubva mubhodhoro rakavhurwa, rasa. Uyewo, rasa mabhodhoro emishonga apera usingaashandise.
Mharidzo Yekuenda Nayo Kumba
- Asfotase alfa mushonga we enzyme weHypophosphatasia (HPP). Inodzora chirwere ichi, asi haichirape zvachose.
- Tevedzera mirairo yachiremba wako nemazvo. Inwa mushonga wakakodzera panguva chaiyo.
- Usapotsa nguva yekuenda kuna chiremba nezvimwe zvinhu zvakaita sekuongororwa ropa, kuongororwa kweitsvo, uye kuongororwa kwemaziso.
- Ziva migumisiro yakaipa (allergies, kuchinja kwemaonero, ropa muweti). Kana ukaona chimwe chezviratidzo izvi , taurira chiremba wako nekukasika.
- Chengeta mushonga uyu mufiriji nguva dzose, nemazvo. Usambogovana mushonga uyu nemumwe munhu.
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