Kana uine chirwere chinogara kwenguva refu, kana kuti chisingaperi, senge ATTR amyloidosis inoberekwa nevabereki, unoda timu yakakura yevanachiremba nenyanzvi dzehutano kuti vakubatsire kuchibata. Izvi zvinonyanya kuitika kune vanhu vane hATTR amyloidosis. Ichi chirwere chemajini. Chinoitika ndechekuti puroteni isina kujairika inonzi amyloid inoungana munhengo dzinokosha dzakadai semwoyo wako, itsvo, tsinga, uye ura. Saka, nekuti chirwere ichi chinokanganisa zvikamu zvakawanda zvemuviri wako, timu yako yehutano yehATTR ichave nenyanzvi dzakasiyana-siyana.
Ndiani ari muchikwata chenyu chekurapa che hATTR amyloidosis?
Ngatitarisei nyanzvi dzezvehutano dzinokosha dzichakubatsirai nezvehutano hwenyu. Pamwe chete, vachakubatsirai kugadzirisa mamiriro enyu zvakanaka.
Chiremba wetsinga
Mu hATTR, chirwere chinonzi peripheral neuropathy chinowanzoitika. Zvichitaurwa zviri nyore, uku kukuvara kwetsinga dziri mumaoko ako, tsoka, nemakumbo epasi. Unogona kuona zviratidzo zvakaita seizvi:
Sezvo chirwere ichi chichienderera mberi, tsandanyama dzako dzinogona kuoma uye kushaya simba, zvichiita kuti zviomere kufamba uye kuita chero chinhu chinoda hunyanzvi hwekufamba netsoka.
Chiremba wetsinga achaita bvunzo, dzakadai sebvunzo yekufambisa tsinga, kuti anyatsoongorora mashandiro etsinga dzako dzemumativi. Izvi zvichakubatsira kuona kana uine chirwere chetsinga uye kuti chakakomba sei.
Mishonga yakawanda inobvumirwa nehaTTR inogonawo kubatsira kurapa chirwere chako chetsinga. Chiremba wako anogonawo kunyora mimwe mishonga yekubatsira nekurwadziwa kwetsinga.
| Rudzi rwemishonga | Mienzaniso yemishonga |
|---|---|
| Kurapa kwakatenderwa kwe hATTR | Eplontersen (Wainua), Inotersen (Tegsedi), Patsiran (Onpattro), Vutrisiran (Amvuttra) |
| Mishonga yekurwadziwa kwetsinga | Amitriptyline, Duloxetine (Cymbalta), Gabapentin (Neurontin), Pregabalin (Lyrica) |
Chiremba wemwoyo
Chiremba uyu anorapa zvirwere zvemwoyo netsinga dzeropa. Vanhu vane hATTR vari panjodzi yakakura yezvirwere zvemwoyo. Izvi zvinodaro nekuti amyloid deposits inogona kuungana mumoyo. Izvi zvinogona kukonzera zvirwere zvinotevera:
Chinhu chinonyanya kukosha kuziva zviratidzo izvi uye kutsvaga rubatsiro rwechiremba nekukurumidza kana zvichidikanwa.
| Migumisiro inogona kuitika pamoyo | Tsananguro iri nyore |
|---|---|
| Kukundikana kweMwoyo Wakavharika | Mwoyo unoshaya simba uye mvura inoungana mumapapu nedzimwe nhengo dzemuviri. |
| Hypertrophic Cardiomyopathy | Kukora kwetsandanyama yemwoyo. |
| Chirwere chemwoyo cheCoronary | Kuvharika kwetsinga dzeropa dzinopa moyo. |
| Arrhythmia | Kurova kwemoyo kusina kurongeka. |
| Kusawirirana | Dzungu kana kufenda. |
Kana ukaonekwa uine hATTR, chiremba wemwoyo wako achaita bvunzo dzinoverengeka kuti aone kuti mwoyo wako uri kushanda zvakanaka sei. Izvi zvinogona kusanganisira echocardiogram , MRI scan, kufamba kwemaminitsi matanhatu, uye kuongororwa ropa. Kana moyo wako usina simba, uchapihwa mishonga yekurapa chirwere ichi, senge diuretics, munyu uye mvura, uye pamwe pacemaker .
Chiremba wemaziso
Kana uine hATTR, zvakakosha kuti uone chiremba wemaziso nguva nenguva. Inenge 20% yekuchinja kwemajini kunokonzera hATTR kunokanganisa maziso. Izvi zvinogona kukonzera zviratidzo zvakaita se:
- Zvidhori zvakasviba (kuona madotsi matema achiyangarara pamberi pemaziso)
- Maziso akaoma
- Glaucoma kana kuwedzera kwedzvinyiriro yemaziso
- Kusaoneka zvakanaka kwegirazi remaziso (kuvharika kwejeli rakajeka rinozadza bhora reziso)
- Dzimwe shanduko dzekuona
Kana zvichidikanwa, chiremba wemaziso ako anogona kuita oparesheni inonzi trabeculectomy kurapa glaucoma. Anogonawo kuita oparesheni inonzi vitrectomy kubvisa gel muziso.
Mupi wezano weMajini
Kana chiremba wako achifungidzira kuti une hATTR, achakutumira kuna chiremba wemajini . Vanogona kuongorora kushanduka kwemajini kunogona kukonzera chirwere ichi. Zvakare, kana mumwe munhu wemumhuri yako yepedyo (mubereki, mukoma kana munun'una, kana mwana) akaonekwa aine hATTR, unofanira kuongororwa zvechokwadi. Izvi zvinodaro nekuti nhengo dzemhuri yepedyo dzine mukana we50% wekugara nhaka kushanduka kwemajini uku. Mupi wemajini achakutsanangurira bvunzo idzi uye achakurukura newe kana mhinduro dzabuda.
Dzimwe nhengo dzinokosha dzechikwata chako chekurapa
Kuwedzera kune nyanzvi dzataurwa pamusoro apa, vamwe vanoverengeka vane basa rakakosha muhutano hwako.
| Nyanzvi | Vangakubatsira sei? |
|---|---|
| Chiremba wezvirwere zvetsinga | Vanhu vanosvika chikamu chimwe muzvitatu vane hATTR vanogona kuwana amyloid deposits muitsvo dzavo. Ungasafanira kuona nyanzvi iyi kusvika wava nezviratidzo zvechirwere cheitsvo. Chiremba wako wekutanga achaongorora mashandiro eitsvo dzako nekuongororwa kweropa kwegore negore ( serum creatinine ). Kana bvunzo idzi dzisina kujairika, uchatumirwa kuna chiremba wepfungwa. |
| Nyanzvi yeMafupa | Varwere vane hATTR vari panjodzi yakakura yekubatwa necarpal tunnel syndrome . Izvi zvinogona kukonzerwa nekuiswa kweamyloid muzvanza. Kurovedza maoko nemaoko zvinogona kukurudzirwa panguva yekurara. Muzviitiko zvakakomba, kuvhiyiwa kunogona kudiwa. |
| Chiremba wezvemuviri/webasa | hATTR inogona kuita kuti zviomere kufamba nekuita mabasa ezuva nezuva. Varapi vemuviri nevanorapa mabasa vanogona kukubatsira kuti mabasa aya ave nyore. Ongororo dzakaratidza kuti kusanganisa mishonga iyi nedzimwe nzira dzekurapa, dzakadai semishonga, kunogona kuunza mhedzisiro yakanaka. |
| Mupi weRubatsiro Rwekutanga | Kunyangwe ukaona nyanzvi dzakawanda, chiremba wemhuri yako kana chiremba wehutano hwepakutanga chikamu chakakosha chechikwata chako. Iye anogona kuita kuongororwa kwehutano hwako gore rega rega, kukurapa kana uchirwara, uye kuita se "mutungamiriri" wechikwata chako chehutano, achitaurirana nevamwe vanachiremba vese. |
Kazhinji, muchakwanisa kuwana mabasa ese aunoda panzvimbo yekurapa kana kuchipatara chikuru chinonyanya kurapa hATTR amyloidosis. Izvi zvinoita kuti zvive nyore kuti vanachiremba venyu vese vashande pamwe chete sechikwata. Taurai nachiremba wenyu wehutano hwekutanga nezvekugadzirisa kurapwa kwenyu.
Mharidzo Yekuenda Nayo Kumba
- HATTR amyloidosis chirwere chakaoma chinobata nhengo dzakawanda mumuviri, saka chinoda chikwata chevanachiremba vane hunyanzvi hwakasiyana kuti vachirape.
- Chikwata chenyu chezvekurapa chinogona kusanganisira nyanzvi munzvimbo dzakadai sezveuropi, zvemwoyo, zvemaziso, uye zveuropi.
- Chiremba wako mukuru (chiremba wemhuri) ndiye chinhu chikuru chinobatanidza timu yese iyi.
- Taura pachena nechikwata chako chezvekurapa nezvechirwere chako, kurapwa kwako, uye chero zvinokunetsa. Usatya kubvunza mibvunzo. Uri nhengo inoshanda yechikwata chako chezvekurapa.
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