Iwe kana mumwe munhu mumhuri yako ane chirwere cheSpinal Muscular Atrophy ( SMA ), chirwere chinokonzera kusasimba kwetsandanyama mumusana here? Kana zvakadaro, chiremba wako anogona kunge akakunyorera mushonga unonzi Risdiplam. Uyu mushonga wemvura waunotora. Saka, nhasi tichataura nezveRisdiplam (zita rechiratidzo: Evrysdi), mashandisirwo ayo, uye zvaangaita, nenzira iri nyore uye yakajeka.
Zvichitaurwa zviri nyore, mushonga werudzii uyu?
Risdiplam mushonga unoshandiswa kurapa varwere vane chirwere chinonzi Spinal Muscular Atrophy (SMA) . Unobatsira kudzora kupera simba kwetsandanyama dzemuviri zvishoma nezvishoma nekuda kweSMA.
Chinhu chinonyanya kukosha ndechekuti iyi haisi mushonga wechirwere, asi inobatsira kudzora zviratidzo uye kuvandudza hupenyu hwemurwere.
Vanachiremba vanogonawo kunyora mushonga uyu kune zvimwe zvirwere, saka kana muine mibvunzo, bvunzai chiremba wenyu nezvazvo.
Zvinhu zvaunofanira kuudza chiremba wako usati washandisa mushonga uyu
Usati watanga mushonga uyu, unofanira kuudza chiremba wako nezvenyaya idzi, sezvo zvichikosha zvikuru pakuchengetedza kwako.
- Tiudzei kana muine allergy neRisdiplam kana chero imwe mishonga, chikafu, kana dhayi .
- Kana uine pamuviri, kana kuti uchironga kuva nemwana munguva pfupi iri kutevera, iva nechokwadi chekuzvitaura.
- Kana uri amai vanoyamwisa, zivisa chiremba wako nezveizvi zvakare.
Zvichibva paruzivo urwu, chiremba wako achasarudza kana mushonga uyu wakakunakira iwe kana kuti kwete.
Ndingashandisa sei mushonga uyu chaizvo?
Sezvo mushonga uyu uri wemvura, unofanira kungwarira paunenge uchiushandisa. Uchawana mhedzisiro yakanaka chete kana ukaushandisa nemazvo.
- Uyu mushonga unonwiwa nemuromo. Inwa mushonga wacho sezvawakarairwa nachiremba wako.
- Kuti muyere mushonga, shandisai sirinji chaiyo inonwiwa nemushonga chete . Musashandise zvinhu zvakaita setiipuni kana makapu emushonga wekukicheni.
- Mushure mekudhonza huwandu hwemushonga musirinji, unofanira kuupihwa murwere mukati memaminitsi mashanu .
- Fungidzira kuti watora mushonga wacho musirinji woenda kunotora chimwe chinhu uye zvakatora anopfuura maminetsi mashanu. Kana izvozvo zvikaitika , rasa mushonga iwoyo wogadzira mushonga mutsva . Usape wekare.
- Nguva dzose tora mushonga uyu mushure mekudya .
- Inwa mvura mushure mekunwa mushonga.
- Iva netsika yekunwa mushonga wako panguva imwe chete zuva nezuva. Utore sezvaunenge waudzwa nachiremba wako.
- Usarega kutora mushonga uyu kamwe kamwe usina kurairwa nachiremba wako.
- Usarega mushonga uyu uchisvika paganda rako kana mumaziso ako. Kana ukauwana netsaona paganda rako, geza nzvimbo yacho nesipo nemvura zvakanaka. Kana ukapinda mumaziso ako, geza maziso ako nemvura zvakanaka.
- Mushonga uyu dzimwe nguva unopiwa kunyange kuvacheche, asi chete kana uchitarisirwa zvakanyanya nachiremba.
| Kana ukarasikirwa nedosi kana kuti ukatora yakawandisa | |
|---|---|
| Kana ukarasikirwa nedosi | Kana uchiyeuka mukati memaawa matanhatu kubva panguva yaunowanzo nwa piritsi rako, ritore nekukurumidza sezvaunoyeuka. Asi kana rapfuura maawa matanhatu , siya mushonga iwoyo zvachose wotora mushonga wako unotevera panguva yakatarwa. Usambofa watora mishonga miviri panguva imwe chete. |
| Kupfuura mwero wemushonga | Kana uchifunga kuti watora mushonga wakawandisa, fonera National Poisons Information Centre kuColombo National Hospital nekukasika. Kana kuti enda kuEmergency Treatment Unit (ETU) yechipatara chiri pedyo. |
Zvinhu zvekungwarira zvakanyanya kana uchitora mushonga
Paunenge uchishandisa mushonga uyu, ziva zvinhu izvi kuti uchengetedzeke iwe nemhuri yako.
Mimwe mishonga
Kana uri kutora mishonga yechirwere cheshuga, yakadai semetformin , udza chiremba wako . Zvakare, ipa chiremba wako runyorwa rwakakwana rwemishonga yese yauri kutora (kusanganisira mishonga yemamwe matambudziko, mavhitamini, mishonga yechivanhu, uye zvigadzirwa zvemiti). Udzawo chiremba wako kana uchisvuta kana kunwa doro, sezvo zvimwe zvinhu zvinogona kukanganisa mushonga uyu.
Kubata pamuviri nekubereka vana
Izvi zvakakosha zvikuru. Ndapota nyatsoteerera izvi.
- Kuvakadzi: Paunenge uchitora mushonga uyu uye kwemwedzi mumwe chete mushure mekurega mushongaDzivisa kubata pamuviri. Mushonga uyu unogona kukonzera kukuvara kukuru kumwana asati aberekwa. Kana uchifunga kuti ungave nepamuviri, taurira chiremba wako nekukasika.
- Kuvarume: Mushonga uyu unogona kuderedza huwandu hwembeu dzemurume mune vamwe varume, izvo zvinogona kuita kuti zviomere kuva nevana. Kana muine mibvunzo nezvekubereka kwenyu, taurai nachiremba wenyu.
Ndezvipi zvimwe zvingakonzerwa nemishonga iyi?
Kufanana nemishonga yese, Risdiplam inogona kukonzera mimwe migumisiro yakaipa, kunyange hazvo vasiri vese vanoiwana.
| Mhando dzemigumisiro yakaipa | |
|---|---|
| Migumisiro inofanira kuziviswa kuna chiremba nekukasika | |
| Kusawirirana kwemuviri | Zviratidzo zvakaita semapundu paganda, kuvaviwa, mapundu, kuzvimba kwechiso, miromo, kana rurimi. |
| Migumisiro isingawanzova yakakomba, asi inofanira kutaurwa kuna chiremba kana ikaramba iripo | |
| Matambudziko ekugaya chikafu | Kuzvimba, manyoka, kurutsa. |
| Zvimwe zvinhu zvakajairika | Kukosora, fivha, maronda emuromo, pahuro. |
Rondedzero iyi haina mimwe migumisiro yese. Kana ukaona chimwe chinhu chisingawanzoitika pamusoro peizvi, taura nachiremba wako nezvazvo futi.
Nzira yekuchengetedza mushonga uyu sei?
Kuti mushonga urambe wakanaka, unofanira kuchengetwa zvakanaka.
- Chengeta panzvimbo yakachengeteka iri kure nevana .
- Chengeta mushonga mufiriji . Asi usaomese . Usarega mushonga wacho uchiomese ...
- Mushonga wasvika.Chengeta mubhodhoro rekutanga.
- Mushure memazuva makumi matanhatu nemana ekuvhura bhodhoro, rasa mushonga wasara. Usaushandise.
Pepa reruzivo iri ingori pfupiso chete. Kana muine mimwe mibvunzo nezvemushonga uyu, ndapota musazeza kuikurukura nachiremba wenyu.
Mharidzo Yekuenda Nayo Kumba
- Risdiplam mushonga weSMA, asi hausi mushonga wechirwere ichi.
- Shandisa sirinji yakakosha chete yakapihwa kuyera mushonga, uye jekiseni mukati memaminitsi mashanu mushure mekuubvisa.
- Nguva dzose tora mushonga mushure mekudya.
- Dzivisai kurega kushandisa mushonga musina kurayirwa nachiremba wenyu.
- Dzivisa kubata pamuviri paunenge uchitora mushonga uye kwemwedzi mumwe chete mushure mekurega. Varume vanofanirawo kutaura nachiremba wavo nezvekushaya mbereko.
- Chengeta mushonga wacho mufiriji, uvhure, wourasa mukati memazuva makumi matanhatu nemana.
- Kana uine matambudziko kana kusava nechokwadi, usambozeza kutaura nachiremba wako.
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