Minwe yemwana wako mudiki ipfupi here kana kuti yakabatana? Ngatitaurei nezveSymbrachydactyly.

Ko, mwana wako akazvarwa aine minwe mipfupi kana kuti yakasanganiswa here? Zvakajairika kuti iwe saamai unzwe kusuruvara uye kutya zvikuru paunoona izvi. Isu tinoti chirwere ichi `(Symbrachydactyly)`. Kunyange zvazvo zita racho ringanzwika serisinganzwisisike, kana wangoriziva zvakanaka, kutya kwako kuchaderera zvikuru. Ngatitaurei nezveizvi zvakadzama, handiti?

Chii ichi (Symbrachydactyly)? Ngatizvinzwisise zviri nyore!

Zvichitaurwa zviri nyore, `(Symbrachydactyly)` chirwere chinowanikwa pakuzvarwa . Apa ndipo apo minwe yemwana (uye dzimwe nguva zvigunwe, asi kazhinji maoko) haakure zvakanaka. Izvi zvinoreva kuti minwe inogona kunge iri mipfupi pane yakajairwa, kana kuti minwe miviri kana mitatu inogona kusanganiswa, kana dzimwe nguva mimwe minwe inogona kunge isipo zvachose. Izvi zvinogona kukanganisa chitarisiko cheruoko pamwe nekushanda kwarwo.

Ingofunga kuti minwe yedu mishanu inotibatsira nezvinhu zvingani. Kubata chimwe chinhu chidiki, kunyora, kudya, zvese. Saka, mwana anozvarwa aine chirwere ichi angaomerwa zvishoma kuita zvinhu izvozvo. Asi musazvidya mwoyo, nekurapwa kwepamusoro kuripo nhasi, chirwere ichi chinogona kugadziriswa zvakanyanya.

Chirwere ichi (Symbrachydactyly) chakajairika zvakadii?

Ichi chirwere chisingawanzoitiki . Pasi rose, mwana mumwe chete pavana 32,000 vanoberekwa gore rega rega ndiye anobatwa nechirwere ichi (Symbrachydactyly). Saka, iri harisi dambudziko rako chete, uye hariwanzoitiki.

Symbrachydactyly inokanganisa sei muviri wemwana?

Mhedzisiro huru iri pakushanda uye chitarisiko cheruoko . Nekuda kwezvikanganiso zviri muminwe, zvinogona kuoma kuti mwana abate zvinhu uye aite mabasa emaoko. Uyewo, chitarisiko cheruoko chingave chakasiyana nechanza chemazuva ese.

Asi zvakakosha kuziva kuti kazhinji chirwere ichi chinokanganisa ruoko rumwe chete (`(Unilateral)`) . Kashoma kuti chibate maoko ese ari maviri.

Vanachiremba vanopatsanura chirwere ichi (Symbrachydactyly) mumhando huru ina. Ngatitaurei zvishoma nezvemhando idzodzo.

Ndeapi marudzi makuru e (Symbrachydactyly)?

Kupatsanurwa uku kwakavakirwa pamhando yekukanganiswa kweminwe.

1. Kubatana kweminwe mipfupi (Type 1):

Murudzi urwu, mwana anogona kunge aine chigunwe chikuru neminwe mina. Zvisinei, minwe iyi mipfupi pane yakajairwa . Mamwe mapfupa ari mumajoini eminwe (`(Phalanges)`) anogona kunge asipowo.

2. Oligodacylic symbrachydactyly (Rudzi rwechipiri):

Muchiitiko ichi, mwana anogona kunge aine chigunwe chikuru uye munwe mudiki, asi chigunwe chepakati chiri pakati pavo chingave chisipo kana kuti chingasakure zvakanaka . Dzimwe nguva izvi zvinogona kutaridzika se "ruoko rusina kupatsanurwa".

3.Monodactyly symbrachydactyly (Rudzi rwechitatu):

Sezvinoratidzwa nezita racho, murudzi urwu rwechirwere, mwana ane munwe mumwe chete wakakura zvakakwana (kazhinji chigunwe chikuru) . Mimwe minwe mina inogona kunge iri mapundu madiki (`(Zvasara kana kuti nubbins)`) kana zvikamu zvakakura zvishoma. Izvi zvinoreva kuti zvinhu zvakaita semapfupa netsandanyama hazvina kuumbwa zvakanaka.

4. Nyora pasina minwe (`(Peromelic symbrachydactyly - Type 4)`):

Iyi ndiyo nyaya yakanyanya kuoma. Muchiitiko ichi , hapana chigunwe chikuru kana chimwe chezvigunwe chichakanganiswa .

Hazvina mhosva kuti mwana wako ane rudzii rwechirwere, vanachiremba vachamuongorora pakuzvarwa kwake. Vangangokutumira kuna chiremba wevana vanovhiya maoko .

Ndezvipi zviratidzo zve (Symbrachydactyly)?

Chiratidzo chikuru chechirwere ichi ndechekuti minwe yemwana inopfupikiswa, inosanganiswa pamwe chete, kana kuti haipo pakuzvarwa . Izvi zvinowanzoonekwa kune rumwe rutivi.

Nekuda kwehurema hweminwe iyi, panogonawo kuva nekusarongeka mumatishu anotevera:

• Mapfupa (`(Mapfupa)`)
• Tsandanyama (`(Tsandanyama)`)
• Mitsetse
• Misungo
• Tsinga (`(Tsinga)`)

Chii chinokonzera Symbrachydactyly?

Kutaura zvazviri, chikonzero chaicho che `(Symbrachydactyly)` hachisati chawanikwa . Dzimwe nyanzvi dzinofunga kuti zvinogona kunge zvichikonzerwa nechirwere chinonzi `(Vascular dysgenesis)` chinokanganisa kufambiswa kweropa mumaoko emwana mwana achiri kukura mudumbu. Izvi zvinoreva kuti kana ropa risina kufamba zvakanaka, zvikamu zvemaoko hazvikure zvakanaka.

Chinhu chakakosha ndechekuti ichi hachisi chirwere chemajini kana kuti dambudziko renhaka. Izvi zvinoreva kuti mwana anogona kuva nacho kunyangwe vabereki vese vasina kuva nacho, uye munhu ane chirwere ichi haazochipfuudza kuvana vake. Izvi zvinoitika netsaona. Saka, usazvidya mwoyo wofunga kuti, "Ndini here ndinokonzera dambudziko iri?"

Nzira yekuongorora chirwere (Symbrachydactyly) sei?

Kazhinji, vanachiremba vanogona kuona chirwere ichi mwana achangoberekwa . Vanogona kuona kana chiri ``Symbrachydactyly`` uye, kana zvakadaro, rudzii, nekutarisa shanduko dziri mumaoko emwana.

Dzimwe nguva, chirwere ichi chinogona kuonekwa nekukurumidza panguva yekuongororwa kweultrasound (`(Prenatal ultrasound)`) kwaunowana panguva yekuzvitakura.

Kurapa kusati kwatanga, X-ray inogona kuitwa kuti ionekwe mamiriro emapfupa ari muruoko rwemwana.

Ndezvipi zvinorapwa (Symbrachydactyly)?

Kazhinji, mushonga mukuru weSymbrachydactyly kuvhiyiwa.Zvisinei, havasi vana vese vanoda kuvhiyiwa, uye mhando yekuvhiyiwa inodiwa inosiyana kubva pamwana mumwe kuenda kune mumwe, zvichienderana nerudzi rwechirwere chacho.

Kurapwa nekuvhiyiwa

Kazhinji, vanachiremba havakurudziri kuvhiyiwa kusvika mwana ava negore rimwe kana maviri , nekuti panguva iyoyo, nyama dzemwana dzinenge dzakura zvishoma uye dzava kukwanisa kumira pakuvhiyiwa.

Chinangwa chikuru chekuvhiyiwa ndechekudzorera ruoko rwemwana pakushanda kwarwo kwakajairika uye chitarisiko charwo . Dzimwe nguva, kuvhiyiwa kamwe chete kungasakwana, uye kuvhiyiwa kakawanda kungadikanwa.

Panguva yekuvhiyiwa, vanachiremba vanogona kushandisa ganda rinovhara kana mamwe matishu kubva muruoko kuvhara mipata iri pakati peminwe, kana kuedza kupatsanura minwe. Izvi zvinoita kuti zvive nyore kuti mwana abate zvinhu uye kushandisa maoko ake.

Mune zvimwe zviitiko zvakakomba, kunyanya kana minwe isipo zvachose, kunewo nzira inonzi ``Toe transfer`` apo chigunwe chinotorwa kubva mutsoka yemwana woiswa muruoko . Paunonzwa izvi, ungatya, "Ko chii chichaitika kugumbo?" Asi, usazvitya. Kunyangwe chigunwe chikatorwa kubva mutsoka nenzira iyi, mwana haazoomerwi kumira, kufamba, kumhanya, kana kusvetuka. Zvisinei, mashandiro eruoko achawedzera zvakanyanya.

Chiremba wevana achakutsanangurirai zvakadzama kuti mwana wenyu anofanira kuvhiyiwa rudzii uye kuti chii chamunotarisira mushure mezvo. Muzviitiko zvakadaro, zvakakosha kurapa mwana achiri mudiki, asati akura zvakakwana.

Kurapa kusiri kwekuvhiya

Vamwe vana vanobatsirwawo nekurapwa pasina kuvhiyiwa vasati vavhiyiwa kana kuti mushure mekuvhiyiwa.

• Kupfeka chisungo chekusimbisa kana chibato chekusimbisa: Kupfeka izvi kunogona kubatsira kurebesa nekusimbisa minwe iri paruoko rwako.
• Kugadzira Zvishandiso: Vamwe vana vanogona kushandisa ruoko rwekugadzira kuti vabate zvinhu uye vaite mabasa.
• Kurapa nemuviri: Mushure mekuvhiyiwa, kurapwa nemuviri kwakakosha zvikuru kudzidzisa mwana wako kushandisa ruoko rwake zvakanaka. Izvi zvinosimbisa tsandanyama dziri muruoko uye zvinowedzera kufamba-famba.

Taura nachiremba wako kuti usarudze kuti ndeipi mishonga yakanakira mwana wako.

Zvinotora nguva yakareba sei kuti munhu apore kubva pakuvhiyiwa (Symbrachydactyly)?

Izvi zvinoenderana nerudzi rwekuvhiyiwa kwemwana wako. Chiremba wako kana chiremba wevana achakupa mirairo yekuti ungachengeta sei ruoko rwemwana wako mushure mekuvhiyiwa. Zvakakosha kutevedzera mirairo iyoyo nemazvo.

Ndingadzivirira sei Symbrachydactyly?

Kutaura chokwadi, hapana chaungaita kudzivirira chirwere ichi (Symbrachydactyly) kuti chisaitike panguva yekuzvitakura kwako. Nekuti, sezvatakambokurukura, hapana chikonzero chaicho chakawanikwa.

Zvisinei, kazhinji, pane zvimwe zvinhu zvinowedzera njodzi yekuzvarwa uine hurema. Zvakanakisisa kudzivirira zvinhu izvi panguva yekuzvitakura:

• Kunwa doro.
• Kusvuta kana kushandisa zvimwe zvigadzirwa zvefodya.
• Kushandisa zvinodhaka senzira yekuzorora.

Taura nachiremba wako kuti akupe mazano ezvekudya kana zvekunwa panguva yekuzvitakura.

Kana mwana wangu aine Symbrachydactyly, chii chandinofanira kutarisira?

Kunyangwe mwana wako akaonekwa aine chirwere ichi (Symbrachydactyly), chirwere ichi hachizokanganisi kukura kwemwana kana kukura kwepfungwa . Izvi zvinoreva kuti mwana wako achakura zvakanaka uye achafara sevamwe vana.

Zvisinei, kana chimwe chirema chekuzvarwa nacho kana chirwere chikaonekwa pamwe chete neSymbrachydactyly, mwana wako angangoda kurapwa kana kutarisirwa kumwe. Chiremba wako achakutsanangurira izvi.

Ndinofanira kuona chiremba rini?

Kana mukaona shanduko dziri kuitika mumaoko emwana wenyu, taurai nachiremba wenyu nezvazvo. Kunyanya kana akambovhiyiwa, tsvagai chero zviratidzo zvinotevera panzvimbo yekuvhiyiwa:

• Kubuda ropa.
• Kuchinja kweruvara (bhuruu, kutsvuka).
• Kuzvimba.
• Kubuda kwehurwa kana chimwe chinwiwa.
• Kana mwana achiita seari kurwadziwa kana kuti asina kugadzikana zvakanyanya.

Kana ukaona chimwe chinhu chakadai, enda kuna chiremba nekukasika.

Mibvunzo ipi yandinofanira kubvunza chiremba?

Bvunza chiremba wako nezvemibvunzo kana zvinokunetsa. Semuenzaniso:

• Mwana wangu ane rudzii rweSymbrachydactyly?
• Anofanira kuvhiyiwa rudzii?
• Kuvhiyiwa kungani kuchadiwa?
• Anofanira kuvhiyiwa pazera ripi?
• Mwana wangu achada kurapwa nemuviri here kana mamwe marapirwo asingashandiswi pakuvhiyiwa?

Zvakakosha kuti iwe nemwana wako mubvunze mibvunzo yakaita seiyi uye munzwisise zvese zvakajeka.

Pakupedzisira, zvinhu zvekurangarira (Mharidzo Yekuenda Kumba)

Symbrachydactyly chirwere apo minwe yemwana inopfupikiswa kana kusanganiswa pamwe chete pakuzvarwa. Izvi zvinogona kukanganisa kugona kwemwana kushandisa maoko ake kwehupenyu hwake hwese. Zvisinei, kuzvarwa aine hurema hwemaoko hazvirevi kuti mwana wako haazofari uye achava neutano hwakanaka.

Kuvhiyiwa kunowanzo dikanwa kuti ruoko rushande zvakanaka. Mushure meizvozvo, zvinhu zvakaita sekurapa kwemuviri zvinogona kudiwa kuti ruoko rushande zvakanaka. Zvisinei, chirwere ichi (Symbrachydactyly) hachikanganisi kukura kana kukura kwepfungwa kwechimwe chikamu chemuviri wemwana.

Mwana wako achadzidza kubata nyika nenzira yake, sezvinoita chero mwana upi zvake. Rudo rwako, rutsigiro, uye kurudziro ndizvo zvinonyanya kukosha kwaari.

Kana uchida kuziva zvakawanda nezvenyaya iyi, usatya kutaura nachiremba wako. Vachakubatsira padanho rega rega.

'Symbrachydactyly, urema hwekuzvarwa nahwo, kuremara kwemaoko, kurovera minwe, kukwenya minwe, hutano hwemwana, kuvhiyiwa