Ngaba ugqirha wakho ukunike inaliti ekhethekileyo yokulawula ukopha ngequbuliso kuwe okanye kwilungu losapho? Usenokuba udidekile kancinci ngegama. Kodwa ungakhathazeki. Sithetha ngaloo mayeza namhlanje. Adla ngokusetyenziswa ukulawula ukopha kwimeko engaqhelekanga ebizwa ngokuba yi -Acquired Hemophilia A. Masithethe ngayo ngokulula nangokucacileyo.
Yintoni i-Acquired Hemophilia A?
Ngamafutshane, le yingxaki kwinkqubo yokujiya kwegazi emzimbeni wethu. Ngokwesiqhelo, xa senzakele, igazi lethu liyajiya kwaye liyeke ukopha. Oku kuncedwa ziiproteni ezikhethekileyo egazini lethu, ezifana neFactor VIII .
Nangona kunjalo, kwi-Acquired Hemophilia A, inkqubo yethu yokuzikhusela yomzimba iqala ngempazamo ukuhlasela le protein ebizwa ngokuba yiFactor VIII. Sikwabiza la ma -antibodies . Oku kunciphisa amandla egazi okujiya, kwaye ngamanye amaxesha kukhokelela ekuphumeni kwegazi okugqithisileyo ngaphandle kwesizathu okanye nokuba kukwenzakala okuncinci. Oku akufani ne-congenital hemophilia, kodwa yimeko enokwenzeka nangaliphi na ixesha ebomini.
Ngoko ke olu gonyo (i-OBIZUR) lusebenza njani?
Ngoku uyaqonda ukuba ingxaki kukuba ii-antibodies zethu zihlasela iFactor VIII yethu. Ngoko ke oogqirha banika olu gonyo lukhethekileyo njengesisombululo sale nto.
Nangona igama leli yeza lide, oko likuthethayo kubaluleke kakhulu:
- I-Antihemophilic Factor: Oku kuthetha into elwa nemeko ye-hemophilia, okanye ekhuthaza ukujiya kwegazi.
- Ulandelelwano lweehagu: Le yinto ekhethekileyo. Igama elithi "Porcine" lithetha into enxulumene neehagu. Olu gonyo lwenziwe ngendlela efana nolandelelwano lwe-blood clotting factor yeehagu. Kutheni lwenziwa ngolo hlobo? Kuba, nangona ii-antibodies emzimbeni wethu ziqonda kwaye zihlasela i-human Factor VIII, aziqondi ulwakhiwo olufana nolu lwehagu. Ke ngoko, zinokunceda inkqubo yokuqhekeka kwegazi ngaphandle kokuyihlasela.
- I-Recombinant: Oku kuthetha ukuba iyeza alifumaneki ngqo kwizilwanyana, kodwa lenziwa kwilabhoratri kusetyenziswa i-biotechnology (iteknoloji ye-recombinant DNA) ngendlela ecocekileyo nekhuselekileyo.
Ngamafutshane, into eyenziwa lolu gonyo kukulawula ukopha kakhulu ngokubonelela ngento ekufuneka umzimba wakho uyijije ngaphandle kokuchaphazeleka zii-antibodies.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba usebenzise eli yeza
Ngenxa yokuba eli liyeza elikhethekileyo, kubaluleke kakhulu ukwazisa ugqirha wakho ngembali yakho epheleleyo yezonyango ngaphambi kokuba uqale unyango.
| Oko kufuneka ukwazi | Kutheni kunjalo? |
|---|---|
| Ii-aleji | Qiniseka ukuba uxelela ugqirha wakho ukuba une-allergy kweli yeza, iproteni yehagu, iproteni yehamster (esetyenziswa ekwenzeni amanye amayeza), okanye naliphi na elinye iyeza, ukutya, okanye idayi. |
| Ukukhulelwa okanye ukuncancisa | Kubaluleke kakhulu ukwazisa ugqirha wakho ukuba ukhulelwe, uzama ukukhulelwa, okanye uncancisa. |
Ulisebenzisa njani eli yeza?
Eli asiloyeza oliginya njengepilisi eqhelekileyo. Eli liyeza lokujova ngemithambo yegazi . Olu nyango ludla ngokwenziwa esibhedlele okanye ekliniki ngugqirha okanye umongikazi oqeqeshiweyo. Oku kungenxa yokuba kufuneka ujongwe ngokusondeleyo ngelixa unyango lunikwa.
Kunqabile kakhulu ukuba abanye abaguli bayalelwe ukuba bafumane olu gonyo ekhaya. Ukuba kunjalo, uya kufundiswa indlela yokululungiselela nokulufaka ngokufanelekileyo. Ungaze uthathe ngaphezu kokuba ugqirha ekuyalele okanye uthathe amayeza ngaphambi kwexesha elimiselweyo.
Yintoni omawuyenze ukuba umthamo weyeza unyusiwe?
Ukuba ucinga ukuba uthathe ngaphezu kwedosi emiselweyo, fowunela ngokukhawuleza iZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo okanye uye kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane.
Kuthekani ukuba ndiphoswa yidosi?
Kubaluleke kakhulu ukuthatha idosi ngexesha ngeli xesha lonyango. Ukuba uphoswe yintlanganiso esibhedlele, fowunela ugqirha wakho ngoko nangoko ukuze akunike iingcebiso. Ukuba uthatha iyeza ekhaya, thatha idosi ephosiweyo ngokukhawuleza xa ukhumbula. Nangona kunjalo, ukuba sele kusondele ixesha ledosi elandelayo, yeka idosi ephosiweyo uze uthathe idosi elandelayo ngexesha elicwangcisiweyo. Musa ukuthatha idosi ephindwe kabini nangasiphi na isizathu.
Izinto ekufuneka ziqwalaselwe ngexesha lonyango
- Uvavanyo lweGazi: Ngelixa usebenzisa eli yeza, ugqirha wakho uya kuyalela uvavanyo lwegazi rhoqo ukujonga ukuba lisebenza kakuhle na, indlela igazi lakho elijiya ngayo, kunye nokuba umzimba wakho wenza ii-antibodies ezintsha ezichasene na eli yeza. Kubaluleke kakhulu ukuba ungaluphosi olu vavanyo.
- Ukuhlolwa kwezonyango: Ngelixa usesibhedlele, abasebenzi bezonyango baya kukubeka esweni ngokusondeleyo. Baza kuhlala bejonga iimpawu zokopha kunye neempendulo ze-allergy.
- Isazisi sezonyango: Ukuba une-hemophilia, kubaluleke kakhulu ukuba uhlale uphethe ikhadi lesazisi sezonyango okanye isongo/itsheyini echaza imeko yakho, amayeza owasebenzisayo, idosi, kunye namaxesha okufumana unyango. Inokukunceda usindise ubomi bakho xa kukho imeko engxamisekileyo.
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengalo naliphi na iyeza, eli yeza linokubangela iziphumo ebezingalindelekanga, nangona kungengabo bonke abantu abazifumanayo. Ukuba ufumana naziphi na kwezi mpawu zilandelayo, xelela ugqirha wakho okanye umongikazi wakho ngokukhawuleza.
| Uhlobo lwesiphumo esibi | Iimpawu |
|---|---|
| Iimpendulo Ezinzima Zokwaliwa Yi-Allergic | Ukurhawuzelela kwesikhumba, ukurhawuzelela okanye ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi okanye umqala, ubunzima bokuphefumla. Ezi zinokuba zimbi kakhulu kwaye kufuneka zixelwe ngoko nangoko. |
| Uphuhliso lwezithinteli | Ukuba awukwazi ukulawula ukopha kwegazi emva kokuba usele iyeza, oko kuthetha ukuba umzimba wakho usenokuba uqalile ukwenza ii-antibodies ezichasene neli yeza. Xelela ugqirha wakho ngale nto. |
Ukuba ufumana naziphi na ezinye iimpawu ezingaqhelekanga ezingakhankanywanga kolu luhlu, thetha nogqirha wakho ngazo.
Ukusebenzisana namanye amayeza
Amanye amayeza owasebenzisayo asenokudibana nalo mgonyo, ingakumbi iFactor VIIa.Kufuneka ulumke kakhulu xa usebenzisa oku kunye namanye amayeza okunciphisa igazi, afana nala:
Ngoko ke, nika ugqirha wakho uluhlu olupheleleyo lwamayeza owasebenzisayo (amayeza kagqirha, iivithamini, amayeza emifuno, kunye nezongezo). Kwakhona, xelela ugqirha wakho ukuba uyatshaya okanye usela utywala.
Umyalezo Wokuya Ekhaya
- Olu gonyo lusetyenziselwa ukulawula ukopha kakhulu kwimeko engaqhelekanga ebizwa ngokuba yi-Acquired Hemophilia A.
- Olu lunyango olukhethekileyo olufakwa emthanjeni, oludla ngokwenziwa esibhedlele.
- Qiniseka ukuba uxelela ugqirha wakho ngazo zonke izinto ezikubangela ukuba ungabi namdla kunye nazo zonke ezinye iziyobisi ozisebenzisayo.
- Ukuba ufumana iimpawu ezinzulu zokunganyamezelani komzimba (ukurhawuzelela kwesikhumba, ukudumba, ubunzima bokuphefumla), funa ingcebiso kagqirha ngoko nangoko.
- Musa ukulibazisa uvavanyo lwegazi kunye neendibano ezichazwe ngugqirha wakho.
- Eli yeza lelakho kuphela. Ungaze wabelane ngalo nabanye abantu. Ukuba unemibuzo, thetha nogqirha wakho.
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