Ingaba umntwana wakho omncinci unengxaki yokuhamba? Ngaba ubonakala ngathi akakwazi ukulinganisela kakuhle? Makhe sithethe ngale nto (i-Ataxic Cerebral Palsy)!

Ngamanye amaxesha usenokuba uqaphele ukuba umntwana wakho omncinci uyaxengaxenga xa ehamba, okanye xa usolula isandla sakhe ukuze ubambe into ethile, isandla sakhe sibonakala sihamba kancinci. Usenokuba ukhe wacinga, "Owu, umntwana wam uyamangalisa." Kuqhelekile ukuba umama okanye utata azive esoyika kakhulu xa ebona izinto ezinje. Kodwa kusenokuba kukho isizathu sezonyango emva kwako konke oku. Yiyo loo nto `(Ataxic Cerebral Palsy)` iyiyo.

Yintoni ke le (i-Ataxic Cerebral Palsy)?

Ngamafutshane, `(Ataxic Cerebral Palsy)` yimeko eyenza iintshukumo zabantwana bethu zingazinzi, kwaye ibangele ubunzima ngokulinganisela kunye nokulungelelanisa. Ngamanye amaxesha inokuchaphazela "ukuqonda okunzulu" komntwana wakho. Oko kukuthi, ukukwazi ukuqonda ukuba into inkulu kangakanani kwaye ikude kangakanani nayo. Khawuthelekelele, umntwana wakho uyalula isandla sakhe ukuze athathe ithoyizi, kodwa isandla sakhe asiyi ngqo kuyo, kodwa endaweni yoko siyahamba siye phambili nangasemva. Oku kwenzeka kuba imiyalezo ekufuneka isuke engqondweni iye esandleni ayihambi ngqo nangexesha elifanelekileyo. Oko kukuthi, le meko yenzeka xa kukho ukuphazamiseka kwiindlela (`(iindlela zobuchopho)`) ezilawula izihlunu kunye neentshukumo ezivela engqondweni. Oku ngamanye amaxesha sikubiza ngokuba yi`(Ataxia)` kunyango.

Ingaba le meko ixhaphake kakhulu?

Enyanisweni, i-"Ataxic Cerebral Palsy" lolona hlobo lungaqhelekanga lwe-"Cerebral Palsy". Ngaphantsi komnye kubantu abalishumi abafunyaniswe benesifo se-"Cerebral Palsy" abanalo olu hlobo lwe-"Ataxic". Ngoko ke, sisifo esingaqhelekanga.

Zithini iimpawu zale meko (i-Ataxic Cerebral Palsy)?

Ngoku makhe sijonge ukuba zeziphi iimpawu onokuzibona kumntwana onesi sifo. Ezi zinokwahluka kancinci ukusuka komnye umntwana ukuya komnye, kodwa ezona mpawu zixhaphakileyo zezi:

• Ukungcangcazela: Usenokungcangcazela kancinci ezandleni nasemilenzeni, nokuba umi bhuxe okanye xa uzama ukwenza into ethile.
• Ubunzima bokwenza iintshukumo ezichanekileyo: Khawuthelekelele uzama ukufikelela kwikomityi etafileni, kodwa isandla sakho asifikeleli kakuhle kuyo, okanye uzama ukuyifikelela kwindawo engafanelekanga.
• Ukulungisa ngokugqithisileyo: Njengoko bekutshiwo ngaphambili, xa uzama ukufikelela kwinto ethile uze wenze impazamo, uhambisa isandla sakho phambili nangasemva ngaphezu kokuba kuyimfuneko ukuze uyilungise.
• Ubunzima bokwenza iintshukumo ezifuna ukulungelelaniswa: Umzekelo, unokufumana ubunzima kwimisebenzi efana nokuqhwaba izandla okanye ukubhala, njengoko oku kufuna ukulungelelaniswa kakuhle kwezandla neminwe.
• Ukungahambi kakuhle kunye nokulahlekelwa kukulinganisela: Usenokuziva ungaqinisekanga xa uhamba, kwaye usenokuziva ngathi uza kuwa.
• Ukuhambahamba okubanzi: Xa uhamba, imilenze ibanzi kunobubanzi besinqe, ngelizama ukugcina ibhalansi.
• Ubunzima bokuthetha nokuginya: Usenokuba nobunzima bokuthetha okanye bokuginya ukutya nokusela.
• Ukuhamba kancinci kwamehlo: Isantya ahamba ngaso amehlo sinokuba sincinci kunesiqhelo.
• Amehlo adlula kwindawo ekujoliswe kuyo: Xa ugxila amehlo akho kwinto ethile, kusenokubonakala ngathi amehlo akho adlule kwindawo ekujoliswe kuyo kwaye azama ukubuyela kwindawo eyiyo.

Ngamanye amaxesha, ngenxa yokuba iintshukumo zala bantwana zingaqhelekanga, oko kuthetha ukuba zihamba ngenye indlela kwaye ngenye indlela, umntu obukeleyo ngaphandle unokucinga ukuba umntwana akanankathalo nje, okanye "unxilile." Kodwa akunjalo, yiloo nto kanye le meko.

Oku kuyichaphazela njani incoko?

Xa umntwana wakho ene-`(Ataxic Cerebral Palsy)`, izihlunu zakhe ezilawula intetho, kunye nokukwazi kwakhe ukuginya, zinokuchaphazeleka. Oku kunokukhokelela kwimeko ebizwa ngokuba yi- "scanning speech." Oku kuthetha ukuba banokuma baze bame phakathi kwamagama okanye amasilabhili, kwaye intetho yabo inokuba yinto engaqhelekanga, oko kuthetha ukuba bathetha ngethoni efanayo, ngaphandle kotshintsho kwisandi okanye kwimbonakalo. Ngamanye amaxesha, isandi esikhulu sokuphefumla sinokuvakala.

Zeziphi iindawo zomzimba ezichaphazeleka yile meko?

Le meko (i-Ataxic Cerebral Palsy) ayinakuchaphazela nje kuphela inxalenye enye yomzimba womntwana, kodwa neendawo ezininzi. Iindawo eziphambili ezinokuchaphazeleka zezi:

• Imilenze
• Izandla
• Izandla neminwe
• Amehlo
• Imisipha yomphimbo

Zithini izizathu ze-Ataxic Cerebral Palsy?

Eyona nto ibangela le meko kukonakala kwenxalenye yengqondo yethu ebizwa ngokuba yi-cerebellum . Le nxalenye yengqondo yakho ebizwa ngokuba yi-cerebellum yiyo elawula intshukumo kunye nokulungelelaniswa kwayo. Cinga ngayo njengekhompyutha encinci elawula iintshukumo zomzimba wethu. Ngoko ke, ukuba le nxalenye ibalulekileyo yonakele, kwenzeka i-"Ataxic Cerebral Palsy".

Kukho iindlela ezahlukeneyo ezinokwenzakalisa le ngqondo. Ngexesha lokukhulelwa, ngexesha lokubeleka, okanye emva nje kokuzalwa, ingqondo inokonakala zizinto ezifana nezi:

• Ukungahambi kakuhle kwegazi ukuya engqondweni: Oku kukwabizwa ngokuba yi-"ischemic stroke".
• Ukopha ebuchotsheni: Le yimeko ebizwa ngokuba yi-hemorrhagic stroke.
• Ukonakala kwengqondo ngenxa yosulelo.
• Ukulimala kwengqondo okubangelwe kukwenzakala kwengqondo (TBI) kukulimala kwengqondo okubangelwe kukwenzakala entloko.

Ukongeza, kufunyenwe ukuba le meko inokubangelwa ziinguqu ezithile zemfuza (iinguqu zemfuza / iinguqu). Uphando olongezelelweyo luyaqhubeka ngale nto.

Zithini izinto ezibangela umngcipheko?

Kunokubakho umngcipheko okhulayo wokuba neCerebral Palsy (kungekuphela nje i-Ataxic Cerebral Palsy, kodwa neCerebral Palsy ngokubanzi) ukuba umama (umama ozala umntwana) okanye umntwana unenye yezi meko zilandelayo:

• Usulelo oluchaphazela umntwana okanye i-placenta ngexesha lokukhulelwa yinto ekufuneka uyilumkele kakhulu.
• Ukuzalwa ngaphambi kwexesha kukuzalwa ngaphambi komhla wokugqibela.
• Iingxaki ngexesha lokukhulelwa. Umzekelo, izinto ezinje ngokuqhekeka kwe-placenta okanye ukuqhekeka kwesibeleko zinokunciphisa ukuhamba kwegazi kumntwana osesibelekweni.
• Ukuba nabantwana abaninzi esibelekweni ngexesha elinye (umz. amawele, amawele amathathu).
• Umntwana uzalwa enobunzima obuphantsi kakhulu.
• I-jaundice ebuhlungu yavela emva kokuzalwa kwaye ayizange inyangwe ngokufanelekileyo.

Oku akuthethi ukuba wonke umntu onayo le nto uza kuba ne-cerebral palsy, kodwa kuthetha ukuba umngcipheko uphezulu kancinci .

Ziziphi iingxaki ezinokubakho ze-Ataxic Cerebral Palsy?

Le meko inokubangela iingxaki ezithile. Nazi:

• Iintshukumo ezingalungelelananga: Sikhe sathetha ngale nto ngaphambili. Oku kunokwenza kube nzima ukwenza imisebenzi yemihla ngemihla.
• Umngcipheko ophezulu wokuwa neengozi. Ungawa lula ngenxa yokungalingani kakuhle.
• Ukulibaziseka kokukhula kwimisebenzi yemisipha: Umzekelo, ukukhasa, ukuhamba, kunye nokubamba kusenokuba emva kwexesha kunabanye abantwana.

Ukongeza, nangona kungabonakali rhoqo, abanye abantwana banokuba neemeko ezifana nokukhubazeka kwengqondo okanye ukuxhuzula. Nangona kunjalo, oku kunqabile kakhulu.

Ngaba i-Ataxic Cerebral Palsy kukukhubazeka kwengqondo?

Lo ngumbuzo abazali abaninzi abanawo. Ayingabo bonke abantwana abane-"Ataxic Cerebral Palsy" abachaphazeleka ngokwengqondo. Kwiimeko ezininzi, le meko ayichaphazeli ingqondo yomntwana, oko kukuthi, ayibangeli "ukukhubazeka kwengqondo." Nangona kunjalo, iqela elincinci kakhulu linokufumana iziphumo ezinjalo. Le meko iyahluka ukusuka komnye umntwana ukuya komnye. Ichaphazela kakhulu iintshukumo zomntwana.

Ungayibona njani le meko?

Ugqirha udla ngokuxilonga esi sifo (i-Ataxic Cerebral Palsy) ngexesha lobuntwana okanye ebuntwaneni. Into yokuqala ekufuneka yenziwe kukuxilonga umntwana kakuhle (uvavanyo lomzimba). Emva koko, ukuba kuyimfuneko, ugqirha unokucebisa ukuba kwenziwe olunye uvavanyo (uvavanyo lokulandelela).

Ugqirha uza kukubuza imibuzo malunga neentshukumo zomntwana wakho, amanyathelo okukhula kwakhe, kunye nazo naziphi na ezinye iimpawu onokuba unazo. Ugqirha uza kumhlola umntwana wakho ukuze ajonge ithoni yemisipha, izakhono zakhe zokunyakaza, kunye nokulungelelaniswa komzimba.

Luhlobo luni lovavanyo oluqhutywayo?

Ukuba uvavanyo lomntwana lubonisa ukuba une-"Ataxic Cerebral Palsy", ugqirha unokuyalela iimvavanyo zokujonga imifanekiso ukuze ajonge nawuphi na umonakalo engqondweni. Banokuyalela novavanyo lokuthintela ezinye iimeko ezineempawu ezifanayo. Uvavanyo olunokwenziwa ukuze kufunyanwe i-"Ataxic Cerebral Palsy" luquka:

• Uvavanyo lwe-MRI (Uvavanyo lweMagnetic Resonance Imaging): Olu vavanyo lunokufumana imifanekiso eneenkcukacha zobuchopho.
• I-CT scan (i-Computed Tomography scan): Le yenye indlela yokufumana imifanekiso yobuchopho.
• Uvavanyo lwe-EEG (i-Electroencephalogram): Olu vavanyo luvavanya ukusebenza kombane kwengqondo, ingakumbi ukujonga iimeko ezifana nokuxhuzula.
• Uvavanyo lwegazi nomchamo.
• Uvavanyo lwentetho.
• Uvavanyo lwamehlo.
• Uvavanyo lwemfuza: Oku ngamanye amaxesha kwenziwa ukuze kubonwe ukuba kukho unobangela wemfuza.

Ziziphi iindlela zonyango lwe-Ataxic Cerebral Palsy?

Oku kulandelayo kungenziwa njengonyango lwe-`(Ataxic Cerebral Palsy)`:

• Ukuzilolonga ekhaya ukuze uziqhelanise.
• Unyango lomzimba, unyango lomsebenzi, kunye/okanye unyango lokuthetha. Ezi zibaluleke kakhulu. Unyango lomzimba lunceda ukuphucula izinto ezifana nokuhamba kunye nokulinganisela. Unyango lomsebenzi lukunceda wenze imisebenzi yemihla ngemihla wedwa, njengokunxiba nokutya. Unyango lokuthetha lunceda kwiingxaki zokuthetha nokuginya.
• Izixhasi ezifana neebraces okanye izitulo ezinamavili. Ezi mazisetyenziswe xa kufuneka.
• Iziphumzi zemisipha. Ezi ngamanye amaxesha zinikwa ukunciphisa ukuqina kwemisipha.

Iqela lezonyango lomntwana wakho liza kunceda umntwana wakho ukuba alawule iimpawu zakhe aze azimele kangangoko. I-Ataxic Cerebral Palsy ayisiyongxaki enganyangekiyo ngokupheleleyo. Ke ngoko, ukulawula iimpawu yinkqubo yobomi bonke. Thetha nogqirha wakho malunga nemiphumo emibi enokubakho yonyango. Oku kuya kukunceda uqonde ukuba yintoni omawuyilumkele.

Ngaba le meko iya kuba mandundu ngokuhamba kwexesha? (Ingqikelelo/Imbono)

Le yinto abazali abaninzi abayoyikayo. Kodwa `(Ataxic Cerebral Palsy)` ayisiyomeko `(progressive)` eba mandundu ngokuhamba kwexesha. Oku kuthetha ukuba imeko ayibi mandundu njengoko umntwana ekhula. Nangona kunjalo, iimpawu zinokuchaphazela umntwana njengoko ekhula. Ke ngoko, inkxaso yeqela lezonyango iyafuneka ukulawula le meko ubomi bakhe bonke. Ngonyango olufanelekileyo, uninzi lwabantu lunokufunda ukusebenza ngokuzimela, ukuzinyamekela, nokuhamba-hamba ngokukhuselekileyo kwindawo abakuyo.Yinto entle leyo, akunjalo?

Ngaba oku kuyayichaphazela indlela umntu aphila ngayo?

I-Ataxic Cerebral Palsy ayichaphazeli ngqo ubomi bomntu. Abantu abanale meko banobomi obuqhelekileyo ukuya kobuqhelekileyo. Nangona le meko ngamanye amaxesha inokubangela ezinye iingxaki, kukho unyango olunokunciphisa ezo ngxaki.

Ufanele uye nini kugqirha?

Ukuba ubona iintshukumo ezingaqhelekanga kumntwana wakho (umz., ukungcangcazela, ukuhamba kancinci kwamehlo), okanye ukuba umntwana wakho ubonakala enengxaki yokwenza izinto ezihambelana nobudala bakhe (umz., ukuhamba, ukuthetha), ngokuqinisekileyo bonana nogqirha. Okukhona uxilongwa kwangoko, kokukhona kungcono.

Kwakhona, ukuba umntwana wakho uyawa aze enzekele kakhulu, mse esibhedlele ngoko nangoko, okanye utsalele umnxeba ku-1990 (inkonzo ye-ambulensi yongxamiseko yelizwe lethu).

Yeyiphi imibuzo omele uyibuze ugqirha?

Xa uthetha nogqirha ngomntwana wakho, kubalulekile ukubuza imibuzo efana nale:

• "Gqirha, ungandicacisela ngakumbi ngesifo somntwana wam?"
• "Yeyiphi eyona ndlela ilungileyo yonyango lweempawu zomntwana?"
• "Zithini iinjongo esifanele sizilindele kwezi ndlela zonyango?"
• "Ngaba kukho iziphumo ebezingalindelekanga kwezi ndlela zonyango? Zithini ezo?"
• "Ngaba kukho naziphi na izixhobo zokuncedisa umntwana wam?"
• "Umntwana kufuneka anikwe unyango lomzimba okanye unyango lomsebenzi kangaphi?"

Kubaluleke kakhulu kuwe nakumntwana wakho ukuba niqonde yonke into ngokucacileyo ngokubuza imibuzo efana nale.

Okokugqibela, izinto ekufuneka uzikhumbule (Umyalezo Wokuya Ekhaya)

Ingxaki ebizwa ngokuba yi-"Ataxic Cerebral Palsy" inokuba nzima kancinci kumntwana ukuyilawula. Nokuba umntwana uzama kangakanani na, xa ezama ukugcina into ethile okanye ukugcina ibhalansi, inxalenye efanelekileyo yengqondo ayithethi kakuhle, nto leyo eyenza kube nzima ukugqiba umsebenzi. Kuqhelekile ukuba abazali bazive bebuhlungu xa bebona oku.

Kodwa eyona nto ibalulekileyo kukuba kukho unyango olunokunceda umntwana wakho. Izinto ezifana nonyango lomzimba kunye nonyango lomsebenzi zinokunceda ukuphucula ulungelelwano lomntwana wakho kunye nokulungelelana kwakhe. Emva koko, njengoko umntwana wakho ekhula, uya kuba nokuzithemba ngakumbi kwiintshukumo zakhe kwaye akwazi ukuzenzela izinto ngokwakhe. Ngoko ke, ngethemba, qhubeka nolu hambo nomntwana wakho.

Awuwedwa. Oogqirha kunye neengcali zonyango zikho ukuze zikuncede wena nomntwana wakho. Kubaluleke kakhulu ukulandela iingcebiso zabo.

I- Ataxic Cerebral Palsy, I-Cerebral Palsy, Iingxaki Zokuhamba, Ibhalansi, Ulungelelwaniso, Impilo Yomntwana, Iingxaki Zobuchopho