Ingaba isinyi somntwana wakho siphumile? Masithethe nge-Bladder Exstrophy!

Xa umama okanye utata ejonge usana olusandul’ ukuzalwa, balindele ukubona umntwana ophilileyo nopheleleyo. Kodwa khawucinge, kuthekani ukuba ubona isinyi somntwana siphuma eluswini esiswini sakhe? Ngumbono obuhlungu ngokwenene nowoyikisayo. Le yinto esiyibiza ngokuba yiBladder Exstrophy kunyango. Kusengqiqweni ukoyika nokukhathazeka xa ubona oku. Kodwa eyona nto ibalulekileyo kukuba kukho unyango oluphumelelayo loku. Ngoko masithethe ngayo yonke into ngokucacileyo nangokulula.

Ngamafutshane, yintoni i-Bladder Exstrophy?

I-Bladder exstrophy yimeko engaqhelekanga yokuzalwa. Ngokwesiqhelo, xa umntwana ekhula esibelekweni, amalungu angaphakathi, kuquka ne-bladder, akhula ngaphakathi emzimbeni. Nangona kunjalo, kule meko, i-bladder yomntwana ikhula ngaphandle komzimba, ivezwe kulusu olusezantsi kwesisu.

Kule meko, nantsi into eyenzekayo:

• Ulusu kunye namathambo esinqeni asezantsi esiswini awadibani kakuhle.
• Ngoko ke, isinyi sibonakala ngesikhumba sesisu.
• Isinyi, esiqhele ukuba njengebhaluni, kule meko sinesimo esithe tyaba.
• Ngenxa yoko, isinyi asikwazi ukugcina umchamo okanye ukusebenza ngendlela eqhelekileyo. Umchamo uyaqhubeka nokuvuza.

Le meko iwuchaphazela njani umzimba womntwana?

Makhe sijonge indlela esebenza ngayo inkqubo yomchamo. Xa isinyi sakho sizele ngumchamo, kuthunyelwa isignali esuka kwinkqubo yemithambo-luvo iye engqondweni ethi, "Isinyi ngoku sigcwele." Emva koko izihlunu zesinyi ziyaqina (ziyaqina), kwaye umchamo uphuma nge-urethra.

Kodwa le nkqubo ayenzeki kumntwana one-Bladder Exstrophy. Ngenxa yokuba isinyi somntwana singaphandle, akukho ndawo yokuqokelelwa komchamo. Ngoko ke umchamo oveliswa zizintso uphuma ngqo ngesi sinyi sivulekileyo esiswini.

Ngaba kukho iintlobo ezahlukeneyo ze-Bladder Exstrophy?

Ewe, i-Bladder Exstrophy yimeko ekwiqela leziphene zokuzalwa ezibizwa ngokuba yi-Bladder Exstrophy-Epispadias Complex (BEEC). Abanye abantwana banokuba nenye yezi meko, ngelixa abanye banokuba nezinye zezi meko kunye.

Ingaba le meko ixhaphakile?

Hayi, i-Bladder Exstrophy yimeko engaqhelekanga kakhulu . Ichaphazela umntwana omnye kuphela kwiintsana ezingama-50,000 ezisandul’ ukuzalwa.

Ziziphi iimpawu eziphambili?

Uphawu oluphambili nolucacileyo sisinyi esiphuma esiswini. Ukongeza, ezinye iimpawu ezininzi zinokubonakala.

• Iqhosha lesisu lisezantsi kakhulu kunesiqhelo.
• Amathambo e-pubic awadibani, kodwa endaweni yoko abekwe ecaleni.
• Impundu isenokuba phambili ngakumbi kunesiqhelo.
• Kumakhwenkwe , amasende asenokuba awazange ehle aye kwi-scrotum (amasende angaphakamanga).
• Abanye abantwana banokuba neehernias , ezifana neehernias ze-inguinal okanye iihernias ze-umbilical.

Zithini izizathu kunye nezinto ezibangela oku?

Isizathu esichanekileyo sale meko asikaziwa okwangoku , kodwa oogqirha bakholelwa ukuba indibaniselwano yezinto zemfuza kunye neemeko ezingqongileyo zinokudlala indima. Kubalulekile ukuqonda ukuba akukho tyala kubazali elibangela le meko.

Nazi ezinye zezinto ezibangela umngcipheko ezichongiweyo:

• Imbali yosapho: Ukuba omnye wabazali wayenale meko esengumntwana, umntwana wabo unethuba elimalunga ne-1 kwi-70 lokuba nayo.
• Uhlanga: Le meko ifunyenwe ixhaphakile phakathi kwabantu abamhlophe.
• Isini: Abafana banamathuba aphindwe kathathu okufumana le meko kunamantombazana.
• Unyango lokuchuma: Ezinye izifundo zibonisa ukuba ukusebenzisa iindlela ezifana ne-Assisted Reproductive Technology (IVF) kunokunyusa kancinci le ngozi.

Injani indlela yonyango kunye nembono?

Usana olune-Bladder Exstrophy ngokuqinisekileyo luza kufuna utyando . Olu lolona nyango luphela. Ngokuxhomekeke kubukhali bemeko yomntwana, imeko ingalungiswa ngokupheleleyo ngotyando olunye okanye ngaphezulu.

Ngokubanzi kukho iindlela ezimbini ezenziwa ngazo utyando:

1. Utyando olunye: Kwezinye iimeko, isisu siyavalwa kwaye i-urethra iyalungiswa ngotyando olunye olwenziwe kwiinyanga ezimbalwa zokuqala emva kokuba umntwana ezelwe.

2. Utyando olunezigaba ezintathu: Le yindlela edla ngokwenziwa.

• Inqanaba lokuqala (emva kokubeleka): Kwiintsuku ezimbalwa emva kokuzalwa, isinyi somntwana sifakwa emzimbeni kwaye isisu siyavalwa. Kwangaxeshanye, kwenziwa utyando (`osteotomy`) ukuze kuhlanganiswe amathambo esinqe, aqhelelene kakhulu.
• Inqanaba lesi-2 (malunga neenyanga ezi-6): Olu tyando (ukulungiswa kwe-epispadias) luphinda lwakha amalungu okuzala kunye nomchamo.
• Inqanaba lesi-3 (malunga neminyaka emi-4-5): Okwangoku umntwana sele ekwiminyaka yokuqeqeshwa kwindlu yangasese. Olu tyando (`augmentation cystoplasty`) lwenziwa ukuze isinyi sibe sikhulu ngokwaneleyo ukuba sibambe umchamo.

Iingxaki ezinokwenzeka ixesha elide

Kwanasemva konyango, abanye abantwana banokuba neengxaki zesinyi okanye zezintso.

• Usulelo lwezintso (i-pyelonephritis)
• Amatye ezintso
• Umngcipheko wokuba nomhlaza wesinyi uphezulu kancinci kamva ebomini.
• Iingxaki ezinxulumene nokusebenza ngokwesondo.

Abafazi abanale meko bathathwa njengabanokukhulelwa okunobungozi obukhulu , kwaye badla ngokufuna utyando lwe-cesarean (C-section) ukuze babeleke umntwana. Amadoda anokufuna iindlela zokuncedisa ekuzaleni ezifana nokuchumisa i-in vitro (IVF) ukuze babe nabantwana.

Indlela oziva ngayo njengomzali

Ukufumanisa ukuba umntwana wakho unesifo sokuzalwa yinto enzima kuye nawuphi na umzali ukujongana nayo. Usenokuziva usoyika, uxhalabile, kwaye unetyala. Zonke ezi mvakalelo ziqhelekile.

Kodwa khumbula, oku akulona ityala lakho . Kwanoogqirha abanakutsho ngokuqinisekileyo ukuba kutheni i-Bladder Exstrophy isenzeka. Zinike ixesha lokuqonda nokuqhelana nale meko. Unyango lusebenza kakuhle kakhulu. Le meko ayizukuthintela umntwana wakho ekubeni abe nobuntwana obuqhelekileyo. Oogqirha bayayiqonda kakuhle indlela ovakalelwa ngayo. Bakho ukuze bakuxhase kwaye bakunike iingcebiso kuyo yonke inyathelo. Ngoko ke ungoyiki ukuthetha nogqirha wakho ngayo yonke into.