Ngaba umntwana wakho oyintombazana unesithuba esifanayo? Masiqaphele le ngxaki yokwakheka kweCloacal

Umele ukuba woyika kakhulu kwaye wothuka xa ugqirha ekuxelela ukuba umntwana wakho osandul’ ukuzalwa unesithuba esinye kuphela apho kufuneka kubekho khona isini, umchamo kunye ne-anus. Kuqhelekile kakhulu. Akukho mntu ukulungeleyo ukuva into efana nale. Kodwa ungakhathazeki. Esi sisiphene esingaqhelekanga sokuzalwa esinokulungiswa ngempumelelo ngotyando. Masithethe ngayo yonke into ngokulula nangokucacileyo.

Ngamafutshane, yintoni iCloacal Malformation?

I-Cloacal Malformation sisifo esingaqhelekanga sokuzalwa esichaphazela amantombazana kuphela. Ngokwesiqhelo, indawo yesondo yentombazana kunye ne-anus (esiyibiza ngokuba yi-perineum) kufuneka ibe nemingxuma emithathu .

1. Umchamo ( ityhubhu apho umchamo uphuma khona)

2. Ilungu lobufazi , apho kwenzeka khona ukuya exesheni kunye nokwabelana ngesondo.

3. Impundu ( indlela ephuma ngayo ilindle)

Nangona kunjalo, umntwana one-Cloacal Malformation unomngxuma omnye kuphela endaweni yezi zintathu. Oku kuthetha ukuba umchamo, ilindle, kunye nolwelo lwesisu konke kuphuma emzimbeni ngalo mngxuma mnye. Le yimeko ekhethekileyo ekwiqela leziphene zokuzalwa ezibizwa ngokuba yi-`(Anorectal Malformation)`.

Khawuthelekelele, kwiiveki zokuqala zokukhula komntwana ngexesha lokukhulelwa, ezi nkqubo zintathu—inkqubo yamathumbu, inkqubo yomchamo, kunye nenkqubo yokuzala—zonke zidibene negumbi eliqhelekileyo elibizwa ngokuba yi-"cloaca." Njengoko umntwana ekhula, eli gumbi liyahlukana kancinci libe ngamacandelo amathathu, lidale imingxuma emithathu esikhankanyileyo ngaphambili. Ngamanye amaxesha le nkqubo yokwahlulahlula ayisebenzi kakuhle. Kulapho zonke iinkqubo zintathu ziqhagamshelwe kwityhubhu eqhelekileyo, evuleka emzimbeni ngomngxuma omnye.

Unyango lwale meko kukwenza imingxuma emithathu eyahlukeneyo endaweni yale mingxuma iqhelekileyo. Olu tyando ludla ngokwenziwa kunyaka wokuqala wobomi bomntwana.

Ngaba kukho iintlobo ezahlukeneyo zale meko?

Ewe. Ubunzima bemeko yeCloacal Malformation bumiselwa bubude be "common channel" edibanisa iinkqubo ezintathu esizixubushileyo. Le common channel inokuba naphi na ukusuka kwi-1 centimeter ukuya kwi-10 centimeters ubude. Ubude obu bumisela ubunzima botyando umntwana aludingayo.

• Ukuba neChannel emfutshane eqhelekileyo: Kulapho ezi nkqubo zintathu zidibana khona kufutshane nomngxuma ongaphandle komzimba. Oku kuthetha ukuba iChannel eqhelekileyo imfutshane. Kwiimeko ezinjalo, kulula ukukhupha inkunkuma emzimbeni. Utyando nalo lulula. Kwakhona, impilo yomntwana kwixesha elizayo ingcono kakhulu.

• Ukuba neChannel Ende Eqhelekileyo:Le yeyona meko inzima kakhulu. Apha, ezi nkqubo zintathu zidibana nzulu emzimbeni. Ngenxa yoko, umbhobho oqhelekileyo mde. Oku kwenza kube nzima ukuba inkunkuma iphume emzimbeni. Utyando lukwaba nzima ngakumbi.

Le meko ayiqhelekanga kakhulu, iyenzeka kwiintsana ezisandul’ ukuzalwa ezingama-25,000 ukuya kuma-50,000.

Zithini iimpawu zale meko kunye nezinye iingxaki ezinxulumene nayo?

Eyona nto iphambili necacileyo kukuba umntwana oyintombazana uzalwa enesithuba esinye endaweni yezintathu ekufuneka zibe khona. Ukongeza, le meko inokubangela nezinye iingxaki zempilo. Masiyijonge kule theyibhile.

Kutheni oku kwenzeke kumntwana wam? Yintoni isizathu?

Kungokwemvelo ukuba lo mbuzo ufike engqondweni yakho. Kodwa oogqirha abaqinisekanga ukuba yintoni ebangela oku. Abaphandi bakholelwa ukuba yinto eyenzeka ngokungacwangciswanga, engenasizathu sithile.

Ungayibona njani le meko?

Le meko ingafunyanwa ngaphambi nasemva kokuzalwa.

Ngaphambi kokuzalwa (ngexesha lokukhulelwa)

Ngamanye amaxesha, le meko inokubonwa ngexesha lokuhlolwa kwe-ultrasound, okwenziwa malunga neeveki ezingama-20 zokukhulelwa. Oogqirha bayakukrokrela oku ukuba ukuvavanywa kubonisa ingxowa egcwele ulwelo, evuvukileyo kwilungu lobufazi lomntwana. Ukuqinisekisa oku kukrokrela, uvavanyo lweMagnetic Resonance Imaging (MRI) lunokwenziwa ngexesha lokukhulelwa.

Emva kokuzalwa

Le meko idla ngokufunyaniswa emva kokuba umntwana ezelwe. Ugqirha wezingane ohlola umntwana uya kuphawula ukuba kukho umngxuma omnye endaweni yemithathu. Umntwana usenokuba nesisu esidumbileyo. Emva koko, kuya kwenziwa iimvavanyo ezininzi ukuze kuqondwe kakuhle ukuba kwenzeka ntoni ngaphakathi emzimbeni.

• I-ultrasound scan: Jonga imeko yezintso zomntwana, isinyi, kunye nomqolo.
• Ii-X-reyi: Iindlela ezikhethekileyo ze-X-reyi, ezifana ne-fluoroscopy, zingasetyenziswa ukubona indlela esebenza ngayo inkqubo yomchamo.
• I-Echocardiogram: Olu vavanyo lwenzelwe ukubona ukuba kukho naziphi na iingxaki ngentliziyo.

Inyangwa njani? Masifunde ngotyando

Unyango lweCloacal Malformation lutyando . Injongo ephambili kukudala imingxuma emithathu eyahlukeneyo (i-anus, i-vagina, kunye ne-urethra) endaweni yokuvula enye. Injongo kukunika umntwana amandla okukhupha indle nokuchama ngendlela eqhelekileyo kunye nokuzilawula.

Oku akuyonto inokwenziwa ngotyando olunye. Ngokwesiqhelo, kufuneka kwenziwe uthotho lweenkqubo zotyando. Ukuze oku kwenzeke, kubalulekile ukufuna uncedo kugqirha wabantwana kunye nogqirha wezifo zomchamo wabantwana.

Inkqubo yonyango inokwahlulwa ibe ngamanyathelo amathathu aphambili.

Inyathelo 1: Utyando lokuqala (kwiiyure ezingama-48 emva kokuzalwa)

Eyona njongo iphambili yoku kukudala indlela yokuba inkunkuma (indle nomchamo) ziphume kakuhle emzimbeni womntwana.

• I-Colostomy: Ngenxa yokuba umntwana engenandlela yokukhupha indle, kwenziwa utyando ukuze kubekho umngxuma esiswini ngokuzisa inxalenye yamathumbu kumphezulu wolusu. Ingxowa incamatheliswe kulo mngxuma, nto leyo evumela ukuba indle iqokeleleke.
• Ukungakwazi ukuzibamba komchamo: I-catheter isetyenziselwa ukukhupha umchamo kuba isinyi sidumbile okanye sivalekile.
• Ilungu lobufazi: Ukuba kukho ulwelo oluqokeleleneyo kwilungu lobufazi, ugqirha wotyando uza kulususa ulwelo.

Inyathelo lesi-2: Utyando olukhulu lokwakha ngokutsha (phakathi kweenyanga ezi-6 nezili-12 ubudala)

Olu tyando lukhulu lwenziwa emva kokuba umntwana ekhulile kancinci kwaye impilo yakhe izinzile. Okwenzekayo apha kukuba umjelo oqhelekileyo wahlulwe waba ngamacandelo, nto leyo eyenza i-anus eyahlukileyo, i-vagina, kunye ne-urethra. Ukuba umjelo oqhelekileyo umfutshane, olu tyando lulula. Ukuba umjelo oqhelekileyo mde, utyando luba nzima ngakumbi.

Inyathelo lesi-3: Ukuguqulwa kwe-colostomy

Emva kotyando oluphambili, xa i-anus esandul’ ukwenziwa ipholile, i-colostomy yokuqala iyasuswa. Oku kuthetha ukuba umngxuma owenziwe esiswini uvaliwe kwaye amathumbu aphinde abuyele kwindawo yawo eqhelekileyo. Emva koko umntwana unokukhupha indle nge-anus esandul’ ukwenziwa.

Abanye abantwana banokufuna utyando olongezelelweyo kwixesha elizayo, nto leyo ugqirha wakho aza kukuchazela yona.

Liza kuba njani ikamva lomntwana?

Lo ngumbuzo omkhulu engqondweni yabazali bonke. Iindaba ezimnandi zezokuba iziphumo zihlala zilungile kakhulu .

• Ulawulo lwamathumbu nesinyi: Abantwana abane-common duct emfutshane, enganzima kangako, banethuba elingama-90% lokulawula ngokupheleleyo amathumbu abo nesinyi. Oku kuthetha ukuba bayakwazi ukuqeqesha indlu yangasese ngokuqhelekileyo. Kwanabantwana abane-common duct ende, eyinkimbinkimbi ngakumbi, banethuba elingama-70% lokulawula kakuhle. Abanye abantwana banokuba nobunzima bokulawula umchamo wabo (ukungakwazi ukuzibamba komchamo). Kwiimeko ezinjalo, banokufuna ukusebenzisa ityhubhu izihlandlo ezininzi ngemini ukuze bakhuphe isinyi sabo.

• Ubomi bokwabelana ngesondo nokukhulelwa: Abantwana abaninzi abanale meko banokuba nobomi bokwabelana ngesondo obuqhelekileyo nobanelisayo xa sele bekhulile. Bayakwazi nokukhulelwa. Nangona kunjalo, kunokuba nzima ngakumbi kunomfazi oqhelekileyo. Ukuba bayakhulelwa, kudla ngokucetyiswa ukuba babeleke umntwana ngotyando.

Ungenza ntoni njengomzali?

Igalelo lakho libaluleke kakhulu kolu hambo.

• Sebenzisana ngokusondeleyo neqela lezonyango: Hlala unxibelelana rhoqo nogqirha wotyando lomntwana wakho, ugqirha womchamo, kunye nogqirha wabantwana.
• Qiniseka ukuba uya kuqhubeka nokulandela amanyathelo alandelayo:Emva kotyando, umntwana wakho kuya kufuneka aye ekliniki rhoqo ukuqinisekisa ukuba iinkqubo zomzimba wakhe zisebenza kakuhle. Ungaphoswa nanye kuzo.
• Xhasa umntwana wakho: Njengoko umntwana wakho ekhula, ukuba kukho naziphi na iingxaki ngokulawula umchamo okanye amathumbu, musa ukuba neentloni kwaye uxelele ugqirha ngayo loo nto.
• Buza imibuzo: Buza ugqirha nayiphi na imibuzo okanye amathandabuzo onawo. Lilungelo lakho.

Eminye imibuzo onokuyibuza ugqirha:

• Olu tyando lwenziwa njani? Uneminyaka emingaphi?
• Ngaba umntwana wam uziva iintlungu?
• Yintoni endimele ndiyilindele njengoko umntwana wam esiba ngcono emva kotyando?
• Ngaba umntwana uza kufuna utyando olongezelelweyo njengoko ekhula?
• Ngaba kuza kubakho iingxaki nge-anus, urethra, okanye i-vagina kwixesha elizayo?
• Ngaba umntwana wam uya kukwazi ukuba nomntwana ngokukhuselekileyo kwixesha elizayo?

Uloyiko, uloyiko, kunye nexhala eliza kufundwa ngolu hlobo alinakuchazwa ngamazwi. Kodwa khumbula, isayensi yezonyango iphucuke kakhulu namhlanje. Utyando lungayilungisa ngempumelelo le meko, lunike umntwana wakho ithuba lokuphila ubomi obuqhelekileyo nobonwabisayo njengabanye abantwana.