Ngaba nawe uvakalelwa kukuba amandla engalo nemilenze yakho ayancipha kancinci emva kokuba ufikelele kwiminyaka engama-50? Mhlawumbi kunzima ukubamba ikomityi kakuhle, ukuqhobosha ihempe, okanye uyakhubeka ngakumbi xa uhamba? Nangona sihlala sicinga ngezi zinto njengokwaluphala okuqhelekileyo, ngamanye amaxesha kunokubakho imeko ebizwa ngokuba yi -Inclusion Body Myositis (IBM) emva koku. Namhlanje, siza kuthetha ngale nto ngokulula, ngendlela onokuyiqonda.
Ngamafutshane, yintoni i-Inclusion Body Myositis (IBM)?
I-Inclusion Body Myositis (IBM) yimeko eyenza izihlunu zakho zibe buthathaka kancinci kancinci . Eyona nto ibalulekileyo kukuba ayibuhlungu. Uninzi lwexesha, iimpawu ziqala emva kweminyaka engama-50 ubudala. Cinga ngayo njengebhetri ekwifowuni ephathwayo ephela kancinci kancinci, iphelelwa ngamandla kancinci kancinci.
Esi sifo siqhubeka kancinci kwiminyaka emininzi. Asiyonto isongela ubomi, oko kuthetha ukuba asiyi kukubulala. Nangona kunjalo, ekuhambeni kwexesha, singenza kube nzima ukwenza imisebenzi yemihla ngemihla. Ngamanye amaxesha, elinye icala lomzimba linokuchaphazeleka kakhulu kunelinye. Malunga nesiqingatha sabantu abanale sifo banokuba nobunzima bokuginya ngokuhamba kwexesha .
Nangona kungekho ndlela ithile yokunyanga oku okwangoku, unyango lomzimba lunokukunceda ugcine izihlunu zakho ziqinile ixesha elide kangangoko unako.
Ziziphi iimpawu eziphambili zale meko?
Ubuthathaka bemisipha kwi-IBM abenzeki ngaxeshanye. Buyenzeka kancinci kancinci, ngokuhamba kwexesha. Abanye abantu basenokubuva emilenzeni yabo. Abanye basenokubuva ezandleni, ezihlahleni, okanye eminweni. Abanye abantu baqala ukufumana kunzima ukwenza imisebenzi ebuthathaka efana nokuqhobosha ihempe okanye ukubhala ngepeni. Abanye baqala ukuwa rhoqo xa behamba.
Njengoko isifo siqhubeka, unokufumana izinto ezinje. Masijonge oku kwitheyibhile ukuze sikuqonde kakuhle.
| Uphawu | Ingcaciso elula |
|---|---|
| Ubuthathaka kwiingalo, imilenze, amahlombe, kunye nezinqe | Kuba nzima ukuphakama esitulweni, ukukhwela izinyuko, okanye ukuphakamisa izinto ezinzima. Izinto ozithathayo ziwela phantsi. |
| Ubunzima bokuginya kunye nobuthathaka bentamo | Kuvakala ngathi ukutya kubambekile xa uginya. Kunzima ukugcina intloko yakho ithe tye, ngokungathi intloko yakho ijonge phambili. |
| Ukuwohloka kwemisipha | Izihlunu ezibuthathaka ziba ncinci ngobukhulu. Oku kuthetha ukuba izihlunu ezingalweni nasemilenzeni zibonakala ngathi ziyaphela. |
| Intlungu engephi (iMyalgia) | Nangona kungekho ntlungu ingako, abanye abantu banokuba neentlungu ezincinci kwimisipha abaziva rhoqo. |
Kutheni olu hlobo lwesifo lusenzeka? Yintoni unobangela?
Enyanisweni, oogqirha abakafumani unobangela othile we-IBM. Ezi zifo sizibiza ngokuba yi-"idiopathic".
Kodwa uphando ngale nto lufumanise izinto ezininzi:
- Ukudumba: Njengezinye iintlobo ze-myositis, oku kukwabandakanya ukudumba kwexesha elide, okanye ukudumba, kwezihlunu. Yiyo le nto ibangela ukuba izihlunu zibe buthathaka. Kodwa akukaziwa ukuba kutheni oku kudumba kwenzeka. Kucingelwa ukuba isenokuba sisifo esibangelwa kukuzikhusela komzimba, apho amajoni ethu omzimba ahlasela imizimba yethu.
- IiBody zoQhagamshelo: Kulapho esi sifo sifumene khona igama laso. Iiproteni ezingaqhelekanga ezibizwa ngokuba yi-"inclusion bodies" zenzeka ngaphakathi kweeseli zemisipha. Kufana nenkunkuma engafunekiyo eqokelelana ngaphakathi kweeseli zethu. Kukholelwa ukuba ezi protein clumps ziphazamisa ukusebenza okuqhelekileyo kweeseli.
Ugqirha uyixilonga njani le nto?
Xa uthetha ngeempawu ezinje, into yokuqala ugqirha wakho aza kuyenza kukubuza umbuzo olungileyo aze ahlole izihlunu zakho, kuba kukho ezinye izifo ezineempawu ezifanayo neze-IBM, ezifana ne-polymyositis kunye ne-myasthenia gravis.
Ngoko ke, ugqirha unika ingqalelo ekhethekileyo kwizinto ezifana nezi:
- Zeziphi izihlunu ezibuthathaka?
- Ngaba icala elinye lomzimba lichaphazeleka ngakumbi?
- Uyabona ukuba izihlunu zakho zigugile?
- Ezi mpawu zaqala nini ubudala?
Emva koko, kunokwenziwa iimvavanyo ezininzi ezifana nezi ukuze kuthintelwe ezinye iimeko kwaye kuqinisekiswe ukuba kukho isifo.
| Uvavanyo | Ubona ntoni kule nto? |
|---|---|
| Uvavanyo lwe-Creatine kinase (CK) | Olu luvavanyo lwegazi olulinganisa inqanaba le-enzyme eqokelelana egazini xa izihlunu zonakele. |
| Ezinye iimvavanyo zegazi | Jonga ukuba azikho na izifo ezibangelwa yintsholongwane okanye ezinye izifo ezihlasela umzimba. |
| I-Electromyogram (EMG) | Umsebenzi wombane kwimisipha uyalinganiswa. |
| Uphononongo lokuqhuba imithambo-luvo (i-NCS) | Ilinganisa isantya esihamba ngaso imiqondiso yombane kwimithambo-luvo elawula izihlunu. |
| Uvavanyo olucacileyo: I-Muscle Biopsy | |
| Le yeyona ndlela ilungileyo necacileyo yokuqinisekisa i-IBM. Okwenzayo apha kukuthatha iqhekeza elincinci kakhulu lesihlunu esichaphazelekayo phantsi kwe-anesthesia uze usihlole phantsi kwe-microscope. Emva koko ungabona ngokuchanekileyo ukuba ezo ziqumxu zeproteni ezingaqhelekanga (ii-inclusion bodies) ezikhankanyiweyo ngaphambili zikhona na ngaphakathi kwezo seli. | |
Zithini iindlela zonyango zoku?
Kulapho kufuneka sinyaniseke khona. Akukho nyango lwe-IBM okwangoku. Ii-corticosteroids okanye amayeza okunciphisa umzimba asetyenziswa kwezinye iimeko zokudumba awasebenzi kakuhle kwesi sifo.
Kodwa oko akuthethi ukuba akukho nto sinokuyenza. Zininzi izinto esinokuzenza ukulawula esi sifo nokwenza ubomi bube lula kangangoko.
- Unyango Lomzimba: Oku kubalulekile. Ukuzilolonga kunye neendlela ezifanelekileyo kuya kukunceda ugcine amandla emisipha yakho ixesha elide kangangoko kunokwenzeka.
- Unyango Lomsebenzi: Xa isigulo sakho sikwenza kube nzima ukwenza imisebenzi yemihla ngemihla, njengokunxiba okanye ukutya, uya kufundiswa ezinye iindlela kunye nezixhobo ezinokwenza loo misebenzi ibe lula.
- I-Pathology yoLwimi lokuThetha: Ukuba unengxaki yokuginya, ingcali yezonyango inokukunika iingcebiso ngeendlela zokutya ngokukhuselekileyo.
Ekuhambeni kwexesha, abanye abantu banokufuna isixhobo sokuncedisa, njengesitulo esinamavili.
Ndingenza ntoni ukuze ndiphile kakuhle nale meko?
I-IBM sisifo esiqhubekekayo. Ngoko ke, unexesha elaneleyo lokuziqhelanisa notshintsho oluzayo. Kungcono ukwenza isicwangciso sexesha elide sokuhlala uphilile ngokwasemzimbeni nangokwengqondo.
Nazi ezinye izinto onokuzenza:
- Qhubeka nenkqubo yakho yokuzilolonga: Nokuba usebenzisa ingcali yezonyango okanye umthambo wasekhaya, ukuqhubeka nokwenza oko njengomkhwa kunokunceda ukugcina amandla emisipha yakho.
- Yamkela indlela yokuphila enempilo: Yitya ukutya okunesondlo, ulale ngokwaneleyo, unciphise uxinzelelo, kwaye ugcine ubudlelwane obuhle nabantu obathandayo. Zonke ezi zinto ziya kukunika amandla.
- Joyina Amaqela eNkxaso: Ukuthetha nabantu abaye baba namava afanayo njengoko unokubanika uncedo olukhulu lwengqondo kunye neengcebiso ezisebenzayo.
- Yenza utshintsho ekhaya nasemsebenzini: Kukho izixhobo ezininzi kunye neendlela emhlabeni ezinokwenza imisebenzi yakho yemihla ngemihla ibe lula. Zihlolisise.
- Bona ugqirha wakho rhoqo: Hlala unxibelelana rhoqo nogqirha wakho. Ukuba ufumana naziphi na iimpawu ezintsha, ezinje ngobunzima bokuginya, mxelele ngoko nangoko.
- Qaphela iimvavanyo zeklinikhi: Abaphandi bahlala bevavanya unyango olutsha lwe-IBM. Unokufumana ithuba lokuthatha inxaxheba kwenye yezi zilingo.
Ukubandakanywa I-Myositis yoMzimba sisifo esinokuvela ngequbuliso kwisiqingatha sesibini sobomi, ngaphandle kwesizathu esibonakalayo. Asinto umntu ayilindeleyo. Kodwa ekubeni luhambo olude kakhulu, unexesha elaneleyo lokuceba utshintsho oluzayo. Ngokucinga ngendlela eyakhayo nokuzama ukugcina impilo yakho iyonke, ungaphila ubomi obonwabisayo iminyaka emininzi ezayo.
Umyalezo Wokuya Ekhaya
- I-Inclusion Body Myositis (IBM) sisifo esiye sinciphise izihlunu kancinci kancinci njengoko sikhula. Asisongeli ubomi.
- Nangona kungekho ndlela ithile yokunyanga oku, kubaluleke kakhulu ukugcina amandla emisipha ngonyango lomzimba kunye nokuzilolonga.
- Xa uphila nesi sifo, ungawuphucula umgangatho wobomi bakho ngokufunda iindlela ezintsha zokwenza imisebenzi yemihla ngemihla nokusebenzisa izixhobo zokuncedisa ukuze kube lula.
- Ukuba ufumanisa naziphi na iimpawu ezintsha, ezinje ngobunzima bokuginya, yazisa ugqirha wakho ngoko nangoko.
- Ukuba nesimo sengqondo esihle kunye nolawulo olufanelekileyo, ungaphila kakuhle nale meko.
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