Ingaba indlebe yomntwana wakho yahlukile kancinci? Masithethe ngale nto (Microtia)!

Xa ujonga umntwana wakho osandul’ ukuzalwa, ngaba wakha waphawula ukuba indlebe yakhe enye okanye zombini zincinci okanye zimile ngendlela eyahlukileyo? Kuqhelekile ukuba umama okanye utata azive esoyika kwaye exhalabile xa ebona into enjalo. Kodwa ungakhathazeki. Namhlanje siza kuthetha ngolu hlobo lwesimo, esaziwa ngokwezonyango ngokuba yi-`(Microtia)`.

Yintoni `(Microtia)`? Masiyiqonde ngokulula, akunjalo?

Ngamafutshane, `(Microtia)` yimeko eyenzeka xa inxalenye engaphandle yendlebe yethu, oko kukuthi, inxalenye esiyibiza ngokuba yi-earlobe, ingaphuhli kakuhle xa izalwa. Igama elithi "Micro" lithetha "incinci" kwaye elithi "otia" lithetha "indlebe". Ngoko ke, oku kukungaqheleki `(kokuzalwa)`. Okwenzekayo koku kukuba indlebe incinci kunesiqhelo, kwaye ngamanye amaxesha i-earlobe inokungabikho kwaphela.

Cinga, abanye abantwana banokuba neendlebe ezincinci kancinci, kodwa zonke iindawo zendlebe zicacile. Abanye abantwana banokuba nenxalenye yendlebe eyenziweyo kuphela. Kwezinye iimeko ezinzima, indlebe engaphandle isenokungabikho kwaphela. Kunye nale meko, ukuba umngxuma okhokelela endlebeni, okanye kumjelo wendlebe, nawo awukho, inokuchaphazela nokuva. Kunokuba nzima nokuchonga apho isandi sivela khona.

I-Microtia idla ngokuchaphazela indlebe enye kuphela, kodwa ingazichaphazela zombini iindlebe. Idla ngokwenzeka xa indlebe ingakhuli kakuhle ngexesha le-trimester yokuqala yokukhulelwa.

Ngaba kukho amanqanaba ahlukeneyo eMicrotia?

Ewe, oogqirha basebenzisa inkqubo ekhethekileyo ukwahlula imeko `(Microtia). Yahlula imeko ibe ziintlobo ezahlukeneyo ngokuxhomekeke kubukhali bayo. Masibone ukuba zithini na:

• Uhlobo 1: Kule meko, indlebe engaphandle incinci kancinci kuneqhelekileyo. Nangona kunjalo, zonke iindawo zendlebe zikhona, kodwa zinokukhubazeka okuncinci.
• Uhlobo 2: Apha, kwakheka inxalenye yendlebe yangaphandle kuphela, kwaye indlebe incinci.
• Uhlobo 3: Olu lolona hlobo luqhelekileyo, nangona lunezakhiwo ezithile ezinxulumene nendlebe, kodwa akukho ndawo inokuchongwa ngokucacileyo njengendlebe.
• Uhlobo lwesi-4: Le yeyona meko inzima kakhulu. Apha indlebe engaphandle ayikakhiwa ngokupheleleyo. Oku kukwabizwa ngokuba yi-`(Anotia)`.

Ukusuka kolu hlulo, siyaqonda ukuba `(iMicrotia)` ayilomeko inye, kodwa inamanqanaba ahlukeneyo.

Ixhaphake kangakanani le meko (iMicrotia)?

Ngokwezibalo ezivela kumazwe afana neMelika, phakathi kwe-1 kunye ne-5 kwi-10,000 yeentsana ezisandul’ ukuzalwa zichaphazeleka yimeko ethi ``Microtia``. Kufunyaniswe ukuba le meko ixhaphake kakhulu phakathi kwamakhwenkwe kwaye ichaphazela indlebe yasekunene ngaphezu kweyasekhohlo. Kukho nabantwana abanale meko eSri Lanka, ngoko ke kubaluleke kakhulu ukuqaphela oku.

Zithini iimpawu ze-`(Microtia)`?

Uphawu oluphambili kukuvela kwendlebe yangaphandle. Oko kukuthi:

• Ukuba nendlebe yangaphandle emile ngendlela eyahlukileyo kuneqhelekileyo.
• Kusenokwenzeka ukuba akukho ndlebe yangaphandle (`(Anotia)`).
• Iindlebe zincinci kuneziqhelekileyo .

Ezi zezona mpawu ziphambili ezinokubonwa.

Ngaba umntu one-`(Microtia)` angakuva?

Le yingxaki ebanayo abazali abaninzi. Umntwana one-microtia unokuba nomlinganiselo othile wokulahlekelwa kukuva kwindlebe echaphazelekayo. Oku kuyinyani ngakumbi ukuba kukho iingxaki zokukhula kwindlebe ephakathi okanye kumjelo wendlebe.

Kodwa khumbula oku: Nokuba umjelo wendlebe uvaliwe ngokupheleleyo, ezinye zezakhiwo ezithambileyo zangaphakathi zendlebe zisenokukwazi ukubamba isandi.

Ngoko ke, utyando lokuvula umjelo wendlebe ngamanye amaxesha lunokuphucula ukuva. Kukwakho nezixhobo ezikhethekileyo (`(Izixhobo zokuva)`) ezinokukunceda uve nokuba umjelo wendlebe uvaliwe.

Eyona nto ibalulekileyo kukuvavanya ukuva komntwana wakho kwangoko nje wakufumanisa ukuba une-"Microtia." Nokuba ukulahleka kokuva okuncinci kunokuchaphazela amandla omntwana okufunda ukuthetha. Ngoko ke kubalulekile ukuba oku kuhlolwe ngokukhawuleza.

Kutheni le nto `(Microtia)` isenzeka? Yintoni unobangela?

Izihlandlo ezininzi, kunzima koogqirha ukuchonga unobangela ochanekileyo we-"Microtia." Njengoko bekutshiwo ngaphambili, oku kudla ngokubangelwa lutshintsho oluthile ekuphuhlisweni kwendlebe ngexesha lekota yokuqala yokukhulelwa.

Kwezinye iimeko, `(Microtia)` inokuba yinxalenye yesifo esikhulu. Umzekelo, kukho imeko ebizwa ngokuba yi`(Hemifacial Microsomia)`. Kule meko, uphuhliso lwecala elinye lobuso bomntwana luyaphazamiseka ngaphambi kokuzalwa. `(Microtia)` inokubonwa nakweso simo.

Ezinye iimeko ze-`(Microtia)` nazo zinokwenzeka ngenxa yezizathu zemfuza , oko kuthetha ukuba kukho umntu kusapho onaso kwaye sinokudluliselwa kwizizukulwana ngezizukulwana.

Ingaba `(Microtia)` yinto yemfuza?

Ngamanye amaxesha, ewe. IMicrotia inokuba yimfuza. Oku kuthetha ukuba le meko inokudluliselwa ukusuka kubazali ukuya ebantwaneni. Nangona kunjalo, kwiimeko ezininzi, iMicrotia yimeko eyenzeka ngamaxesha athile . Oku kuthetha ukuba umntwana unokuba nayo nokuba akukho mntu usapho unayo. Ngoko ke, musani ukoyika kuba kungekho mntu kusapho lwakho okhe waba nayo.

Oogqirha bayixilonga njani iMicrotia?

Oogqirha badla ngokuxilonga iMicrotia xa bezalwa kuba indlebe engaphandle ibonakala ngokucacileyo. Ngamanye amaxesha, ugqirha unokuyalela uvavanyo olukhethekileyo, olufana ne-CT scan, ukuze abone ngokweenkcukacha ukuba kukho naluphi na utshintsho olukhoyo kumbindi nakwinxalenye yangaphakathi yendlebe yomntwana. Oku kunokunceda ekucwangciseni unyango.

Iphathwa njani iMicrotia?

Into ebalulekileyo apha kukuba utshintsho kwinkangeleko yangaphandle yendlebe ngenxa ye-`(Microtia)` alusoloko lufuna unyango. Nangona kunjalo, ukuba kukho naluphi na uphazamiseko lokuva, kufuneka lunyangwe . Kubaluleke kakhulu ukuba kuhlolwe ukuva kwasebuntwaneni kwaye, ukuba kuyimfuneko, kuqhubeke nokuyinika ingqalelo. Kuba, ukuba uphazamiseko lokuva alunyangwa, lunokuchaphazela intetho yomntwana kunye nophuhliso lolwimi.

Ukuba ugqiba ekubeni unyange imeko yakho (iMicrotia), kukho iindlela ezimbini eziphambili:

1. Iiprosthetics zendlebe

2. Utyando lweMicrotia (okanye uLwakhiwo ngokutsha lotyando)

Masifunde kancinci ngeendlebe zokwenziwa (`(Ear Prosthetics)`)

Ezi zihlala zenziwe nge-silicone. Ezi ndlebe zokwenziwa zinokunamatheliswa kusetyenziswa iglu ekhethekileyo enamathela eluswini okanye kwiimagnethi. Nangona kunjalo, ezi ndlebe zokwenziwa zifuna ukulungiswa ngokuhamba kwexesha. Oku kusenokungabi lolona khetho lufanelekileyo kwabanye abantwana.

Yintoni utyando lwe-`(Microtia)` (`(Ukwakhiwa ngokutsha kotyando)`)?

Oku kuquka ukwakhiwa ngokutsha kwendlebe echaphazelekileyo ngotyando . Oogqirha badla ngokucebisa ukuba umntwana aqale olu nyango lotyando phakathi kweminyaka emi-6 neli-9 ubudala, kuba kuloo minyaka, umzimba womntwana ufikelele kwinqanaba elithile lokukhula. Ngokuxhomekeke kwindlela yotyando esetyenzisiweyo, olu lwakhiwo lwendlebe lunokwenziwa ngamanqanaba aliqela.

Kule nkqubo, ugqirha otyandayo udala indlebe entsha esebenzisa i-cartilage (inxalenye yomzimba wethu eguquguqukayo efana nethambo) ethathwe kwimbambo yomntwana , okanye esebenzisa izinto ezenziwe ngokwenziwa . Ngamanye amaxesha i-implant yendlebe ingasetyenziselwa ukwakha kwakhona indlebe. Nokuba yeyiphi na indlela, ugqirha otyandayo udala isakhelo sendlebe, esigqunywa ziithishu zomntwana. Olu lutyando olunzima ngakumbi, kodwa iziphumo zinokuba zintle kakhulu.

Umntwana wam uza kukwazi nini ukubuyela kwimisebenzi yakhe yesiqhelo?

Umntwana one-`(Microtia)` unqunyelwe kwimisebenzi yakhe yemihla ngemihla ngexesha lotyando. Ixesha lokuchacha emva kotyando lwe-`(Microtia)` lixhomekeke kuhlobo lonyango olwenziweyo. Ugqirha wakho uza kukuxelela ngokuthe ngqo ukuba umntwana wakho uza kukwazi nini ukudlala ngokuqhelekileyo aze aye esikolweni.

Ngaba abantu abane-`(Microtia)` banokuba nezinye iingxaki zempilo?

Ukulahlekelwa kukuva yeyona ngxaki ixhaphakileyo enxulunyaniswa ne-microtia. Ukongeza, abanye abantwana abane-microtia banokuba neengxaki zokuzihlonipha kunye neentloni ngenxa yokubonakala kweendlebe zabo. Amaqela enkxaso angabanceda bazive ukuba ababodwa.Ukunxibelelana nabanye abantu kunokuba ngumthombo omkhulu wamandla. Njengabazali, kufuneka nikwazi oku.

Ngaba ikho indlela yokuthintela i-`(Microtia)`?

Akukho ndlela ithile yokuthintela i-`(Microtia)`. Nangona kunjalo, kuthiwa ezinye izinto, ezinje ngokuphepha amayeza athile ngexesha lokukhulelwa, zinokunciphisa umngcipheko ngandlela ithile. Uphando lusenziwa ngoku. Ke ngoko, ukuba ukhulelwe okanye uceba ukukhulelwa, buza ugqirha wakho ngeendlela zokunciphisa umngcipheko wokuba nomntwana one-`(Microtia)`.

Liza kuba njani ikamva lomntwana one-`(Microtia)`?

Le yingxaki enkulu kubazali abaninzi. Uninzi lwabantwana abane-`(Microtia)` bakhula ngokuqhelekileyo kuzo zonke ezinye iindlela kwaye baphila ubomi obusempilweni nobusebenzayo . Kwabaninzi, ukuba kukho ukulahleka kokuva okunxulunyaniswa ne-`(Microtia)`, unyango olufanelekileyo lunokuthintela iingxaki zexesha elide malunga nophuhliso lwentetho okanye ulwimi. Ngoko ke, akukho nto inokubangela ixhala ngayo.

Ngaba iMicrotia "inganyangeka" ngokupheleleyo?

Utyando lunokulungisa okanye luphucule utshintsho kwisakhiwo sendlebe, oko kukuthi, inkangeleko. Ukuba kukho ukulahlekelwa kukuva ngenxa yomjelo wendlebe ongakhekanga kakuhle, utyando lunokunceda ekuphuculeni loo nto ukuya kuthi ga kwinqanaba elithile.

Ndifanele ndimbone nini ugqirha wam?

Ukuba ukhulelwe okanye uceba ukukhulelwa, thetha nogqirha wakho malunga nendlela yokunyamekela impilo yakho. Umama oye waba nomntwana one-microtia kwixesha elidlulileyo unokuba nomngcipheko omncinci wokuba nomnye umntwana onesi sifo. Ngoko ke licebo elihle ukuthetha nogqirha wakho ngale nto.

Yeyiphi imibuzo endifanele ndiyibuze ugqirha womntwana wam?

Ukuba umntwana wakho une-microtia, ungambuza ugqirha imibuzo efana nale:

• Ingaba le meko imbi kangakanani? (Ingowaluphi uhlobo?)
• Zeziphi iimpawu zeengxaki ekufuneka ndiziqaphele?
• Yeyiphi indlela engcono yonyango kumntwana wam?
• Ngubani endifanele ndimbone ukuze ndihlole ukuva komntwana wam ?

Buza le mibuzo uze ucime onke amathandabuzo akho.

Okokugqibela, izinto ekufuneka uzikhumbule (Umyalezo Wokuya Ekhaya)

I-Microtia yimeko yokuzalwa ebangela utshintsho kwisakhiwo sendlebe engaphandle. Ihlala ifunyaniswa xa izalwa. Iindlela zonyango zixhomekeke kuhlobo kunye nobunzima bemeko. Kubalulekile ukunyanga iingxaki zokuva kwangethuba. Ukuba umntwana wakho ulahlekelwe kukuva ngenxa ye-microtia, kukho iindlela kunye nezixhobo zokunceda.

Khumbula, abantwana abaninzi abane-`(Microtia)` baphila ubomi obonwabisayo, obusempilweni, nobuzeleyo. Ngoko ke, fumana iingcebiso zonyango kunye nenkxaso efunekayo, kwaye ujongane nale meko ngendlela eyakhayo. Awuwedwa!

Iintsholongwane zendlebe , ukukhubazeka kwendlebe, izifo zendlebe zokuzalwa, iingxaki zendlebe ebantwaneni, ukukhubazeka kokuva, utyando lwendlebe, iziphene zokuzalwa