Xa ugqirha wakho ekunika i-Nitisinone wena okanye umntwana wakho omthandayo, kuyinto eqhelekileyo ukuba nemibuzo emininzi. Oku kungenxa yokuba ayiloyeza lesifo esiqhelekileyo esifunyanwa ngumntu wonke. Ngoko ke namhlanje, masithethe ngeli yeza libizwa ngokuba yi-Nitisinone, ukuba lenza ntoni ngokwenene, indlela yokulisebenzisa, kunye namanyathelo okhuseleko ekufuneka uwathathe, konke oku ngendlela elula kakhulu onokuyiqonda.
Loluphi uhlobo lonyango olu? Kwenzeka ntoni ngeNitisinone?
Ngamafutshane, iNitisinone liyeza elicothayo nelilawula isantya umzimba wethu oqhekeza ngaso i-amino acid ebizwa ngokuba yi-tyrosine. Cinga nge-tyrosine njengebhloko yokwakha esetyenziselwa ukwenza iiproteni emizimbeni yethu.
Eli yeza lisetyenziselwa ngokukodwa ukunyanga imeko engaqhelekanga, ezuzwe njengelifa ebizwa ngokuba yiHereditary Tyrosinemia Type I. Kubantu abanale meko, umzimba awukwazi ukuwohloka (ukuyigaya) i-tyrosine ngokufanelekileyo. Emva koko iyaqokelelana emzimbeni ize ibe zizinto ezinobuthi ezinokonakalisa isibindi, izintso kunye nenkqubo yemithambo-luvo. Ngoko ke into eyenziwa yiNitisinone kukuthintela ukuveliswa kwezo zinto zinobungozi.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uqale amayeza
Ngaphambi kokuba uqale eli yeza, kufuneka ucacisele ugqirha wakho ezi zinto ngokucacileyo. Oku kubaluleke kakhulu kukhuseleko lwakho.
- Ukuba une-allergy kwi-Nitisinone okanye nakweyiphi na enye iyeza, ukutya, okanye idayi.
- Ukuba ukhulelwe okanye uzama ukukhulelwa.
- Ukuba ungumama oncancisayo.
Ndingayisebenzisa njani le yeza?
Kubaluleke kakhulu ukusela amayeza kanye njengoko ugqirha ewamisele, ngokwemilinganiselo echanekileyo.
- Indlela yokuthatha: Ngamanye amaxesha ungayinyibilikisa ipilisi emanzini amancinci uze uyinike umntwana wakho usebenzisa isirinji yomlomo. Okanye, ungayityumza ipilisi uze udibanise inani elincinci nento efana ne-applesauce uze uyinike umntwana wakho. Nangona kunjalo, nokuba wenza ntoni na, kufuneka usebenzise iyeza ngoko nangoko emva kokulenza.
- Ngexesha: Ziqhelise ukusela amayeza akho ngexesha elifanayo yonke imihla. Musa ukuwasela rhoqo kunokuba ugqirha wakho ekuxelele.
- Musa ukuyeka ukuthatha eli yeza ngequbuliso: Ungaze uyeke ukulithatha ngaphandle kwengcebiso kagqirha wakho. Ukwenza njalo kunokwenza imeko yakho ibe mandundu.
Ngaba eli yeza linokunikwa abantwana abancinci?
Ewe, eli yeza linokunikwa nosana olusandul’ ukuzalwa olunesi sifo. Kodwa kufuneka lenziwe phantsi kweliso elibukhali likagqirha wabantwana. Kukho izinto ezithile ekufuneka ziqwalaselwe xa ulinika abantwana.
Inqaku elibalulekileyo: Eli yeza limiselwe wena kuphela. Musa ukwabelana ngalo nabanye abantu nangasiphi na isizathu.
Amanqaku akhethekileyo ekufuneka uwaqwalasele xa usebenzisa amayeza
Kukho izinto ezimbini ezibalulekileyo ekufuneka uziqwalasele xa usebenzisa eli yeza.
1. Uvavanyo olucwangcisiweyo kunye nokuhlolwa
Kubalulekile ukuya ekliniki ukuze uhlolwe njengoko ugqirha wakho ekuyalele. Ngelixa usela eli yeza, kuya kufuneka wenze uvavanyo lwegazi olubalulekileyo rhoqo ukuze ujonge inani legazi lakho kunye nokusebenza kwesibindi sakho. Musa ukulibaleka eli vavanyo.
2. Ukutya Okukhethekileyo
Le yeyona nto ibalulekileyo . Ukulandela ukutya okukhethekileyo kubaluleke kakhulu njengokuthatha eli yeza, okanye kubaluleke nangakumbi kunokuthatha eli yeza.
Kuya kufuneka ulandele ukutya okukhethekileyo ngelixa usebenzisa eli yeza. Kuya kufuneka unciphise inani lee-amino acids ezibizwa ngokuba yiTyrosine kunye nePhenylalanine ekutyeni kwakho. Thetha nogqirha wakho ngale nto, kwaye ukuba kuyimfuneko, ingcali yesondlo kwisibhedlele sikarhulumente, kwaye ulandele imiyalelo yabo ngononophelo. Ukuba awuyilandeli kakuhle le ndlela yokutya, awuyi kufumana zibonelelo zipheleleyo zeyeza.
Zithini iziphumo ebezingalindelekanga ezinokubakho zale yeza?
Njengayo nayiphi na imithi, iNitisinone inokubangela ezinye iziphumo ebezingalindelekanga. Masizihlukanise zibe ziindidi ezimbini.
| Iziphumo ebezingalindelekanga ekufuneka zixelwe kugqirha ngoko nangoko | |
|---|---|
| Iimpawu ze-aleji | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, okanye ulwimi. |
| Utshintsho emehlweni | Ukutshintsha kombono, ukuba bomvu kwamehlo, iintlungu zamehlo, ukuva ukukhanya. |
| Iingxaki zesibindi | Ukutyheli kwamehlo okanye ulusu, umchamo omnyama, isitulo esihlala ixesha elide, iintlungu kwicala eliphezulu lasekunene lesisu. |
| Ezinye iimpawu ezinzulu | Ukukrweleka okanye ukopha okungaqhelekanga, ukudinwa kakhulu, ukuziva unomkhuhlane, ukungabi namdla wokutya, isicaphucaphu, kunye namaqhuqhuva abuhlungu ezintendeni zezandla zakho nasezinyaweni zakho. |
| Iziphumo ebezingalindelekanga ezingaqhelekanga, kodwa kufuneka zixelwe kugqirha ukuba ziyaqhubeka | |
|---|---|
| Urhudo | Ukuhamba esihlalweni esikhululekileyo |
| Ulusu olomileyo | Ulusu olomileyo |
| Ukulahleka kweenwele | Ukulahleka kweenwele |
Olu luhlu alubandakanyi zonke iziphumo ebezingalindelekanga. Ukuba ubona enye into engaqhelekanga, thetha nogqirha wakho.
Yintoni omawuyenze ukuba uphoswa yidosi uze usele kakhulu?
Kuthekani ukuba ndiphoswa lidosi leyeza?
Ukuba ulibele ukuthatha idosi, yithathe kwangoko xa ukhumbula. Kodwa ukuba sele kuza kufuneka uthathe idosi elandelayo, yitsibe idosi oyiphosileyo uze uthathe idosi elandelayo ngexesha elicwangcisiweyo. Ungaze uthathe idosi ephindwe kabini ukuze ubuyisele idosi oyilibeleyo.
Kuthekani ukuba ndithatha amayeza amaninzi kakhulu?
Ukuba ucinga ukuba usele kakhulu eli yeza, fowunela iZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo ngoko nangoko . Okanye, yiya kwiCandelo loNgxamiseko lwesibhedlele esikufutshane (ETU) ngokukhawuleza.
Ndingaligcina njani iyeza?
- Gcina kude nokufikelela kwabantwana .
- Gcina kubushushu begumbi (phakathi kwama-20 nama-25 degrees Celsius).
- Lahla amayeza aphelelwe lixesha.
Umyalezo Wokuya Ekhaya
- I-Nitisinone liyeza elikhethekileyo ekufuneka lithathwe njengoko kuyalelwe ngugqirha kwaye lisetyenziswe ngokwemilinganiselo emiselweyo.
- Ukongeza ekuthatheni eli yeza, kubalulekile ukulandela ukutya okukhethekileyo (okuncinci kwi-tyrosine kunye ne-phenylalanine) .
- Ungaze uyeke ukuthatha amayeza ngaphandle kwengcebiso kagqirha.
- Yiya kwiikliniki ngemihla emiselweyo kwaye wenze zonke iimvavanyo zegazi ezifunekayo.
- Ukuba ubona naziphi na iziphumo ebezingalindelekanga ezinzulu, ezinje ngokutyheli kwamehlo okanye ukukrweleka okungaqhelekanga, yazisa ugqirha wakho ngoko nangoko.
- Gcina amayeza kwindawo ekhuselekileyo kude nabantwana.
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