Ngaba wena okanye umntu omaziyo une-Neuromyelitis Optica Spectrum Disorder (NMOSD)? Ukuba kunjalo, ugqirha wakho usenokuba ukuxelele ngesitofu sokugonya esibizwa ngokuba yi-Inebilizumab (ebizwa ngokuba yi-ee-ne-bi-li-su-mab). Ukuva igama elinjalo kunokoyikisa kancinci. Kodwa ungakhathazeki. Namhlanje, siza kuthetha ngeli yeza, into eliyenzayo, kunye nento ekufuneka uyilumkele xa ulisebenzisa.
Ngoko ke, yintoni le chiza ebizwa ngokuba yi-Inebilizumab?
Ngamafutshane, i-`Inebilizumab` (igama lophawu: i-UPLIZNA) yiproteni ethile. Kwisayensi yezonyango, le nto siyibiza ngokuba yi-`monoclonal antibody`. Umsebenzi wayo ophambili kukulawula imeko yesifo i-`Neuromyelitis Optica Spectrum Disorder (NMOSD)`.
I-NMOSD yimeko apho inkqubo yomzimba wethu yokuzikhusela ihlasela iiseli zayo zemithambo-luvo, ingakumbi ezo zisemehlweni nasemqolo. Ngoko ke into eyenziwa leli yeza elithi 'Inebilizumab' kukujolisa kwinkqubo yenkqubo yokuzikhusela engalunganga, ukuyimisa, kunye nokunciphisa umonakalo obangelwe sisifo.
Eli yeza lisenokumiselwa ngugqirha wakho nakwezinye iimeko, ngoko ke ukuba uneengxaki, nceda ubuze ugqirha wakho ngalo.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uqale amayeza
Ngaphambi kokuba uqale olu nyango, kubaluleke kakhulu ukwazisa ugqirha wakho ngembali yakho epheleleyo yempilo. Ngokukodwa, kufuneka umxelele ngezi ngongoma zilandelayo.
| Oko kufuneka ukwazi | Kutheni kunjalo? (Kalula nje) |
|---|---|
| Iingxaki zenkqubo yomzimba yokuzikhusela: Ukuba unezinye iingxaki zenkqubo yomzimba yokuzikhusela. | Ngenxa yokuba eli yeza litshintsha ukusebenza kwenkqubo yomzimba yokuzikhusela, kubalulekile ukuba uqaphele naziphi na iingxaki ezikhoyo. |
| Usulelo lwangoku: Ukuba unomkhuhlane, umkhuhlane, ukukhohlela, okanye usulelo lwentsholongwane olufana ne-chickenpox okanye i-herpes. | Eli yeza linciphisa amandla akho okulwa nosulelo, ngoko ke usulelo olukhoyo lunokuba mandundu. |
| Ii-Allergies: Ukuba une-allergies kwi-Inebilizumab okanye kwamanye amayeza, ukutya, okanye iidayi. | Oku kubalulekile ukuthintela ukusabela okunamandla kwe-allergy okunokwenzeka xa kunikwa iyeza. |
| Ukukhulelwa: Ukuba ukhulelwe, uzama ukukhulelwa, okanye uncancisa. | Eli yeza linokuba yingozi kumntwana osesiswini, ngoko ke kubaluleke kakhulu ukuthetha ngale nto. |
Ndingakunika njani eli yeza?
I-"Inebilizumab" ayiloyeza lokulisela ekhaya. Liyeza elifakwa ngemithambo yegazi eline-saline (i-intravenous infusion) . Olu nyango lunikwa esibhedlele okanye eklinikhi phantsi kweliso labasebenzi bezonyango abaqeqeshiweyo.
Ngaphambi konyango, unganikwa amanye amayeza (umzekelo, amayeza okubangela ukunganyamezelani) ukunciphisa umngcipheko weempembelelo zokunganyamezelani namayeza.
Ngaphambi kweseshoni nganye yonyango, uya kunikwa incwadana yolwazi ekhethekileyo (`MedGuide`) malunga nale yeza. Kubalulekile ukuyifunda nokuyiqonda ngononophelo ngalo lonke ixesha.
Kuthekani ukuba umthamo weyeza uyanda?
Oku kunikwa esibhedlele, ngoko ke amathuba okuba oku kwenzeke mancinci kakhulu. Nangona kunjalo, ukuba ukrokrela ukuba uthathe amayeza amaninzi kakhulu, yazisa abasebenzi bezonyango ngoko nangoko. Ngaphandle koko, fowunela iZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo . Okanye yiya kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane.
Kuthekani ukuba ndiphoswa lusuku lokusela amayeza?
Olu nyango lunikwa ngokwexesha elicwangcisiweyo. Kungoko ke, kubaluleke kakhulu ukufumana unyango ngexesha. Ukuba ngesizathu esithile awukwazi ukuya ngomhla ocwangcisiweyo, fowunela ugqirha wakho okanye isibhedlele ngokukhawuleza uze ubazise, ukuze bakwazi ukucwangcisa idinga lomhla olandelayo okhoyo.
Izinto ekufuneka uzilumkele ngakumbi xa usebenzisa iyeza
Ugqirha wakho uza kukujonga ngokusondeleyo ngelixa usebenzisa la mayeza, kwaye kubalulekile ukuba uzazi ezi zinto.
- Umngcipheko wosulelo: Ngenxa yokuba eli yeza lithintela amajoni akho omzimba ukuya kwinqanaba elithile, usenokuba semngciphekweni omkhulu wosulelo . Ukuba ubonakalisa naziphi na iimpawu zosulelo ezifana nomkhuhlane, ukugodola, umphimbo obuhlungu, ukukhwehlela, iimpawu zomkhuhlane, okanye iintlungu xa uchama,Xelela ugqirha wakho ngoko nangoko. Musa ukuzinyanga. Zama ukuhlala kude nabantu abagulayo.
- Iimpendulo eziqatha ze-allergy: Abanye abantu banokuba ne-allergy eqatha kakhulu kweli yeza. Ukuba ufumana naluphi na ulusu olurhawuzelelayo, ukurhawuzelela, ukudumba kobuso, imilebe, okanye ulwimi ngexesha okanye emva nje kwenaliti, yazisa abasebenzi bezonyango ngoko nangoko.
- Ukuphepha ukukhulelwa: Ukuba ungumfazi, kuphephe ukukhulelwa ngelixa usebenzisa eli yeza kwaye kangangeenyanga ezi-6 emva kokuyeka unyango . Eli yeza linokubangela ingozi enkulu kusana olungekazalwa. Ukuba uceba ukukhulelwa, thetha nogqirha wakho ngalo mba.
Inqaku Elikhethekileyo: Amaxesha amaninzi, eli yeza linokubangela usulelo olukhulu nolusongela ubomi bobuchopho (olubizwa ngokuba yi-`Progressive Multifocal Leukoencephalopathy - PML`) kwabanye abantu. Ke ngoko, ukuba ufumana ubunzima okanye utshintsho ekuboneni kwakho, ekucingeni, ekuthetheni, ekuhambeni, okanye ekulinganiseni , xelela ugqirha wakho ngoko nangoko .
Iziphumo ebezingalindelekanga zeyeza
Njengalo naliphi na iyeza, i-'Inebilizumab' inokubangela ezinye iziphumo ebezingalindelekanga. Ezinye zezi ziphumo kufuneka zixelwe ngoko nangoko, ngelixa ezinye zingengobungozi kangako.
| Iziphumo ebezingalindelekanga ekufuneka uzixele kugqirha wakho ngoko nangoko | |
|---|---|
| Ukwaliwa kakhulu | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi, ubunzima bokuphefumla. |
| Iimpawu zosulelo | Umkhuhlane, ukubanda, umphimbo obuhlungu, ukukhwehlela, usulelo lomchamo. |
| Ngokwesiqhelo ayisiyongxaki inzulu (kodwa xelela ugqirha wakho ukuba iyaqhubeka) | |
| Iintlungu zomzimba | Intlungu yomqolo, intlungu yamalungu. |
| Intloko ebuhlungu | Intloko ebuhlungu kancinci ukuya kwephakathi. |
| Ukungonwabi kwindawo yokutofa | Intlungu, ukubomvu, okanye ukudumba kwindawo efakwe kuyo inaliti. |
Olu luhlu alubandakanyi zonke iziphumo ebezingalindelekanga. Ukongeza, ukuba ufumana into engaqhelekanga, thetha nogqirha wakho ngayo.
Umyalezo Wokuya Ekhaya
- I-'Inebilizumab' liyeza elithile elinikwa ngemithambo esibhedlele le-'Neuromyelitis Optica Spectrum Disorder (NMOSD)'.
- Ngaphambi kokuba uqale unyango, xelela ugqirha wakho ngazo zonke iimeko zakho zempilo, ii-allergies, kunye namanye amayeza owasebenzisayo.
- Ukuba ubonakalisa iimpawu zosulelo ezifana nomkhuhlane kunye nokukhwehlela ngelixa usebenzisa eli yeza, funa ingcebiso kagqirha ngokukhawuleza.
- Kuphephe ukukhulelwa ngexesha lonyango kwaye emva kweenyanga ezi-6 emva kokuyeka. Thetha nogqirha wakho ngale nto.
- Musa ukoyika ukubuza ugqirha wakho ukuba akucacisele naziphi na iingxaki okanye amathandabuzo onokuba nawo. Bakho ukuze bakuncede.
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