Ingaba umntwana wakho omncinci akanangxaki yokuyeka ukopha? Masithethe nge-hemophilia!

Njengomama okanye utata, nokuba umntwana wakho wenzakele kancinci okanye opha igazi, uziva uloyiko olukhulu kwaye uxhalabile, akunjalo? Kuqhelekile kakhulu. Kodwa kwabanye abantwana, nokuba kukwenzakala okuncinci, ukopha igazi kusenokungayeki ngokukhawuleza njengesiqhelo. Ngamanye amaxesha, basenokupha igazi ngaphandle kwesizathu konke konke. Isizathu esiphambili soku sisifo esibizwa ngokuba yi-hemophilia. Ukuva eli gama kunokukwenza woyike ngoko nangoko, kodwa ungakhathazeki. Masithethe ngayo yonke into ngokulula nangokucacileyo namhlanje. Ndiza kuzichaza ezi zinto ngendlela onokuyiqonda.

Yintoni i-hemophilia?

Ngamafutshane, i-hemophilia yimeko engaqhelekanga, ezuzwe njengelifa ebangela ukuba igazi lethu lijijeke ngendlela engafanelekanga. Uyazi, xa sifumana ingozi encinci, njengokusikwa ngemela, ukopha okunye kuyayeka kuba iiproteni ezithile egazini lethu (ezibizwa ngokuba zizinto ezibangela ukujijeka kwegazi ) ziyahlangana kwaye zivale inxeba, zimise ukopha. Kufana nedama elincinci "elivala" inxeba.

Ngoko ke, abantwana abane-hemophilia banezinga eliphantsi lenye okanye ezingaphezulu kwezi zinto zokujiya kwegazi, okanye azisebenzi kakuhle. Yiyo loo nto bethatha ixesha elide kunesiqhelo ukuyeka ukopha nokuba kukwenzakala okuncinci, okanye ngamanye amaxesha baqala ukopha lula. Ke ngoko, njengomzali womntwana one-hemophilia, kubaluleke kakhulu ukwazi indlela yokulawula ukopha ngokufanelekileyo ukuba kwenzeka .

Oku kusenokuvakala kukukhathaza kakhulu. Usenokuba ucinga, "Owu, mntwana wam, ingaba oku kuza kwenzeka kum?" Kodwa khumbula, ngonyango oluphambili lwanamhlanje, nomntwana one-hemophilia unokuphila ubomi obuqhelekileyo nobusempilweni kangangoko kunokwenzeka. Eyona nto ibalulekileyo kukuba wena nosapho lwakho nisiqonde kakuhle esi sifo kunye nendlela yokusilawula.

Indlela yokunyanga ukopha?

Ukuba umntwana one-hemophilia uyopha, unyango luxhomekeke kuhlobo lokopha, ubukhali bengozi, kunye nokuba ukopha kuvela phi. Uninzi lwexesha, ukopha okuncinci ngenxa yokwenzakala okuncinci kunokulawulwa ekhaya. Nangona kunjalo, ukwenzakala okunzulu ngakumbi kufuna utyelelo kugqirha, kwiZiko loNyango lweHemophilia, okanye kwigumbi likaxakeka esibhedlele.

Ngoku makhe sijonge into esifanele siyenze kwiintlobo ezahlukeneyo zokopha. Ugqirha wakho uza kukuchazela konke oku ngokweenkcukacha. Kodwa kubaluleke kakhulu ukwazi ezi zinto zisisiseko.

Yintoni omawuyenze xa unemivumbo?

Kuqhelekile ukuba nemivumbo emincinci xa udlala, ubaleka, okanye utsiba. Kumntwana one-hemophilia, le mivumbo inokuba nkulu kwaye ibe mnyama.

• Khawuthelekelele umntwana wakho ekhubeke esitulweni ngelixa edlala waza wakrweleka umlenze. Ukuba oko kuyenzeka, beka ipakethe yomkhenkce ebhijelwe ngetawuli phezu komkhenkce malunga nemizuzu eli-10. Yenza oku rhoqo emva kweeyure ezimbini. Ungaze ubeke umkhenkce ngqo eluswini, kulungile? Kungonakalisa ulusu.
• Nangona kunjalo, thetha neqela lakho lokhathalelo ngala maxesha:
• Ukuba inxeba libuhlungu kakhulu.
• Ukuba inxeba libonakala likhula.
• Ukuba ukudumba kwenza kube nzima ukuhambisa ilungu, okanye ukuba kubangela intlungu.

Kuthekani ukuba amanxeba omlomo ayopha? (Umlomo uyopha)

Abantwana bayakhathazeka kancinci xa benenxeba elincinci emlonyeni wabo, umzekelo, ukunqunyulwa kweentsini zabo ngelixa behlamba amazinyo abo, okanye ukunqunyulwa kolwimi lwabo ngelixa besitya, kwaye liphuma igazi. Nantsi into omawuyenze kwimeko enjalo:

• Faka uxinzelelo kwindawo ephuma igazi. Oku kuthetha ukuyibamba ngeqhekeza elicocekileyo le-gauze okanye ilaphu ixesha elifutshane.
• Ungayifaka ne-ice pop okanye i-ice cube kuloo ndawo. Umkhuhlane uya kuyixinanisa imithambo yegazi kwaye unciphise ukopha.
• Xa ukopha kuyekile, kuphephe ukunika umntwana wakho ukutya okuqinileyo nokurhabaxa (umz. iibhisikithi, iitships) kunye nokutya okushushu kunye neziselo, kuba oku kunokuqalisa ukopha kwakhona.
• Ukuba ukopha akuyeki emva kwemizuzu engama-20, qiniseka ukuba ufowunela iqela lakho lezonyango.

Ukusikwa okuncinci kunye nokukrweleka

Sinokuhlala sinyamekela iingozi ezincinci ezifana nezi ekhaya, kodwa ezi zinto kufuneka zenziwe ngokufanelekileyo.

• Okokuqala, hlamba kakuhle indawo esikiweyo okanye ekrweliweyo ngamanzi.
• Emva koko, cinezela inxeba ngesiqwenga segauze ecocekileyo, ngelaphu elicocekileyo, okanye iplasta.
• Ukuba ukopha akuyeki emva kwemizuzu engama-20, fowunela ugqirha wakho ngoko nangoko. Uza kukuxelela into omawuyenze. Kusenokufuneka:
• Unyango lokutshintsha iiFactor lunikezelwa ekhaya. Oku kuquka ukunika umntwana i-clotting factor engonelanga emzimbeni wakhe njengenaliti. Ugqirha kunye nomongikazi baya kukufundisa indlela yokumnika oku.
• Kungenjalo, ugqirha uza kukuxelela ukuba umse kwiziko lonyango lwe-hemophilia okanye kwigumbi likaxakeka esibhedlele.

Kuthekani ukuba kukho inxeba elibi elibangela ukopha kakhulu?

Le yimeko enzima kakhulu. Musa ukoyika, kodwa landela la manyathelo ngokukhawuleza.

1. Okokuqala, lawula ukopha ngokukhawuleza kangangoko:

• Iqhekeza le-gauze ecocekileyo, ilaphu elicocekileyo, okanye ibhandejiFaka uxinzelelo olufanelekileyo enxebeni.
• Ukuba i-gauze okanye ilaphu elibekwe enxebeni limanzi ligazi, musa ukulisusa, kodwa beka elinye phezulu uze uqhubeke nokufaka uxinzelelo.
• Ukuba kunokwenzeka, gcina ingalo okanye umlenze owonzakeleyo ungaphezulu kwenqanaba lentliziyo. Oku kunokunceda ekunciphiseni ukopha kancinci.

2. Okulandelayo, fowunela ugqirha wakho ngaphandle kokulibazisa uze ulandele imiyalelo yakhe:

• Kusenokwenzeka ukuba, baza kucebisa unyango lokutshintshwa kwezinto ngokukhawuleza .
• Bamxelela ukuba amse kugqirha ngokukhawuleza, kwiziko lonyango lwe-hemophilia, okanye kwigumbi likaxakeka lesibhedlele.

Ngexesha elinje, kungcono ungachithi xesha lide. Tsalela umnxeba ugqirha ngoko nangoko uze wenze njengoko etshilo.

Kuthekani ukuba kukho ukurhaneleka kokuba igazi liphume kwilungu okanye kwisihlunu? (Kunokwenzeka ukuba igazi liphume kwilungu okanye kwisihlunu)

Oku kubaluleke kakhulu. Ngamanye amaxesha, nokuba akukho monakalo ubonakalayo, abantwana abane-hemophilia banokopha emalungwini abo (umz., emadolweni, engqinibeni, emaqatheni) okanye kwizihlunu ezinkulu (umz., emathangeni, ezingalweni). Oku kunokuba buhlungu kakhulu kwaye kunokubangela umonakalo wexesha elide kwilungwini.

• Ukuba umntwana wakho akathandi ukuhambisa ilungu, ukuba kukho ukudumba, ukubomvu, okanye ukufudumala kuloo ndawo, okanye ukuba umntwana wakho ukhala nje ngentlungu kuloo ndawo, fowunela ugqirha wakho ngoko nangoko.
• Landela imiyalelo kagqirha ngokuchanekileyo. Uza kukuxelela rhoqo ukuba wenze ezi zinto:
• Nika unyango lokubuyisela izinto ngokukhawuleza.
• Faka umkhenkce (usongelwe ngetawuli) kwindawo yentlungu.
• Nika isithomalalisi sentlungu esikhuselekileyo . Umzekelo, unganika i-acetaminophen (umz., iTylenol).

Kubaluleke kakhulu: Ungaze unike iintlungu ezifana ne -Aspirin , i-Ibuprofen (umz., i-Advil, i-Motrin), kunye ne -Naproxen Sodium (umz., i-Aleve) . La mayeza angenza ukopha kube kubi ngakumbi!

• Songa isihlanganisi ngobunono ngebhandishi elastiki okanye i-ACE wrap ukuze usixhase.
• Mthathe loo mntu umse kugqirha ngoko nangoko, kwiziko lonyango lwe-hemophilia, okanye kwigumbi likaxakeka esibhedlele.

Kuthekani ukuba kukho ukwenzakala entloko, esifubeni, entanyeni, okanye esiswini? (Ukwenzakala entloko, esifubeni, entanyeni, okanye esiswini)

Olu hlobo lokulimala akufuneki luthathwe lula. Luyingozi kakhulu kuba lunokubangela ukopha ngaphakathi. Ukuba umntwana uyawa, ubetha into ethile, okanye ubetha intloko yakhe, isifuba, intamo, okanye isisu sakhe nzima,Nokuba akukho ngozi ibonakalayo, fowunela ugqirha ngoko nangoko.

• Landela imiyalelo kagqirha ngokuchanekileyo. Mhlawumbi:
• Bacebisa unyango lokutshintshwa kwezinto ngokukhawuleza ekhaya .
• Baza kukuxelela ukuba umse kwigumbi likaxakeka esibhedlele ngoko nangoko, okanye ubize i-ambulensi .

Kwiimeko ezinje, ukuthatha inyathelo ngokukhawuleza kunokusindisa ubomi bomntwana.

Kunini apho kufuneka ndimse umntwana wam kwigumbi likaxakeka?

Kukho iimeko apho kungafanelekanga ukunyanga umntwana ekhaya okanye ukulinda ukubiza ugqirha. Kwimeko ezinjalo , umntwana kufuneka asiwe kwigumbi likaxakeka lesibhedlele esikufutshane ngoko nangoko, ngaphandle kokulibazisa.

Nazi ezinye zeemeko ezinjalo:

• Ukuba uyiphatha njengoko ugqirha etshilo, kodwa ukopha akupheli.
• Ukuba umntwana unentlungu ebuhlungu esiswini .
• Ukuba umchamo womntwana ujika ube bomvu okanye ube nombala weti (oku kungaba luphawu lokopha ngaphakathi).
• Ukuba umntwana wakho unegazi kwindle yakhe, okanye ukuba indle yakhe imnyama mnyama (njengetha).
• Ukuba umntwana uneentloko ezibuhlungu kakhulu, ukuhlanza, isiyezi, okanye ukudideka (oku kungaba luphawu lokopha ngaphakathi kwengqondo).
• Ukuba umntwana usengozini enkulu (umz., ukuwa kwindawo ephakamileyo, ingozi yemoto).

Ukuba umntwana wakho unezinye zezi mpawu, mse kwigumbi likaxakeka lesibhedlele esikufutshane ngokukhawuleza, ngaphandle kokulibazisa. Ukwenza izinto ngokukhawuleza ngamaxesha anjalo kubaluleke kakhulu kwimpilo yomntwana.

Umyalezo Wokuya Ekhaya

Kulungile, ngoko ke ekugqibeleni masikukhumbuze ngezinye zezinto esithethe ngazo esicinga ukuba ziya kuba zibalulekile kuwe.

• I-Hemophilia yimeko apho igazi lomntwana lingajiyi kakuhle. Nangona kunjalo, oku kunokulawulwa ngokulawulwa ngokufanelekileyo.
• Kubaluleke kakhulu ukuba wazi ukuba wenze ntoni xa ufumana ukopha. Kwakhona, qiniseka ukuba amanye amalungu osapho lwakho (iqabane lakho, abantwana abadala, ootatomkhulu noomakhulu) ayayazi le nto.
• Gcina ubudlelwane obuhle nogqirha onyanga umntwana wakho. Ungoyiki ukubuza nayiphi na imibuzo okanye iinkxalabo onazo. Sebenzisana nogqirha ukuze uyile isicwangciso sonyango lomntwana wakho.
• Gcina izinto ezifunekayo ekhaya rhoqo , ezifana nezinto ezisetyenziswa ekucoceni izinto, i-sterile gauze, kunye neebhandishi.
• Ungaze ungathandabuzi ukubiza ugqirha okanye ukuya esibhedlele, ingakumbi ukuba unamathandabuzo okanye uloyiko ngento ethile.
• Okokugqibela, awuwedwa.Iqela lezempilo, kuquka oogqirha, abahlengikazi, kunye neengcali kumaziko onyango lwe-hemophilia, lihlala likulungele ukukunceda nokukukhokela wena nomntwana wakho.

Ukuphila ne-hemophilia kunokuba nzima, kodwa qiniseka ukuba ngolwazi olufanelekileyo, inkathalo, kunye nonyango olufike ngexesha elifanelekileyo, umntwana wakho unokuphila ubomi obonwabisayo, obusebenzayo, nobanelisayo njengaye nawuphi na umntwana.

I- Hemophilia, ukopha, impilo yabantwana, uncedo lokuqala, ukujiya kwegazi, unyango olungxamisekileyo