Ngaba uhlala ugula? Okanye uziva ngathi uyosulela ngakumbi kunabanye abakungqongileyo? Ukuba unomkhuhlane kodwa kuthatha ixesha elide ukuba uphile, musa ukuwuthatha njengento eqhelekileyo. Kusenokwenzeka ukuba inkqubo yokuzikhusela yomzimba wakho, inkqubo yokuzikhusela, ibuthathaka kancinci. Namhlanje siza kuthetha ngesihloko abantu abaninzi abangasaziyo, kodwa sibaluleke kakhulu. Eso siSifo sokungakhuseleki kwiMpilo esiPhambili (PIDD).
Yintoni iPrimary Immunodeficiency?
Ngamafutshane, inkqubo yomzimba wethu yokuzikhusela ifana nomkhosi okhusela ilizwe. Umsebenzi walo mkhosi kukusikhusela kwizifo ngokulwa nabahlaseli bamanye amazwe, njengeebhaktheriya kunye neentsholongwane.
Khawucinge nje, bekuya kwenzeka ntoni ukuba amanye amajoni akulo mkhosi ebengaqeqeshwanga kakuhle, okanye ukuba ebengenazo izixhobo azifunayo? Bekuya kuba lula kakhulu ukuba iintshaba zingene kweli lizwe zize zenze ingozi, akunjalo? Kunjalo ke kumntu one-Primary Immunodeficiency Syndrome (PIDS). Kule meko, iindawo ezithile zenkqubo yakho yomzimba yokuzikhusela azisebenzi kakuhle kwasekuzalweni. Oku kuthetha ukuba ukhuselo lomzimba wakho lubuthathaka kancinci.
Ngenxa yesi sizathu, ungagula rhoqo kunabanye. Kwakhona, usenokuba nesifo esinzima okanye iingxaki ezibangelwa sisifo esidla ngokuba sincinci kwaye esizithintelayo.
Ziziphi iintlobo eziphambili zale nto?
Kukho iintlobo ezingaphezu kwama-400 zezi zifo ziphambili zokunqongophala kwamajoni omzimba. Ezinye zincinci kakhulu kwaye azikuchaphazeli kangako. Kodwa ezinye iintlobo zinokuba yingozi kakhulu, zide zibeke ubomi esichengeni. Ezinye iintlobo zibonisa iimpawu xa uzalwa, ngelixa ezinye zisenokungabonakalisi zimpawu de ube ngumntu omdala.
Apha ngezantsi kukho ezinye zeemeko eziphambili eziwela kolu didi. La magama asenokuvakala engaqhelekanga kuwe, kodwa kubalulekile ukuba uwaqaphele xa uthetha nogqirha.
| Igama leSifo | Intshayelelo emfutshane |
|---|---|
| Ukungakwazi komzimba okuguquguqukayo okuqhelekileyo (i-CVID) | Uhlobo oluqhelekileyo olubangela usulelo oluqhelekileyo. |
| I-Ataxia-telangiectasia | Imeko engachaphazeli nje kuphela inkqubo yomzimba yokuzikhusela, kodwa nenkqubo yemithambo-luvo. |
| Isifo se-granulomatous esingapheliyo (CGD) | Imeko apho iiseli zomzimba ezikhusela umzimba zingakwazi ukutshabalalisa iintsholongwane ezithile. |
| Isifo sikaDiGeorge | Imeko yemfuza ekhoyo ekuzalweni inokuchaphazela inkqubo yomzimba yokuzikhusela kunye nentliziyo. |
| Ukunqongophala kwe-IgA ekhethiweyo | Imeko eqhelekileyo apho iproteni ethile kwinkqubo yomzimba yokuzikhusela incipha khona. |
| Ukungakwazi komzimba okudibeneyo okunamandla (i-SCID) | Yimeko embi kakhulu le. Ingabulala ukuba ayinyangwa ngokukhawuleza. |
Ngaba zonke izifo ezibangelwa kukungasebenzi kakuhle kwamasosha omzimba zizalwa nazo?
Hayi. Lo ngumbuzo obaluleke kakhulu. Ukusilela kwamasosha omzimba esithetha ngawo ukuza kuthi ga ngoku ngulowo uzalwa nawo, obangelwa zizizathu zemfuza.
Nangona kunjalo, kukho olunye uhlobo olubizwa ngokuba yiSecondary Immunodeficiency . Oku kwenzeka emva kokuba uzelwe, ngenxa yesinye isifo, okanye ngenxa yamayeza owasebenzisayo. Nangona le yimeko eyahlukileyo ngokupheleleyo, iimpawu zinokufana kakhulu.
Into ebalulekileyo kukuba ukungabikho komntwana okuphambili yingxaki yemfuza ebakho xa umntwana ezalwa. Ukungabikho komntwana okwesibini kukusilela komzimba ngenxa yesinye isizathu esenzeka kamva.
Makhe sijonge ukuba yintoni enokubangela ukungakwazi komzimba ukuzikhusela komzimba okwesibini.
| Izizathu zokunqongophala kwe-immunodeficiency yesibini | |
|---|---|
| Iimeko zonyango | Amayeza kunye nonyango |
| - Isifo seswekile kunye nezinye izifo zokuzikhusela komzimba - I-HIV kunye ne-AIDS - Ezinye iintlobo zomhlaza - Isifo sesibindi - Ukungondleki kakuhle | - Izinto ezithintela amasosha omzimba - Ii-Corticosteroids - I-Chemotherapy yomhlaza - Unyango ngemitha |
Ukuba ndicinga ukuba ndinale meko, zeziphi iimpawu ekufuneka ndizijonge?
Kulungile, ngoku mhlawumbi ucinga, "Owu, andazi ukuba nam ndinayo into efana nale." Makhe sijonge ukuba zeziphi iimpawu eziphambili. Ukuba unempawu enye okanye ezimbini kwezi akuthethi ukuba unesi sifo. Kodwa ukuba unezinye zazo rhoqo, ngokuqinisekileyo kungcono ukubona ugqirha kwaye ufumane ingcebiso.
- Ukugula rhoqo kunabanye: Ukuba ugula ngokukhawuleza kunabo bakungqongileyo.
- Isifo esithatha ixesha elide ukuba siphinde siphile: Nokuba ngumkhuhlane oqhelekileyo ohlala iiveki.
- Ukuthatha amayeza okubulala iintsholongwane ixesha elide: Ukuthatha amayeza okubulala iintsholongwane kangangeeveki, nokuba usulelo lwebhaktheriya oluhlala luphela emva kweentsuku ezimbalwa.
- Udaka olukhulu.
- Ii-lymph nodes ezivuvukileyo.
- Ukwehla kobunzima ngendlela engachazekiyo okanye, kwimeko yomntwana, ukukhula okukhawulezileyo.
- Ukuphazamiseka kwesisu rhoqo kunye norhudo.
- Xa unikwa isitofu esiphilayo, iziphumo ebezingalindelekanga zinokwenzeka ngakumbi kunezinye.
Amaxesha amaninzi, abantu abanezi meko baqala ukuba neempawu ngaphambi kokuba bafikelele kwiminyaka engama-20 ubudala. Nangona kunjalo, zinokuvela nangaliphi na ixesha ebomini.
Kutheni kusenzeka into enje?
Njengoko besitshilo ngaphambili, eyona nto ibangela ukunqongophala kwamasosha omzimba kukutshintsha kwezakhi zofuzo. Njengokuba intsholongwane encinci kwinkqubo yekhompyutha inokuhlala ihleli, utshintsho kwizakhi zofuzo, isicwangciso esisisiseko somzimba wethu, lubangela ukuba inkqubo yomzimba yokuzikhusela ingaphuhli okanye isebenze kakuhle.
Yingakho inkqubo yomzimba yokuzikhusela:
- Ingabonisa ukusebenza okuphantsi kunesiqhelo.
- Ezinye iintlobo ezibalulekileyo zeeseli zisenokuba azikho.
- Isenokuba ayisebenzi kwaphela.
Asikuko oku okwenzekileyo okanye nantoni na engaphaya kwamandla akho. Oku kubangelwa lutshintsho lwemfuza olwenzeka ngaphambi kokuba uzalwe.
Ezi meko zihlala zisenzeka kwiintsapho. Oku kuthetha ukuba ukuba abazali bakho okanye abantakwenu banale meko, nawe usengozini yokuba nayo. Ezi meko zixhaphake kakhulu kumadoda.
Ugqirha uyifumana njani le nto?
Xa usiya kugqirha, uza kuqwalasela izinto ezininzi ukuze abone ukuba unale meko.
1. Imbali yakho yezonyango: Uza kubuzwa malunga nazo naziphi na izifo osandul’ ukuba nazo kunye nokuba ugula kangaphi.
2. Uvavanyo lomzimba: Uza kunikwa uvavanyo lomzimba olupheleleyo.
3. Iimpawu zakho: Buza malunga nokungonwabi okuvayo.
4. Imbali yosapho lwakho: Buza ukuba kukho umntu kusapho lwakho okhe waba nale meko.
Emva koko, kunokwenziwa iimvavanyo ezininzi ukuqinisekisa isifo.
| Uvavanyo | Ngamafutshane, nantsi into oyenzayo... |
|---|---|
| Uvavanyo lwegazi | Bayajonga ukuba kukho na usulelo emzimbeni kwaye bajonga ukuba inani leeseli zomzimba linjani. |
| Uvavanyo lwemfuza | Uvavanyo luyenziwa ukuze kubonwe ukuba kukho utshintsho kwimfuza olunokubangela esi sifo. |
| I-flow cytometry | Uvavanyo olukhethekileyo olubala iintlobo zeeseli zomzimba kwisampulu yegazi lakho kunye nokuba zingaphi kuzo. |
Zithini iindlela zonyango zoku?
Unyango luxhomekeke kuhlobo lokungabikho komzimba ofanelekileyo onalo. Ugqirha wakho uza kukuxelela iindlela ezilungileyo zokuthintela nokulawula usulelo.
Iindlela eziphambili zonyango ezisetyenziswayo zezi:
- Ii-antibiotics ngamayeza anikwa ukuthintela okanye ukunyanga usulelo lweentsholongwane.
- Amayeza okulwa neentsholongwane kwiintsholongwane.
- Unyango lwe-IVIG: Oku kuquka ukufaka umzimba wakho ngee-antibodies ezivela kubantu abaphilileyo. Kufana nokongeza iqela elitsha lamajoni aqeqeshiweyo kumkhosi womzimba wakho. Oku kwandisa amandla akho okuzikhusela okwethutyana.
- Ukufakelwa kweeseli zesiqu: Olu lunyango lwabantu abaneengxaki ezinzima kakhulu. Kule meko, iiseli zesiqu ezithathwe kumntu ophilileyo zifakwa kwisigulana, ngenjongo yokwakha inkqubo entsha yokuzikhusela yomzimba esempilweni.
- Unyango lwe-gene: Olu lunyango olutsha olusaphuhliswayo. Luzama ukulungisa i-gene enesiphene okanye luyitshintshe nge-gene ephilileyo.
Ndifanele ndimbone nini ugqirha?
Wonke umntu uyagula ngamanye amaxesha. Yinto eqhelekileyo leyo. Kodwa ngubani owazi umzimba wakho ngcono kunawe? Ukuba uziva ngathi, "Kukho into engalunganga, ndihlala ndigula," musa ukuyityeshela loo mvakalelo. Bona ugqirha ngoko nangoko.
Kwakhona, ukuba sele unyangelwa le meko,
- Ukuba uvakalelwa kukuba ukuthatha amayeza akuncedi
- Ukuba unesifo somkhuhlane okanye olunye usulelo
Yazisa ugqirha wakho ngoko nangoko. Uza kukunika imiyalelo efunekayo ukuthintela iingxaki.
Uphila njani kwimeko efana nale?
Ukuphila nale meko kunokuba nzima. Kufuneka uqaphele izifo zosulelo ngalo lonke ixesha. Kusenokufuneka uthathe amayeza ubomi bakho bonke. Kodwa awuwedwa. Ugqirha wakho, usapho, kunye nabahlobo bakho banokukunceda.
Kukho izinto ezimbalwa ezilula onokuzenza ukuthintela usulelo:
- Hlamba izandla zakho ngesepha rhoqo. Oku kubaluleke kakhulu ngaphambi kokutya nasemva kokusebenzisa indlu yangasese.
- Fumana imigonyo ecetyiswe ngugqirha wakho ngexesha.
- Ukulala ngokwaneleyo .
- Ukulandela ukutya okunempilo nokulinganisekileyo .
- Ukuhlala usenza umthambo kangangoko unako.
Abantu obathandayo nabo banokukunceda ekukhuseleni. Xelela usapho lwakho kunye nabahlobo bakho ngale nto. Ukuba banomkhuhlane okanye esinye isifo, bacele ukuba bakuxelele ngaphambi kokuba beze kukubona. Ngale ndlela, ungazikhusela ekuguleni.
Ukuphila nemeko efana nale kunokuba nzima ngamanye amaxesha. Kodwa khumbula, le yinxalenye nje yempilo yakho. Ayichazi ukuba ungubani.
Umyalezo Wokuya Ekhaya
- I-Primary immunodeficiency (PIDD) bubuthathaka bokuzalwa, obuvela kwimfuza kwinkqubo yomzimba yokuzikhusela.
- Uphawu oluphambili lusulelo oluhlala luhleli, oluqatha, okanye oluhlala ixesha elide.
- Ukuba wena okanye umntwana wakho unezinye zezi mpawu, kubaluleke kakhulu ukufuna ingcebiso kagqirha kunokuba uzithathe njengento "enjalo nje."
- Ngokuchongwa ngokuchanekileyo kunye nolawulo olufanelekileyo, ungaphila ubomi obuhle xa unesi sifo.
- Esi sifo siyinxalenye nje yobomi bakho, asichazi ubuwena bakho.
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