Xa ugqirha wakho ekubhalela isitofu sokugonya esibizwa ngokuba yiRavulizumab (esifumaneka kakhulu phantsi kwegama le-ULTOMIRIS), kuyinto eqhelekileyo ukuba nemibuzo emininzi. Eli liyeza elikhethekileyo kakhulu, kodwa elinamandla kakhulu. Eli asiloyeza lomkhuhlane okanye umkhuhlane oqhelekileyo. Ngoko ke ndiza kuthetha ngalo ngendlela elula onokuyiqonda.
Ukuchaneka, loluphi uhlobo lweyeza iRavulizumab?
Ngamafutshane, iRavulizumab liyeza elilawula inkqubo engaqhelekanga eyenzeka kwinkqubo yethu yokuzikhusela yomzimba. Ngamanye amaxesha inkqubo yethu yokuzikhusela iba namandla kakhulu ize iqale ukuhlasela iiseli zethu eziphilileyo. Ngamaxesha anjalo, eli yeza linceda ukulawula loo msebenzi ungafunekiyo.
Le yiklasi ekhethekileyo yamayeza abizwa ngokuba yi -monoclonal antibodies . Oko kukuthi, yiproteni eyenziwe kwilebhu kusetyenziswa ubuchwepheshe obukhethekileyo. Njenge-homing missile, iya kwindawo echanekileyo yengxaki emzimbeni ize iyilawule.
Oogqirha basebenzisa eli yeza ukunyanga iimeko ezininzi eziphambili:
- I-Atypical Hemolytic Uremic Syndrome (aHUS): Le yimeko apho iiseli ezibomvu zegazi ziqhekeka khona kwaye kwakheka amahlwili egazi kwimithambo yegazi emincinci, nto leyo ebangela iimeko ezifana ne -anemia .
- I-Paroxysmal Nocturnal Hemoglobinuria (PNH): Le yimeko equka ukutshatyalaliswa kweeseli ezibomvu zegazi.
- I-Myasthenia Gravis : Esi sisifo semithambo-luvo kunye nemisipha. Sibangela ukuba izihlunu zibe buthathaka ngokukhawuleza kwaye zibangele ukudinwa.
- I-Neuromyelitis Optica Spectrum Disorder (NMOSD): Kwesi sifo, imithambo-luvo emehlweni nasemgogodleni iyavuvukala.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba usebenzise eli yeza
Kulungile, ngoku ngaphambi kokuba akunike eli yeza, ugqirha uza kukubuza imibuzo embalwa. Kodwa kukho izinto ezimbalwa ekufuneka uzitsho ngokuqinisekileyo. Kuba ukhuseleko lwakho lolona nto ibalulekileyo.
- Ngaba unazo naziphi na izifo okwangoku? Xelela ugqirha wakho ngazo naziphi na izifo, ezinje ngomkhuhlane, ukukhwehlela, okanye umkhuhlane .
- Ngaba unayo nayiphi na i-allergies?Ukuba une-allergies kule mithi yeRavulizumab okanye naliphi na elinye iyeza, ukutya, okanye idayi, qiniseka ukuba uyasixelela.
- Ukhulelwe? Okanye ulindele umntwana? Thetha nogqirha wakho ngale nto ngokukhululekileyo.
- Ingaba ungumama oncancisayo? Kubaluleke kakhulu ukwazisa ugqirha ngale nto.
Musa ukuyifihla le ngcaciso. Ugqirha uza kumisela unyango olufanelekileyo nolukhuselekileyo kuwe ngokusekelwe kulwazi oluchanekileyo olunikileyo.
Eli yeza linikwa njani emzimbeni?
Le ayisiyo pilisi okanye isiraphu onokuyithatha ekhaya. Le yinaliti oyifumana emthanjeni. Ngoko ke uya kufumana olu nyango esibhedlele okanye eklinikhi. Ugqirha okanye umongikazi oqeqeshiweyo uza kukunika lona.
- Incwadana yeMedGuide: Ngaphambi kweseshoni nganye yonyango, uya kunikwa incwadana ekhethekileyo (i-`MedGuide`) equlethe ulwazi malunga nale yeza. Yifunde ngononophelo kwaye ungoyiki ukubuza nayiphi na imibuzo onokuba nayo.
- Ukusetyenziswa ebantwaneni: Usenokuba uzibuza ukuba ingaba oku kunokunikwa abantwana abancinci na. Ewe, kunokusetyenziswa kwiintsana ezingaphantsi kwenyanga enye kwiimeko ezithile zonyango. Kodwa kufuneka kwenziwe ngononophelo olukhulu naphantsi kweliso lengcali.
- Ukuba ugqithisile amayeza: Ukuba ucinga ukuba unikwe amayeza amaninzi kakhulu, kuya kufuneka uye kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele ngoko nangoko . Okanye utsalele umnxeba iZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo ukuze ufumane ingcebiso.
- Musa ukwabelana: Eli yeza limiselwe wena kuphela. Ungaze wabelane ngalo nabanye.
Izinto ekufuneka uzilumkele xa usebenzisa amayeza
Kufuneka ulumke kancinci xa usebenzisa eli yeza.
- Bona ugqirha wakho rhoqo: Ugqirha wakho uza kukujonga rhoqo ukuze abone ukuba iimpawu zakho ziyaphucuka okanye ziyanda. Qiniseka ukuba uyahamba ngaloo mihla.
- Lumka malunga nosulelo: Le yeyona nto ibalulekileyo. Umngcipheko wakho wokufumana usulelo unokwanda kancinci ngelixa usebenzisa eli yeza. Ngoko ke, ukuba uneempawu ezifana nomkhuhlane, ukugodola, iintlungu zomzimba, umphimbo obuhlungu, okanye ukuphola kancinci kwenxeba, musa ukuya kuzithengela amayeza . Fowunela ugqirha wakho ngoko nangoko uze ufumane ingcebiso. Kwakhona, nciphisa ukuya kwiindawo apho abantu bagula khona.
- Iigonyo: Ukuze unciphise umngcipheko wokosuleleka, ugqirha wakho unokucebisa ukuba ufumane iigonyo ezithile ngaphambi kokuba uqale olu nyango.
- Ikhadi leWallet yesigulana:Uza kunikwa ikhadi elikhethekileyo (`Ikhadi leSipaji seSigulana`). Ligcine kuwe ngamaxesha onke . Libonise nokuba uya komnye ugqirha. Liqulethe ulwazi malunga nemiphumo emibi enokubakho ngeli yeza.
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengalo naliphi na iyeza, iRavulizumab inokubangela iziphumo ebezingalindelekanga kwabanye abantu, kodwa ayinguye wonke umntu ozifumanayo. Eyona nto ibalulekileyo kukuxelela ugqirha wakho ukuba ubona into engaqhelekanga.
| Uhlobo lwesiphumo esibi | Inkcazo |
|---|---|
| Iziphumo ebezingalindelekanga ekufuneka zixelwe kugqirha wakho ngoko nangoko | |
| Iimpendulo ze-allergy | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi okanye umqala. |
| Iimpawu zeMeningitis | Umkhuhlane, iintlungu zentamo okanye ukuqina, ubunzima bokubona ukukhanya, intloko ebuhlungu kakhulu, isicaphucaphu, ukuhlanza, ukudideka. |
| Usulelo | Umkhuhlane, ukubanda, ukukhohlela, umphimbo obuhlungu, amanxeba angapholiyo, iintlungu xa uchama, kunye nokungonwabi komzimba. |
| Iimpendulo zokufakwa | Intlungu esifubeni, ubunzima bokuphefumla, ukuquleka. |
| Uxinzelelo lwegazi oluphantsi | Ukudinwa, ukuquleka, ukubona izinto ezingaqondakaliyo. |
| Iziphumo ebezingalindelekanga ekufuneka zixelwe kugqirha ukuba ziyaqhubeka | |
| Iziphumo ebezingalindelekanga eziqhelekileyo | Urhudo, umkhuhlane, intloko ebuhlungu, isicaphucaphu, ukuhlanza. |
Ngaba eli yeza lingadibana namanye amayeza?
Ewe, amanye amayeza anokuchaphazela oku. Umzekelo, amayeza afana ne-'Efgartigimod' kunye ne-'Immune globulin (IVIG)'.
Ngoko ke, xelela ugqirha wakho ngawo onke amayeza owasebenzisayo - nokuba ngawezinye iimeko, iivithamini, amayeza esintu, okanye izongezo. Kwakhona, xelela ugqirha wakho ukuba uyatshaya okanye usela utywala.
Umyalezo Wokuya Ekhaya
- I-Ravulizumab liyeza elikhethekileyo elinikwa umthambo esibhedlele. Lisetyenziselwa ukunyanga izifo ezininzi ezinzulu.
- Ngaphambi kokuba uqale unyango, xelela ugqirha wakho ngazo zonke iimeko zakho zempilo, ii-allergies, kunye nazo zonke ezinye iziyobisi ozisebenzisayo.
- Qaphela ngakumbi iimpawu zosulelo (ezifana nomkhuhlane, umphimbo obuhlungu) ngelixa usebenzisa eli yeza. Ukuba oku kuyenzeka, funa ingcebiso kagqirha ngokukhawuleza.
- Hlala ugcina i-'Patient Wallet Card' oyinikiweyo.
- Ungaphoswa ziintlanganiso zonyango ezicwangcisiweyo. Ukuba awukwazi ukuya, nceda wazise ugqirha okanye ikliniki kwangaphambili.
- Ukuba unemibuzo, iinkxalabo, okanye iinkxalabo malunga nale mithi, ungoyiki ukuyixoxa nogqirha wakho.
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